Re: Please Help- Girls 1st PD

[Guest guest]

What's his reasoning?  Puberty and the hormonal changes that come with it

sometimes comes with some really good gains as well, at least it can for boys. 

Is she high enough functioning to understand what's happening?   Unless you

have

reason to think it'd be traumatic for her, I don't really understand why he'd

want to stop it?  Is the med depoprovera or something like that?  They can

have

really harsh side effects.  I really have no understanding of the whole

hormonal

part and what he wants to achieve...  I'd want to look into what the hormones

are that are being used, and compare it to the research done on XMRV to make

sure that there isn't a negative associated with them...

HTH

________________________________

From: Gage Vanlandingham <gager292@...>

groups < >

Sent: Sat, March 26, 2011 8:29:45 PM

Subject: Please Help- Girls 1st PD

 

My Girl is close to her 1st PD and her MD has suggested giving her a med to make

it where she does not have a menstrual cycle. Has anyone used this med? Dont

know the exact name but any info is helpful.

 

Thanks!

 

Petra

[Guest guest]

Someone could tell what's means Pandas?

From: <thecolemans4@...>

Subject: Re: Please Help- Girls 1st PD

Date: Sunday, March 27, 2011, 1:42 AM

 

What's his reasoning?  Puberty and the hormonal changes that come with it

sometimes comes with some really good gains as well, at least it can for boys. 

Is she high enough functioning to understand what's happening?   Unless you

have

reason to think it'd be traumatic for her, I don't really understand why he'd

want to stop it?  Is the med depoprovera or something like that?  They can

have

really harsh side effects.  I really have no understanding of the whole

hormonal

part and what he wants to achieve...  I'd want to look into what the hormones

are that are being used, and compare it to the research done on XMRV to make

sure that there isn't a negative associated with them...

HTH

________________________________

From: Gage Vanlandingham <gager292@...>

groups < >

Sent: Sat, March 26, 2011 8:29:45 PM

Subject: Please Help- Girls 1st PD

 

My Girl is close to her 1st PD and her MD has suggested giving her a med to make

it where she does not have a menstrual cycle. Has anyone used this med? Dont

know the exact name but any info is helpful.

 

Thanks!

 

Petra

[Guest guest]

My daughter yes will probably freak out. My concern is her ability to handle it

appropriately. She is considered higher functing BUT she is delayed in her

maturity. She has one more year in public school and she will be 12 in Sept.

Thanks for your input.

From: <thecolemans4@...>

Subject: Re: Please Help- Girls 1st PD

Date: Sunday, March 27, 2011, 5:42 AM

 

What's his reasoning?  Puberty and the hormonal changes that come with it

sometimes comes with some really good gains as well, at least it can for boys. 

Is she high enough functioning to understand what's happening?   Unless you

have

reason to think it'd be traumatic for her, I don't really understand why he'd

want to stop it?  Is the med depoprovera or something like that?  They can

have

really harsh side effects.  I really have no understanding of the whole

hormonal

part and what he wants to achieve...  I'd want to look into what the hormones

are that are being used, and compare it to the research done on XMRV to make

sure that there isn't a negative associated with them...

HTH

________________________________

From: Gage Vanlandingham <gager292@...>

groups < >

Sent: Sat, March 26, 2011 8:29:45 PM

Subject: Please Help- Girls 1st PD

 

My Girl is close to her 1st PD and her MD has suggested giving her a med to make

it where she does not have a menstrual cycle. Has anyone used this med? Dont

know the exact name but any info is helpful.

 

Thanks!

 

Petra

[Guest guest]

Hi,

I guess I would echo the same questions in this post. My ASD daughter who is 13

years old has had very bad cycles of bleeding 3 weeks out of 4 for months on

end, but we are working with our DAN to help her immune system and reduce toxins

and the endocrine system is affected by them. We have also added some

supplements to help. The local pediatrician had wanted to put her on a birth

control pill to " stablize " her cycle, but my DAN didn't agree it was a good

idea, and I am glad. The hormones can really mess with the gut flora.

I chose to help my daughter with her first periods by talking with her and

writing a social story, and preparing her. Then when her cycle became abnormal,

I continually reassured her it would be ok....

Good luck

Sara

>

> What's his reasoning?  Puberty and the hormonal changes that come with it

> sometimes comes with some really good gains as well, at least it can for

boys. 

> Is she high enough functioning to understand what's happening?   Unless you

have

> reason to think it'd be traumatic for her, I don't really understand why he'd

> want to stop it?  Is the med depoprovera or something like that?  They can

have

> really harsh side effects.  I really have no understanding of the whole

hormonal

> part and what he wants to achieve...  I'd want to look into what the hormones

> are that are being used, and compare it to the research done on XMRV to make

> sure that there isn't a negative associated with them...

> HTH

>

>

>

>

>

> ________________________________

> From: Gage Vanlandingham <gager292@...>

> groups < >

> Sent: Sat, March 26, 2011 8:29:45 PM

> Subject: Please Help- Girls 1st PD

>

>  

> My Girl is close to her 1st PD and her MD has suggested giving her a med to

make

> it where she does not have a menstrual cycle. Has anyone used this med? Dont

> know the exact name but any info is helpful.

>  

> Thanks!

>  

> Petra

>

>

[Guest guest]

Hey Sara,

I have problems w/abnormal cycles too.  The thing that reduces the chronic

extended flow were iron supplements and doxycycline.  Antifungals may have

played a part in it too - they do have some positive endocrine effects too.

________________________________

From: jandjmother <psalm1@...>

Sent: Sun, March 27, 2011 12:51:46 PM

Subject: Re: Please Help- Girls 1st PD

 

Hi,

I guess I would echo the same questions in this post. My ASD daughter who is 13

years old has had very bad cycles of bleeding 3 weeks out of 4 for months on

end, but we are working with our DAN to help her immune system and reduce toxins

and the endocrine system is affected by them. We have also added some

supplements to help. The local pediatrician had wanted to put her on a birth

control pill to " stablize " her cycle, but my DAN didn't agree it was a good

idea, and I am glad. The hormones can really mess with the gut flora.

I chose to help my daughter with her first periods by talking with her and

writing a social story, and preparing her. Then when her cycle became abnormal,

I continually reassured her it would be ok....

Good luck

Sara

>

> What's his reasoning?  Puberty and the hormonal changes that come with it

> sometimes comes with some really good gains as well, at least it can for

>boys. 

>

> Is she high enough functioning to understand what's happening?   Unless

you

>have

>

> reason to think it'd be traumatic for her, I don't really understand why he'd

> want to stop it?  Is the med depoprovera or something like that?  They

can

>have

>

> really harsh side effects.  I really have no understanding of the whole

>hormonal

>

> part and what he wants to achieve...  I'd want to look into what the

hormones

> are that are being used, and compare it to the research done on XMRV to make

> sure that there isn't a negative associated with them...

> HTH

>

>

>

>

>

> ________________________________

> From: Gage Vanlandingham <gager292@...>

> groups < >

> Sent: Sat, March 26, 2011 8:29:45 PM

> Subject: Please Help- Girls 1st PD

>

>  

> My Girl is close to her 1st PD and her MD has suggested giving her a med to

>make

>

> it where she does not have a menstrual cycle. Has anyone used this med? Dont

> know the exact name but any info is helpful.

>  

> Thanks!

>  

> Petra

>

>

[Guest guest]

,

That is interesting. My daughter has iron deficiency anemia and is taking iron.

She also is on antifungals. The doxyclcline we have not tried. Typically

antibiotics wreak havoc w/yeast issues which she has. She is also taking ceyenne

and citris bioflavioids, which I think have helped dry out her cycles somewhat

as well, although she still bleeds long and it is still irregular, it is not as

heavy now. I think the problem has a lot to do with toxins (metals and other

stuff) messing up the endocrine system as well. We are in the process of

chelating her now and some of the metals are disturbingly high.

Sara

> >

> > What's his reasoning?  Puberty and the hormonal changes that come with it

> > sometimes comes with some really good gains as well, at least it can for

> >boys. 

> >

> > Is she high enough functioning to understand what's happening?  

Unless you

> >have

> >

> > reason to think it'd be traumatic for her, I don't really understand why

he'd

> > want to stop it?  Is the med depoprovera or something like that?  They

can

> >have

> >

> > really harsh side effects.  I really have no understanding of the whole

> >hormonal

> >

> > part and what he wants to achieve...  I'd want to look into what the

hormones

>

> > are that are being used, and compare it to the research done on XMRV to make

> > sure that there isn't a negative associated with them...

> > HTH

> >

> >

> >

> >

> >

> > ________________________________

> > From: Gage Vanlandingham <gager292@>

> > groups < >

> > Sent: Sat, March 26, 2011 8:29:45 PM

> > Subject: Please Help- Girls 1st PD

> >

> >  

> > My Girl is close to her 1st PD and her MD has suggested giving her a med to

> >make

> >

> > it where she does not have a menstrual cycle. Has anyone used this med? Dont

> > know the exact name but any info is helpful.

> >  

> > Thanks!

> >  

> > Petra

> >

> >

[Guest guest]

Sara, has your daughter been tested for endometrosis? Uterine fibroids? PCOS?

-Jen

> >

> > What's his reasoning?  Puberty and the hormonal changes that come with it

> > sometimes comes with some really good gains as well, at least it can for

boys. 

> > Is she high enough functioning to understand what's happening?   Unless

you have

> > reason to think it'd be traumatic for her, I don't really understand why

he'd

> > want to stop it?  Is the med depoprovera or something like that?  They can

have

> > really harsh side effects.  I really have no understanding of the whole

hormonal

> > part and what he wants to achieve...  I'd want to look into what the

hormones

> > are that are being used, and compare it to the research done on XMRV to make

> > sure that there isn't a negative associated with them...

> > HTH

> >

> >

> >

> >

> >

> > ________________________________

> > From: Gage Vanlandingham <gager292@>

> > groups < >

> > Sent: Sat, March 26, 2011 8:29:45 PM

> > Subject: Please Help- Girls 1st PD

> >

> >  

> > My Girl is close to her 1st PD and her MD has suggested giving her a med to

make

> > it where she does not have a menstrual cycle. Has anyone used this med? Dont

> > know the exact name but any info is helpful.

> >  

> > Thanks!

> >  

> > Petra

> >

> >

[Guest guest]

Jen,

We haven't had any tests around this issue to date. But I am going to Boston

soon for some gi work (scopes) and she will have a pelvic ultrasound then. What

do you know about these other tests? How are they done? Is it blood work?

What is PCOS?

Thank you for the information,

Sara

> > >

> > > What's his reasoning?  Puberty and the hormonal changes that come with it

> > > sometimes comes with some really good gains as well, at least it can for

boys. 

> > > Is she high enough functioning to understand what's happening?   Unless

you have

> > > reason to think it'd be traumatic for her, I don't really understand why

he'd

> > > want to stop it?  Is the med depoprovera or something like that?  They

can have

> > > really harsh side effects.  I really have no understanding of the whole

hormonal

> > > part and what he wants to achieve...  I'd want to look into what the

hormones

> > > are that are being used, and compare it to the research done on XMRV to

make

> > > sure that there isn't a negative associated with them...

> > > HTH

> > >

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: Gage Vanlandingham <gager292@>

> > > groups < >

> > > Sent: Sat, March 26, 2011 8:29:45 PM

> > > Subject: Please Help- Girls 1st PD

> > >

> > >  

> > > My Girl is close to her 1st PD and her MD has suggested giving her a med

to make

> > > it where she does not have a menstrual cycle. Has anyone used this med?

Dont

> > > know the exact name but any info is helpful.

> > >  

> > > Thanks!

> > >  

> > > Petra

> > >

> > >

[Guest guest]

Sara, PCOS is Polycystic Ovary Syndrome...these kind of reproductive issues are

common in women with auto-immune issues. Autistic individuals also have immune

system dysfunction so I wonder how many girls with autism have these condtions

too! PCOS is usually detected via ultrasound.

I hope all of this goes well for you and your daughter and you figure out whats

going on!

-Jen

> > > >

> > > > What's his reasoning?  Puberty and the hormonal changes that come with

it

> > > > sometimes comes with some really good gains as well, at least it can for

boys. 

> > > > Is she high enough functioning to understand what's happening?  

Unless you have

> > > > reason to think it'd be traumatic for her, I don't really understand why

he'd

> > > > want to stop it?  Is the med depoprovera or something like that?  They

can have

> > > > really harsh side effects.  I really have no understanding of the whole

hormonal

> > > > part and what he wants to achieve...  I'd want to look into what the

hormones

> > > > are that are being used, and compare it to the research done on XMRV to

make

> > > > sure that there isn't a negative associated with them...

> > > > HTH

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: Gage Vanlandingham <gager292@>

> > > > groups < >

> > > > Sent: Sat, March 26, 2011 8:29:45 PM

> > > > Subject: Please Help- Girls 1st PD

> > > >

> > > >  

> > > > My Girl is close to her 1st PD and her MD has suggested giving her a med

to make

> > > > it where she does not have a menstrual cycle. Has anyone used this med?

Dont

> > > > know the exact name but any info is helpful.

> > > >  

> > > > Thanks!

> > > >  

> > > > Petra

> > > >

> > > >

[Guest guest]

Jen,

Yes, I think that is what the doctor will be looking for in the ultrasound,

thank you!

How are the other two issues tested that you mentioned, uterine fibroids and

endemetriosis?

Thank you for the info,

Sara

> > > > >

> > > > > What's his reasoning?  Puberty and the hormonal changes that come

with it

> > > > > sometimes comes with some really good gains as well, at least it can

for boys. 

> > > > > Is she high enough functioning to understand what's happening?  

Unless you have

> > > > > reason to think it'd be traumatic for her, I don't really understand

why he'd

> > > > > want to stop it?  Is the med depoprovera or something like that? 

They can have

> > > > > really harsh side effects.  I really have no understanding of the

whole hormonal

> > > > > part and what he wants to achieve...  I'd want to look into what the

hormones

> > > > > are that are being used, and compare it to the research done on XMRV

to make

> > > > > sure that there isn't a negative associated with them...

> > > > > HTH

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ________________________________

> > > > > From: Gage Vanlandingham <gager292@>

> > > > > groups < >

> > > > > Sent: Sat, March 26, 2011 8:29:45 PM

> > > > > Subject: Please Help- Girls 1st PD

> > > > >

> > > > >  

> > > > > My Girl is close to her 1st PD and her MD has suggested giving her a

med to make

> > > > > it where she does not have a menstrual cycle. Has anyone used this

med? Dont

> > > > > know the exact name but any info is helpful.

> > > > >  

> > > > > Thanks!

> > > > >  

> > > > > Petra

> > > > >

> > > > >