Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 A government civil service job with good medical and disability benefits in case you ever need them, or a teacher. This may not apply to you specifically, but my feeling is that it's very important to get a good education before it ever becomes too late to do so. With an undergraduate degree at least, or a good diploma from a technical college of some sort that gives you a specialty (perhaps in health care), you have a lot more flexibility later on in terms of life options - like self-employment, less physically strenuous work... jobs where you use your brain rather than your brawn. If I could do it over again, I would have gone to law school instead of going into the military after graduating. Now I have the time, but my disability benefits won't allow going back to university. What can I say... it's a crazy system. In the end though, I think the most important thing is to have the kind of employment that you can count on disability insurance if you ever need it. You don't want to have to rely exclusively on any government social safety net. Pierre Re: Work > > > > As for things you can do with IGa, I was a WPC for 7 years, but was > medically > > retired due to a misdiagnosis of post natal depression. IGA hadn't yet > been > > diagnosed. > > > > But, when I had my kidney biopsy at the notorious Kent and Canterbury > > Hospital I found a fellow work colleague also on the ward (it was a mixed > > ward, with men at one end). I was amazed to find out he was also having a > > kidney biopsy and was diagnosed with iga. He returned back to Kent > Police > > and continued as a traffic officer. To the best of my knowledge, I think > > he's still working there. What I'm trying to get at, is if you can hold > down > > the job of police officer which is at times extremely physical (can be > taken > > in several contexts!!!), and unpredictable, then I'm sure you can do any > > other occupation. Of course, some people do not want to work, and if > their > > health suffers, should not have to. I personally love every minute of > being > > paid to stay at home, especially on a day like today which is so far > > beautifully warm. I'll be down the beach later! I know I am one of the > > fortunate ones to have a VERY healthy ill-health pension which is index > > linked. > > > > It does concern me that not everybody has financial help, and here in > England > > feel those at rock bottom get lots of help, but if you own your own house > and > > are starting to head towards rock bottom, you are totally abandoned. > Without > > getting too political, we seem to have a government which encourages only > two > > classes - very rich and very poor. > > > > Sorry to ramble on - hope I have put over the right point - I've got a bad > > habit of waffling a bit, and then putting my foot in it! > > > > Anyway, must start draping the cottage in bunting in preparation for the > > jubilee, world cup celebrations - where on earth do you buy the stuff!!! > > > > Frances > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 I have the best job for this illness. I'm 29, and a driver's ed teacher. I have mornings off while the kids are in school to schedule the inevitable doctor appt's, and then my job is mostly just sitting in the car. If I have an off day with no energy, it doesn't matter since I just have to sit there & make sure they don't crash. It's easy to get certified, no worries about not having clients, since there are always 16 year olds wanting to drive, and quite lucrative. I live in NH where dr ed is mandatory for kids under 18, so it works out perfectly. Not the most glamorous of occupations, but it works really well for me! Good luck with whatever you chose, and don't forget you can always chose again later if you change your mind. - Work This seems to be a good topic, and a little seperate from fatigue. For those of you who are working, what professions are you or have you worked for. Did you have any probs with relation to IgA? I am a youg 25 yr old about to set out into the real world again (have recently spent so time at UNI aka Fantasy Land) , and am interested in finding out what the big bad world is like. Is there any position that we IgA people can do well? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 I'd recommend avoiding teaching, at least k-12. I teach and my fatigue is overwhelming at times. 8th grade is strenuous, and the kids come with every sneeze and cough, and I end up sick as well. In fact, I'm wondering if my career played nay part in getting this illness, since I'm worn down so much by the stresses. Yes, the benefits have been great, but it's a lot of work and it takes it out of you. -- In iga-nephropathy@y..., " Pierre " <placha073@r...> wrote: > A government civil service job with good medical and disability benefits in > case you ever need them, or a teacher. This may not apply to you > specifically, but my feeling is that it's very important to get a good > education before it ever becomes too late to do so. With an undergraduate > degree at least, or a good diploma from a technical college of some sort > that gives you a specialty (perhaps in health care), you have a lot more > flexibility later on in terms of life options - like self-employment, less > physically strenuous work... jobs where you use your brain rather than your > brawn. > > If I could do it over again, I would have gone to law school instead of > going into the military after graduating. Now I have the time, but my > disability benefits won't allow going back to university. What can I say... > it's a crazy system. > > In the end though, I think the most important thing is to have the kind of > employment that you can count on disability insurance if you ever need it. > You don't want to have to rely exclusively on any government social safety > net. > > Pierre > > Re: Work > > > > > > > As for things you can do with IGa, I was a WPC for 7 years, but was > > medically > > > retired due to a misdiagnosis of post natal depression. IGA hadn't yet > > been > > > diagnosed. > > > > > > But, when I had my kidney biopsy at the notorious Kent and Canterbury > > > Hospital I found a fellow work colleague also on the ward (it was a > mixed > > > ward, with men at one end). I was amazed to find out he was also having > a > > > kidney biopsy and was diagnosed with iga. He returned back to Kent > > Police > > > and continued as a traffic officer. To the best of my knowledge, I > think > > > he's still working there. What I'm trying to get at, is if you can hold > > down > > > the job of police officer which is at times extremely physical (can be > > taken > > > in several contexts!!!), and unpredictable, then I'm sure you can do any > > > other occupation. Of course, some people do not want to work, and if > > their > > > health suffers, should not have to. I personally love every minute of > > being > > > paid to stay at home, especially on a day like today which is so far > > > beautifully warm. I'll be down the beach later! I know I am one of > the > > > fortunate ones to have a VERY healthy ill-health pension which is index > > > linked. > > > > > > It does concern me that not everybody has financial help, and here in > > England > > > feel those at rock bottom get lots of help, but if you own your own > house > > and > > > are starting to head towards rock bottom, you are totally abandoned. > > Without > > > getting too political, we seem to have a government which encourages > only > > two > > > classes - very rich and very poor. > > > > > > Sorry to ramble on - hope I have put over the right point - I've got a > bad > > > habit of waffling a bit, and then putting my foot in it! > > > > > > Anyway, must start draping the cottage in bunting in preparation for the > > > jubilee, world cup celebrations - where on earth do you buy the stuff!!! > > > > > > Frances > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 I totally agree with you , a few months ago I applied for a job with the deparnment of defense(in the US) to work in a US embassy, I did pass the test, the all day interview with 10 different officials, the security background check, but when I went to the physical I didn't pass, I just received this letter in the mail saying how I couldn't work with them because of possible " outcomes with my health " Tell me that!! Jeimy > Love a good waffle myself, and I agree for about 99%, but, lets just say > that every job that I have done up to this point, I no longer feel able to > do. I am one of us IgA wielding people who is hit pretty hard by fatigue. > My jobs up to this point have been very physical (bartending, working in a > cafe, banquet worker for 5 star hotels, room service, restaurants, teaching > English to children, etc...), and being that I am only 25, I figure that now > is when I should be working. I thought I would love to be paid to do > nothing, but then realised that the pleasure I get from meeting and working > with people might not be satisfied if I have time off, but no one else does. > > So back to the dilemma. I have no experience in non-physical jobs, but seem > not to be able to keep the " I`m ok " face going as long as I used to be able > to. I prob need to work as a suit, but that would leave me with the physical > examinations ( along with the declaration of my IgA) which (like I have > heard a bit in group) leaves your to the " I am sorry, but good luck > elsewhere " letters like those I have on file. > > See, I told you I like a good waffle (especially with maple syrup). > > > > > > > Re: Work > > > > As for things you can do with IGa, I was a WPC for 7 years, but was > medically > > retired due to a misdiagnosis of post natal depression. IGA hadn't yet > been > > diagnosed. > > > > But, when I had my kidney biopsy at the notorious Kent and Canterbury > > Hospital I found a fellow work colleague also on the ward (it was a mixed > > ward, with men at one end). I was amazed to find out he was also having a > > kidney biopsy and was diagnosed with iga. He returned back to Kent > Police > > and continued as a traffic officer. To the best of my knowledge, I think > > he's still working there. What I'm trying to get at, is if you can hold > down > > the job of police officer which is at times extremely physical (can be > taken > > in several contexts!!!), and unpredictable, then I'm sure you can do any > > other occupation. Of course, some people do not want to work, and if > their > > health suffers, should not have to. I personally love every minute of > being > > paid to stay at home, especially on a day like today which is so far > > beautifully warm. I'll be down the beach later! I know I am one of the > > fortunate ones to have a VERY healthy ill-health pension which is index > > linked. > > > > It does concern me that not everybody has financial help, and here in > England > > feel those at rock bottom get lots of help, but if you own your own house > and > > are starting to head towards rock bottom, you are totally abandoned. > Without > > getting too political, we seem to have a government which encourages only > two > > classes - very rich and very poor. > > > > Sorry to ramble on - hope I have put over the right point - I've got a bad > > habit of waffling a bit, and then putting my foot in it! > > > > Anyway, must start draping the cottage in bunting in preparation for the > > jubilee, world cup celebrations - where on earth do you buy the stuff!!! > > > > Frances > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 Its as I said earlier, its not a case of not wanting to work its just that the senior management jobs that I used to do all either have medical questionnaires attached, or you get sent for a medical and when " kidney disease " shows up they run a mile, ability doesn't come into it. Generally (in the UK) legislation protects you when you've been in post for 2 years, but up until then (with one or two exceptions) they can do as they please with you, so my advise to anyone is if you're in a job cling to it like a limpet because the real world takes a dim view of invisible diseases. This is a really useful thread and I think the more peoples experiences we can get on it the better informed we all will be, because there maybe the perfect job and the perfect employer out there in each country. If not I nominate Pierre as CEO of Igan Inc and we'll start our own business selling crocheted rugs or something!! Regards to all you out there in Igan land Re: Work > > > > > > > As for things you can do with IGa, I was a WPC for 7 years, but > was > > medically > > > retired due to a misdiagnosis of post natal depression. IGA > hadn't yet > > been > > > diagnosed. > > > > > > But, when I had my kidney biopsy at the notorious Kent and > Canterbury > > > Hospital I found a fellow work colleague also on the ward (it was > a mixed > > > ward, with men at one end). I was amazed to find out he was also > having a > > > kidney biopsy and was diagnosed with iga. He returned back to > Kent > > Police > > > and continued as a traffic officer. To the best of my knowledge, > I think > > > he's still working there. What I'm trying to get at, is if you > can hold > > down > > > the job of police officer which is at times extremely physical > (can be > > taken > > > in several contexts!!!), and unpredictable, then I'm sure you can > do any > > > other occupation. Of course, some people do not want to work, > and if > > their > > > health suffers, should not have to. I personally love every > minute of > > being > > > paid to stay at home, especially on a day like today which is so > far > > > beautifully warm. I'll be down the beach later! I know I am > one of the > > > fortunate ones to have a VERY healthy ill-health pension which is > index > > > linked. > > > > > > It does concern me that not everybody has financial help, and > here in > > England > > > feel those at rock bottom get lots of help, but if you own your > own house > > and > > > are starting to head towards rock bottom, you are totally > abandoned. > > Without > > > getting too political, we seem to have a government which > encourages only > > two > > > classes - very rich and very poor. > > > > > > Sorry to ramble on - hope I have put over the right point - I've > got a bad > > > habit of waffling a bit, and then putting my foot in it! > > > > > > Anyway, must start draping the cottage in bunting in preparation > for the > > > jubilee, world cup celebrations - where on earth do you buy the > stuff!!! > > > > > > Frances > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 Hi , No thanks, I don't want to be CEO of anything : ) I do understand what you're talking about though. When I didn't pass my medical in '98 due to the IgAN, my army contract could not be renewed. Now, here, they don't ask you medical questions for jobs (except jobs that have a physical requirement, of course), but, who is going to hire a 46 year old man (at the time) with severe asthma who practically couldn't sit through an interview without coughing every two seconds and having to use a puffer. I agree completely. Younger people who know they have IgAN should hang on to whatever they have if they have stable employment - if only for future benefits if it turns out they need them. I say that because I did the exact opposite when I left the regular armed forces in the 80's with a cash-out - big mistake! I continued working as an army officer mostly full-time, but as a reservist (and did some technical translation on the side). Consequently, when I couldn't work anymore, I had no medical benefits at all and no pension. Pierre P.S. My most obvious medical problem throughout the 90's was the asthma, much more than the IgAN. Re: Work > Its as I said earlier, its not a case of not wanting to work its just that > the senior management jobs that I used to do all either have medical > questionnaires attached, or you get sent for a medical and when " kidney > disease " shows up they run a mile, ability doesn't come into it. Generally > (in the UK) legislation protects you when you've been in post for 2 years, > but up until then (with one or two exceptions) they can do as they please > with you, so my advise to anyone is if you're in a job cling to it like a > limpet because the real world takes a dim view of invisible diseases. > This is a really useful thread and I think the more peoples experiences we > can get on it the better informed we all will be, because there maybe the > perfect job and the perfect employer out there in each country. If not I > nominate Pierre as CEO of Igan Inc and we'll start our own business selling > crocheted rugs or something!! > Regards to all you out there in Igan land > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 Aw shucks. Vote for CEO, I know I can win the Florida count lol Re: Work > > > > Its as I said earlier, its not a case of not wanting to work its just that > > the senior management jobs that I used to do all either have medical > > questionnaires attached, or you get sent for a medical and when " kidney > > disease " shows up they run a mile, ability doesn't come into it. Generally > > (in the UK) legislation protects you when you've been in post for 2 years, > > but up until then (with one or two exceptions) they can do as they please > > with you, so my advise to anyone is if you're in a job cling to it like a > > limpet because the real world takes a dim view of invisible diseases. > > This is a really useful thread and I think the more peoples experiences we > > can get on it the better informed we all will be, because there maybe the > > perfect job and the perfect employer out there in each country. If not I > > nominate Pierre as CEO of Igan Inc and we'll start our own business > selling > > crocheted rugs or something!! > > Regards to all you out there in Igan land > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 Who do you know in the Supreme Court : ) Pierre Re: Work > > > > > > > Its as I said earlier, its not a case of not wanting to work its just > that > > > the senior management jobs that I used to do all either have medical > > > questionnaires attached, or you get sent for a medical and when " kidney > > > disease " shows up they run a mile, ability doesn't come into it. > Generally > > > (in the UK) legislation protects you when you've been in post for 2 > years, > > > but up until then (with one or two exceptions) they can do as they > please > > > with you, so my advise to anyone is if you're in a job cling to it like > a > > > limpet because the real world takes a dim view of invisible diseases. > > > This is a really useful thread and I think the more peoples experiences > we > > > can get on it the better informed we all will be, because there maybe > the > > > perfect job and the perfect employer out there in each country. If not I > > > nominate Pierre as CEO of Igan Inc and we'll start our own business > > selling > > > crocheted rugs or something!! > > > Regards to all you out there in Igan land > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2002 Report Share Posted June 1, 2002 : Just because we were holding the elections hostage trying to get everyone in the country (world) to take back their elderly parents! Geez - give us true Floridan's a break!!!! By the way I would vote for you! :-) > Aw shucks. Vote for CEO, I know I can win the Florida count lol > > Re: Work > > > > > > > Its as I said earlier, its not a case of not wanting to work its just > that > > > the senior management jobs that I used to do all either have medical > > > questionnaires attached, or you get sent for a medical and when " kidney > > > disease " shows up they run a mile, ability doesn't come into it. > Generally > > > (in the UK) legislation protects you when you've been in post for 2 > years, > > > but up until then (with one or two exceptions) they can do as they > please > > > with you, so my advise to anyone is if you're in a job cling to it like > a > > > limpet because the real world takes a dim view of invisible diseases. > > > This is a really useful thread and I think the more peoples experiences > we > > > can get on it the better informed we all will be, because there maybe > the > > > perfect job and the perfect employer out there in each country. If not I > > > nominate Pierre as CEO of Igan Inc and we'll start our own business > > selling > > > crocheted rugs or something!! > > > Regards to all you out there in Igan land > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Hi ! A successful work life is all about flexibility with or without IgAn, both your own and your employers. I am lucky as I have flexible work hours which means I can work extra time to take time off later. These days most employers recognise workers as being grown ups and each individual workplace will allow flexibility if you arrange early/late appointments and so on. Judging by 's and my job hunting experiences, it is best to be honest, but not necessarily too honest (if you now what I mean). Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: Work Date: Fri, 31 May 2002 13:29:25 +0900 This seems to be a good topic, and a little seperate from fatigue. For those of you who are working, what professions are you or have you worked for. Did you have any probs with relation to IgA? I am a youg 25 yr old about to set out into the real world again (have recently spent so time at UNI aka Fantasy Land) , and am interested in finding out what the big bad world is like. Is there any position that we IgA people can do well? _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 What do you want to do ? What are you/were you studying? When you are doing something you enjoy with people that you like, it is always easier to put in a days work than when you hate your job and loathe your colleagues (I speaki from experience - when I was in the bank pre diagnosis I was exhausted all the time after 7.25 hours per hat, but now as a PA I canm work 9 hours without noticing). Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: Re: Work Date: Fri, 31 May 2002 15:49:21 +0900 The thing I am thinking is that I will need an income of sorts even if I cant work in an office. Not to mention, should this lovely IgA get to the point where I need to retire early, my wife to be will have a hell of a load supporting me (and kids, should they come). So I am thinking it would be better to train myself now in an area where IgA would not be a problem. Thus my oyster is a little sour, but I am keeping an optimistic and yet intelligent outlook. Which leads me to wondering, which way I should go..... Work > > This seems to be a good topic, and a little seperate from fatigue. > > For those of you who are working, what professions are you or have you > worked for. Did you have any probs with relation to IgA? > > I am a youg 25 yr old about to set out into the real world again (have > recently spent so time at UNI aka Fantasy Land) , and am interested in > finding out what the big bad world is like. > > Is there any position that we IgA people can do well? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 A physical is a little different to a medical questionaire, but I suggest looking very carefully at the wording. As I said before, mine was things that would affect my ability to do the job, and IgAn doesn't affect my ability... Reply-To: iga-nephropathy To: iga-nephropathy Subject: Re: Work Date: Fri, 31 May 2002 19:28:47 -0000 I totally agree with you , a few months ago I applied for a job with the deparnment of defense(in the US) to work in a US embassy, I did pass the test, the all day interview with 10 different officials, the security background check, but when I went to the physical I didn't pass, I just received this letter in the mail saying how I couldn't work with them because of possible " outcomes with my health " Tell me that!! Jeimy > Love a good waffle myself, and I agree for about 99%, but, lets just say > that every job that I have done up to this point, I no longer feel able to > do. I am one of us IgA wielding people who is hit pretty hard by fatigue. > My jobs up to this point have been very physical (bartending, working in a > cafe, banquet worker for 5 star hotels, room service, restaurants, teaching > English to children, etc...), and being that I am only 25, I figure that now > is when I should be working. I thought I would love to be paid to do > nothing, but then realised that the pleasure I get from meeting and working > with people might not be satisfied if I have time off, but no one else does. > > So back to the dilemma. I have no experience in non-physical jobs, but seem > not to be able to keep the " I`m ok " face going as long as I used to be able > to. I prob need to work as a suit, but that would leave me with the physical > examinations ( along with the declaration of my IgA) which (like I have > heard a bit in group) leaves your to the " I am sorry, but good luck > elsewhere " letters like those I have on file. > > See, I told you I like a good waffle (especially with maple syrup). > > > > > > > Re: Work > > > > As for things you can do with IGa, I was a WPC for 7 years, but was > medically > > retired due to a misdiagnosis of post natal depression. IGA hadn't yet > been > > diagnosed. > > > > But, when I had my kidney biopsy at the notorious Kent and Canterbury > > Hospital I found a fellow work colleague also on the ward (it was a mixed > > ward, with men at one end). I was amazed to find out he was also having a > > kidney biopsy and was diagnosed with iga. He returned back to Kent > Police > > and continued as a traffic officer. To the best of my knowledge, I think > > he's still working there. What I'm trying to get at, is if you can hold > down > > the job of police officer which is at times extremely physical (can be > taken > > in several contexts!!!), and unpredictable, then I'm sure you can do any > > other occupation. Of course, some people do not want to work, and if > their > > health suffers, should not have to. I personally love every minute of > being > > paid to stay at home, especially on a day like today which is so far > > beautifully warm. I'll be down the beach later! I know I am one of the > > fortunate ones to have a VERY healthy ill-health pension which is index > > linked. > > > > It does concern me that not everybody has financial help, and here in > England > > feel those at rock bottom get lots of help, but if you own your own house > and > > are starting to head towards rock bottom, you are totally abandoned. > Without > > getting too political, we seem to have a government which encourages only > two > > classes - very rich and very poor. > > > > Sorry to ramble on - hope I have put over the right point - I've got a bad > > habit of waffling a bit, and then putting my foot in it! > > > > Anyway, must start draping the cottage in bunting in preparation for the > > jubilee, world cup celebrations - where on earth do you buy the stuff!!! > > > > Frances > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 While I was in London, my protein spill was first noticed in a pre-employment medical by the company that subsequently employed me. They referred me to my GP for further investigation but still employed me with no health related conditions attached. Mind you, that company had extremely flexible work practises including issuing all staff with laptops and encouraging home working (and I know that not all companies in the UK are that enlightened). I disagree that you should stay in a job that you hate just because it is a job. We know that stress and depression are bad for chronic conditions, and I believe from my own experience that the stress of being in a job I hate is worse than the stress of looking for a job. Hard as it is to stay positive when unsuccessful in a job hunt, I am so glad that I waited for this one. , do you have a story that you use to explain your kidney disease, or do you go straight to defeated? Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: Re: Work Date: Fri, 31 May 2002 23:23:21 +0100 Its as I said earlier, its not a case of not wanting to work its just that the senior management jobs that I used to do all either have medical questionnaires attached, or you get sent for a medical and when " kidney disease " shows up they run a mile, ability doesn't come into it. Generally (in the UK) legislation protects you when you've been in post for 2 years, but up until then (with one or two exceptions) they can do as they please with you, so my advise to anyone is if you're in a job cling to it like a limpet because the real world takes a dim view of invisible diseases. This is a really useful thread and I think the more peoples experiences we can get on it the better informed we all will be, because there maybe the perfect job and the perfect employer out there in each country. If not I nominate Pierre as CEO of Igan Inc and we'll start our own business selling crocheted rugs or something!! Regards to all you out there in Igan land _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 A story for my kidney disease? Hmm let me see....Once upon a time there were these nasty IgA thingys ..... I try most of the " lateral " thinking that you've mentioned before including the fact that I've never been told that this can be serious, so when they ask if Ive had/got anything serious I can honestly say NO!! The usual one that I come across is " have you seen your GPor a consultant in the past 2 years if so why? " I think that what I should of said about ' job is get whatever you can to live on, then go for what it is that you want to do and if you're suitably qualified /experienced and you get rejected then hassle the hell out of them! My train hasn't stopped at defeated station, but only because the signals down!! Re: Work > Date: Fri, 31 May 2002 23:23:21 +0100 > > Its as I said earlier, its not a case of not wanting to work its just that > the senior management jobs that I used to do all either have medical > questionnaires attached, or you get sent for a medical and when " kidney > disease " shows up they run a mile, ability doesn't come into it. Generally > (in the UK) legislation protects you when you've been in post for 2 years, > but up until then (with one or two exceptions) they can do as they please > with you, so my advise to anyone is if you're in a job cling to it like a > limpet because the real world takes a dim view of invisible diseases. This > is a really useful thread and I think the more peoples experiences we can > get on it the better informed we all will be, because there maybe the > perfect job and the perfect employer out there in each country. If not I > nominate Pierre as CEO of Igan Inc and we'll start our own business selling > crocheted rugs or something!! Regards to all you out there in Igan land > > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 A story for my kidney disease? Hmm let me see....Once upon a time there were these nasty IgA thingys ..... I try most of the " lateral " thinking that you've mentioned before including the fact that I've never been told that this can be serious, so when they ask if Ive had/got anything serious I can honestly say NO!! The usual one that I come across is " have you seen your GPor a consultant in the past 2 years if so why? " I think that what I should of said about ' job is get whatever you can to live on, then go for what it is that you want to do and if you're suitably qualified /experienced and you get rejected then hassle the hell out of them! My train hasn't stopped at defeated station, but only because the signals down!! Re: Work > Date: Fri, 31 May 2002 23:23:21 +0100 > > Its as I said earlier, its not a case of not wanting to work its just that > the senior management jobs that I used to do all either have medical > questionnaires attached, or you get sent for a medical and when " kidney > disease " shows up they run a mile, ability doesn't come into it. Generally > (in the UK) legislation protects you when you've been in post for 2 years, > but up until then (with one or two exceptions) they can do as they please > with you, so my advise to anyone is if you're in a job cling to it like a > limpet because the real world takes a dim view of invisible diseases. This > is a really useful thread and I think the more peoples experiences we can > get on it the better informed we all will be, because there maybe the > perfect job and the perfect employer out there in each country. If not I > nominate Pierre as CEO of Igan Inc and we'll start our own business selling > crocheted rugs or something!! Regards to all you out there in Igan land > > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 In a message dated 5/31/02 10:50:10 AM Pacific Daylight Time, alalillian@... writes: > I'd recommend avoiding teaching, at least k-12. I teach and my > fatigue is overwhelming at times. 8th grade is strenuous, and the > kids come with every sneeze and cough, and I end up sick as well. In > fact, I'm wondering if my career played nay part in getting this > illness, since I'm worn down so much by the stresses. > > Yes, the benefits have been great, but it's a lot of work and it > takes > it out of you. > > Perhaps some kind of Hepa filter for the airborne stuff? I have worked in a surgical center/hospital for the last eleven years and much of my colds flu etc. were drastically cut down by being diligent about hand washing. Right now I am unable to leave my desk very often to wash my hands so I use an alcohol based hand wash. I also have a fan running behind me that pushes air past me and then the patients so none of their coughing or breathing comes my way. I think it has helped a lot. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 In a message dated 5/31/02 10:50:10 AM Pacific Daylight Time, alalillian@... writes: > I'd recommend avoiding teaching, at least k-12. I teach and my > fatigue is overwhelming at times. 8th grade is strenuous, and the > kids come with every sneeze and cough, and I end up sick as well. In > fact, I'm wondering if my career played nay part in getting this > illness, since I'm worn down so much by the stresses. > > Yes, the benefits have been great, but it's a lot of work and it > takes > it out of you. > > Perhaps some kind of Hepa filter for the airborne stuff? I have worked in a surgical center/hospital for the last eleven years and much of my colds flu etc. were drastically cut down by being diligent about hand washing. Right now I am unable to leave my desk very often to wash my hands so I use an alcohol based hand wash. I also have a fan running behind me that pushes air past me and then the patients so none of their coughing or breathing comes my way. I think it has helped a lot. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 , I am sorry to hear that you are not having much success at the moment. How did you come to be where you are? I am lucky in that my condition is not serious enough to be much more than an irritation at this point, and I can manage it with flexible working hours (though standing on the train to and from work is a real drag). Like you, I hope to be well settled in this new job before my condition becomes more serious and time consuming (which my neph says 20 years if ever - though I am doing a collection today so he might change his mind when he gets the results). At least here (in Oz) I am not reliant on employee health benefits as we don't get them! I decided not to take private health insurance at this stage as it will cost me much more than I will benefit, though I may reconsider in a few years. Our NHS equivalent suits me at the moment anyway as I don't need much specialist care. Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: Re: Work Date: Mon, 3 Jun 2002 10:07:03 +0100 A story for my kidney disease? Hmm let me see....Once upon a time there were these nasty IgA thingys ..... I try most of the " lateral " thinking that you've mentioned before including the fact that I've never been told that this can be serious, so when they ask if Ive had/got anything serious I can honestly say NO!! The usual one that I come across is " have you seen your GPor a consultant in the past 2 years if so why? " I think that what I should of said about ' job is get whatever you can to live on, then go for what it is that you want to do and if you're suitably qualified /experienced and you get rejected then hassle the hell out of them! My train hasn't stopped at defeated station, but only because the signals down!! _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi Basically last June I was sent by my last employer for a medical and right at the end the GP said " oh I might as well test your urine " which showed protein @ 2+ that got me referred to the specialist (I wont call him a neph cos he isn't) who decided I needed the full range of tests. So I was scanned, biopsied (anyone reading this who's going for a biopsy I was out fishing the next day)and x-rayed until I glowed in the dark! I had swollen ankles and bad pains off and on in my back. The spec. said he didn't know why, but I now know he did as my protein was at 8g/24h and had written to my GP about nephrotic syndrome. So when we went back for the results he said that all was ok and stable (so spilling 8g is now stable??) He didn't say what I had and I didn't ask, I suppose I was grateful at the time as I was expecting cancer or somesuch. So I went back to work to tell them hey its only some minor thing that needs testing yearly,to which they said " you know the probationary period you were in ? Mr Woollard you are the weakest link, goodbye!! " This year I decided that I was not going to remain the condition with no name and asked my GP which took him somewhat aback as he thought I knew! I know that I'm not in a bad way but the stress that's occurred from losing my job to finding out just how much my spec. didn't say has made it hard to deal with and really I should've had all this 7 months ago. Here endeth the sermon regards Re: Work > Date: Mon, 3 Jun 2002 10:07:03 +0100 > > A story for my kidney disease? Hmm let me see....Once upon a time there were > these nasty IgA thingys ..... > I try most of the " lateral " thinking that you've mentioned before including > the fact that I've never been told that this can be serious, so when they > ask if Ive had/got anything serious I can honestly say NO!! The usual one > that I come across is " have you seen your GPor a consultant in the past 2 > years if so why? " > I think that what I should of said about ' job is get whatever you can > to live on, then go for what it is that you want to do and if you're > suitably qualified /experienced and you get rejected then hassle the hell > out of them! > My train hasn't stopped at defeated station, but only because the signals > down!! > > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi Basically last June I was sent by my last employer for a medical and right at the end the GP said " oh I might as well test your urine " which showed protein @ 2+ that got me referred to the specialist (I wont call him a neph cos he isn't) who decided I needed the full range of tests. So I was scanned, biopsied (anyone reading this who's going for a biopsy I was out fishing the next day)and x-rayed until I glowed in the dark! I had swollen ankles and bad pains off and on in my back. The spec. said he didn't know why, but I now know he did as my protein was at 8g/24h and had written to my GP about nephrotic syndrome. So when we went back for the results he said that all was ok and stable (so spilling 8g is now stable??) He didn't say what I had and I didn't ask, I suppose I was grateful at the time as I was expecting cancer or somesuch. So I went back to work to tell them hey its only some minor thing that needs testing yearly,to which they said " you know the probationary period you were in ? Mr Woollard you are the weakest link, goodbye!! " This year I decided that I was not going to remain the condition with no name and asked my GP which took him somewhat aback as he thought I knew! I know that I'm not in a bad way but the stress that's occurred from losing my job to finding out just how much my spec. didn't say has made it hard to deal with and really I should've had all this 7 months ago. Here endeth the sermon regards Re: Work > Date: Mon, 3 Jun 2002 10:07:03 +0100 > > A story for my kidney disease? Hmm let me see....Once upon a time there were > these nasty IgA thingys ..... > I try most of the " lateral " thinking that you've mentioned before including > the fact that I've never been told that this can be serious, so when they > ask if Ive had/got anything serious I can honestly say NO!! The usual one > that I come across is " have you seen your GPor a consultant in the past 2 > years if so why? " > I think that what I should of said about ' job is get whatever you can > to live on, then go for what it is that you want to do and if you're > suitably qualified /experienced and you get rejected then hassle the hell > out of them! > My train hasn't stopped at defeated station, but only because the signals > down!! > > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Re: Work (snipped) he said that all was ok and stable (so > spilling 8g is now stable??) (snipped) > I'm stable at this moment too, even though I'm just a hair away from dialysis. Stable just means that the condition isn't worsening, not that it's good. I was talking to a guy who lives not far from me yesterday - on dialysis from polycystic kidney disease. Apparently, he was a good two years at 15% kidney function before he needed dialysis, so it could still be a while for many of us. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Re: Work (snipped) he said that all was ok and stable (so > spilling 8g is now stable??) (snipped) > I'm stable at this moment too, even though I'm just a hair away from dialysis. Stable just means that the condition isn't worsening, not that it's good. I was talking to a guy who lives not far from me yesterday - on dialysis from polycystic kidney disease. Apparently, he was a good two years at 15% kidney function before he needed dialysis, so it could still be a while for many of us. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi - I understand now. The company you worked for hadn't realised that the Industial Revolution was over! I work in Health and Safety and it always amazes me that companies are more prepared to spend money in lawyers to defend them in court than they are to protect the people who work for them. I also understand that even if there were legal avenues you could take to be reinstated it wouldn't be worth the effort as the company would freeze you out (been there done that). I agree that it is very important to know your condition, but in the meantime get on with life! Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: Re: Work Date: Tue, 4 Jun 2002 09:10:52 +0100 Hi Basically last June I was sent by my last employer for a medical and right at the end the GP said " oh I might as well test your urine " which showed protein @ 2+ that got me referred to the specialist (I wont call him a neph cos he isn't) who decided I needed the full range of tests. So I was scanned, biopsied (anyone reading this who's going for a biopsy I was out fishing the next day)and x-rayed until I glowed in the dark! I had swollen ankles and bad pains off and on in my back. The spec. said he didn't know why, but I now know he did as my protein was at 8g/24h and had written to my GP about nephrotic syndrome. So when we went back for the results he said that all was ok and stable (so spilling 8g is now stable??) He didn't say what I had and I didn't ask, I suppose I was grateful at the time as I was expecting cancer or somesuch. So I went back to work to tell them hey its only some minor thing that needs testing yearly,to which they said " you know the probationary period you were in ? Mr Woollard you are the weakest link, goodbye!! " This year I decided that I was not going to remain the condition with no name and asked my GP which took him somewhat aback as he thought I knew! I know that I'm not in a bad way but the stress that's occurred from losing my job to finding out just how much my spec. didn't say has made it hard to deal with and really I should've had all this 7 months ago. Here endeth the sermon regards _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi - I understand now. The company you worked for hadn't realised that the Industial Revolution was over! I work in Health and Safety and it always amazes me that companies are more prepared to spend money in lawyers to defend them in court than they are to protect the people who work for them. I also understand that even if there were legal avenues you could take to be reinstated it wouldn't be worth the effort as the company would freeze you out (been there done that). I agree that it is very important to know your condition, but in the meantime get on with life! Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: Re: Work Date: Tue, 4 Jun 2002 09:10:52 +0100 Hi Basically last June I was sent by my last employer for a medical and right at the end the GP said " oh I might as well test your urine " which showed protein @ 2+ that got me referred to the specialist (I wont call him a neph cos he isn't) who decided I needed the full range of tests. So I was scanned, biopsied (anyone reading this who's going for a biopsy I was out fishing the next day)and x-rayed until I glowed in the dark! I had swollen ankles and bad pains off and on in my back. The spec. said he didn't know why, but I now know he did as my protein was at 8g/24h and had written to my GP about nephrotic syndrome. So when we went back for the results he said that all was ok and stable (so spilling 8g is now stable??) He didn't say what I had and I didn't ask, I suppose I was grateful at the time as I was expecting cancer or somesuch. So I went back to work to tell them hey its only some minor thing that needs testing yearly,to which they said " you know the probationary period you were in ? Mr Woollard you are the weakest link, goodbye!! " This year I decided that I was not going to remain the condition with no name and asked my GP which took him somewhat aback as he thought I knew! I know that I'm not in a bad way but the stress that's occurred from losing my job to finding out just how much my spec. didn't say has made it hard to deal with and really I should've had all this 7 months ago. Here endeth the sermon regards _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 Thanks , it was with Tescos so Ive probably got another 33 to get through but its one small step for Igan.....sorry meant mankind but it kinda fits work > Date: Thu, 20 Jun 2002 00:28:17 +0100 > > Hi all, > Meant to say yesterday to all those who joined my job rant of a few weeks > ago, I had an interview so please lets see lots of fingers x'd out there in > IgAN land!! > > > > Quote Link to comment Share on other sites More sharing options...
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