Re: Neuropathy pain and diagnosis/Becky

[Guest guest]

I really think the word “neuropathy” means there is

something wrong and we have no idea what ,where and

how to find it.I think we have got mine narrowed down

real close, but it took almost 6 years. Any one that

has a diagnosis of “neuropathy” I really feel for

them.

ron Pat

--- becky chase wrote:

> hello everyone, i got my test back from OHSU, i do

> not have small fiber neuropathy. so the testing will

> still be going man this gets old.

[Guest guest]

--I really have to agree with you on that one. I`m begining to fee that

many of there ideas are saying I have no idea. I`ll guess at it. Maybe

it will work. Just my thought,

> --- becky chase wrote:

>

hello everyone, i got my test back from OHSU, i do

not have small fiber neuropathy. so the testing will

still be going man this gets old.

>

[Guest guest]

--- ron Pat wrote:

>

>Any one that has a diagnosis of " neuropathy " I really feel for

them.

thanks for your input, i am in a lot of pain or it is starting to let

up. thank you, and this is about 8 yrs for me. it travels in me and its

in my back right now. i could not get to sleep with the pain of mine i

have taken a couple of things so it is leting -up, but i waited to long

to long to take anything!

[Guest guest]

Mine is in the very lower part of my back,but the

highest pain is from just above my belly button and

down to about mid thigh. Scar tissue and nerve

entrapment from an Aortobifemoral bypass. No way to

get to it. And when I say every thing on the front.”I

really mean every thing”hurts.

ron Pat

--- Becky wrote:

> I have taken a couple of things so it is leting -up,

but i waited to long to long to take anything!