katharine

[Guest guest]

All I can say, Thank God it is OVER!

I had the somatization crap appear on my chart too, even Munchaussen's

and a few other things I do not currently or ever had. I can tell you it

is one hard uphill fight once that crap appears. It is like no matter

what you say or do it seems to be a sign of one of these conditions. You

figfht to disprove it and you're told you are in denial. You do nothing,

you're told you are giving in to your body.

I had a horrible experienec where I went to a patient conference

expecting those involved to come up with a plan for dealing with my sx

and helping me get back to work. What I got was 1.5 hours of them trying

to convince me I had a somatization disorder! They drove me so deeply

into a depression that I almost did not survive. I read up on it, knew I

didn't have it and went along with going to the psychitraist. After 3

visits she informed me I did NOT have it and that they likely had done

irreparable psych damage from the reaction I had to their little ambush

(as I call it). This was when my CFS wasn't getting better so they

decided they had to figure out " why my mind was convincing my body it

was sick " . Fast forward to 3.5 years later - after still being sick and

spedning $400 on blood work sent to a special lab in the U.S., it came

back showing evidence of not one but 2 chronic viral infections, and

chronic immune activation - all of which explain my ongoing symptoms.

Whether they call it CFS or not, it is there on he printouts for all to

see. I really am sick, just as I always knew and told everyone.

You really need at least one person in your corner who believes you and

will fight for you. I could write a book on some of the things that have

happened to me as aI am sure you could. I hope after all that crap they

give you your SS

The system is sick, sick, sick at times!

Hugs,

JOyce