Re: New/Son is 20, severe autism and tourette syndrome

[Guest guest]

My heart goes out to you. What we started with was diet - which you can do

right away (especially with your son's condition) The diet is:

No diary products (not even as one of the ingredients of any processed food), no

milk chocolates, no nuts, no melons, no berries, no tropical fruits, (allowed

fruits: apples, pears, bananas, grapes, apricots, oranges, plums and limited to

2 servings/day because of the sugar content) no browns, (brown rice, brown

sugar, etc.) no whole wheat and whole grains, limited sugar, (dilute juice or

use diet drinks), limited white rice, 2 slices of white bread/day max. for the

purpose of sneak in protein, (like make a sandwich), no food dye especially

blue, red and yellow. Use Stevia or Truvia in place of sugar, use corn starch,

potato starch in place of flour for home cooking. In addition, some kids are

allergic to corn, some are allergic to soy, some are allergic to reds like

tomato, red pepper, red dates, etc. You have to figure it out little by little

yourself. Dr. G. recommends a meal with lot of proteins and veggies and a

little potato or white rice. (he prefers potato to white rice) Hope the diet

will help your son and yourself as a start.

________________________________

From: H <reverseautism@...>

Sent: Wed, March 23, 2011 12:07:46 PM

Subject: New/Son is 20, severe " autism " and tourette syndrome

My son just turned 20. He became " autistic " at 18 months ,days after MMR, etc./

was diagnosed with " Autism " at age 22 months. Lost all speech at 3 years after

tetanus shot. He was diagnosed with severe Tourettes syndrome in 2007.He also

has severe OCD, prompt dependent as well. he has always had digestive

problems,He has a twin sister who is now in college , with good GPA, but has

sensory issues.Soon after their Cesarean birth I had severe complications that

doctors could not figure out and my family was called because of my grave

condition. my cousin insisted that her gastroenterologist examine me(she has

Crohn's) He found that my colon had completely STOPPED working . I went through

decompression, and had a colon tube for 10 days. I eventually, through my

research of my son's condition, made a connection between this event and his

" Autism. " He has very rarely had a normal bm...he is now experiencing explosive

diahrrea on a daily basis. Anyone have any suggestions, as my mental function is

also dimming more and more each day. I am also exhausted throughout most of the

day...but can't sit down for fear of falling asleep and then my son would

terrorize the place or run off if I don't get the double-keyed deadbolts locked.

I find it very hard even post this...my eyesight also is worsening and it is

hard for me to see to post this. Help???

[Guest guest]

If you could see Dr or Dr Goldberg, and you can treat the Tourette's

Syndrome (address it like PANDAS), it is very possible that you could see

dramatic improvements in the autism side, too.  Because if it were PANDAS and

not actual Tourette's (although they suspect Tourette's and PANDAS may be very

similar w/same cause), a lot of the severity of autism can be the result of

Tourette's cognitive dysfunction too.  And even at 20 (because I've had major

improvements in my cognitive PANDAS-like issues in my 30s and again and even

better at 41), the right therapy for Tourette's can make huge improvements. 

It's not too late.

It sounds like what you're dealing with is up there with " as bad as it gets " ,

and I hope we can help you.  Have you read Dr Goldberg's book?

________________________________

From: H <reverseautism@...>

Sent: Wed, March 23, 2011 2:07:46 PM

Subject: New/Son is 20, severe " autism " and tourette syndrome

 

My son just turned 20. He became " autistic " at 18 months ,days after MMR, etc./

was diagnosed with " Autism " at age 22 months. Lost all speech at 3 years after

tetanus shot. He was diagnosed with severe Tourettes syndrome in 2007.He also

has severe OCD, prompt dependent as well. he has always had digestive

problems,He has a twin sister who is now in college , with good GPA, but has

sensory issues.Soon after their Cesarean birth I had severe complications that

doctors could not figure out and my family was called because of my grave

condition. my cousin insisted that her gastroenterologist examine me(she has

Crohn's) He found that my colon had completely STOPPED working . I went through

decompression, and had a colon tube for 10 days. I eventually, through my

research of my son's condition, made a connection between this event and his

" Autism. " He has very rarely had a normal bm...he is now experiencing explosive

diahrrea on a daily basis. Anyone have any suggestions, as my mental function is

also dimming more and more each day. I am also exhausted throughout most of the

day...but can't sit down for fear of falling asleep and then my son would

terrorize the place or run off if I don't get the double-keyed deadbolts locked.

I find it very hard even post this...my eyesight also is worsening and it is

hard for me to see to post this. Help???

[Guest guest]

Explosive Diarhea and bowel problems sounds like he is getting food he is

extremely reactive to. I had been diagnosed with irritable bowel/spastic

colon... and of course I eventually found out that it was different foods that

was causing the reactions. I find it strange that the doctors I saw at the time

never even mentioned that it might be the reason... it kind of seems like a no

brainer... chronic explosive diarhea might be caused by something you are

eating... duh, right, but it was never suggested to me.

Unfortunately now the foods I react to are so many it is difficult to pin them

all down. But I do well on Dr. G's diet (no whole grains, no dairy, no nuts, no

tropical fruit, no cherries/berries) with the addition of no soy, no onion, no

garlic, I am trying to figure out if corn, rice, goats milk, processed wheat are

ok.

I'm planning on trying pulse testing to figure out what I am missing. Has

anyone tried this method, does it provide accurate results?

[Guest guest]

Agree with . Madelaine Cunniningham is even doing research on this

connection between Tourette's and PANDAS with the CamKinase testing and if your

son has OCD, it's very likely he has PANDAS since he has Tourette's. Treating it

can help with many behavioral issues as well.

>

> If you could see Dr or Dr Goldberg, and you can treat the Tourette's

> Syndrome (address it like PANDAS), it is very possible that you could see

> dramatic improvements in the autism side, too.  Because if it were PANDAS and

> not actual Tourette's (although they suspect Tourette's and PANDAS may be very

> similar w/same cause), a lot of the severity of autism can be the result of

> Tourette's cognitive dysfunction too.  And even at 20 (because I've had major

> improvements in my cognitive PANDAS-like issues in my 30s and again and even

> better at 41), the right therapy for Tourette's can make huge improvements. 

> It's not too late.

>

> It sounds like what you're dealing with is up there with " as bad as it gets " ,

> and I hope we can help you.  Have you read Dr Goldberg's book?

>

>

>

>

>

>

> ________________________________

> From: H <reverseautism@...>

>

> Sent: Wed, March 23, 2011 2:07:46 PM

> Subject: New/Son is 20, severe " autism " and tourette syndrome

>

>  

> My son just turned 20. He became " autistic " at 18 months ,days after MMR,

etc./

> was diagnosed with " Autism " at age 22 months. Lost all speech at 3 years after

> tetanus shot. He was diagnosed with severe Tourettes syndrome in 2007.He also

> has severe OCD, prompt dependent as well. he has always had digestive

> problems,He has a twin sister who is now in college , with good GPA, but has

> sensory issues.Soon after their Cesarean birth I had severe complications that

> doctors could not figure out and my family was called because of my grave

> condition. my cousin insisted that her gastroenterologist examine me(she has

> Crohn's) He found that my colon had completely STOPPED working . I went

through

> decompression, and had a colon tube for 10 days. I eventually, through my

> research of my son's condition, made a connection between this event and his

> " Autism. " He has very rarely had a normal bm...he is now experiencing

explosive

> diahrrea on a daily basis. Anyone have any suggestions, as my mental function

is

> also dimming more and more each day. I am also exhausted throughout most of

the

> day...but can't sit down for fear of falling asleep and then my son would

> terrorize the place or run off if I don't get the double-keyed deadbolts

locked.

> I find it very hard even post this...my eyesight also is worsening and it is

> hard for me to see to post this. Help???

>

>

>

>

>

>

>

>

[Guest guest]

What is the pulse test ? Tammy F.

>

> Explosive Diarhea and bowel problems sounds like he is getting food he

> is extremely reactive to. I had been diagnosed with irritable

> bowel/spastic colon... and of course I eventually found out that it

> was different foods that was causing the reactions. I find it strange

> that the doctors I saw at the time never even mentioned that it might

> be the reason... it kind of seems like a no brainer... chronic

> explosive diarhea might be caused by something you are eating... duh,

> right, but it was never suggested to me.

>

> Unfortunately now the foods I react to are so many it is difficult to

> pin them all down. But I do well on Dr. G's diet (no whole grains, no

> dairy, no nuts, no tropical fruit, no cherries/berries) with the

> addition of no soy, no onion, no garlic, I am trying to figure out if

> corn, rice, goats milk, processed wheat are ok.

>

> I'm planning on trying pulse testing to figure out what I am missing.

> Has anyone tried this method, does it provide accurate results?

>

>

[Guest guest]

From what I understand... the pulse test is checking your pulse several times

per day including 30, 60 and 90 minutes after eating and when you first wake up.

Apparently your pulse goes up when you eat foods you are allergic to/intolerant

of (I believe it has to go up at least 6 beats per minute to be a reaction)

I haven't done it yet. I want to get a book and read how to do it properly.

But you can plan a day when you have several food items that don't have other

ingredients in them and do food testing that way. (I don't know if once you

test positive to something you can't test other stuff that day... maybe/maybe

not)

I'm hoping it will help me root out some things that seem reactive sometimes and

not others.

[Guest guest]

Thanks .I like that idea.Would you keep us updated on any

changes on this idea,after you read more? Tammy F.

>

> From what I understand... the pulse test is checking your pulse

> several times per day including 30, 60 and 90 minutes after eating and

> when you first wake up. Apparently your pulse goes up when you eat

> foods you are allergic to/intolerant of (I believe it has to go up at

> least 6 beats per minute to be a reaction)

>

> I haven't done it yet. I want to get a book and read how to do it

> properly. But you can plan a day when you have several food items that

> don't have other ingredients in them and do food testing that way. (I

> don't know if once you test positive to something you can't test other

> stuff that day... maybe/maybe not)

>

> I'm hoping it will help me root out some things that seem reactive

> sometimes and not others.

>

>