RE: was: Neuroprotek and Dr. G now: Pentasa

[Guest guest]

Hi Kathi -

Wondering how long you have been on Pentasa? I¹ve been really thinking of

stopping it to see what happens. In the past it was never good and

wondering if you child is still on it.

Any input would be appreciated.

Thank you,

Laureen

On 3/24/11 6:24 AM, " Kathi " <kathi0908@...> wrote:

>

>

>

>

>

> I¹d love to know this too; I think I¹ll email Laurie and ask her to ask Dr. G

> b/c we¹ve now been through 3 antihistimines and my son can¹t tolerate them

> (and Dr. G agreed to stop them all), so I was thinking of trying quercetin

> again b/c he needs something. The only issue with quercetin or anything that

> has it in it (e.g., neuroprotek) is that you have to be careful b/c it may

> inhibit or increase absorption of other meds metabolized by the p450 system in

> the liver (depending on the drugs used).

>

> Just fyiŠ.

>

> Riks/Side Effects

> The NeuroProtek® formulation will be covered by a Certificate of Free Sale

> from the Food and Drug Administration (FDA). This certification ensures the

> amount, purity, source and manufacturing of the ingredients are in a facility

> inspected by the FDA and fulfilling Good Manufacturing Practices (GMP). There

> are no side effects known; however, this formulation (as well as any

> flavonoids) must be used with caution with drugs that are heavily metabolized

> by the liver as it may affect the resulting blood levels of such compounds.

>

> I recall my husband telling me to be careful of quercetin last year b/c we

> were also giving my son Pentasa and when given with quercetin (he¹s a

> pharmacist, so he recalled this info.) the blood levels of quercetin or

> pentasa are affected.

>

> I¹ll post if I get an answer or ask at our next appt next week.

>

> Kathi

>

> From: <mailto:%40>

> [mailto: <mailto:%40> ] On Behalf Of

> Terri

> Sent: Thursday, March 24, 2011 10:09 AM

> <mailto:%40>

> Subject: Re: Neuroprotek and Dr. G

>

> I would love to hear any feedback on this subject as well. I have not

> broached

> it yet with Dr. G.

>

> I live in Dallas...and several folks in my network (outside of the

> protocol) are using it with some good results. One mom with a child that is

> older (early 20s) is noting that it really makes him feel better-- and is

> helping him with seasonal allergies. He is requesting it.

>

> If you read the material backing it up...it appears to be very aligned with

> the

> protocol--albeit a supplement.

>

> ________________________________

> From: and Freeman <freemanbk@...

> <mailto:freemanbk%40ns.sympatico.ca> <mailto:freemanbk%40ns.sympatico.ca> >

> <mailto:%40>

> <mailto:%40>

> Sent: Wed, March 23, 2011 9:22:31 AM

> Subject: Neuroprotek and Dr. G

>

> What does Dr. G have to say about the product neuroprotek? The website can

> be found here: http://www.algonot.com/neuroprotek.php

>

>

[Guest guest]

He’s still on it, but just 2x a day (vs. 3). Since oct 2009. There are

times we’ve taken him off of it, then we end up back on it b/c our GI wants

him on something. Funny you ask b/c I just said to my husband 5 minutes

ago…what do you think about stopping the pentasa NOW? We both never thought

it did much, but my son is a big gut kiddo and at times he has flares and

it’s always when we are thinking of stopping it.

Dr. G wants him off of it, but we’ve taken him off most things (mb 12 shots,

other supplements by mouth) and then LDN. Pentasa is next, but I have to

get him more settled with his gut. When it comes to his gut no one knows

what we’ve been through. He’s been horrendous since infancy, so we will go

slowly. I am in the midst of really discussing this with Dr. G as most of

the DAN! docs and others just kinda blew off our concerns, but they didn’t

live with a little boy who screamed, banged his head on the floor and

postured over our shoulders for hours in major pain and now that he’s 5 he

also hits his head with his fists. SIBs, I think, are the worst form of

communication that something is wrong and for Liam he can’t express his

feelings yet even tho he started to use words several months ago. We can’t

go back to that.

Would love to hear if others were a pt of Dr. krigsman or buie, etc and if

you took your child off pentasa what your thoughts are!

Laureen….just to answer tho, we will be doing this soon and I can email you

with our results;-) (say a prayer!)

Thx

kathi

From: [mailto: ] On Behalf Of

Laureen Forman

Sent: Friday, March 25, 2011 9:51 PM

Subject: Re: was: Neuroprotek and Dr. G now: Pentasa

Hi Kathi -

Wondering how long you have been on Pentasa? I¹ve been really thinking of

stopping it to see what happens. In the past it was never good and

wondering if you child is still on it.

Any input would be appreciated.

Thank you,

Laureen

On 3/24/11 6:24 AM, " Kathi " <kathi0908@...

<mailto:kathi0908%40verizon.net> > wrote:

>

>

>

>

>

> I¹d love to know this too; I think I¹ll email Laurie and ask her to ask

Dr. G

> b/c we¹ve now been through 3 antihistimines and my son can¹t tolerate them

> (and Dr. G agreed to stop them all), so I was thinking of trying quercetin

> again b/c he needs something. The only issue with quercetin or anything

that

> has it in it (e.g., neuroprotek) is that you have to be careful b/c it may

> inhibit or increase absorption of other meds metabolized by the p450

system in

> the liver (depending on the drugs used).

>

> Just fyiÐ.

>

> Riks/Side Effects

> The NeuroProtek® formulation will be covered by a Certificate of Free Sale

> from the Food and Drug Administration (FDA). This certification ensures

the

> amount, purity, source and manufacturing of the ingredients are in a

facility

> inspected by the FDA and fulfilling Good Manufacturing Practices (GMP).

There

> are no side effects known; however, this formulation (as well as any

> flavonoids) must be used with caution with drugs that are heavily

metabolized

> by the liver as it may affect the resulting blood levels of such

compounds.

>

> I recall my husband telling me to be careful of quercetin last year b/c we

> were also giving my son Pentasa and when given with quercetin (he¹s a

> pharmacist, so he recalled this info.) the blood levels of quercetin or

> pentasa are affected.

>

> I¹ll post if I get an answer or ask at our next appt next week.

>

> Kathi

>

> From: <mailto:%40>

<mailto:%40>

> [mailto: <mailto:%40>

<mailto:%40> ] On Behalf Of

> Terri

> Sent: Thursday, March 24, 2011 10:09 AM

> <mailto:%40>

<mailto:%40>

> Subject: Re: Neuroprotek and Dr. G

>

> I would love to hear any feedback on this subject as well. I have not

> broached

> it yet with Dr. G.

>

> I live in Dallas...and several folks in my network (outside of the

> protocol) are using it with some good results. One mom with a child that

is

> older (early 20s) is noting that it really makes him feel better-- and is

> helping him with seasonal allergies. He is requesting it.

>

> If you read the material backing it up...it appears to be very aligned

with

> the

> protocol--albeit a supplement.

>

> ________________________________

> From: and Freeman <freemanbk@...

<mailto:freemanbk%40ns.sympatico.ca>

> <mailto:freemanbk%40ns.sympatico.ca> <mailto:freemanbk%40ns.sympatico.ca>

>

> <mailto:%40>

<mailto:%40>

> <mailto:%40>

> Sent: Wed, March 23, 2011 9:22:31 AM

> Subject: Neuroprotek and Dr. G

>

> What does Dr. G have to say about the product neuroprotek? The website can

> be found here: http://www.algonot.com/neuroprotek.php

>

>

[Guest guest]

Funny, it's the same story for us. I had emailed Dr. Krigsman about 3

months ago to ask his opinion and he didn't think it would be a good idea.

I'm seriously considering taking him off and see what happens. His GI has

been great and we just did 2 rounds of antibiotics and that really helped

too. And as Dr. Krigsman has said that antibiotics change up the flora and

it does seem to help with IBD issues too.

Whenever he was off of it - when we ran out and Dr. K's office was closed

for a holiday it was not pretty. But I'm wondering now that he's doing so

well if we tried taking him off - what would happen. I think I'm gonna try

it and see maybe next week-end? Depends on how much we have going on too as

we will stay close to home to be safe.

One thing I recently found out as my son can now swallow capsules, I wasn't

opening it up and putting it in Applesauce, the red cheeks became apparent

so, the blue dye on the capsule definitely is not good for him. That took a

few days for me to realize this past week as I couldn't figure out what it

was.

The one thing after we started Pentasa & Zantac with my son is he started

sleeping through the night without melatonin which to me said a lot. I

always knew it was tummy/GI issues with him when he was really little. He

did grow a little and gain after starting but then plateaued again.

I'm also wondering if now would be a good time because he has recently been

diagnosed Growth Hormone deficient as I initially found out he was low due

to Dr. Krigsmans testing for GI stuff. I finally went to an Endocrinologist

and had the Stim Test done, and sure enough, it was not only GI issues that

was causing no growth and little weight gain it was low GH. So, we started

GH in June and the results have been amazing - and we have gotten some nice

cognitive gains as well so that was a bonus! I have often wondered since he

is now on GH if his GI stuff would be helped too as Dr. K said that

IBD/Chron's/Colitis can cause low GH and we never had an in depth discussion

about it as to what that actually means if it's low GH due to GI disease and

how it affects the GI. Maybe I'll schedule a phone consult as I have not

had one in over a year and it's too expensive to fly to see him for an

appointment.

When I decide to take him off, I'll certainly let you know how it goes too.

Waiting for my husband to come home today to have a talk about it and see

what he thinks. And say a prayer too!!

Thank you and if anyone else has input - it would be nice to know.

Wondering if the diet, working with the viral/immune will have effect on GI

and my gut (pun intended) says the immune system lies in the gut and brain

and we are working on all of those right now and have been for 1.5 years so

to me, GI should improve too.

Laureen

On 3/26/11 5:15 AM, " Kathi " <kathi0908@...> wrote:

> He‚s still on it, but just 2x a day (vs. 3). Since oct 2009. There are

> times we‚ve taken him off of it, then we end up back on it b/c our GI wants

> him on something. Funny you ask b/c I just said to my husband 5 minutes

> ago∑what do you think about stopping the pentasa NOW? We both never thought

> it did much, but my son is a big gut kiddo and at times he has flares and

> it‚s always when we are thinking of stopping it.

>

>

>

> Dr. G wants him off of it, but we‚ve taken him off most things (mb 12 shots,

> other supplements by mouth) and then LDN. Pentasa is next, but I have to

> get him more settled with his gut. When it comes to his gut no one knows

> what we‚ve been through. He‚s been horrendous since infancy, so we will go

> slowly. I am in the midst of really discussing this with Dr. G as most of

> the DAN! docs and others just kinda blew off our concerns, but they didn‚t

> live with a little boy who screamed, banged his head on the floor and

> postured over our shoulders for hours in major pain and now that he‚s 5 he

> also hits his head with his fists. SIBs, I think, are the worst form of

> communication that something is wrong and for Liam he can‚t express his

> feelings yet even tho he started to use words several months ago. We can‚t

> go back to that.

>

>

>

> Would love to hear if others were a pt of Dr. krigsman or buie, etc and if

> you took your child off pentasa what your thoughts are!

>

>

>

> Laureen∑.just to answer tho, we will be doing this soon and I can email you

> with our results;-) (say a prayer!)

>

>

>

> Thx

>

> kathi

>

>

>

> From: [mailto: ] On Behalf Of

> Laureen Forman

> Sent: Friday, March 25, 2011 9:51 PM

>

> Subject: Re: was: Neuroprotek and Dr. G now: Pentasa

>

>

>

>

>

> Hi Kathi -

>

> Wondering how long you have been on Pentasa? I’ve been really thinking of

> stopping it to see what happens. In the past it was never good and

> wondering if you child is still on it.

>

> Any input would be appreciated.

>

> Thank you,

> Laureen

> On 3/24/11 6:24 AM, " Kathi " <kathi0908@...

> <mailto:kathi0908%40verizon.net> > wrote:

>

>>

>>

>>

>>

>>

>> I’d love to know this too; I think I’ll email Laurie and ask her to ask

> Dr. G

>> b/c we’ve now been through 3 antihistimines and my son can’t tolerate

them

>> (and Dr. G agreed to stop them all), so I was thinking of trying quercetin

>> again b/c he needs something. The only issue with quercetin or anything

> that

>> has it in it (e.g., neuroprotek) is that you have to be careful b/c it may

>> inhibit or increase absorption of other meds metabolized by the p450

> system in

>> the liver (depending on the drugs used).

>>

>> Just fyi‹.

>>

>> Riks/Side Effects

>> The NeuroProtek® formulation will be covered by a Certificate of Free Sale

>> from the Food and Drug Administration (FDA). This certification ensures

> the

>> amount, purity, source and manufacturing of the ingredients are in a

> facility

>> inspected by the FDA and fulfilling Good Manufacturing Practices (GMP).

> There

>> are no side effects known; however, this formulation (as well as any

>> flavonoids) must be used with caution with drugs that are heavily

> metabolized

>> by the liver as it may affect the resulting blood levels of such

> compounds.

>>

>> I recall my husband telling me to be careful of quercetin last year b/c we

>> were also giving my son Pentasa and when given with quercetin (he’s a

>> pharmacist, so he recalled this info.) the blood levels of quercetin or

>> pentasa are affected.

>>

>> I’ll post if I get an answer or ask at our next appt next week.

>>

>> Kathi

>>

>> From: <mailto:%40>

> <mailto:%40>

>> [mailto: <mailto:%40>

> <mailto:%40> ] On Behalf Of

>> Terri

>> Sent: Thursday, March 24, 2011 10:09 AM

>> <mailto:%40>

> <mailto:%40>

>> Subject: Re: Neuroprotek and Dr. G

>>

>> I would love to hear any feedback on this subject as well. I have not

>> broached

>> it yet with Dr. G.

>>

>> I live in Dallas...and several folks in my network (outside of the

>> protocol) are using it with some good results. One mom with a child that

> is

>> older (early 20s) is noting that it really makes him feel better-- and is

>> helping him with seasonal allergies. He is requesting it.

>>

>> If you read the material backing it up...it appears to be very aligned

> with

>> the

>> protocol--albeit a supplement.

>>

>> ________________________________

>> From: and Freeman <freemanbk@...

> <mailto:freemanbk%40ns.sympatico.ca>

>> <mailto:freemanbk%40ns.sympatico.ca> <mailto:freemanbk%40ns.sympatico.ca>

>>

>> <mailto:%40>

> <mailto:%40>

>> <mailto:%40>

>> Sent: Wed, March 23, 2011 9:22:31 AM

>> Subject: Neuroprotek and Dr. G

>>

>> What does Dr. G have to say about the product neuroprotek? The website can

>> be found here: http://www.algonot.com/neuroprotek.php

>>

>>

[Guest guest]

Kathi,

I too was afraid to stop the supplements. I know we had to be our own kids

doctors for many years because there was no one else. We couldn't trust the

doctors we saw to do the right thing for our children, but listen to Dr G.

He knows what he is doing. Trust this man. He saved my kid. And your

life will be so much easier and cheaper without all the supplements.

Best,

Marcia