Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Hi, well i was diagnosed with late & chronic stage lyme last August, when i finally found my lyme Dr I wasnt able to walk or talk & the pain was so bad that i welcomed death!!! I went thru the guantlet of Dr.'s & went misdiagnosed for @ least 10-15 yrs. It's in every organ in my body, including my central nervous system & brain. I never thought i would be sitting here today writing about my story but happy to say i can walk & talk, i still have problems with my memory & sometimes stutter, my right foot & leg hurt me very bad cause i guess i have neuropathy from nerve damage, i hope i'm saying that right. I still get involentary muscle movements, its worse @ night. I still suffer from the headaches. I have some really good days, which i wish i could have that the rest of my life but maybe someday. I hate the herxing, it feels like someone sucked all of my energy out of me so I'm in bed alot but sleep doesnt come. I want to sleep so bad & its so agravating when you just watch the clock tick away. I was a nurse for many years & i was constantly on the go, finally December 7th 2007 i had to resign my position because i wasnt able to do my job @ 100% so i walked away, it was very devastating but i have come to accept it. I'm glad i saw this site posted on another site i was on, i'm trying to learn all i can about tx for lyme, i take the high doses of atx & next month will be a year, so i would like some feed back...thx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 Hang in there. This is a tough disease, but progress can be made. I've had Lyme for 17 years and wasn't diagnosed until two years ago. I am making progress with a Doug Coil rife machine, but improvement doesn't happen overnight. I need to look back in six months to a year intervals to measure my progress. Because I have a high bacteria load, I am thinking the best I can hope for is remission. I can't imagine being able to get rid of every spirochete in my body, but I do think someday I'll be able to live a fairly normal life with continual maintenance Doug Coil treatments.Steve"Whether it be good or bad, I hope I will always take responsibility for my life." Hi, well i was diagnosed with late & chronic stage lyme last August, when i finally found my lyme Dr I wasnt able to walk or talk & the pain was so bad that i welcomed death!!! I went thru the guantlet of Dr.'s & went misdiagnosed for @ least 10-15 yrs. It's in every organ in my body, including my central nervous system & brain. I never thought i would be sitting here today writing about my story but happy to say i can walk & talk, i still have problems with my memory & sometimes stutter, my right foot & leg hurt me very bad cause i guess i have neuropathy from nerve damage, i hope i'm saying that right. I still get involentary muscle movements, its worse @ night. I still suffer from the headaches. I have some really good days, which i wish i could have that the rest of my life but maybe someday. I hate the herxing, it feels like someone sucked all of my energy out of me so I'm in bed alot but sleep doesnt come. I want to sleep so bad & its so agravating when you just watch the clock tick away. I was a nurse for many years & i was constantly on the go, finally December 7th 2007 i had to resign my position because i wasnt able to do my job @ 100% so i walked away, it was very devastating but i have come to accept it. I'm glad i saw this site posted on another site i was on, i'm trying to learn all i can about tx for lyme, i take the high doses of atx & next month will be a year, so i would like some feed back...thx Quote Link to comment Share on other sites More sharing options...
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