Guest guest Posted July 7, 2012 Report Share Posted July 7, 2012 I have recently been to 2 LLMDs.. one in Northern California and the other in Southern California.One used Igenex the other used Medical Diagnostic Laboratories.The results were completely different. Some had positives where the other said negative and the other had negatives where the other has positives... Very frustrating!I can't retest because it was so expensive but may try one more lab called Imminosciences to see if anything matches.Has this been the case for anybody else?How accurate are these labs?Thank you.. I'm new to this group and this diagnosis but have had Lyme for at least 18 years.GG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2012 Report Share Posted July 7, 2012 I see Drs in northern cal too and Igenix lab and frye i think are the only two labs with accurate testing. Id be interested in seeing what dr you see and maybe we live near each other. So hard to find friends near with same illness. Do you have yahoo chat? To: Lyme_and_Rife Sent: Friday, July 6, 2012 4:47 PM Subject: Test Results I have recently been to 2 LLMDs.. one in Northern California and the other in Southern California.One used Igenex the other used Medical Diagnostic Laboratories.The results were completely different. Some had positives where the other said negative and the other had negatives where the other has positives... Very frustrating!I can't retest because it was so expensive but may try one more lab called Imminosciences to see if anything matches.Has this been the case for anybody else?How accurate are these labs?Thank you.. I'm new to this group and this diagnosis but have had Lyme for at least 18 years.GG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 Hi GG, I do know that my LLMD told me that before I test using the Western Blot that I should treat for Lyme for about 2 months in order to get a positive result. What actually happens with that particular test is that it test for the antibodies to Lyme made by your own immune system. If your immune function is so compromised that it is no longer making antibodies, then you will get a negative test, even though you may be extremely sick. Sometimes the sickest people come up as negative on the western blot. IMHO on the other hand, if the test from Medical Diagnostics lab uses a different criteria then antibodies, I could see how it could yield a different result. Particularly if it looks for the actual spirochete in the blood. If you have treated for a couple of months, you might have killed the active spiros in the blood which is the pathway that is most vulnerable to abx herbals or even some rife machines yielding a negative test on one test, but raising the immune function enough to have a presence of antibodies, creating a positive test on the Western Blot. if that makes sense. Unfortunately, dead spiros in the blood does not equate to a cure since Lyme loves the Lymphatic system and the brain. I don't claim to know what the Medical Diagnositics lab tests, but I am just giving an opinion or scenario as to why your test may have had such differing results. Of course I tend to think outside the box and most of the Medical establishment doesn't. I would definitely do your homework and ask what exactly each one of these tests test! That might offer an explanation to you. I know it doesn't help to convince your docs, but if you have symptoms, I would assume you have Lyme and the easiest test in the world is to run 432 the preferred frequency for Lyme and see if you have any temporary diminishing of symptoms for a day or two followed by a herx or flu like symptoms. The best test would be a genetic test to see if the DNA of the Lyme spirochete is present in the body, but then again, it would not tell you if it was a miasm, something that was once present but no longer present or if it is still an active problem. I think most of these tests are probably fraught with errors depending on what they measure and the preparation prior to the test. So don't sweat a discrepancy in your tests and just assume you are positive and treat it. > > I have recently been to 2 LLMDs.. one in Northern California and the other in Southern California. > > One used Igenex the other used Medical Diagnostic Laboratories. > > The results were completely different. Some had positives where the other said negative and the other had negatives where the other has positives... Very frustrating! > > I can't retest because it was so expensive but may try one more lab called Imminosciences to see if anything matches. > > Has this been the case for anybody else? > > How accurate are these labs? > > Thank you.. I'm new to this group and this diagnosis but have had Lyme for at least 18 years. > > GG > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 Hi GG, I totally agree with Sue: " don't sweat a discrepancy in your tests and just assume you are positive and treat it. " I was first diagnosed with kinesiology, and than went to my holistic MD who said " why bother with an expensive test--just start treating it! " So I've never had any " tests " and have saved a lot of money and frustration. That's not to say this hasn't been expensive and frustrating, but all the tests are notoriously inaccurate and undependable. Kinesiology may not be the best test around, but sometimes it works better in aiding a clinical diagnosis. I hope your LLMD is willing to treat you without a definitive answer on paper. Khaya > > > > I have recently been to 2 LLMDs.. one in Northern California and the other in Southern California. > > > > One used Igenex the other used Medical Diagnostic Laboratories. > > > > The results were completely different. Some had positives where the other said negative and the other had negatives where the other has positives... Very frustrating! > > > > I can't retest because it was so expensive but may try one more lab called Imminosciences to see if anything matches. > > > > Has this been the case for anybody else? > > > > How accurate are these labs? > > > > Thank you.. I'm new to this group and this diagnosis but have had Lyme for at least 18 years. > > > > GG > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 Hi Khaya,Well said!After decades of giving the allopathic institution a chance to get it right (they didn't) and many negative tests that my own instincts questioned, I finally began to Rife after being scanned by the frequencyfoundation. As a 6-year Lyme fighter, having had Lyme for 45+ years, I despair when I read posts from newbies dithering over tests: who, when, where, what bands, etc.. Tests may not be a waste of time, but they are certainly a postponement of getting on with doing SOMETHING, even if it's only going to lymestrategies and beginning the relatively inexpensive protocol of S & C that's a guaranteed killer of these pathogens. Or trying MMS, or going to canlyme.com and clinically diagnosing yourself, to get on with fighting. Time's a'wasting and there's recovery to be done! We can't wait for the establishment to get up to speed, bless 'em.Fine tuning, guided by tests for everything from heavy metals, thyroid, mineral deficiencies, etc. are all great, but it's good to start with the broad strokes. If you herx, you have an answer. If you don't herx, you're still doing something that may lessen your suspected load of pathogens, which, in turn will affect all your other co-infections and issues. You can't pull one leg of the table without the other legs coming along.I think that sometimes, people fear the definitive diagnosis and actually feel reassured that as long as their condition hasn't had the seal of allopathic approval, they MIGHT not have Lyme. This is understandable. Even after all this time, suffering and arduous progress, I still, sometimes say, 'Me? Have Lyme disease? Nahhhhh!' It's too horrible. Can't be me'. But looking back at the decades I wasted, the docs I consulted, the traction devices, neck braces, hand splints, even shopping for the right car whose seat wouldn't kill my neck, bottles and bottles of all sorts of remedies, I wish I'd accepted the possibility much earlier when a Lymie on Martha's Vineyard suggested, suspected Lyme. I wish that I'd known some simple, entry level protocols that could have started my recovery sooner, tests be-damned.Be well,Léna Hi GG, I totally agree with Sue: "don't sweat a discrepancy in your tests and just assume you are positive and treat it." I was first diagnosed with kinesiology, and than went to my holistic MD who said "why bother with an expensive test--just start treating it!" So I've never had any "tests" and have saved a lot of money and frustration. That's not to say this hasn't been expensive and frustrating, but all the tests are notoriously inaccurate and undependable. Kinesiology may not be the best test around, but sometimes it works better in aiding a clinical diagnosis. I hope your LLMD is willing to treat you without a definitive answer on paper. Khaya > > > > I have recently been to 2 LLMDs.. one in Northern California and the other in Southern California. > > > > One used Igenex the other used Medical Diagnostic Laboratories. > > > > The results were completely different. Some had positives where the other said negative and the other had negatives where the other has positives... Very frustrating! > > > > I can't retest because it was so expensive but may try one more lab called Imminosciences to see if anything matches. > > > > Has this been the case for anybody else? > > > > How accurate are these labs? > > > > Thank you.. I'm new to this group and this diagnosis but have had Lyme for at least 18 years. > > > > GG > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.