RE: Re: OT: Lena, Don't Go!!!

[Guest guest]

Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna>

[Guest guest]

Hi Sandy,I'm sorry that you, too, have been in this disease for 40 years. Take heart that the next five could make a tremendous difference; things can get much better. Thanks for your kind words.Be well, my fellow Lyme-vet,Léna

Hi Lena,

You have been a big help to me. I hope you reconsider. 40 years I have been ill only to just now get a Lyme diagnosis. Your wisdom and knowledge and experience has been an encouragement for me.

Sandy

> > >

> > > Hi Barbara,

> > > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.

> > >

> > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????

> > >

> > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol.

> > >

> > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease.

> > >

> > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.

> > >

> > > Be well,

> > > Léna

> >

>

[Guest guest]

Oh Jeff,So many good people are making me feel so much better. Thank you!With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that!Be well, my friend,Léna

Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna>

[Guest guest]

Lena Your presence, here and everywhere you spend your precious time and talents is always a blessing to all.You have proven, over many many years to have insight and fairness and harmony needed for our healing as your highest priority.You are a gift and your written words a healing balm to all...we love you Lena. I apprecitate you more than you will ever know.

  B

 

Lena, I missed everything...so I'm just butting in! But whatever went on Please know you have made an incredible impact on here since I have known u for the past year. I enjoy your input, words of wisdom and encouragement. And yes, I agree that their can be many forms of complementary protocols, that are unique to each individual in their healing journey. We are unique, Lyme is complex, so why would any of us fit perfectly into a cookie cutter mold? That is my opinion.....I think u are more " loved " here then u know! Take care, and hope u stick around. Jodie L.

> > > >

> > > > Hi Barbara,

> > > > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.

> > > >

> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????

> > > >

> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol.

> > > >

> > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease.

> > > >

> > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.

> > > >

> > > > Be well,

> > > > Léna

> > >

> >

> >

> >

> >

>

[Guest guest]

Hi ,I think you already know how much I love and admire you, for your courage, strength, kindness and knowledge. Your presence has always enriched my healing and my life. I deeply appreciate your posting this, and it adds to the balance of so many other kind messages that have helped cancel the hurt of yesterday.As for appreciation, I can only say the same for you! You're one treasure Lyme brought me.Be well, my dear 'old' friend,Léna

Lena Your presence, here and everywhere you spend your precious time and talents is always a blessing to all.You have proven, over many many years to have insight and fairness and harmony needed for our healing as your highest priority.You are a gift and your written words a healing balm to all...we love you Lena. I apprecitate you more than you will ever know.

B

Lena, I missed everything...so I'm just butting in! But whatever went on Please know you have made an incredible impact on here since I have known u for the past year. I enjoy your input, words of wisdom and encouragement. And yes, I agree that their can be many forms of complementary protocols, that are unique to each individual in their healing journey. We are unique, Lyme is complex, so why would any of us fit perfectly into a cookie cutter mold? That is my opinion.....I think u are more "loved" here then u know! Take care, and hope u stick around. Jodie L.

> > > >

> > > > Hi Barbara,

> > > > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.

> > > >

> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????

> > > >

> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol.

> > > >

> > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease.

> > > >

> > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.

> > > >

> > > > Be well,

> > > > Léna

> > >

> >

> >

> >

> >

>

[Guest guest]

Yay Lena! I am so glad we all were able to ease the hurt! There are sooooo maaannnnnyyyy things out there about Lyme treatments and Lyme protocols that we all just need to remember: we cannot do them all at once but once one thing fails, the other gets a try, and so on and so on.What helps one Lymie does not help the other or just a bit. It's just the way of this dis-ease.Me for example, I am still part of the mscured group. I personally do not believe in the condition MS but rather that Lyme for some is MS, in other words Lyme induced MS. And long and behols some of the mscured folks have gotten tested,have brought up Lyme cause they heard through the grape vine. Our minds and hearts must stay open in order to help ourselves. And you are and have been doing this for a long time. I see nothing wrong with that at all,rather enriching and enlightening!Now, you BE WELL, sweet one and keep up the good work and will!BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Hi ,I think you already know how much I love and admire you, for your courage, strength, kindness and knowledge. Your presence has always enriched my healing and my life. I deeply appreciate your posting this, and it adds to the balance of so many other kind messages that have helped cancel the hurt of yesterday.As for appreciation, I can only say the same for you! You're one treasure Lyme brought me.Be well, my dear 'old' friend,Léna Lena Your presence, here and everywhere you spend your precious time and talents is always a blessing to all.You have proven, over many many years to have insight and fairness and harmony needed for our healing as your highest priority.You are a gift and your written words a healing balm to all...we love you Lena. I apprecitate you more than you will ever know. B Lena, I missed everything...so I'm just butting in! But whatever went on Please know you have made an incredible impact on here since I have known u for the past year. I enjoy your input, words of wisdom and encouragement. And yes, I agree that their can be many forms of complementary protocols, that are unique to each individual in their healing journey. We are unique, Lyme is complex, so why would any of us fit perfectly into a cookie cutter mold? That is my opinion.....I think u are more "loved" here then u know! Take care, and hope u stick around. Jodie L.> > > >> > > > Hi Barbara,> > > > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > > > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > > > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > > > > > Be well,> > > > Léna> > >> > > > > > > >>

[Guest guest]

Hi Bianca,It heartens me to hear that you're in the mscured group. When we're a hammer, everything looks like a nail, but I've worried about those who have had an MS diagnosis, wondering if they might have Lyme, as many folks like you DO eventually get the Lyme dx instead.(same for Parkinson's) I'm under the impression that the meds for MS aren't necessarily the best thing for Lyme, so it's good that you're there, to encourage a broader perspective. Actually, I'd be interested to hear some of the things you know on this, because as caring Lymies, our knowing more could help make a difference, maybe.As a person who had decades of negative tests, I owe my life to some friends who pushed, saying they thought I had Lyme. Knowledge is power.Be well, my friend,Léna

Yay Lena! I am so glad we all were able to ease the hurt! There are sooooo maaannnnnyyyy things out there about Lyme treatments and Lyme protocols that we all just need to remember: we cannot do them all at once but once one thing fails, the other gets a try, and so on and so on.What helps one Lymie does not help the other or just a bit. It's just the way of this dis-ease.Me for example, I am still part of the mscured group. I personally do not believe in the condition MS but rather that Lyme for some is MS, in other words Lyme induced MS. And long and behols some of the mscured folks have gotten tested,have brought up Lyme cause they heard through the grape vine. Our minds and hearts must stay open in order to help ourselves. And you are and have been doing this for a long time. I see nothing wrong with that at all,rather enriching and enlightening!Now, you BE WELL, sweet one and keep up the good work and will!BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!!

Hi ,I think you already know how much I love and admire you, for your courage, strength, kindness and knowledge. Your presence has always enriched my healing and my life. I deeply appreciate your posting this, and it adds to the balance of so many other kind messages that have helped cancel the hurt of yesterday.As for appreciation, I can only say the same for you! You're one treasure Lyme brought me.Be well, my dear 'old' friend,Léna

Lena Your presence, here and everywhere you spend your precious time and talents is always a blessing to all.You have proven, over many many years to have insight and fairness and harmony needed for our healing as your highest priority.You are a gift and your written words a healing balm to all...we love you Lena. I apprecitate you more than you will ever know.

B

Lena, I missed everything...so I'm just butting in! But whatever went on Please know you have made an incredible impact on here since I have known u for the past year. I enjoy your input, words of wisdom and encouragement. And yes, I agree that their can be many forms of complementary protocols, that are unique to each individual in their healing journey. We are unique, Lyme is complex, so why would any of us fit perfectly into a cookie cutter mold? That is my opinion.....I think u are more "loved" here then u know! Take care, and hope u stick around. Jodie L.

> > > >

> > > > Hi Barbara,

> > > > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.

> > > >

> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????

> > > >

> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol.

> > > >

> > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease.

> > > >

> > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.

> > > >

> > > > Be well,

> > > > Léna

> > >

> >

> >

> >

> >

>

[Guest guest]

I've obviously missed something because suddenly now there's all this talk about Lena leaving! I just want to say that there have been multiple instances in which I was having a very difficult day dealing with symptoms and feeling discouraged, and then read something she had posted, and the optimism and encouragement she provided turned me around and gave me strength to get through the day, to keep going and not give up. I think it is evident how many other people feel the same way. I'm so grateful for her posts and her experience and willingness to share it. It would be a real loss if she were gone, as she really helps so many of us.

Shauna

[Guest guest]

Like it Shauna! You see the relevance and importance of some folks here! Especially Lena. Now I love so many of them, so many good folks here. Lena though, has this thing about her, q very bright aura, karma, light? Dunno, she is just a very important light in this group and again I agree she needs to be part of us!Connected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! I've obviously missed something because suddenly now there's all this talk about Lena leaving! I just want to say that there have been multiple instances in which I was having a very difficult day dealing with symptoms and feeling discouraged, and then read something she had posted, and the optimism and encouragement she provided turned me around and gave me strength to get through the day, to keep going and not give up. I think it is evident how many other people feel the same way. I'm so grateful for her posts and her experience and willingness to share it. It would be a real loss if she were gone, as she really helps so many of us.Shauna

[Guest guest]

Dear one, I gotta go to tend to hubby but I will fill you in more. I am not the one with Lyme, well not officially, but hubby is. I am in all these forums and groups of his behalf. He tremors too much to type,write,or talk even. I am just keeping my promise, in sickness and health, for better for worse! Those vows mean everything to me and ALL i want is save him, give him that second chance he deserves so very much!BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Hi ,I think you already know how much I love and admire you, for your courage, strength, kindness and knowledge. Your presence has always enriched my healing and my life. I deeply appreciate your posting this, and it adds to the balance of so many other kind messages that have helped cancel the hurt of yesterday.As for appreciation, I can only say the same for you! You're one treasure Lyme brought me.Be well, my dear 'old' friend,Léna Lena Your presence, here and everywhere you spend your precious time and talents is always a blessing to all.You have proven, over many many years to have insight and fairness and harmony needed for our healing as your highest priority.You are a gift and your written words a healing balm to all...we love you Lena. I apprecitate you more than you will ever know. B Lena, I missed everything...so I'm just butting in! But whatever went on Please know you have made an incredible impact on here since I have known u for the past year. I enjoy your input, words of wisdom and encouragement. And yes, I agree that their can be many forms of complementary protocols, that are unique to each individual in their healing journey. We are unique, Lyme is complex, so why would any of us fit perfectly into a cookie cutter mold? That is my opinion.....I think u are more "loved" here then u know! Take care, and hope u stick around. Jodie L.> > > >> > > > Hi Barbara,> > > > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > > > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > > > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > > > > > Be well,> > > > Léna> > >> > > > > > > >>

[Guest guest]

I missed it too ,

I ahve been oof for a few days I have a freind at home .

Lena what ever obset you take it easy rememeber we are all very sick and we react bizard or do no tmake us understant always well under the stress and isolation of what this deasease

make out of our lifes . Do not believe you felling . We love and need you

one thousand thanks and kisses to confort you

Marie

To: Lyme_and_Rife Sent: Thursday, July 19, 2012 1:31 AMSubject: Re: Re: OT: Lena, Don't Go!!!

Like it Shauna! You see the relevance and importance of some folks here! Especially Lena. Now I love so many of them, so many good folks here. Lena though, has this thing about her, q very bright aura, karma, light? Dunno, she is just a very important light in this group and again I agree she needs to be part of us!Connected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!!

I've obviously missed something because suddenly now there's all this talk about Lena leaving! I just want to say that there have been multiple instances in which I was having a very difficult day dealing with symptoms and feeling discouraged, and then read something she had posted, and the optimism and encouragement she provided turned me around and gave me strength to get through the day, to keep going and not give up. I think it is evident how many other people feel the same way. I'm so grateful for her posts and her experience and willingness to share it. It would be a real loss if she were gone, as she really helps so many of us.

Shauna