Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 <<<<<< wow! This is unbelievable. So if you tell him how his nails are getting this way, do you think he will stop picking at them?> no, but if the new meds work on tics it should decrease his urge to do so! F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 <<<<<<<<> I was wondering if your boy has a history of refusing to wear certain kinds of socks. These being the disgusting feeling kind that have the seam ON the toenail line and not 1 in. or more above it? >>>>>>> he never had problems with socks. he insisted, though on tucking his shirt in! lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Hi everyone, I've read a few posts on here from parents of children who experience tics. I'd really like to discuss this with any of you who have experience with this and are willing to email me. I have some concerns regarding my son. Please email me at Tammy_S68@...<mailto:Tammy_S68@...> if you are willing to help me help my son. Thanks, Tammy in Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Tammy, My son has had tics for awhile. We just recently got the diagnosis of Tourette's Syndrome. We thought some of the stuff he did when he was younger was due to sensory issues. But come to find out, they were a form of tics. He tics are mostly upper body -- shoulder shrugging, neck movement, facial movements. He also has vocal tics -- coughing. We were just seen by a neurologist that put him on clonidine for the tics. It has helped the motor tics but not the vocal tics. We have started an zyrtec for the coughing. The dr thought perhaps the coughing has more to do with allergies than the Tourettes due to the fact we have seen alot of improvement in the motor tics area & little in the vocal area. The dr wouldn't have normally put my son on medicine but thought it would be the best thing because my son was getting self conscious about the tics in addition to the speech problem. I would be glad to share more A child is like a butterfly in the wind, some fly faster, some fly harder but they all fly the best they can. Each one is different, each one is beautiful and each one is special. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 There's a difference between " tic disorder " and Tourette's Syndrome...not all children with motor tics have Tourette's. If anyone wants more info, you can email me off list KissmeKaate@... ~K Re: [ ] tics Tammy, My son has had tics for awhile. We just recently got the diagnosis of Tourette's Syndrome. We thought some of the stuff he did when he was younger was due to sensory issues. But come to find out, they were a form of tics. He tics are mostly upper body -- shoulder shrugging, neck movement, facial movements. He also has vocal tics -- coughing. We were just seen by a neurologist that put him on clonidine for the tics. It has helped the motor tics but not the vocal tics. We have started an zyrtec for the coughing. The dr thought perhaps the coughing has more to do with allergies than the Tourettes due to the fact we have seen alot of improvement in the motor tics area & little in the vocal area. The dr wouldn't have normally put my son on medicine but thought it would be the best thing because my son was getting self conscious about the tics in addition to the speech problem. I would be glad to share more A child is like a butterfly in the wind, some fly faster, some fly harder but they all fly the best they can. Each one is different, each one is beautiful and each one is special. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Your e-mail doesn't show up for some reason, but you can e-mail me at luckygmstwife@... My son has a tic disorder. It's not bad. He just shakes his head. It was scary at first because we didn't know what was going on. He doesn't take medication, and he really doesn't have any associated things with it. He does have to be seen by a neurologist. Some kids grow out of them, and some do not. They are more common in boys than girls, and they usually peek at about 10 years of age. Suzi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Hi Suzi and all interested in this topic, I was looking for another message in the archives for someone and came up with the following you may be interested in. Tics can be caused from a wide variety of reasons -including stress, treated a variety of ways, as you will read below: From: " kiddietalk " <kiddietalk@...> Date: Mon Mar 10, 2003 11:28 pm Subject: Re: tics Hi ! Now Carol has even more to explore to try to help her son -sensory tics -lyme and tics - strep and tics -that should be at least 6 cents worth at 2 cents a pop. Some of the links I found below that may help I never would have known to search for in regards to tics (MD-parents like you are good to have around!): Strep and tics Treatments Reduce Strep-Triggered Symptoms of OCD and Tics in Some Children National Institute of Mental Health (NIMH) researchers report that some children whose symptoms of obsessive-compulsive disorder (OCD) and tic disorders were worsened by a common strep infection have been successfully treated with plasma exchange (PEX) and intravenous immunoglobulin (IVIG). Dr. Swedo and colleagues at the National Institutes of Health reported their findings in the October 2 issue of Lancet. " http://www.nih.gov/news/pr/sept99/nimh-30.htm Lyme and tics " Psychiatric.Two studies from different institutions found that children with Lyme Disease may develop late problems with visual and auditory attention. These children may be mistakenly diagnosed as having primary attention deficit disorder as opposed to attentional deficits secondary to a systemic infection. Other findings in children include new onset phobias (e.g., fear of the dark, separation anxiety), depression, listlessness and irritability, oppositional behavior, obsessive-compulsive behaviors, and/or Tourettes Disorder. " http://www.columbia-lyme.org/flatp/lymeoverview.html " The impact academically is most significant. These children have fall-off in academic performance, difficulty learning new material, problems with short-term memory, problems with word finding, and a number of them have lost reading skills. Frequently, these children may present with a picture of ADD or may have an underlying ADD or ADHD that is made worse by the Lyme. Incidentally, Dr. Pietrucha noted that children with Tourette's may also have a worsening of their tics when they have been ill with Lyme disease symptoms. A case report published in Lancet indicated that a child with Tourette's who was found to have concurrent CNS Lyme disease experienced a remission of the Tourette's after the Lyme disease was treated. " http://www.medscape.com/viewarticle/412987?WebLogicSession=Pm1eQ2bGDEokShuTCSaWg\ h0C0bPEtvooYaTduWlBav6eqZGNOBn9|1142142660663020111/184161393/6/7001/7001/7002/7\ 002/7001/-1 Sensory tics " Like many other aspects of this site, this page is put together from anecdotes and personal experiences. " http://au.geocities.com/jones_kacm/tictypes.htm http://au.geocities.com/jones_kacm/5_senses.htm (I added the school / stress ones too since I believe that is a possiblity as well) Stress and tics " Management of a tic disorder should explore possible stresses in the child's life at home and school. Stress can exacerbate tics which in turn, often impacts on the child's self-esteem. Helping the child and parents to devise strategies to deal with stress, and providing reassurance and monitoring are the mainstays of management. " http://www.sch.edu.au/articles.asp?type=3 & doc=30 " Dr. Preston Herrington, Pediatrician Margie noticed that since her five-year-old son, , had started school, he developed a new habit of frequently pulling at his own ears. Everything from an ear infection to developing a " tic " crossed her mind. After consulting with her physician – she learned it was neither – it was simply a way was calming himself as he adjusted to the changes from being at home with mom to starting school. Childhood habits like twisting or chewing hair, grinding teeth, tugging on ears, and nail biting sometimes are confused with tic behaviors. Nervous habits like these are controllable behaviors that develop in times of stress. They are common in school-aged children as they adjust to new routines, new schools, and new friendships. Nervous habits are often outlets for pent-up energy. Do not worry about them unless they are done compulsively. Sometimes a change of scenery, a gentle awareness discussion, or relaxation exercises will help break the habit. Childhood nervous habits usually stop when the child learns more effective ways of comforting himself while coping with stress. Tics, on the other hand, are involuntary muscle movements that are physical problems, not psychological ones. Motor tics include eye blinking or squinting, shrugging the shoulders, grimacing, repetitive coughing or shaking the head. Vocal tics include tongue clicking, clearing the throat, sniffing, coughing, or saying words out of context. In rare cases, children may curse or say unpleasant things that they do not mean. Those behaviors are not used to calm a child as with a nervous habit, because they are not in the child's control. While their presence may seem as if the child is experiencing stress, they generally are not direct responses to stress or anxiety. They can happen randomly.... " http://www.lifecoursehealth.com/LifeCourse/Columns/ColumnsDetail.asp?ColumnID=37 " The most common tic disorder is called " transient tic disorder, " which may affect up to 10 percent of children during the early school years. Teachers or others may notice the tics and wonder if the child is under stress or " nervous. " Transient tics go away by themselves. Some tics do not go away. Tics which last one year or more are called " chronic tics. " Chronic tics affect less than one percent of children and may be related to a special, more unusual tic disorder called Tourette's Disorder. " http://www.puberty101.com/aacap_tics.shtml ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi everyone, I've been reading a lot of information from those of you who have sent links regarding PANDAS. I am highly suspect of this as a cause of my son's tics. I think I read someone post that this can be ruled out by a blood test, is that true? I'm going to be busy printing out all of these articles for my son's doctors. Is there anyone with medical background that can tell me if there would ever, even if it was rare, be an occasion that a child could develop a facial rash that varies from hives to a rash of little red pin-headed sized spots with a connection to strep or due to this PANDAS thing? My son has had an unexplained rash on his face for the last 5 or 6 months now. The doctor cannot diagnose it and we have tried bactroban, lotrizone both unsucessfully and then we tried elidel which keeps it under control to an extent but does not make it go away. We were forced to skip school pictures this year and it is a source of ongoing stress for my son which is NOT helping the tic symptoms at all. Any help out there is greatly appreciated. My son is turning 10 on Monday and here goes another set of wonderful pictures, not to mention Christmas is Thursday. Thanks, Tammy in Oregon who is not Tammy I. Some people are getting us confused. ----- Original Message ----- From: kiddietalk<mailto:kiddietalk@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi again, One major detail I left off, my son has had strep throat since at least the beginning of November. I didn't know because he wasn't complaining of a sore throat so I figured it out after I and one of my daughters came down with it. The first round of keflex he took and two days off of it had strep again. He just finished the second round of keflex last Thursday so I do not know his status for sure at this time. He isn't complaining so who knows. Re: [ ] Re: tics Hi everyone, I've been reading a lot of information from those of you who have sent links regarding PANDAS. I am highly suspect of this as a cause of my son's tics. I think I read someone post that this can be ruled out by a blood test, is that true? I'm going to be busy printing out all of these articles for my son's doctors. Is there anyone with medical background that can tell me if there would ever, even if it was rare, be an occasion that a child could develop a facial rash that varies from hives to a rash of little red pin-headed sized spots with a connection to strep or due to this PANDAS thing? My son has had an unexplained rash on his face for the last 5 or 6 months now. The doctor cannot diagnose it and we have tried bactroban, lotrizone both unsucessfully and then we tried elidel which keeps it under control to an extent but does not make it go away. We were forced to skip school pictures this year and it is a source of ongoing stress for my son which is NOT helping the tic symptoms at all. Any help out there is greatly appreciated. My son is turning 10 on Monday and here goes another set of wonderful pictures, not to mention Christmas is Thursday. Thanks, Tammy in Oregon who is not Tammy I. Some people are getting us confused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2003 Report Share Posted December 24, 2003 Yes, PANDAS can be tested with a simple blood test. Unfortunately, it was a neurologist, and not our pediatrician that ordered it. Maybe you're pediatrician can order the test. The other thing that can cause both rashes and tics are allergies. I have severe allergies, and took my son to the allergist and had him allergy tested. He doesn't have any, but they can cause or aggravate tics. Since your son has the rash and tics, I would recommend an allergist. Good luck. Suzi > Hi everyone, > I've been reading a lot of information from those of you who have sent links regarding PANDAS. I am highly suspect of this as a cause of my son's tics. I think I read someone post that this can be ruled out by a blood test, is that true? I'm going to be busy printing out all of these articles for my son's doctors. > > Is there anyone with medical background that can tell me if there would ever, even if it was rare, be an occasion that a child could develop a facial rash that varies from hives to a rash of little red pin-headed sized spots with a connection to strep or due to this PANDAS thing? My son has had an unexplained rash on his face for the last 5 or 6 months now. The doctor cannot diagnose it and we have tried bactroban, lotrizone both unsucessfully and then we tried elidel which keeps it under control to an extent but does not make it go away. We were forced to skip school pictures this year and it is a source of ongoing stress for my son which is NOT helping the tic symptoms at all. > > Any help out there is greatly appreciated. My son is turning 10 on Monday and here goes another set of wonderful pictures, not to mention Christmas is Thursday. > > Thanks, > Tammy in Oregon who is not Tammy I. Some people are getting us confused. > ----- Original Message ----- > From: kiddietalk<mailto:kiddietalk@y...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Hi Tammy, I know of one virus that can cause a rash for months. Did the doctors do blood work to try to find a cause. If so, did they check for CMV (Cytomegalovirus). It is a very common virus that is usually assyptomatic or gives mild flu like symptoms but in rare occasions, a persistent rash can occur. Here is a link to a post from another listserv. The man describes a persistent rash like your son. http://maelstrom.stjohns.edu/CGI/wa.exe?A2=ind0312a & L=cmv & F= & S= & P=1240 I hope you find the cause and that your son gets better soon. Louise Mom to (8, Congenital CMV, Mild CP, Profound hearing loss with Cochlear Implant and possible oral Apraxia) > Hi everyone, > I've been reading a lot of information from those of you who have sent links regarding PANDAS. I am highly suspect of this as a cause of my son's tics. I think I read someone post that this can be ruled out by a blood test, is that true? I'm going to be busy printing out all of these articles for my son's doctors. > > Is there anyone with medical background that can tell me if there would ever, even if it was rare, be an occasion that a child could develop a facial rash that varies from hives to a rash of little red pin-headed sized spots with a connection to strep or due to this PANDAS thing? My son has had an unexplained rash on his face for the last 5 or 6 months now. The doctor cannot diagnose it and we have tried bactroban, lotrizone both unsucessfully and then we tried elidel which keeps it under control to an extent but does not make it go away. We were forced to skip school pictures this year and it is a source of ongoing stress for my son which is NOT helping the tic symptoms at all. > > Any help out there is greatly appreciated. My son is turning 10 on Monday and here goes another set of wonderful pictures, not to mention Christmas is Thursday. > > Thanks, > Tammy in Oregon who is not Tammy I. Some people are getting us confused. > ----- Original Message ----- > From: kiddietalk<mailto:kiddietalk@y...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 In a message dated 3/4/2004 9:45:27 AM Eastern Standard Time, kathylr@... writes: > NF is a disaster in her, I've tried it several times and again recently > (less than one cap over about five days) and big negs plus hyper. Just a guess but I'd say yeast. My son gets twitchy and clumsy and hyper when he has a yeast problem, also, the start of NF was 10 days of total hell. Maybe she doesn't tolerate NF, but maybe it's die-off causing the negs and you need to keep going to get through it. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 > Do any of your kids have intermittent body or vocal tics? Any insights into what causes this (yeast, bacteria, wrong food, allergy?) or what to try that may minimize it? When dd's tics come back they are accompanied by revved up, clumsy/hyper/impulsive motor behavior. This is yeast for two of my kids. Vocal tics, hyper, clumsy. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Thanks to Dana, Nell and Prue for responding...I tried GSE starting over the weekend on your idea the tics were from yeast and they stopped two days later!! Thanks very much, Kathy IN > Do any of your kids have intermittent body or vocal tics? Any insights into what causes this (yeast, bacteria, wrong food, allergy?) or what to try that may minimize it? When dd's tics come back they are accompanied by revved up, clumsy/hyper/impulsive motor behavior. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 OK now I'm confused. I used GSE for a few days, dd's tics stopped after a couple of days. I continued GSE and two days ago, she starts with a sore and white-coated tongue. No patches as I've read about in thrush just an all-over white haze and soreness. This is yeast? How since I thought the GSE was killing yeast and the tics were due to yeast? She took GSE 6 days in a row, I haven't given any yet today. So I would appreciate further advice any might share--stop GSE, increase GSE, add something else? Thanks, Kathy IN > > Do any of your kids have intermittent body or vocal tics? Any > insights into what causes this (yeast, bacteria, wrong food, > allergy?) or what to try that may minimize it? When dd's tics come > back they are accompanied by revved up, clumsy/hyper/impulsive motor > behavior. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 For my son, it was strep throat: Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) http://www.enzymestory.com/PANDAS.html. His tic went away after a round of antibiotics. Once a child has PANDAS-induced tics and/or ocd, other illnesses or allergens can bring on those reactions. The motor behaviors you describe can be associated with PANDAS also. It is commonly known that many people with Tourette's Syndrome find that their symptoms can reappear or worsen with illness or allergies, such as seasonal allergies. For many, antibiotics do not have an sudden effect on the tics. It may take weeks to months for the strep antibodies responsible for the tics to decrease, even though the strep is no longer present. That's great that the GSE helped. > Do any of your kids have intermittent body or vocal tics? Any insights into what causes this (yeast, bacteria, wrong food, allergy?) or what to try that may minimize it? When dd's tics come back they are accompanied by revved up, clumsy/hyper/impulsive motor behavior. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 > OK now I'm confused. I used GSE for a few days, dd's tics stopped > after a couple of days. I continued GSE and two days ago, she starts > with a sore and white-coated tongue. No patches as I've read about > in thrush just an all-over white haze and soreness. This is yeast? Can be yeast, or yeast dying off and coming out on the tongue. > So I would appreciate further advice any might share--stop GSE, > increase GSE, add something else? I would give it for one more day, see what you might notice. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 In a message dated 4/4/2005 12:35:15 AM Central Daylight Time, carlampham@... writes: > Could someone comment on tics. My son has resently developed a blinking & > nose tic that was never there before. My son also developed a blinking and rolling-eye tic. After several consults with doctors who couldn't help us at all, we put him on Lauricidin, and the tics went away within days. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Is he by any chance taking Ritalin, or a similar medication? Developing tics with Ritalin is a little publicized side effect, but I have known two people that this has happened with their children. KK [ ] TICS > > Could someone comment on tics. My son has resently developed a blinking & > nose tic that was never there before. He's 6 1/2 yrs. old and things have > been going pretty good biomedically until this showed up. He does it > quite > often now. It's been 2 weeks of it now. Any comments or advise please. > I > ask him about it and he can't seem to explain it. He just says " I blink " . > He seems to do it involuntarily and not just under stress. > > Carla > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Any supplements added lately? <tt> Could someone comment on tics. My son has resently developed a blinking & <BR> nose tic that was never there before. He's 6 1/2 yrs. old and things have<BR> been going pretty good biomedically until this showed up. He does it quite<BR> often now. It's been 2 weeks of it now. Any comments or advise please. I<BR> ask him about it and he can't seem to explain it. He just says " I blink " .<BR> He seems to do it involuntarily and not just under stress.<BR> <BR> Carla<BR> <BR> <BR> </tt> <br><br> <tt> =======================================================<BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 > Could someone comment on tics. My son has resently developed a blinking & > nose tic that was never there before. My #1 will have certain facial and vocal tics when he has a yeast overgrowth issue. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 I was taking a bunch of calcium years ago and got deficient in magnesium this caused me to be twitching alot. Stress can also cause tics, is he on a good childrens multi mineral and vitamin supplement? Diet can also be a big factor in stressing the body. Just some thoughts. CARPHM wrote: > Could someone comment on tics. My son has resently developed a blinking & > nose tic that was never there before. He's 6 1/2 yrs. old and things have > been going pretty good biomedically until this showed up. He does it quite > often now. It's been 2 weeks of it now. Any comments or advise please. I > ask him about it and he can't seem to explain it. He just says " I blink " . > He seems to do it involuntarily and not just under stress. > > Carla > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 Eye tics can also be related to magnesium defficiency. When I was toxic, I had cycles of a bad eye squishing/blinking tic. When a magnesium defficiency was identified and I began taking regular liquid magnesium chloride, the tic went away. After that, every time it came back, I'd add the mag chloride for a few weeks and the tics would stop. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 I just did a 2 week round of Diflucan and he's been on Nystatin. He did have yeast but we did the Diflucan and will do another 2 week round after 2 weeks off. Carla [ ] Re: TICS > > > > > Could someone comment on tics. My son has resently developed a > blinking & > > nose tic that was never there before. > > > My #1 will have certain facial and vocal tics when he has a yeast > overgrowth issue. > > Dana > > > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 No new supplements but he does take quite a few. We do routine blood, urine, stool, etc. to monitor things. Carla RE: [ ] TICS > > > Any supplements added lately? > > > > > > > > <tt> > Could someone comment on tics. My son has resently developed a blinking & <BR> > nose tic that was never there before. He's 6 1/2 yrs. old and things have<BR> > been going pretty good biomedically until this showed up. He does it quite<BR> > often now. It's been 2 weeks of it now. Any comments or advise please. I<BR> > ask him about it and he can't seem to explain it. He just says " I blink " .<BR> > He seems to do it involuntarily and not just under stress.<BR> > <BR> > Carla<BR> > <BR> > <BR> > </tt> > > <br><br> > <tt> > =======================================================<BR> > Quote Link to comment Share on other sites More sharing options...
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