Doing too much when we feel good

[Guest guest]

Moderator's note:

We have mentioned the " spoon theory, " many times in the group. I believe it's in

the archives, because it is so popular.

Here is a link from the original author: http://tinyurl.com/crdy4

It is from www.accesspress.org and has a cute cartoon too.

Calle I'm very sorry you are having a miserable night. I hope you don't mind the

shorter link.

Kaylene

Hey all, I read every post on here, am so greatful to know other

people know what we are going through.

There is a great story, which I got at a website for one of the

problems I have, which is Dercum's Disease. The store was actually

written for a different disease, but it pretty much fits anyone who

has chronic pain.

I really appreciated the story, and hope you all will enjoy it as

well. I really have to monitor myself from doing too much on any

given day.

If I need to take a shower and wash my hair to go somewhere, just that itself

wears me out so much I don't have the energy to then go where i got ready to go.

Does that make sense? I can pretty much only schedule one thing to do a day, if

that.

It makes me really sad. I don't have any friends as we are pretty

new to the area where we live, and I don't have the strength or

energy to make any.

The lumps in my body from Dercum's disease have grown beyond

imagination. My husband told me last night that at first he could

barely feel my lumps, but that in the two months that have passed

since I first noticed them, the size and increase in number is

alarming. And he has only felt/seen the ones on my arms. They are

everywhere, everywhere !!

I itch terribly all day long, and at night, and each and every lump

is painful. I feel as though I have been invaded by aliens and soon

there will be just them and none of me left.

I am very sad and lonely. My son has no clue as to how this disease

has ravaged me, and frequently wants me to babysit his 4 children,

all under 5.

I love them dearly, but even a few hours with them does me in for days. My

husband doesn't want to talk about my illness. I think it scares him. It surely

scares me.

I have great doctors. They meet my needs for pain medication, I feel

very lucky after reading through the posts. But it does not fix me

up completely.

I am devestated and often wonder if I really want to go on, letting

this disease take more and more of me.

To look at me, you wouldn't know that I am sick. Oh gosh. Oh gosh.

Oh gosh. I am sick. I don't feel well. I have rambled enough. I am

in bad shape tonight. Im sorry.

Calle