Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Hi, Please don't anyone get upset with me. This guy is a nut case, DAN is far better and constantly updated and researched. He has some areas of the immune system and viruses he is OK on. His diet advice is poor he advocates drugs like Paxil that are a risk to children. If you think you have an immune issue as most of us do you can look for an DAN doctor who will treat your child with an anti-viral. Most do. I have been on list serves with some people who were Goldberg's patients, one Mom he cleared for her child to have immunizations and her child got worse. I have dozens of articles on a public links page you can read on DAN research that was confirmed by Harvard, Tufts, Columbia etc. asd_solutions/links Steer clear of Goldberg. As Dr. McCandless says he started out right, then got proprietary then just plain wacky. She sees his former patients, steer clear. ASD_solutions Generation Rescue.org Unlocking Autism.org dialog_mb <gilrays@...> wrote: Anyone have any familiarity or experience with the protocol asdefined by Dr. Goldberg (http://nids.net/)? Any comparison orcontrast to the DAN! protocol?Thanks!__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 I second this. Run away....fast! Jane Mama to 7 (ASD) and 5 (NT) -- Re: protocol Hi, Please don't anyone get upset with me. This guy is a nut case, DAN is far better and constantly updated and researched. He has some areas of the immune system and viruses he is OK on. His diet advice is poor he advocates drugs like Paxil that are a risk to children. If you think you have an immune issue as most of us do you can look for an DAN doctor who will treat your child with an anti-viral. Most do. I have been on list serves with some people who were Goldberg's patients, one Mom he cleared for her child to have immunizations and her child got worse. I have dozens of articles on a public links page you can read on DAN research that was confirmed by Harvard, Tufts, Columbia etc. asd_solutions/links Steer clear of Goldberg. As Dr. McCandless says he started out right, then got proprietary then just plain wacky. She sees his former patients, steer clear. ASD_solutions Generation Rescue.org Unlocking Autism.org dialog_mb <gilrays@...> wrote: Anyone have any familiarity or experience with the protocol asdefined by Dr. Goldberg (http://nids.net/)? Any comparison orcontrast to the DAN! protocol?Thanks! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Thanks very much. I'll approach any claims made by the group with caution. The diagnostic workup he recommends for evaluation of immune system connection seems (at quick glance) to be reasonably thorough and science-based (although I agree with your comments about some of his treatment recommendations like SSRIs). Additionally, he seems to have captured the attention of at least a portion of mainstream medicine, which seems to have eluded the DAN! folks thusfar. Let me change the direction of this thread and instead ask why there seems to be a lack of support for biomedical treatments within the " mainstream " medical establishment? I realize that there's no money to be made by a pharma company in selling supplements (or in researching them), but a tremedous amount of research not funded by pharma still occurs in academic institutions. Why not for autism? Why isn't there good, solid, unequivocal research of biomedical treatments? Or if there is, why does mainstream medicine deny it? Maybe it's a function of who has, to date, treated autistic kids (behaviorists, not medical doctors). I have to be honest with this group that I'm a little scared of some of the practitioners on the DAN! list. They don't all seem to be as scientifically rigorous as Dr. Rimland himself. I'm not looking to start a debate; I'm really just trying to understand all of the research, the theoretical models, treatment alternatives and practical experience, then decide what's best for my daughter. Thanks in advance for your perspective and support. > > > > Anyone have any familiarity or experience with the protocol as > > defined by Dr. Goldberg (http://nids.net/)? Any comparison or > > contrast to the DAN! protocol? > > > > Thanks! > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 You have some very good points and your hunch is right. Just because someone is on the DAN list doesn't make them qualified, it just means they have attended training. People tend to equate this to board certification it is not. You must read up and investigate before you plunk down any hard earned cash on a DAN. We drive 8 hours to Florida to Bradstreet's PA another Mom on this list flys to Dr. Usman in Chicago. Better to fly than flush your hard earned cash away on a worthless practitioner. You will however be happy that more and more of DAN is going mainstream. With powerhouses like Harvard getting behind Bio-med research... who can dispute that? There are a network of hospitals jumping on board as well this year. You can read about them on this link.http://www.autismtreatmentnetwork.org. If you want a really good launchpad order Dr. McCandless's book Children with Starving Brains. It gives you an idea of baseline tests and areas to address. One thing to remember Autism rates have only recently sky-rocketted in the last couple decades. I don't think it has had time to mainstream. In the 30's it wasn't a 1-150 issue it was 1in 10,000. You ought to have a good healthy fear of who is treating your kid. Any doctor worth his salt will have staff that should willingly answer your questions. The sad thing is most of us are so vunerable and want to help our kids we would just about listen to anyone. Take your time and find a doctor you are comfortable with because this journey is long. I love the fact that every practitioner in Dr. B's office has an ASD kid. dialog_mb <gilrays@...> wrote: Thanks very much. I'll approach any claims made by the groupwith caution. The diagnostic workup he recommends for evaluation ofimmune system connection seems (at quick glance) to be reasonablythorough and science-based (although I agree with your comments aboutsome of his treatment recommendations like SSRIs). Additionally, heseems to have captured the attention of at least a portion ofmainstream medicine, which seems to have eluded the DAN! folks thusfar.Let me change the direction of this thread and instead ask why thereseems to be a lack of support for biomedical treatments within the"mainstream" medical establishment? I realize that there's no moneyto be made by a pharma company in selling supplements (or inresearching them), but a tremedous amount of research not funded bypharma still occurs in academic institutions. Why not for autism? Whyisn't there good, solid, unequivocal research of biomedicaltreatments? Or if there is, why does mainstream medicine deny it? Maybe it's a function of who has, to date, treated autistic kids(behaviorists, not medical doctors).I have to be honest with this group that I'm a little scared of someof the practitioners on the DAN! list. They don't all seem to be asscientifically rigorous as Dr. Rimland himself.I'm not looking to start a debate; I'm really just trying tounderstand all of the research, the theoretical models, treatmentalternatives and practical experience, then decide what's best for mydaughter.Thanks in advance for your perspective and support.> > > > Anyone have any familiarity or experience with the protocol as> > defined by Dr. Goldberg (http://nids.net/)? Any comparison or> > contrast to the DAN! protocol?> > > > Thanks!> > > > > > > > > > > > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 I having trouble accessing the protocol.....can anyone guide me in the right direction? I tried looking into Files but could not access it. Also, what is the diet, is it separate from the protocol? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 Hi Hildy, The diet is part of the protocol (or the Goldberg Approach as it's called in his new book). You can find the " ins and outs " of the diet at: http://www.neuroimmunedr.com/Articles/Autism___PDD/Diet_/diet_.html That website also has Dr. G's protocol info including meds, etc. -- Holly > > I having trouble accessing the protocol.....can anyone guide me in the right direction? I tried looking into Files but could not access it. > > Also, what is the diet, is it separate from the protocol? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 Hello Hildy, Go to .net and you will find Dr. Goldberg. Here's his phone number in case you want to call or email the office (818) 343-1010. Argie On Mar 16, 2011, at 8:09 PM, hildy wrote: > I having trouble accessing the protocol.....can anyone guide me > in the right direction? I tried looking into Files but could not > access it. > > Also, what is the diet, is it separate from the protocol? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 I think one of the reasons it is not on the website is that it is different for everyone, based on lab work and Dr. Goldberg's experience. There are some commonalities but it really is individualized. On 3/16/11 11:09 PM, hildy wrote: > > I having trouble accessing the protocol.....can anyone guide me > in the right direction? I tried looking into Files but could not > access it. > > Also, what is the diet, is it separate from the protocol? > > Quote Link to comment Share on other sites More sharing options...
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