RE: aba coverage : self funded : federally regulated ..NJ ..Help

[Guest guest]

Most insurances don't cover it. Even those that do --I think the cut off is

age six or maybe ten. I know when my son was little no one covered it, and

the schools weren't using it, though even then it was one of the few

research based methodologies.

I finally bought " Behavioral Interventions for Young Children with Autism, "

read this book, and developed our own home program. My son made great gains

using this book. It was a Godsend. We still use the concepts in this book

to teach difficult objectives and to address behavior. I know I was blessed

to be able to stay home with him and do it.

Hopefully someone on this list knows if things have gotten better regarding

insurance and covering ABA. We still can't get insurance to cover PT, OT,

and speech! It is a shame our children can't get the services they need

when they need them.

[Guest guest]

Hi All,

Wanted to let u all know that starting this year my insurance company covers

Autism.

Cigna was actually looking into the state mandated law.  This is great news. 

Which means ABA will be covered.  This was not covered last year.  

I casually checked with my insurance and voila!!!.  You guys might want to chk

with your insurance companies also.   

3yrs old ASD ... will start cheltion soon

From: personalcargo@... <personalcargo@...>

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..Help

lesliemom99@...

Date: Wednesday, 15 December, 2010, 5:00 AM

you should be able to tap into aba services via early intervention.  

where do you live?

i always call senator kean's office when i get in a pickle....meeting with

children's emergency fund...forward you along when i catch up with them....but

all $$$ has to come out of your child's name and apparently we can get medicaid.

 but school/IEI should provide ABA....you have to get really LOUD and support

from neurologists go a long way.

lisa

[Guest guest]

Thats great! My husband insurance changed on the first of the year to Cigna. We

don't have a DX for Autism only for global development delays although

the developmental pediatrician noted that she demonstrated patterns of

communicating/behavior that were consistent with the dx of autism on her

evaluation. Did you have to provide any paperwork for the ABA to be covered?

Thanks,

Mom to Sieanna 30 month old

 

________________________________

From: Mom <lesliemom99@...>

personalcargo@...

Sent: Sun, January 30, 2011 9:04:54 PM

Subject: [ ] Re: aba coverage : self funded : federally regulated

...NJ ..Help

 

Hi All,

Wanted to let u all know that starting this year my insurance company covers

Autism.

Cigna was actually looking into the state mandated law.  This is great news. 

Which means ABA will be covered.  This was not covered last year.  

I casually checked with my insurance and voila!!!.  You guys might want to chk

with your insurance companies also.   

3yrs old ASD ... will start cheltion soon

From: personalcargo@... <personalcargo@...>

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..Help

lesliemom99@...

Date: Wednesday, 15 December, 2010, 5:00 AM

you should be able to tap into aba services via early intervention.  

where do you live?

i always call senator kean's office when i get in a pickle....meeting with

children's emergency fund...forward you along when i catch up with them....but

all $$$ has to come out of your child's name and apparently we can get medicaid.

 but school/IEI should provide ABA....you have to get really LOUD and support

from neurologists go a long way.

lisa

[Guest guest]

Make sure. I'm in VA and have UnitedHealthcare who say they cover Autism but the

therapies covered are only ST and PT only. I'm currently trying to drop them but

company is giving me a hard time.

I've checked around and found that Aetna will cover ABA, ST, OT and PT; I'm told

it is 80-100% but I need to verify.

S

Sent from my iPhone

On Jan 30, 2011, at 10:04 PM, Mom <lesliemom99@...> wrote:

>

> Hi All,

> Wanted to let u all know that starting this year my insurance company covers

Autism.

> Cigna was actually looking into the state mandated law. This is great news.

> Which means ABA will be covered. This was not covered last year.

> I casually checked with my insurance and voila!!!. You guys might want to chk

with your insurance companies also.

>

> 3yrs old ASD ... will start cheltion soon

>

>

>

> From: personalcargo@... <personalcargo@...>

> Subject: Re: aba coverage : self funded : federally regulated ..NJ ..Help

> lesliemom99@...

> Date: Wednesday, 15 December, 2010, 5:00 AM

>

> you should be able to tap into aba services via early intervention.

>

> where do you live?

>

> i always call senator kean's office when i get in a pickle....meeting with

children's emergency fund...forward you along when i catch up with them....but

all $$$ has to come out of your child's name and apparently we can get medicaid.

but school/IEI should provide ABA....you have to get really LOUD and support

from neurologists go a long way.

>

> lisa

>

>

[Guest guest]

,

How old is your kiddo? The reason you haven’t heard of is because Dr.

Goldberg often critical of the DAN doctors who do not follow his protocol and as

a result some doctors don’t like him. He was the answer for many ( including

my son) who do the behavioral and educational interventions to catch their kids

up on what they missed while they were ill.

He never trained others in his methods, maybe because it is different for every

child and difficult to teach another doctor how to do. And there are some

children whose immune issues are more compromised so not everyone recovers, but

they all seem to improve medically.

If he would have trained doctors many years ago like many of us parents

requested, I think it would have been instead of DAN. He treats every

child individually for their medical issues. Dr G is a genius medically.

Although he recovered my kid and I will always be grateful, he is sometimes

difficult to deal with personally. Dr Bruce also treats children for

.

If you are even considering seeing Dr. Goldberg or Dr. , you should call

their offices to get on the waiting list. Dr Goldberg is in Tarzana, CA (818)

343-1010. Dr. has a clinic in Port Arkansas, Texas. 361-749-1930. (His

own child who is on the spectrum sees Dr. Goldberg) Dr also visits a

clinic in New York several times a year. The director of the Northern New York

Clinic is Kathy on and she is wonderful. The number of the New York

clinic is 315-773-5405. Their website is http://www.nnyautismcenter.com All the

clinics are great, pick the one that is closest to you.

FYI—Dr Goldberg has a book coming out in mid February. I predict it will be

much harder to get in after it comes out. Here is a link to it:

http://www.amazon.com/Myth-Autism-Misunderstood-Epidemic-Destroying/dp/161608171\

6

I will forward two emails to you privately to give you more information to help.

Best,

Marcia

From: Mom [mailto:lesliemom99@...]

Sent: Tuesday, February 01, 2011 8:40 AM

and Marcia Hinds

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..Help

Hi and Hinds,

Sorry sent it to the whole group with realizing.

Your story is very inspiring . Thanks for this great mail.

I loved the pains you took to writing this email. All this a few years ago. That

must be something. I am so happy for you and your son.

I feel my son is intelligent and smart. He has something in him that is stopping

him from doing things. I had always suspected worms or something. When I told my

ped, she was like are you crazy.

What is ?

May I know what did you do medically. We just ran a few blood test specified in

the scia files(immune).

Waiting for the results.

Thanks so much.

3yrs old ASD ... will start cheltion soon

From: and Marcia Hinds <hindssite@...>

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..Help

lesliemom99@..., mb12 valtrex

Date: Monday, 31 January, 2011, 3:50 PM

Please don’t exhaust other options before chelating. I know I’m going to be

blasted by others on this list for saying that, but I can’t in good conscience

watch a child possibly have negative consequences from not speaking up

especially when there are so many other options to try first.. I was just told

by another mom about a kid who was chelated and died as a result. This

doctor’s credentials are being looked into and who knows if things were done

right. But this can be dangerous. And our doctor says the damage from

chelation can be seen on brain neurospects.

My son is recovered and in college at 22 as a result of the protocol.

Please know your son can get better with proper medical treatment and then

rehabilitation. No parent should accept that their child cannot be helped. We

treated with antivirals on the protocol. Maybe he has the XMRV

retrovirus, and it was addressed by using the antivirals and other things we did

to help his immune problem. I don’t know the answer to that question.

However, is living proof that kids can get better.

was diagnosed when he was four years old. A psychiatrist who was the

leading authority on autism said my child would never be okay. According to

this expert, was going to end up in an institution or group home. Now at

22, the only institution attends is a University where he studies

mechanical engineering on a merit scholarship. excels academically and is

in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi

Fraternity and was president of the Jewish Student Association. And he just

received a NASA paid internship and scholarship. But more importantly, is

a typical college student who drinks an occasional beer, goes on dates, stays

out too late with friends and then sleeps through eight o’clock classes. I

couldn’t be more proud!

Unbelievable as it seems, this is the same child who wanted to spend all day,

every day, plugging in a portable radio into each outlet in the house. Back

then, I wasn’t sure if I had the strength to be more stubborn than my son.

There were mornings I didn’t want to get out of bed to face another day filled

with autism. The worst times were when I didn’t have a direction or a plan. I

was hanging onto my sanity by my fingernails. But, at the end of the day, I was

faced with a choice: let drift off forever into his own world, or drag him

kicking and screaming into ours.

Now it may look like we knew what we were doing back then. But we didn’t. It

was trial and error to see what worked to help him. After we helped

medically, it was possible for him to learn. Behavioral and educational

interventions were used in conjunction with the medical treatment to catch

up on everything he missed. Initially, we used Applied Behavior Analysis (ABA)

for his rehabilitation and when he was ready we moved towards more natural ways

of teaching. It took years to correct ’s deficits in speech and social

skills. It was almost like taking a stroke victim and bringing them back. Our

story is not about coping with autism, but rather fighting back and not

accepting the misconceptions associated with this diagnosis. This process is

definitely not for sissies or parents looking for that magic cure. If you would

like more info on what we did medically, please email me privately.

Hope this helps,

Marcia