Guest guest Posted March 15, 2011 Report Share Posted March 15, 2011 Im new to this site and have only posted a couple of times, but I have been reading loads of the posts you have added and all of them seem to say amazing things about Dr G, he sounds brilliant. I dont think we have anyone like this in the UK, but if anyone could point me in the right direction Id be very greatful, I think my son would really benefit from seeing someone like Dr G, but if it means we'd have to travel to see the Dr Id be more than happy, it seems like everyone wants to get to see him! What would we need to do? Thanks Sophie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2011 Report Share Posted March 15, 2011 Call to the office 818- 3431010 They will send ou some papers to fill and all the instructions. > > Im new to this site and have only posted a couple of times, but I have been reading loads of the posts you have added and all of them seem to say amazing things about Dr G, he sounds brilliant. > > I dont think we have anyone like this in the UK, but if anyone could point me in the right direction Id be very greatful, I think my son would really benefit from seeing someone like Dr G, but if it means we'd have to travel to see the Dr Id be more than happy, it seems like everyone wants to get to see him! > > What would we need to do? > Thanks > Sophie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Sophie, Dr is traveling to where you live to speak this summer. He is wonderful!! And uses the approach to help kids. Treating Autism 2011 London conference <http://www.treatingautism.co.uk/events/504/treating-autism-2011-london-conf erence/> http://www.treatingautism.co.uk/events/504/treating-autism-2011-london-confe rence/ Dr Bruce is a Family Doctor who practices in Port Aransas, Texas. He attended medical school at The University of Texas in Houston, Texas. Following his residency in Family Practice, he served in the United States navy for three years. After his military service, he was the Medical Director of the town University Family Practice Residency in Washington DC. He then went into private practice first in New York and now in Texas. His practice includes the care of neuroimmune illnesses, including autism and ME/CFIDS. His treatment plan for these illnesses focuses on abnormalities in the immune system, viral infections, and fungal infections. His presentation will include an overview of immune abnormalities associated with autism and treatment with antiviral and antifungal medications. Dr will provide an overview of the immune abnormalities associated with autism, including treatment with antiviral and antifungal medications. Included in his talk will be research related Xenotropic murine leukemia virus-related virus (XMRV). Also Kathy on's clinic sometimes treats patients remotely if you have a local doctor on board to monitor things. Her contact info is: The director of the Northern New York Clinic is Kathy on and she is wonderful. The number of the New York clinic is 315-773-5405. Their website is http://www.nnyautismcenter.com All the clinics are great, pick the one that is closest to you. If you are even considering seeing Dr. Goldberg or Dr. , you should call their offices to get on the waiting list. Dr Goldberg is in Tarzana, CA (818) 343-1010. Dr. has a clinic in Port Arkansas, Texas. 361-749-1930. (His own child who is on the spectrum sees Dr. Goldberg) Dr also visits a clinic in New York several times a year. Best, Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 Hi Sophie We live in London and we visited Dr G a while back and when you meet him you can not fail to be impressed with his passion and commitment to his work or to have immense respect for someone who manages what must amount to a phenomenal work and caseload and ever growing ... I don't know how on earth he does it! If you choose to make the trip you need to consider your expectations long term because once you are back in the UK the diet part may not be difficult but getting support from the medical establishment here regarding the drug regime will be problematic if you choose to pursue Dr G's recommendations. When we returned we approached a respected Harley St pediatrician and got a very firm NO and so we felt that without some local accessible medical support we would be uncomfortable giving prescription medication assuming we would have been able to get a supply! There are some wonderful and knowledgeable individuals on this site who are supportive and helpful and we had offers to help support us if we wanted to persist despite the difficulties but for us the bottom line was that we wanted local medical support regarding the meds. Is anyone else here aware of other UK parents being more successful in implementing the protocol here and if so how have they managed it because prior to the trip I think this would be valuable to know this to help support longer term plans? Also it is great that Dr will be in London for the Autism Conference but he will largely be speaking to a converted audience perhaps Sophie it would be worthwhile attending the conference because there are sometimes opportunities to meet the speakers even for a brief chat certainly the previous Bournemouth Conference was like that. In a message dated 16/03/2011 23:45:37 GMT Standard Time, aliciacuevaz@... writes: Call to the office 818- 3431010 They will send ou some papers to fill and all the instructions. > > Im new to this site and have only posted a couple of times, but I have been reading loads of the posts you have added and all of them seem to say amazing things about Dr G, he sounds brilliant. > > I dont think we have anyone like this in the UK, but if anyone could point me in the right direction Id be very greatful, I think my son would really benefit from seeing someone like Dr G, but if it means we'd have to travel to see the Dr Id be more than happy, it seems like everyone wants to get to see him! > > What would we need to do? > Thanks > Sophie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 > > I believe Breakspear hospital in UK should be able to help > > Natasa > > > > > Hi Sophie > > We live in London and we visited Dr G a while back and when you meet him > you can not fail to be impressed with his passion and commitment to his work > or to have immense respect for someone who manages what must amount to a > phenomenal work and caseload and ever growing ... I don't know how on earth > he does it! > > If you choose to make the trip you need to consider your expectations long > term because once you are back in the UK the diet part may not be difficult > but getting support from the medical establishment here regarding the drug > regime will be problematic if you choose to pursue Dr G's recommendations. > When we returned we approached a respected Harley St pediatrician and got > a very firm NO and so we felt that without some local accessible medical > support we would be uncomfortable giving prescription medication assuming we > would have been able to get a supply! There are some wonderful and > knowledgeable individuals on this site who are supportive and helpful and we > had > offers to help support us if we wanted to persist despite the difficulties > but for us the bottom line was that we wanted local medical support regarding > the meds. > > Is anyone else here aware of other UK parents being more successful in > implementing the protocol here and if so how have they managed it because > prior > to the trip I think this would be valuable to know this to help support > longer term plans? > > Also it is great that Dr will be in London for the Autism > Conference but he will largely be speaking to a converted audience perhaps > Sophie > it would be worthwhile attending the conference because there are sometimes > opportunities to meet the speakers even for a brief chat certainly the > previous Bournemouth Conference was like that. > > > > > > In a message dated 16/03/2011 23:45:37 GMT Standard Time, > aliciacuevaz@... <mailto:aliciacuevaz%40> writes: > > Call to the office 818- 3431010 > > They will send ou some papers to fill and all the instructions. > > >> > >> > Im new to this site and have only posted a couple of times, but I have > been reading loads of the posts you have added and all of them seem to say > amazing things about Dr G, he sounds brilliant. >> > >> > I dont think we have anyone like this in the UK, but if anyone could > point me in the right direction Id be very greatful, I think my son would > really benefit from seeing someone like Dr G, but if it means we'd have to > travel to see the Dr Id be more than happy, it seems like everyone wants to > get > to see him! >> > >> > What would we need to do? >> > Thanks >> > Sophie >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2011 Report Share Posted March 19, 2011 My perspective on Breakspear is that the individual practioners have their own take on managing their clients needs and formed no part in any discussion when some of the Breakspear practitioners gave presentations at the previous event but maybe the world has moved on since then ... is anyone aware of the Breakspear now supporting ! In a message dated 18/03/2011 22:47:59 GMT Standard Time, neno@... writes: > > I believe Breakspear hospital in UK should be able to help > > Natasa > > > > > Hi Sophie > > We live in London and we visited Dr G a while back and when you meet him > you can not fail to be impressed with his passion and commitment to his work > or to have immense respect for someone who manages what must amount to a > phenomenal work and caseload and ever growing ... I don't know how on earth > he does it! > > If you choose to make the trip you need to consider your expectations long > term because once you are back in the UK the diet part may not be difficult > but getting support from the medical establishment here regarding the drug > regime will be problematic if you choose to pursue Dr G's recommendations. > When we returned we approached a respected Harley St pediatrician and got > a very firm NO and so we felt that without some local accessible medical > support we would be uncomfortable giving prescription medication assuming we > would have been able to get a supply! There are some wonderful and > knowledgeable individuals on this site who are supportive and helpful and we > had > offers to help support us if we wanted to persist despite the difficulties > but for us the bottom line was that we wanted local medical support regarding > the meds. > > Is anyone else here aware of other UK parents being more successful in > implementing the protocol here and if so how have they managed it because > prior > to the trip I think this would be valuable to know this to help support > longer term plans? > > Also it is great that Dr will be in London for the Autism > Conference but he will largely be speaking to a converted audience perhaps > Sophie > it would be worthwhile attending the conference because there are sometimes > opportunities to meet the speakers even for a brief chat certainly the > previous Bournemouth Conference was like that. > > > > > > In a message dated 16/03/2011 23:45:37 GMT Standard Time, > _aliciacuevaz@..._ (mailto:aliciacuevaz@...) <mailto:aliciacuevaz%40> writes: > > Call to the office 818- 3431010 > > They will send ou some papers to fill and all the instructions. > > >> > >> > Im new to this site and have only posted a couple of times, but I have > been reading loads of the posts you have added and all of them seem to say > amazing things about Dr G, he sounds brilliant. >> > >> > I dont think we have anyone like this in the UK, but if anyone could > point me in the right direction Id be very greatful, I think my son would > really benefit from seeing someone like Dr G, but if it means we'd have to > travel to see the Dr Id be more than happy, it seems like everyone wants to > get > to see him! >> > >> > What would we need to do? >> > Thanks >> > Sophie >> > > > [Non-text portions of this message have been removed] > > > > > [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2011 Report Share Posted March 19, 2011 Hi, Sorry for rushed email but I have done both! I am from the uk On Sat, 19 Mar 2011 11:50 GMT goldsmull@... wrote: > >My perspective on Breakspear is that the individual practioners have their >own take on managing their clients needs and formed no part in any >discussion when some of the Breakspear practitioners gave presentations at >the previous event but maybe the world has moved on since then ... is anyone >aware of the Breakspear now supporting ! > > >In a message dated 18/03/2011 22:47:59 GMT Standard Time, >neno@... writes: > > > > >> >> I believe Breakspear hospital in UK should be able to help >> >> Natasa >> >> >> >> >> Hi Sophie >> >> We live in London and we visited Dr G a while back and when you meet him >> you can not fail to be impressed with his passion and commitment to his >work >> or to have immense respect for someone who manages what must amount to a >> phenomenal work and caseload and ever growing ... I don't know how on >earth >> he does it! >> >> If you choose to make the trip you need to consider your expectations >long >> term because once you are back in the UK the diet part may not be >difficult >> but getting support from the medical establishment here regarding the >drug >> regime will be problematic if you choose to pursue Dr G's >recommendations. >> When we returned we approached a respected Harley St pediatrician and got >> a very firm NO and so we felt that without some local accessible medical >> support we would be uncomfortable giving prescription medication >assuming we >> would have been able to get a supply! There are some wonderful and >> knowledgeable individuals on this site who are supportive and helpful >and we >> had >> offers to help support us if we wanted to persist despite the >difficulties >> but for us the bottom line was that we wanted local medical support >regarding >> the meds. >> >> Is anyone else here aware of other UK parents being more successful in >> implementing the protocol here and if so how have they managed it because >> prior >> to the trip I think this would be valuable to know this to help support >> longer term plans? >> >> Also it is great that Dr will be in London for the Autism >> Conference but he will largely be speaking to a converted audience >perhaps >> Sophie >> it would be worthwhile attending the conference because there are >sometimes >> opportunities to meet the speakers even for a brief chat certainly the >> previous Bournemouth Conference was like that. >> >> >> >> >> >> In a message dated 16/03/2011 23:45:37 GMT Standard Time, >> _aliciacuevaz@..._ (mailto:aliciacuevaz@...) ><mailto:aliciacuevaz%40> writes: >> >> Call to the office 818- 3431010 >> >> They will send ou some papers to fill and all the instructions. >> >> >>> > >>> > Im new to this site and have only posted a couple of times, but I have >> been reading loads of the posts you have added and all of them seem to >say >> amazing things about Dr G, he sounds brilliant. >>> > >>> > I dont think we have anyone like this in the UK, but if anyone could >> point me in the right direction Id be very greatful, I think my son would >> really benefit from seeing someone like Dr G, but if it means we'd have >to >> travel to see the Dr Id be more than happy, it seems like everyone wants >to >> get >> to see him! >>> > >>> > What would we need to do? >>> > Thanks >>> > Sophie >>> > >> >> [Non-text portions of this message have been removed] >> >> >> >> >> > >[Non-text portions of this message have been removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2011 Report Share Posted March 20, 2011 Hi I think we may have spoken before. I know there are a small number of us here in the UK who have either visited with or are in the process of visiting Dr G but there seems to be little clarity about how can operate remotely specifically the medical aspect of the protocol which is fairly key to the approach! I think for other UK parents coming into this it is important to have information to allow informed choices because one thing you will learn as you add years to your experience on this trail is that you can add considerable expense with at times no added value. When you say you have done both I am assuming you have tried the Breakspear approach and you have implemented the approach. Did you implement the with medical support from Breakspear or did you find a mechanism to support appropriately the medical aspect of monitoring ? This it seems to me is a crucial question to be answered for anyone considering from this side of the Atlantic because the Rx side of the approach can't based on our experience be managed medically appropriately remotely! It would be helpful for other UK based parents to share their experience if they have managed to do so. In a message dated 19/03/2011 13:17:13 GMT Standard Time, kayarshad@... writes: Hi, Sorry for rushed email but I have done both! I am from the uk On Sat, 19 Mar 2011 11:50 GMT _goldsmull@..._ (mailto:goldsmull@...) wrote: > >My perspective on Breakspear is that the individual practioners have their >own take on managing their clients needs and formed no part in any >discussion when some of the Breakspear practitioners gave presentations at >the previous event but maybe the world has moved on since then ... is anyone >aware of the Breakspear now supporting ! > > >In a message dated 18/03/2011 22:47:59 GMT Standard Time, >_neno@..._ (mailto:neno@...) writes: > > > > >> >> I believe Breakspear hospital in UK should be able to help >> >> Natasa >> >> >> >> >> Hi Sophie >> >> We live in London and we visited Dr G a while back and when you meet him >> you can not fail to be impressed with his passion and commitment to his >work >> or to have immense respect for someone who manages what must amount to a >> phenomenal work and caseload and ever growing ... I don't know how on >earth >> he does it! >> >> If you choose to make the trip you need to consider your expectations >long >> term because once you are back in the UK the diet part may not be >difficult >> but getting support from the medical establishment here regarding the >drug >> regime will be problematic if you choose to pursue Dr G's >recommendations. >> When we returned we approached a respected Harley St pediatrician and got >> a very firm NO and so we felt that without some local accessible medical >> support we would be uncomfortable giving prescription medication >assuming we >> would have been able to get a supply! There are some wonderful and >> knowledgeable individuals on this site who are supportive and helpful >and we >> had >> offers to help support us if we wanted to persist despite the >difficulties >> but for us the bottom line was that we wanted local medical support >regarding >> the meds. >> >> Is anyone else here aware of other UK parents being more successful in >> implementing the protocol here and if so how have they managed it because >> prior >> to the trip I think this would be valuable to know this to help support >> longer term plans? >> >> Also it is great that Dr will be in London for the Autism >> Conference but he will largely be speaking to a converted audience >perhaps >> Sophie >> it would be worthwhile attending the conference because there are >sometimes >> opportunities to meet the speakers even for a brief chat certainly the >> previous Bournemouth Conference was like that. >> >> >> >> >> >> In a message dated 16/03/2011 23:45:37 GMT Standard Time, >> __aliciacuevaz@..._ (mailto:_aliciacuevaz@...) _ (mailto:_aliciacuevaz@..._ (mailto:aliciacuevaz@...) ) ><mailto:aliciacuevaz%40> writes: >> >> Call to the office 818- 3431010 >> >> They will send ou some papers to fill and all the instructions. >> >> >>> > >>> > Im new to this site and have only posted a couple of times, but I have >> been reading loads of the posts you have added and all of them seem to >say >> amazing things about Dr G, he sounds brilliant. >>> > >>> > I dont think we have anyone like this in the UK, but if anyone could >> point me in the right direction Id be very greatful, I think my son would >> really benefit from seeing someone like Dr G, but if it means we'd have >to >> travel to see the Dr Id be more than happy, it seems like everyone wants >to >> get >> to see him! >>> > >>> > What would we need to do? >>> > Thanks >>> > Sophie >>> > >> >> [Non-text portions of this message have been removed] >> >> >> >> >> > >[Non-text portions of this message have been removed] > > > > > > >[Non-text portions of this message have been removed] > Quote Link to comment Share on other sites More sharing options...
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