Guest guest Posted February 6, 2000 Report Share Posted February 6, 2000 I am re-joining the Crew after an absence of about 8 months. I have moved back to West Texas, and am currently working as a math teacher/coach (football, basketball, and track) in s, TX. I have also started work towards my Master's Degree in Athletic Administration. My daughter, Reagan (2 and a half), will have NF2 as well. We are taking her to the NF Clinic in Houston on a regular basis. She has already had extensive hearing tests done (no problems yet), and a brain/spine MRI (no tumors yet). She does have the cataracts which are associated with NF2 (which is how they know she will have it). Her vision in her right eye is pretty poor, but her left eye is fine. We are scheduled to take her back this summer. I had my annual MRI last summer with Dr. Mickey in Dallas. No tumors large enough to worry about now (I do have some clusters, but they are all too small to operate on as of now, although that can and probably will change.) Dr. Mickey did notice that my left leg was considerably smaller than my right, which seems obvious now that he pointed it out. I have also had problems with drop foot, weak grip with my hands, a tingling sensation in my left hand, and overall weakness and limited feeling in my extremeties. He referred my to a neurologist, who diagnosed me with neuropathy. Many tests were run, and I do not have anything that could be causing this, except NF2. My left side is generally smaller than my right- including my tongue. He said that NF2-related neuropathy is very rare (so, of course, I had to have it!), and he is checking for other known cases to determine how it is going to progress. If anyone else has NF2-related neuropathy, please contact me! My wife found some info. on neuropathy, and one cause could be anesthesia (I guess if it is administered wrong). I first noticed the tingling sensation immediately after my second (left) AN removal. Maybe that was it... Otherwise- everything is pretty much the same! I am glad to be re-joining the Crew. I have received more valuable insights and information here than from most of the doctors I have dealt with. Glad to be back! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.