Guest guest Posted July 14, 2012 Report Share Posted July 14, 2012 Hi Everyonne , I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive. It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel . Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking . 10 seconds of rife the second year f riffing i tis nto good . S So I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way . One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone . it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown . Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease . Kindly Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2012 Report Share Posted July 14, 2012 Hi Marie,Just remember that the dance of Lyme is a two-step: two steps forward, one step back. Many of us at the second part, the one step back, think what we've been doing has failed and that may not be the case. Marc Fett, over at Lymestrategies (S & C, which is one of my manistays) speaks of how important methodical, consistent protocols are. On this roller-coaster, up or down matters less than simply persisting, hanging on tight, on whatever path has helped in the past, even if it doesn't feel like progress in the present. Perceived failure is almost guaranteed, so it's good to see if you can change your perspective and look for the hidden pattern of the two-step.I'm not sure I'm clearly understanding your reference to antibiotics. Generally, with chronic Lyme, they give a false sense of improvement, while allowing much of the infection to go into hiding where it can wait you out and come back later, five-fold. ABX also sabotage the gut, which is your immune system, so I'd give the other things you've tried more attention. Some of the most effective things take a very long time to make any difference at all, but at least they don't sabotage the gut or merely postpone the infection to a later time.Take heart, dear, kindly Marie. I know how very hard you have worked and I believe your reward will come.Be well,Léna Hi Everyonne , I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive. It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel . Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking . 10 seconds of rife the second year f riffing i tis nto good . S So I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way . One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone . it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown . Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease . Kindly Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2012 Report Share Posted July 14, 2012 Thanks Lena, I know you wrote that for Marie, but you might just as well have written it for me today! I wonder how many people are in the one-step-back stage on any given day--probably quite a few. Sometimes it seems like one step forward and two steps back! But if I compare to how I was when I was first diagnosed in 2000--there's no comparison. So I know I've made a lot of progress. I just have an awful long way still to go ... Khaya > > > > > Hi Everyonne , > > > > I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive. > > It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel . > > Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking . > > 10 seconds of rife the second year f riffing i tis nto good . > > S > > So I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way . > > One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone . > > it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew > > and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown . > > > > Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease . > > > > Kindly Marie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2012 Report Share Posted July 14, 2012 Oh Khaya,This is an endurance game: of patience beyond patience. Attitude is everything!We all help each other keep on keeping on. Someone recently told me, 'Release expectations and embrace gratitudes.' That really fits when you're fighting Lyme. We just have to remember that Lyme is finite, that this isn't a cave, but a tunnel.Be well,Léna Thanks Lena, I know you wrote that for Marie, but you might just as well have written it for me today! I wonder how many people are in the one-step-back stage on any given day--probably quite a few. Sometimes it seems like one step forward and two steps back! But if I compare to how I was when I was first diagnosed in 2000--there's no comparison. So I know I've made a lot of progress. I just have an awful long way still to go ... Khaya > > > > > Hi Everyonne , > > > > I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive. > > It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel . > > Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking . > > 10 seconds of rife the second year f riffing i tis nto good . > > S > > So I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way . > > One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone . > > it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew > > and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown . > > > > Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease . > > > > Kindly Marie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2012 Report Share Posted July 14, 2012 Thank you Lena , Still too long is too long. I amno tinterested in abx . I took th ecomparison because of the time given to them to work by LLMD. To give time frame of what to expect or not from a product itneeds to be geivent in a sensible time fame that is a minimum of 7 month and go up to severla years. it is certainly not a question of days . There are peopl ehealing with abx even thought it failed for us obviously and even thought ti gives cysts the LLMD do it they know the problems and chouse accordingly with unegual success depending on the case . I included in my thinking this classical approach that failed fo rme becaus eof thetime frame . A reward that come sin 10 years thank you so very much thank you I do nto want this kind Ineed to find an better approach . Thank you Lena for your caring and encouragement . The epidemic of wiseness is not my cup of tea.I will find an other way . Kindly marie To: Lyme_and_Rife Sent: Saturday, July 14, 2012 2:46 PMSubject: Re: OT: out of frustration Hi Marie, Just remember that the dance of Lyme is a two-step: two steps forward, one step back. Many of us at the second part, the one step back, think what we've been doing has failed and that may not be the case. Marc Fett, over at Lymestrategies (S & C, which is one of my manistays) speaks of how important methodical, consistent protocols are. On this roller-coaster, up or down matters less than simply persisting, hanging on tight, on whatever path has helped in the past, even if it doesn't feel like progress in the present. Perceived failure is almost guaranteed, so it's good to see if you can change your perspective and look for the hidden pattern of the two-step. I'm not sure I'm clearly understanding your reference to antibiotics. Generally, with chronic Lyme, they give a false sense of improvement, while allowing much of the infection to go into hiding where it can wait you out and come back later, five-fold. ABX also sabotage the gut, which is your immune system, so I'd give the other things you've tried more attention. Some of the most effective things take a very long time to make any difference at all, but at least they don't sabotage the gut or merely postpone the infection to a later time. Take heart, dear, kindly Marie. I know how very hard you have worked and I believe your reward will come. Be well, Léna Hi Everyonne , I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive. It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel . Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking . 10 seconds of rife the second year f riffing i tis nto good . S So I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way . One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone . it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown . Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease . Kindly Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2012 Report Share Posted July 14, 2012 It's a good thing today is a very bright day! I went outside and " baked " for a while, pulling a few weeds, so had my heat treatment. It could be a lot worse! Thanks for your encouragement Lena! Khaya > > > > > > > > > > > Hi Everyonne , > > > > > > > > I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive. > > > > It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel . > > > > Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking . > > > > 10 seconds of rife the second year f riffing i tis nto good . > > > > S > > > > So I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way . > > > > One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone . > > > > it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew > > > > and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown . > > > > > > > > Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease . > > > > > > > > Kindly Marie > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2012 Report Share Posted July 14, 2012 Gratitude yes I agree Lena, Patience to this point is counter productive for me . Kindly Marie To: Lyme_and_Rife Sent: Saturday, July 14, 2012 4:09 PMSubject: Re: Re: OT: out of frustration Oh Khaya, This is an endurance game: of patience beyond patience. Attitude is everything! We all help each other keep on keeping on. Someone recently told me, 'Release expectations and embrace gratitudes.' That really fits when you're fighting Lyme. We just have to remember that Lyme is finite, that this isn't a cave, but a tunnel. Be well, Léna Thanks Lena,I know you wrote that for Marie, but you might just as well have written it for me today! I wonder how many people are in the one-step-back stage on any given day--probably quite a few. Sometimes it seems like one step forward and two steps back! But if I compare to how I was when I was first diagnosed in 2000--there's no comparison. So I know I've made a lot of progress. I just have an awful long way still to go ...Khaya> > > > > Hi Everyonne ,> > > > I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive.> > It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel .> > Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking .> > 10 seconds of rife the second year f riffing i tis nto good .> > S> > So I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way .> > One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone .> > it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew> > and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown .> > > > Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease .> > > > Kindly Marie> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2012 Report Share Posted July 15, 2012 Hi Marie,I realize that it’s not going to change your level of frustration but I think that most of us Lymies are constantly going through the same dance. Feel better for a short time, feel worse for longer time and on and on. I know for me anything that seems to work is only temporary and then it’s on to the next thing. For years my worst symptom was chronic back pain and if anything did help with the pain the effects would diminish before long and I would have to try something else until that didn’t help and I would switch again. I’m finding the same thing with supplements now, except I still haven’t seen much improvement in the brain fog. MMS has helped with fatigue a great deal but not so much with the constant fog I’m in.You’ve been through so much already but you can’t allow the disease to win. Just keep fighting and unfortunately the frustration will keep coming also.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of Marie BenoitSent: Saturday, July 14, 2012 2:06 PMTo: lyme_and_rife Subject: OT: out of frustration Hi Everyonne , I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive.It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel .Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking .10 seconds of rife the second year f riffing i tis nto good .SSo I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way .One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone .it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown . Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease . Kindly Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2012 Report Share Posted July 16, 2012 Marie,i hear you. i understand and know where you are. won't offer any great encouragement because you have heard it all, given it yourself many times. and sometimes encouragement only seems to make it harder, more frustrating, almost angry because it feels like no one understands. as we sit in that 'hole' and grieve we cannot digest the encouragement to 'hang in there'. we don't want/cant handle being cheered up. david, in the psalms was there many times. been there many times myself. give yourself the grieving time for your loss(es). it's ok. i know you know that the lord is there as you grieve, holding you. i have often envisioned myself sitting on his lap as a child as he held me. as he is holding you now. it is in times like these, when we are feeling so very hopeless, that he is actually the closest to us. stay there, with him, in your grieving, until you feel his comfort and peace. but for now, allow yourself to grieve, rest in him and allow him to hold you.barbara Hi Marie,I realize that it’s not going to change your level of frustration but I think that most of us Lymies are constantly going through the same dance. Feel better for a short time, feel worse for longer time and on and on. I know for me anything that seems to work is only temporary and then it’s on to the next thing. For years my worst symptom was chronic back pain and if anything did help with the pain the effects would diminish before long and I would have to try something else until that didn’t help and I would switch again. I’m finding the same thing with supplements now, except I still haven’t seen much improvement in the brain fog. MMS has helped with fatigue a great deal but not so much with the constant fog I’m in. You’ve been through so much already but you can’t allow the disease to win. Just keep fighting and unfortunately the frustration will keep coming also. Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of Marie Benoit Sent: Saturday, July 14, 2012 2:06 PMTo: lyme_and_rife Subject: OT: out of frustration Hi Everyonne , I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive. It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel . Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking . 10 seconds of rife the second year f riffing i tis nto good .S So I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way .One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone . it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown . Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease . Kindly Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2012 Report Share Posted July 16, 2012 Hi Marie,If you go on disability you will have the opportunity to return to work if you’re able to. You can earn a certain amount per year without giving up your disability. I don’t remember the exact amount but I know that it is possible to work and receive disability.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of Marie BenoitSent: Monday, July 16, 2012 1:46 PMTo: Lyme_and_Rife Subject: Re: OT: out of frustration Thank you Barbara, Jeff, Lena ,For you kind support . grieving eys but what exactly . Thi sincertaintly of no tknowing when for how long or for godd how much to grive for makes it uneasy for me . Nothing is sure neither if we stay sick neither if we heal and how much and in ho wmuch time htis is a big thing . I cannot organise accordingly . if I work on the desability for exemple If I will no be able to work again in the future eventhought I become able to .Kindly Marie To: Lyme_and_Rife Sent: Sunday, July 15, 2012 8:57 PMSubject: Re: OT: out of frustration Marie, i hear you. i understand and know where you are. won't offer any great encouragement because you have heard it all, given it yourself many times. and sometimes encouragement only seems to make it harder, more frustrating, almost angry because it feels like no one understands. as we sit in that 'hole' and grieve we cannot digest the encouragement to 'hang in there'. we don't want/cant handle being cheered up. david, in the psalms was there many times. been there many times myself. give yourself the grieving time for your loss(es). it's ok. i know you know that the lord is there as you grieve, holding you. i have often envisioned myself sitting on his lap as a child as he held me. as he is holding you now. it is in times like these, when we are feeling so very hopeless, that he is actually the closest to us. stay there, with him, in your grieving, until you feel his comfort and peace. but for now, allow yourself to grieve, rest in him and allow him to hold you. barbara Hi Marie,I realize that it’s not going to change your level of frustration but I think that most of us Lymies are constantly going through the same dance. Feel better for a short time, feel worse for longer time and on and on. I know for me anything that seems to work is only temporary and then it’s on to the next thing. For years my worst symptom was chronic back pain and if anything did help with the pain the effects would diminish before long and I would have to try something else until that didn’t help and I would switch again. I’m finding the same thing with supplements now, except I still haven’t seen much improvement in the brain fog. MMS has helped with fatigue a great deal but not so much with the constant fog I’m in.You’ve been through so much already but you can’t allow the disease to win. Just keep fighting and unfortunately the frustration will keep coming also.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of Marie BenoitSent: Saturday, July 14, 2012 2:06 PMTo: lyme_and_rife Subject: OT: out of frustration Hi Everyonne , I am piling up frustration as I pile up the treatment and gets nowhere except temporary releive.It makes me feels like a gynee pig in tis weel .. in hi scage running faster and faster as the wheel .Speding my time in treatments after two years is not acceptable to me patience needs to give place to censible decision and thinking .10 seconds of rife the second year f riffing i tis nto good .SSo I make a list of everyhting that has been doin gsome good to me to see what I can do with it in a diffrent way .One of theses treatment I had a good result bu ttmporary is the KIB 500. I was much better for 2 weeks then th ebenefit beganto decline until on emonth and half after it was gone .it was quite remarquable what it di dto me and I dropped it because it was temporary . But when I compare to any other treatment everythign is temporary and if we stopp it we go back into our misery, rife , MMS, silver , ozone , abx, andthis did much mor ein one series than anyother did for me that I can afford . So I think it is not sensible to rule otu this because it is knew and temporary when everything else need much more time of use to give its result ansthis one gave me on one serie a much better outcome than anything else in the same time . And a sensible approach would be to do it at least as long as antibiody and alittl ebi tmore as it is not wellknown . Here is my thought . And I am going to pass everything I have been doing like this thinking of it in a different perspective . I hope I will be able to open the door of this prison like desease . Kindly Marie Quote Link to comment Share on other sites More sharing options...
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