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OT: Lena, Don't Go!!!

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Lena - I just wanted to let you know how much I value your posts. I truly

appreciate all the time and thought you put into everything you share with us.

I understand that many folks tend to drift away from the message board community

as they regain their health. Having you stick around and share your journey

with us has given me hope for my own recovery.

With heartfelt thanks,

>

> Hi Barbara,

> Yes, you're very lucky to be so near! I hope there's a good connection there

for you. I envy you.

>

> I've just been told that I shouldn't refer people to other support groups,

that it confuses them and that just because I'm feeling pretty well, I should

realize that more than one support group will cause confusion and distress in

people who are very sick. ????

>

> I was still very sick when I joined another invaluable group that has made an

equal contribution to my good recovery, so I think this concern underestimates

the intelligence, the will to fight and recover that other very sick people

have. They should not be deprived of any promising avenue. They should be

allowed to choose for themselves. And sometimes, they don't even need to choose,

but can have a harmonious blend of more that one protocol.

>

> I surely hope this isn't true, that my contributions haven't caused distress,

as most people in this group know that I have shared at length, with diversity,

respect for the many differences our diseases present, with compassion and

optimism: something sorely needed in this awful disease.

>

> This has made me sad. I may not be posting in this group any more, unless the

group in general feels my approach has been helpful.

>

> Be well,

> Léna

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I'll second that! Your posts are always very well thought out and helpful,

based on your wealth of research and experience. Thanks a million! Also

and Jim and ...

Khaya

> >

> > Hi Barbara,

> > Yes, you're very lucky to be so near! I hope there's a good connection there

for you. I envy you.

> >

> > I've just been told that I shouldn't refer people to other support groups,

that it confuses them and that just because I'm feeling pretty well, I should

realize that more than one support group will cause confusion and distress in

people who are very sick. ????

> >

> > I was still very sick when I joined another invaluable group that has made

an equal contribution to my good recovery, so I think this concern

underestimates the intelligence, the will to fight and recover that other very

sick people have. They should not be deprived of any promising avenue. They

should be allowed to choose for themselves. And sometimes, they don't even need

to choose, but can have a harmonious blend of more that one protocol.

> >

> > I surely hope this isn't true, that my contributions haven't caused

distress, as most people in this group know that I have shared at length, with

diversity, respect for the many differences our diseases present, with

compassion and optimism: something sorely needed in this awful disease.

> >

> > This has made me sad. I may not be posting in this group any more, unless

the group in general feels my approach has been helpful.

> >

> > Be well,

> > Léna

>

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