Re: anybody elses brain mris showing lotsa white spots?

[Guest guest]

I also have numerous white spots on the brain and I am having severe balance problems. I have had numerous MRIs and have seen several Nuros. I am still been evaluted for MS by one Nuro. My western blot was positive for bands 66, 58,45,41,39,18,41,23. I have been treated twice with IVs plus doxy by mouth for several months. I have also tried several supplementals. So far, nothing has worked but I am still trying.

By the way 2 of the Nuros I saw said I did not have MS. Also, one of the doctors told me that I had the most positive Western Blot they have ever seen.

Hope you get better very soon. Pleas let me know how things are going.

Ronnie

To: Lyme_and_Rife Sent: Thursday, July 5, 2012 12:10 PMSubject: anybody elses brain mris showing lotsa white spots?

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg

[Guest guest]

My son had the same results on MRI. His fainting spells led us to the MRI. His symptoms included all the ones you listed and then many others began in the years after the MRI as he continued to go undiagnosed. We never repeated the MRI after he began antibiotic treatment for Lyme. Yours sounds like a classic case of neuro borreliosis. That 23 IGM you have is diagnostic for Lyme if you ask any LLMD. If you ask Hopkins or Mayo, they will waste your precious time and resources. I would encourage you to begin treatment as soon as you can. It will not get better overnight and at times it will seem that you will not improve--it takes time when the infection is deep seated.

You will get better. Hang in there!

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg------------------------------------If your post is not about electronic devices used in the treatment of Lyme then please put an OT: in the subject line. -------------------------------

[Guest guest]

Heres the problem a little over a year ago i was given a depro medrol shot .My gf and i went out tob dinner and then afterwards to karaoke.When i tried to sing i couldnt get the words outta my mouth properly and i knew something was wrong.We went home and that mon i saw my doc who ordered a brain mri and bloods.The bloods he ordered were lyme, ,hhv6,hiv.

When he got the results he called me told me my mri had a few spots and that the western blot bands 23 and 41 were positive igm and all iggs were negative also hhv6 was positive as well everything else neg.So he told me i was cdc positive and had me go get a pic line put in and to do 28 days of iv rocephin.4 days into the meds i was rushed to the er with severe pains in my head i couldnt walk both arms and legs were very weak,and my balance was way off.I didnt last the 28 days as it kept making me worse.I lasted 22 days.I then had a repeat mri and now my brain is full of spots.I have been all over the US to every major hospital except Mayo and Hopkins .I saw numerous neuros all they kept saying we know theres something wrong but we dont know what it is.I had 3 lumbar punctures all were normal and the lyme serum in the spinal fluid was indeterminate.I just got rechecked for lyme again and the same bands are positive with no igg band showing

reactivity..My primary keeps telling me he feels its lyme but why did i get so much worse and never better on rocephin.No one has answers ..

Subject: Re: anybody elses brain mris showing lotsa white spots?To: Lyme_and_Rife Date: Thursday, July 5, 2012, 2:38 PM

My son had the same results on MRI. His fainting spells led us to the MRI. His symptoms included all the ones you listed and then many others began in the years after the MRI as he continued to go undiagnosed. We never repeated the MRI after he began antibiotic treatment for Lyme. Yours sounds like a classic case of neuro borreliosis. That 23 IGM you have is diagnostic for Lyme if you ask any LLMD. If you ask Hopkins or Mayo, they will waste your precious time and resources. I would encourage you to begin treatment as soon as you can. It will not get better overnight and at times it will seem that you will not improve--it takes time when the infection is deep seated.

You will get better. Hang in there!

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg------------------------------------If your post is not about electronic devices used in the treatment of Lyme then please put an OT: in the subject line. -------------------------------

[Guest guest]

Hi Ronnie

Thank you very much for responding here.It sounds like we are in similar situations.

I have been all over the USA to most of the major teaching institutions and seen a lotta of neuros with no answers all they say we know theres something wrong but we dont know what it is.I am scheduled to go to Hopkins .Havent been to the MAYO.I have had 3 lumbars all were normal no MS bands and my mris with gad are not lightening up as the should if it was MS.My lyme serum in the spinal was indeterminate.My western blot was done at labcorp theres only has 3 bands on igm my test had 2 positive bands 23 and 41 igm which here in n.y. makes that a cdc positive.All my igg bands are negative.

The issue here with me is my first mri i had done march of 2011 showed only a few white spots and after being on iv rocephin for 22 days i had them pull the pic at 22 even tho i was suppose to be on it for 28 due to the severity of the symptoms it created.After the 22 days i had another mri taken and now it shows innumerable white spots..I also just got retested for lyme and the same bands igm are positive with no iggs being positive .My primary Doc told me he still thinks this is lyme .What i dont understand is why did the rocephin do that and why did it make me so much worse this was over a year ago since i took the rocephin.No one has any answers..Also why is my igm still coming back positive with the 23 and 41 band and the iggs are still negative showing no reactivity..Before the iv rocephin there was definitly something going on in my body for years and like i said why did the rocephin make matters so much worse.No one has

any answers ...

Subject: Re: anybody elses brain mris showing lotsa white spots?To: "Lyme_and_Rife " <Lyme_and_Rife >Date: Thursday, July 5, 2012, 2:23 PM

I also have numerous white spots on the brain and I am having severe balance problems. I have had numerous MRIs and have seen several Nuros. I am still been evaluted for MS by one Nuro. My western blot was positive for bands 66, 58,45,41,39,18,41,23. I have been treated twice with IVs plus doxy by mouth for several months. I have also tried several supplementals. So far, nothing has worked but I am still trying.

By the way 2 of the Nuros I saw said I did not have MS. Also, one of the doctors told me that I had the most positive Western Blot they have ever seen.

Hope you get better very soon. Pleas let me know how things are going.

Ronnie

To: Lyme_and_Rife Sent: Thursday, July 5, 2012 12:10 PMSubject: anybody elses brain mris showing lotsa white spots?

Does anyones elses brain show innumerable white spots with MS being ruled out?With symptoms such as balance problems,extreme fatigue,whoile body hurting,extreme lightheadedness feeling like your gonna faint 24-7?Been to numerous neuros throughtout the US ,ents,octo neuros,had ear and balance studies all normal.Lyme Westernblot igm bands 23 and 41 positive all igg bands neg..Anybody with anmything similar going on.Also all lyme coinfections are now neg through igenex bartonella at one time was positive but has since gone neg