Re: Trista -- Hello/Challis!

May 11, 2006

Challis,

He said that since my MRI of the brain was normal, that I had NO chance of developing a serious neurological disease. He said, "maybe it's Fibromyalgia. But what is Fibro??? We don't know. So, even if it is, we can't do much. Fibro can cause swallowing problems, pain, and vision problems." I then asked him if it caused muscle spasms, twitching, balance problems, vibrations..... He shakes his head no and shrugs. He says that it's obvious that I'm disappointed about him not dx'ing me with MS! What the???!!! Is he crazy??? No, I don't want MS. I just want to know what's going on. So, I asked him, where do I go from here? He just shrugs his shoulders. Then I told him, "THAT is what I'm upset about! NO ONE can tell me where to turn next!" So, then he suggests I see a Psychiatrist. Grrrrrr. Because I have been treated for depression/anxiety, I'm automatically a psych case??? I was so angry. So I ask him again, does depression have these sx's??? He says no, and I just shake my head at him. He said he could order a spinal MRI, visually evoked potentials, and the nerve conduction tests. (can't remember what that's called.) He did say that my reflexes are very "brisk", which is not normal, but that because he can't find anything else, he'll CALL it normal for me. ???? I am frustrated and disgusted. DH says go with my "gut feeling" and don't let these people make me doubt myself. He sees me day in and day out. He knows. He also says I should have the cervical MRI, even though the Dr. said that the tests he could run, would be a waste of time. Am I crazy???? I KNOW I've read that many people have neg MRI's for quite some time before finally showing lesions. I'm just going to have to live one day at a time and deal as best I can. I am just praying that I don't have any problems that are permanent, from NOT being on meds. WAY more than you wanted to know right? Sorry, I had to vent. I'm in tears. Why won't they believe me? Right now, I just need energy and something to relieve the pain. OH!!!! And get this! He didn't like my list of sx's. He says if you hand a list of sx's to a Dr. that is longer than 3, it confuses them! I thought by being thorough, it would help him. (rolling my eyes) Oh well. Glad you are doing so well after your CT surg. Trista

Re: Hello

Hi ',

It's nice to meet you. )

I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona.

I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*.

I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL

I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g>

My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support.

I'm glad docs are listening to you now and hope you get concrete and accurate answers soon!

Challis

dixmstx wrote:

Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas

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May 11, 2006

Trista...Challis...have you been tested for Candida? I have MS but I ALSO have Candida and I actually have more symptoms from that then from the MS, and the symptoms are remarkably similar.

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

-- Re: Trista -- Hello/Challis!

Challis,

He said that since my MRI of the brain was normal, that I had NO chance of developing a serious neurological disease. He said, "maybe it's Fibromyalgia. But what is Fibro??? We don't know. So, even if it is, we can't do much. Fibro can cause swallowing problems, pain, and vision problems." I then asked him if it caused muscle spasms, twitching, balance problems, vibrations..... He shakes his head no and shrugs. He says that it's obvious that I'm disappointed about him not dx'ing me with MS! What the???!!! Is he crazy??? No, I don't want MS. I just want to know what's going on. So, I asked him, where do I go from here? He just shrugs his shoulders. Then I told him, "THAT is what I'm upset about! NO ONE can tell me where to turn next!" So, then he suggests I see a Psychiatrist. Grrrrrr. Because I have been treated for depression/anxiety, I'm automatically a psych case??? I was so angry. So I ask him again, does depression have these sx's??? He says no, and I just shake my head at him. He said he could order a spinal MRI, visually evoked potentials, and the nerve conduction tests. (can't remember what that's called.) He did say that my reflexes are very "brisk", which is not normal, but that because he can't find anything else, he'll CALL it normal for me. ???? I am frustrated and disgusted. DH says go with my "gut feeling" and don't let these people make me doubt myself. He sees me day in and day out. He knows. He also says I should have the cervical MRI, even though the Dr. said that the tests he could run, would be a waste of time. Am I crazy???? I KNOW I've read that many people have neg MRI's for quite some time before finally showing lesions. I'm just going to have to live one day at a time and deal as best I can. I am just praying that I don't have any problems that are permanent, from NOT being on meds. WAY more than you wanted to know right? Sorry, I had to vent. I'm in tears. Why won't they believe me? Right now, I just need energy and something to relieve the pain. OH!!!! And get this! He didn't like my list of sx's. He says if you hand a list of sx's to a Dr. that is longer than 3, it confuses them! I thought by being thorough, it would help him. (rolling my eyes) Oh well. Glad you are doing so well after your CT surg. Trista

Re: Hello

Hi ',

It's nice to meet you. )

I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona.

I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*.

I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL

I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g>

My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support.

I'm glad docs are listening to you now and hope you get concrete and accurate answers soon!

Challis

dixmstx wrote:

Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas

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May 11, 2006

I haven't. What sx's? Trista

Re: Hello

Hi ',

It's nice to meet you. )

I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona.

I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*.

I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL

I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g>

My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support.

I'm glad docs are listening to you now and hope you get concrete and accurate answers soon!

Challis

dixmstx wrote:

Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas

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May 11, 2006

Many people will have normal brain MRI but

then find lesions in the cervical or thoracic spine….so he is dx as not

MS because of a brain MRI only. Sounds like you should have the other tests,

nerve conduction test, EMG, other MRIs, and spinal tap if you didn’t

already…Also I had negative MRIs for several years with active active

symptoms and suddenly the lesions began showing up more and more in each successive

MRI….

Docs gets all deranged when you hand them

a list of sx…Yeah I tihnk we all know about this. I had docs say I was

too complicated and they couldn’t see me as a PCP long before dx simply

because of my long list of symptoms…but if You hide symptoms and just

give certain ones, it leads them in the wrong direction. There is no right

answer here…..

From: MSersLife [mailto:MSersLife ] On Behalf Of Trista

Sent: Thursday, May 11, 2006 2:40

PM

To: MSersLife

Subject: Re: Trista --

Hello/Challis!

Challis,

He said that since my MRI of the

brain was normal, that I had NO chance of developing a serious neurological

disease. He said, " maybe it's Fibromyalgia. But what is

Fibro??? We don't know. So, even if it is, we can't do much. Fibro

can cause swallowing problems, pain, and vision problems. " I then

asked him if it caused muscle spasms, twitching, balance problems,

vibrations..... He shakes his head no and shrugs. He says that it's

obvious that I'm disappointed about him not dx'ing me with MS! What

the???!!! Is he crazy??? No, I don't want MS. I just want to

know what's going on. So, I asked him, where do I go from here? He

just shrugs his shoulders. Then I told him, " THAT is what I'm upset

about! NO ONE can tell me where to turn next! " So, then he

suggests I see a Psychiatrist. Grrrrrr. Because I have been treated

for depression/anxiety, I'm automatically a psych case??? I was so

angry. So I ask him again, does depression have these sx's??? He

says no, and I just shake my head at him. He said he could order a spinal

MRI, visually evoked potentials, and the nerve conduction tests. (can't

remember what that's called.) He did say that my reflexes are very " brisk " ,

which is not normal, but that because he can't find anything else, he'll CALL

it normal for me. ???? I am frustrated and disgusted.

DH says go with my " gut feeling " and don't let these people make

me doubt myself. He sees me day in and day out. He knows. He

also says I should have the cervical MRI, even though the Dr. said that the

tests he could run, would be a waste of time. Am I crazy???? I KNOW

I've read that many people have neg MRI's for quite some time before finally

showing lesions. I'm just going to have to live one day at a time and

deal as best I can. I am just praying that I don't have any problems that

are permanent, from NOT being on meds. WAY more than you wanted to know

right? Sorry, I had to vent. I'm in tears. Why won't they

believe me? Right now, I just need energy and something to relieve

the pain. OH!!!! And get this! He didn't like my list of

sx's. He says if you hand a list of sx's to a Dr. that is longer than 3,

it confuses them! I thought by being thorough, it would help him.

(rolling my eyes) Oh well. Glad you are doing so well after your CT

surg. Trista

Re:

Hello

Hi ',

It's nice to meet you. )

I'm Challis... my husband, , and I have four children ( is 19,

is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona.

I don't have a dx myself, but I've tried to find one. lol

If I think about it, I may be able tot race the first hints of symptoms back

about ten or eleven years. It was just about seven years ago when they

really started grabbing my attention and increasing a good bit. Right now

I'm *okay*.

I did at last decide to try to find some answers, and headed off to see

a Neuro and go for a few of the tests. MRI, blood work, eval, that sort

of thing. It was a bit over a year ago when my Neuro dismissed me.

Well, I shouldn't say that. He did tell me the reason I can't feel my

skin, among other things, is that I was Breastfeeding. LOL And he

did say that I should " keep an open mind and find some happiness in the

fact that I have zero chance of developing any significant neurological disease

over the next ten years " . I better watch out in ten years

maybe? ROFL He also said that when people are told they don't have

MS, their symptoms disapear. I'm waiting... LOL

I've not gathered the courage, gusto, caring, whatever it is it'll take

to get me back to a new Neuro and more testing... I've not found it yet and so

talk about going when asked. Never further. <g>

My Mother has MS. Clearly I want to be like Mom so imagine it

all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She

encouraged me to join this list about a year and a half ago. I'm glad I

finally did. The people here can be a true and deep source of support.

I'm glad docs are listening to you now and hope you get concrete and

accurate answers soon!

Challis

dixmstx

wrote:

Just wanted to say hello.

I don't know if I'm a newbie or still in

limboland. I have had symptoms for 7 years with two documented

exacerbations before but always had normal MRI's so other neuro

never investigated the poblem they would just say it was

fibromyalgia and that was it.

In March I went to my urologist thinking I was just having problems

with chronic cystitis, was treated for a kidney infecton, and ended

up in the ER 5 days later unable to urinate. Imagine my surprise a

few days later when the dr said it was probably ms and I needed to

see a neuro.

Luckily this time I had my Urologist and my Rheumatologist saying

THIS IS NOT NORMAL.

I have the neurological problems: tremors, balance and coordination

problems, some cognitive, abnormal gait, blurred vision, etc.

This is the first time my MRI was abnormal but it was " INCONCLUSIVE "

so I go and have the field of blood work done on Monday and will go

into my third week of PT.

Hopefully when I see the neurologist next week we can decide on some

kind of plan. The only thing that aggravates me is that I'm a nurse

and I recognized the symptoms and was asking the question for

years, " What about MS? " Still working and taking care of others the

best I can soo I hope the MD has some answers.

Thanks for listening

' from Texas

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PC-to-Phone Calls to the US

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May 11, 2006

Thanks. I actually printed off one of your posts about how it took time for them to see the lesions on your MRI. I've shown it to my mom and DH, just to make sure I wasn't "making it up in my head" ! Lol. I'm "afraid" that these other tests will show nothing either, then I'm exactly where I started.... with no answers. You'd think that a list would help, not hurt to obtain a dx. sigh.... Take care, Trista

Re: Hello

Hi ',

It's nice to meet you. )

I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona.

I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*.

I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL

I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g>

My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support.

I'm glad docs are listening to you now and hope you get concrete and accurate answers soon!

Challis

dixmstx wrote:

Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas

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No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006

__________________________________________________

May 11, 2006

Oh, Trista, I am so sorry. It sounds like your Neuro and mine were among the many at the "Couth is for Sissies" conference. No, we don't WANT to be told it's MS. But we do want answers. Real answers, accurate answers. We want to KNOW what is going on in our bodies and we want to be able form a plan and go forward. Whether they tell us it's MS or not doesn't change the fact that there is something wrong. Knowing provides a comfort of sorts and allows us to decide where to go from here. You can tell a blind man he can see, and that he just wants to be told he's blind, but that asinine. Fibromylagia is something my Neuro mentioned, as well. I know enough MSers get the Fibro dx before their MS. Whether it's an additional dx or a misdx, I don't know. But, my feelings when hearing Doc throw that out

was that he clearly didn't believe Fibro was a possibility or he would have checked the trigger points. Isn't that just a given? And the way he mentioned it let me know he didn't believe it himself. Sure, my symptoms and Fibro have a lot in common. And there are a lot they don't have in common. Doc was seeking anything to suggest. Can't just leave it at "I'm sorry, right now I just don't know". But, no, lets toss out other things we all know aren't right and tell 'em their nuts. lol Depression. Yup, heard that one, too! LOL Except mine did say all of the symptoms I was experiencing are symptoms of Depression. Okayyyy... no. LOL The depression associated with this isn't the "cause", but because of it. Something is wrong. Our lives have changed and continue to change. It's frightening not having answers and it's frightening

knowing anything could be possible in our futures. We're limited now in ways we weren't before. We find new ways to adjust and cope with the changes. It takes us so long to come to a point where we able to say "yes, something is wrong", we do the research, we open up to others, some respond well and others may not (or we fear telling others because we don't want to be told to drink more water or just keep your chin up and it'll all go away), we manage to get ourselves to the point of seeing a doc, knowing it could be a good visit or a really bad one... and then we're sent off, with poorly chosen words by doc, told it's nothing, etc., etc., etc.. The worst. Too many MSers are told it's all in their heads. And that really gripes me. With your history of Depression/Anxiety, you know those dx's. You know how they work for you. You know what's possible and what's probable. And you know what

you're going through is NOT due to either. No chance of developing a serious neurological disease. Good grief. Mine said zero chance over the next ten years. How can they say this? How could they know this? Is there some protocol, some miracle wisdom they have that I don't know about? LOL Of course your symptoms list was a good idea. So is a log/journal. If the list is longer than three symptoms it confuses them? LMHO Medical school must have been an horrendous struggle. This guy is a weenie. I am taken aback that your abnormal reflexes are going to be called normal because he can't figure out what is truly going on. How about calling it abnormal and leaving your chart until someone is able to help you, using that history as part of the process? Mine wrote that I wasn't numb at

all. Yet when my face was poked with the pin, my eyes closed, I thought it was his finger or knuckle. Yeah, that's normal. LOL Your dh is right. And so are you. You know your body better than anyone could. You know when something isn't right. And with all the symptoms you have, clearly something isn't right. You've done enough self-educating to have a darn good idea of what it is. You deserve better and I'm genuinely sorry you didn't get better. I know those days after such a visit and I'm so glad you shared this with us. It hits mighty hard, doesn't it? It'll get a bit better. And as you go, you'll continue to experience the symptoms and you'll remind yourself time and again that something is amiss and this Neuro did not respond as he could have or should have. Mine told me he wasn't just sending me away and

didn't want me to feel that he was. he said that if I suddenly lose my vision in six months, to call him. Probably not, Doc, thanks. lol Warm hugs, Challis Trista wrote: Challis, He said that since my MRI of the brain was normal, that I had NO chance of developing a serious neurological disease. He said, "maybe it's Fibromyalgia. But what is Fibro??? We don't know. So, even if it is, we can't do much. Fibro can cause swallowing problems, pain, and vision problems." I then asked him if

it caused muscle spasms, twitching, balance problems, vibrations..... He shakes his head no and shrugs. He says that it's obvious that I'm disappointed about him not dx'ing me with MS! What the???!!! Is he crazy??? No, I don't want MS. I just want to know what's going on. So, I asked him, where do I go from here? He just shrugs his shoulders. Then I told him, "THAT is what I'm upset about! NO ONE can tell me where to turn next!" So, then he suggests I see a Psychiatrist. Grrrrrr. Because I have been treated for depression/anxiety, I'm automatically a psych case??? I was so angry. So I ask him again, does depression have these sx's??? He says no, and I just shake my head at him. He said he could order a spinal MRI, visually evoked potentials, and the nerve conduction tests. (can't remember what that's called.) He did say that my reflexes are very "brisk", which

is not normal, but that because he can't find anything else, he'll CALL it normal for me. ???? I am frustrated and disgusted. DH says go with my "gut feeling" and don't let these people make me doubt myself. He sees me day in and day out. He knows. He also says I should have the cervical MRI, even though the Dr. said that the tests he could run, would be a waste of time. Am I crazy???? I KNOW I've read that many people have neg MRI's for quite some time before finally showing lesions. I'm just going to have to live one day at a time and deal as best I can. I am just praying that I don't have any problems that are permanent, from NOT being on meds. WAY more than you wanted to know right? Sorry, I had to vent. I'm in tears. Why won't they believe me? Right now, I just need energy and something to relieve the pain. OH!!!! And get this! He didn't like my list

of sx's. He says if you hand a list of sx's to a Dr. that is longer than 3, it confuses them! I thought by being thorough, it would help him. (rolling my eyes) Oh well. Glad you are doing so well after your CT surg. Trista Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe?

ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I

go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date:

5/9/2006 __________________________________________________

May 11, 2006

The brain stem should always be done as well; often is not! Love, n

Re: Hello

Hi ',

It's nice to meet you. )

I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona.

I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*.

I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL

I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g>

My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support.

I'm glad docs are listening to you now and hope you get concrete and accurate answers soon!

Challis

dixmstx wrote:

Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas

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__________________________________________________

May 11, 2006

Your Symptoms? Developing new allergies, always tired, poor digestion, gas, heartburn; sugar cravings, irritable bowel, frequent headaches; poor memory, "fogged in" feeling, dizziness, recurring depression, vaginal infections, menstrual difficulties, prostatitis, urinary tract infections, infertility, hay fever, postnasal drip, habitual coughing, catch colds easily, sore throat, athlete's foot, skin rash, psoriasis, cold extremities, arthritis-like symptoms, feel miserable in general. If you have some combination of these symptoms then you may have a problem called candidiasis

http://www.healthyawareness.com/

Check it out...Google it too, you might be surprised! Wouldn't it be nice if that was it all along and you could get RID of it all?

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

-- Re: Trista -- Hello/Challis!

I haven't. What sx's? Trista

Re: Hello

Hi ',

It's nice to meet you. )

I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona.

I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*.

I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL

I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g>

My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support.

I'm glad docs are listening to you now and hope you get concrete and accurate answers soon!

Challis

dixmstx wrote:

Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas

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__________________________________________________

May 11, 2006

Challis,

You always know exactly where I'm coming from. Thank you. I want to write more, but I'm hurting right now. Maybe I can write more a little later. hugs, Trista

Re: Hello

Hi ',

It's nice to meet you. )

I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona.

I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*.

I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL

I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g>

My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support.

I'm glad docs are listening to you now and hope you get concrete and accurate answers soon!

Challis

dixmstx wrote:

Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

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__________________________________________________

May 11, 2006

Hey guys...Thanks for the prayers. I'm upright again without the

spinal headache. Didn't hurt at all but then I have a high pain

tolerance. That is what annoys me when I tell a dr I hurt and he

just nods.

Trista, I think your doc and mine read the same book because after

the exam while I'm having tremors the whole time, he then askrd me

how my personal life was. Told him never been better doc...by the

way, DOC, I used to be the medical directors assistant at a psych

hospital for 4 yrs, I'm mentally sound.

They grab for answers when they don't know. That is how nurse

practicioners are different. They begin as nurses and learn to read

symptoms to find the disease, like you said if you give a dr more

than 3 symptoms they are confused.

I go back to Dallas in 2 weeks and hope to know more then. Until

then I'm just the CRAZY LADY WITH fIBROMYALGIA CAUSING PROBS FOR THE

DOCS.....LOL

PS Fibromyalgia is a bilateral disorder..you could possibly have

both, but if you have any symptoms that don't exist on both sides at

the same time, it cannot be it. And even though many people that

have it also have IBS and chronic cystitis, it does not CAUSE

neurogenic bladder or bowel constpation or incontinence.

-- In MSersLife , " Trista " wrote:

>

> Challis,

>

> He said that since my MRI of the brain was normal, that I had NO

chance of developing a serious neurological disease. He

said, " maybe it's Fibromyalgia. But what is Fibro??? We don't

know. So, even if it is, we can't do much. Fibro can cause

swallowing problems, pain, and vision problems. " I then asked him

if it caused muscle spasms, twitching, balance problems,

vibrations..... He shakes his head no and shrugs. He says that

it's obvious that I'm disappointed about him not dx'ing me with MS!

What the???!!! Is he crazy??? No, I don't want MS. I just want to

know what's going on. So, I asked him, where do I go from here? He

just shrugs his shoulders. Then I told him, " THAT is what I'm upset

about! NO ONE can tell me where to turn next! " So, then he

suggests I see a Psychiatrist. Grrrrrr. Because I have been

treated for depression/anxiety, I'm automatically a psych case??? I

was so angry. So I ask him again, does depression have these

sx's??? He says no, and I just shake my head at him. He said he

could order a spinal MRI, visually evoked potentials, and the nerve

conduction tests. (can't remember what that's called.) He did say

that my reflexes are very " brisk " , which is not normal, but that

because he can't find anything else, he'll CALL it normal for

me. ???? I am frustrated and disgusted. DH says go with my " gut

feeling " and don't let these people make me doubt myself. He sees

me day in and day out. He knows. He also says I should have the

cervical MRI, even though the Dr. said that the tests he could run,

would be a waste of time. Am I crazy???? I KNOW I've read that

many people have neg MRI's for quite some time before finally

showing lesions. I'm just going to have to live one day at a time

and deal as best I can. I am just praying that I don't have any

problems that are permanent, from NOT being on meds. WAY more than

you wanted to know right? Sorry, I had to vent. I'm in tears. Why

won't they believe me? Right now, I just need energy and something

to relieve the pain. OH!!!! And get this! He didn't like my list

of sx's. He says if you hand a list of sx's to a Dr. that is longer

than 3, it confuses them! I thought by being thorough, it would

help him. (rolling my eyes) Oh well. Glad you are doing so well

after your CT surg. Trista

> Re: Hello

>

> Hi ',

>

> It's nice to meet you. )

>

> I'm Challis... my husband, , and I have four children

( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in

Arizona.

>

> I don't have a dx myself, but I've tried to find one.

lol If I think about it, I may be able tot race the first hints of

symptoms back about ten or eleven years. It was just about seven

years ago when they really started grabbing my attention and

increasing a good bit. Right now I'm *okay*.

>

> I did at last decide to try to find some answers, and

headed off to see a Neuro and go for a few of the tests. MRI, blood

work, eval, that sort of thing. It was a bit over a year ago when

my Neuro dismissed me. Well, I shouldn't say that. He did tell me

the reason I can't feel my skin, among other things, is that I was

Breastfeeding. LOL And he did say that I should " keep an open mind

and find some happiness in the fact that I have zero chance of

developing any significant neurological disease over the next ten

years " . I better watch out in ten years maybe? ROFL He also said

that when people are told they don't have MS, their symptoms

disapear. I'm waiting... LOL

>

> I've not gathered the courage, gusto, caring, whatever it

is it'll take to get me back to a new Neuro and more testing... I've

not found it yet and so talk about going when asked. Never

further. <g>

>

> My Mother has MS. Clearly I want to be like Mom so

imagine it all, I'm sure. LOL My Mom, btw, is Sharon /

Wobbletowalk. She encouraged me to join this list about a year and

a half ago. I'm glad I finally did. The people here can be a true

and deep source of support.

>

> I'm glad docs are listening to you now and hope you get

concrete and accurate answers soon!

>

> Challis

>

> dixmstx wrote:

> Just wanted to say hello. I don't know if I'm a newbie

or still in

> limboland. I have had symptoms for 7 years with two

documented

> exacerbations before but always had normal MRI's so

other neuro

> never investigated the poblem they would just say it was

> fibromyalgia and that was it.

> In March I went to my urologist thinking I was just

having problems

> with chronic cystitis, was treated for a kidney

infecton, and ended

> up in the ER 5 days later unable to urinate. Imagine my

surprise a

> few days later when the dr said it was probably ms and I

needed to

> see a neuro.

> Luckily this time I had my Urologist and my

Rheumatologist saying

> THIS IS NOT NORMAL.

> I have the neurological problems: tremors, balance and

coordination

> problems, some cognitive, abnormal gait, blurred vision,

etc.

> This is the first time my MRI was abnormal but it

was " INCONCLUSIVE "

> so I go and have the field of blood work done on Monday

and will go

> into my third week of PT.

> Hopefully when I see the neurologist next week we can

decide on some

> kind of plan. The only thing that aggravates me is that

I'm a nurse

> and I recognized the symptoms and was asking the

question for

> years, " What about MS? " Still working and taking care of

others the

> best I can soo I hope the MD has some answers.

>

> Thanks for listening

>

> ' from Texas

>

> -------------------------------------------------------------------

-----

> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the

US (and 30+ countries) for 2¢/min or less.

>

> -------------------------------------------------------------------

-----

>

> No virus found in this incoming message.

> Checked by AVG Anti-Virus.

> Version: 7.1.392 / Virus Database: 268.5.5/335 - Release

Date: 5/9/2006

>

> __________________________________________________

>

May 11, 2006

,

Where in Texas do you live? Close to Dallas?

I live in Fort Worth. There is a Neuro over here with

an excellent reputation. I don’t see her because her wait was too long

when I was referred to a Neuro. I am OK with my guy but wouldn’t really

recommend him. He works for my situation. I had plenty of lesions—not a

lot of symptoms and he put me on Rebif. Don’t really need him too much. J

Glad you are doing well after the spinal.

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of dixmstx

Sent: Thursday, May 11, 2006 7:39

PM

To: MSersLife

Subject: Re: Trista --

Hello/Challis!

Hey guys...Thanks for the

prayers. I'm upright again without the

spinal headache. Didn't hurt at all but then I have a high pain

tolerance. That is what annoys me when I tell a dr I hurt and he

just nods.

Trista, I think your doc and mine read the same book because after

the exam while I'm having tremors the whole time, he then askrd me

how my personal life was. Told him never been better doc...by the

way, DOC, I used to be the medical directors assistant at a psych

hospital for 4 yrs, I'm mentally sound.

They grab for answers when they don't know. That is how nurse

practicioners are different. They begin as nurses and learn to read

symptoms to find the disease, like you said if you give a dr more

than 3 symptoms they are confused.

I go back to Dallas

in 2 weeks and hope to know more then. Until

then I'm just the CRAZY LADY WITH fIBROMYALGIA CAUSING PROBS FOR THE

DOCS.....LOL

PS Fibromyalgia is a bilateral disorder..you could possibly have

both, but if you have any symptoms that don't exist on both sides at

the same time, it cannot be it. And even though many people that

have it also have IBS and chronic cystitis, it does not CAUSE

neurogenic bladder or bowel constpation or incontinence.

-- In MSersLife ,

" Trista " wrote:

>

> Challis,

>

> He said that since my MRI of the brain was normal, that I had

NO

chance of developing a serious neurological disease. He

said, " maybe it's Fibromyalgia. But what is Fibro??? We don't

know. So, even if it is, we can't do much. Fibro can cause

swallowing problems, pain, and vision problems. " I then asked him

if it caused muscle spasms, twitching, balance problems,

vibrations..... He shakes his head no and shrugs. He says that

it's obvious that I'm disappointed about him not dx'ing me with MS!

What the???!!! Is he crazy??? No, I don't want MS. I just

want to

know what's going on. So, I asked him, where do I go from here? He

just shrugs his shoulders. Then I told him, " THAT is what I'm upset

about! NO ONE can tell me where to turn next! " So, then he

suggests I see a Psychiatrist. Grrrrrr. Because I have been

treated for depression/anxiety, I'm automatically a psych case??? I

was so angry. So I ask him again, does depression have these

sx's??? He says no, and I just shake my head at him. He said he

could order a spinal MRI, visually evoked potentials, and the nerve

conduction tests. (can't remember what that's called.) He did say

that my reflexes are very " brisk " , which is not normal, but that

because he can't find anything else, he'll CALL it normal for

me. ???? I am frustrated and disgusted. DH says go with

my " gut