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Re: and Mastocytosis

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HI , I dont know Dr. G's opinion about a dx for mastocytosis, but we used a

drug for it (Gastrocrom) just for my daughter's gut issues (coupled with other

therapies) and it helped her tremendously to the point where we don't need it

anymore.

The reason I knew it helped with the gut issues was I was giving her

antihistamines and it helped her have normal stools.

That being said, there are lots of other immune-mediated issues that involve

different kinds of immune responses in these children, not just mast cells and

taking a most complete (as possible) approach to decreasing inflammation in our

children is necessary.

-Jen :)

>

> What is Dr. G's view of a mastocytosis diagnosis? Our son has many of the

> symptoms of this and we are going to have him tested soon. Have any parents

> who have gone to Dr. G had this medical diagnosis? If so, what has been Dr.

> G's recommendation (drug, diet, etc.)? Thank you.

>

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