Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff,So many good people are making me feel so much better. Thank you!With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that!Be well, my friend,Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Lena, I am very new to this group but i have read alot of your comments, helpful hints etc..i feel like this group would def miss you, idk who or why you cant say or suggest another group, I belong to 2 other lyme groups & the one i really love, its a place you can go to say the little things you have accomplished for that day or minute it's very inspirational!!! Lena you stay true to yourself......Be Well my friend....Darla To: Lyme_and_Rife Sent: Wednesday, July 18, 2012 9:15 AMSubject: Re: Re: OT: Lena, Don't Go!!! Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff, So many good people are making me feel so much better. Thank you! With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that! Be well, my friend, Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose. Take care, Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Lena, the Lymie Lab Rat,It would be devastating, if you were not posting here!Steve"Whether it be good or bad, I hope I will always take responsibility for my life." Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! <ic_list_big_grin.png>BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff,So many good people are making me feel so much better. Thank you!With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that!Be well, my friend,Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 I am in total agreement...I have been helped by you Lena with indispensable input on many of my posts. I couldn't imagine the group without you here. Sent from Yahoo! Mail on Android From: Steve Baugh ; To: Lyme_and_Rife <Lyme_and_Rife >; Subject: Re: Re: OT: Lena, Don't Go!!! Sent: Wed, Jul 18, 2012 2:32:58 PM Lena, the Lymie Lab Rat,It would be devastating, if you were not posting here!Steve " Whether it be good or bad, I hope I will always take responsibility for my life. " Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and " Be well " greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! <ic_list_big_grin.png>BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff,So many good people are making me feel so much better. Thank you!With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that!Be well, my friend,Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Hi Darla,At the risk of exposing you to similar censure, could you tell me the name of that group? Sounds very nice, and human. Thanks for your kind words. We need all the encouragement we can get with this disease.Be well,Léna Lena, I am very new to this group but i have read alot of your comments, helpful hints etc..i feel like this group would def miss you, idk who or why you cant say or suggest another group, I belong to 2 other lyme groups & the one i really love, its a place you can go to say the little things you have accomplished for that day or minute it's very inspirational!!! Lena you stay true to yourself......Be Well my friend....Darla To: Lyme_and_Rife Sent: Wednesday, July 18, 2012 9:15 AMSubject: Re: Re: OT: Lena, Don't Go!!! Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff, So many good people are making me feel so much better. Thank you! With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that! Be well, my friend, Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose. Take care, Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Ah Steve!This Lymie lab-rat is SO grateful for your vote of confidence!Be well,Léna Lena, the Lymie Lab Rat,It would be devastating, if you were not posting here!Steve"Whether it be good or bad, I hope I will always take responsibility for my life." Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! <ic_list_big_grin.png>BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff,So many good people are making me feel so much better. Thank you!With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that!Be well, my friend,Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Thanks Juli,That means a lot! So glad to hear that I've helped. Everyone here has helped each other, everyone.Be well,Léna I am in total agreement...I have been helped by you Lena with indispensable input on many of my posts. I couldn't imagine the group without you here. Sent from Yahoo! Mail on Android From: Steve Baugh ; To: Lyme_and_Rife <Lyme_and_Rife >; Subject: Re: Re: OT: Lena, Don't Go!!! Sent: Wed, Jul 18, 2012 2:32:58 PM Lena, the Lymie Lab Rat,It would be devastating, if you were not posting here!Steve"Whether it be good or bad, I hope I will always take responsibility for my life." Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! <ic_list_big_grin.png>BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff,So many good people are making me feel so much better. Thank you!With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that!Be well, my friend,Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 HiI find you very articulate and your views may be very individualistic but valuable. I also found your information valuable. I think knowing diverse opinions and experiences is a good thing, one may not necessarily agree or follow someones elses opinions but knowing them can always be of benifit.DamariseTo: Lyme_and_Rife From: drumroll@...Date: Wed, 18 Jul 2012 11:17:59 -0400Subject: Re: Re: OT: Lena, Don't Go!!! Ah Steve!This Lymie lab-rat is SO grateful for your vote of confidence!Be well,Léna Lena, the Lymie Lab Rat,It would be devastating, if you were not posting here!Steve"Whether it be good or bad, I hope I will always take responsibility for my life." Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! <ic_list_big_grin.png>BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff,So many good people are making me feel so much better. Thank you!With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that!Be well, my friend,Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Hi Damarise,I feel the same about all that you contribute! Knowledge is power and with Lyme we need all the knowledge we can get. Not everything will suit everyone; that's the nature of this wretched disease, so 'give us this day, our daily BREADTH', that we may finally find something that works.Thanks for your words of kindness. They help.Be well,Léna HiI find you very articulate and your views may be very individualistic but valuable. I also found your information valuable. I think knowing diverse opinions and experiences is a good thing, one may not necessarily agree or follow someones elses opinions but knowing them can always be of benifit.DamariseTo: Lyme_and_Rife From: drumroll@...Date: Wed, 18 Jul 2012 11:17:59 -0400Subject: Re: Re: OT: Lena, Don't Go!!! Ah Steve!This Lymie lab-rat is SO grateful for your vote of confidence!Be well,Léna Lena, the Lymie Lab Rat,It would be devastating, if you were not posting here!Steve"Whether it be good or bad, I hope I will always take responsibility for my life." Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! <ic_list_big_grin.png>BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff,So many good people are making me feel so much better. Thank you!With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that!Be well, my friend,Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose.Take care,Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Hi Lena, it's called Lyme: Ive gotten better & got my life back...it's so inspirational to hear from other lymies from their smallest accomplishments to hearing that they are 90% cured!!! The adm that envisioned this sight doesnt allow negativaty enter the room cuz we half to go somewhere to hear about our hopes & dreams that, that could be us someday!!! Hope you enjoy...it's so nice talking to you & idk what happened to you that you want to leave that site but dont let people bother you, we will always have some negativity in our life even though it sucks, well i hope you come join us on the other site you can find it right on fb if you put in the search bar....sending you a hug!! To: Lyme_and_Rife Sent: Wednesday, July 18, 2012 11:16 AMSubject: Re: Re: OT: Lena, Don't Go!!! Hi Darla, At the risk of exposing you to similar censure, could you tell me the name of that group? Sounds very nice, and human. Thanks for your kind words. We need all the encouragement we can get with this disease. Be well, Léna Lena, I am very new to this group but i have read alot of your comments, helpful hints etc..i feel like this group would def miss you, idk who or why you cant say or suggest another group, I belong to 2 other lyme groups & the one i really love, its a place you can go to say the little things you have accomplished for that day or minute it's very inspirational!!! Lena you stay true to yourself......Be Well my friend....Darla To: Lyme_and_Rife Sent: Wednesday, July 18, 2012 9:15 AMSubject: Re: Re: OT: Lena, Don't Go!!! Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff, So many good people are making me feel so much better. Thank you! With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that! Be well, my friend, Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose. Take care, Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Thanks a bunch Darla!I do fb but seriously need a tutor to navigate. I'll try to find Lyme. Sounds good. You're a ray of sunshine.Be well,Léna Hi Lena, it's called Lyme: Ive gotten better & got my life back...it's so inspirational to hear from other lymies from their smallest accomplishments to hearing that they are 90% cured!!! The adm that envisioned this sight doesnt allow negativaty enter the room cuz we half to go somewhere to hear about our hopes & dreams that, that could be us someday!!! Hope you enjoy...it's so nice talking to you & idk what happened to you that you want to leave that site but dont let people bother you, we will always have some negativity in our life even though it sucks, well i hope you come join us on the other site you can find it right on fb if you put in the search bar....sending you a hug!! To: Lyme_and_Rife Sent: Wednesday, July 18, 2012 11:16 AMSubject: Re: Re: OT: Lena, Don't Go!!! Hi Darla, At the risk of exposing you to similar censure, could you tell me the name of that group? Sounds very nice, and human. Thanks for your kind words. We need all the encouragement we can get with this disease. Be well, Léna Lena, I am very new to this group but i have read alot of your comments, helpful hints etc..i feel like this group would def miss you, idk who or why you cant say or suggest another group, I belong to 2 other lyme groups & the one i really love, its a place you can go to say the little things you have accomplished for that day or minute it's very inspirational!!! Lena you stay true to yourself......Be Well my friend....Darla To: Lyme_and_Rife Sent: Wednesday, July 18, 2012 9:15 AMSubject: Re: Re: OT: Lena, Don't Go!!! Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff, So many good people are making me feel so much better. Thank you! With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that! Be well, my friend, Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose. Take care, Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2012 Report Share Posted July 18, 2012 Lena, its very easy, yes you can put lyme in the search bar 1st, it might bring that site up for you if not i will try adding you! I added you so you should get a response soon!! Hope to see you in the new room soon, stay strong!! Best reguards Darla To: Lyme_and_Rife Sent: Wednesday, July 18, 2012 11:51 AMSubject: Re: Re: OT: Lena, Don't Go!!! Thanks a bunch Darla! I do fb but seriously need a tutor to navigate. I'll try to find Lyme. Sounds good. You're a ray of sunshine. Be well, Léna Hi Lena, it's called Lyme: Ive gotten better & got my life back...it's so inspirational to hear from other lymies from their smallest accomplishments to hearing that they are 90% cured!!! The adm that envisioned this sight doesnt allow negativaty enter the room cuz we half to go somewhere to hear about our hopes & dreams that, that could be us someday!!! Hope you enjoy...it's so nice talking to you & idk what happened to you that you want to leave that site but dont let people bother you, we will always have some negativity in our life even though it sucks, well i hope you come join us on the other site you can find it right on fb if you put in the search bar....sending you a hug!! To: Lyme_and_Rife Sent: Wednesday, July 18, 2012 11:16 AMSubject: Re: Re: OT: Lena, Don't Go!!! Hi Darla, At the risk of exposing you to similar censure, could you tell me the name of that group? Sounds very nice, and human. Thanks for your kind words. We need all the encouragement we can get with this disease. Be well, Léna Lena, I am very new to this group but i have read alot of your comments, helpful hints etc..i feel like this group would def miss you, idk who or why you cant say or suggest another group, I belong to 2 other lyme groups & the one i really love, its a place you can go to say the little things you have accomplished for that day or minute it's very inspirational!!! Lena you stay true to yourself......Be Well my friend....Darla To: Lyme_and_Rife Sent: Wednesday, July 18, 2012 9:15 AMSubject: Re: Re: OT: Lena, Don't Go!!! Hi Lena,I just kinda,sorta, flew over the recent posts and thought, many of us consider you of high value here, and I AGREE! You always have a lot of positivity and hope for us. And recommendations as well as ideas.I am not sure what started your uncertainty but it would be a loss for us for you not to be part of this group anymore.I sure would miss your cyber smiles and "Be well" greet at the end of every post. I grew so fond of the last bit, I use it a lot myself now, cause it sums a good wish all up.So here I go just for you, BE WELL, and stay with us! BiancaConnected by DROID on Verizon Wireless Re: Re: OT: Lena, Don't Go!!! Oh Jeff, So many good people are making me feel so much better. Thank you! With Lyme, we can doubt ourselves, so rebukes, even unfair ones, can be pretty shattering. Thanks for your perspective. I needed that! Be well, my friend, Léna Please allow me to join in asking that you continue to post here. Your messages are always helpful. I thought the purpose here was to share information and certainly that is all I’ve ever seen from your posts in the time I’ve been a member. I hope that you’ll hang in here for a while and let things pass for your contributions here are too valuable to lose. Take care, Jeff From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of khaya.davidsonSent: Tuesday, July 17, 2012 9:56 PMTo: Lyme_and_Rife Subject: Re: OT: Lena, Don't Go!!! I'll second that! Your posts are always very well thought out and helpful, based on your wealth of research and experience. Thanks a million! Also and Jim and ...Khaya> >> > Hi Barbara,> > Yes, you're very lucky to be so near! I hope there's a good connection there for you. I envy you.> > > > I've just been told that I shouldn't refer people to other support groups, that it confuses them and that just because I'm feeling pretty well, I should realize that more than one support group will cause confusion and distress in people who are very sick. ????> > > > I was still very sick when I joined another invaluable group that has made an equal contribution to my good recovery, so I think this concern underestimates the intelligence, the will to fight and recover that other very sick people have. They should not be deprived of any promising avenue. They should be allowed to choose for themselves. And sometimes, they don't even need to choose, but can have a harmonious blend of more that one protocol. > > > > I surely hope this isn't true, that my contributions haven't caused distress, as most people in this group know that I have shared at length, with diversity, respect for the many differences our diseases present, with compassion and optimism: something sorely needed in this awful disease. > > > > This has made me sad. I may not be posting in this group any more, unless the group in general feels my approach has been helpful.> > > > Be well,> > Léna> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.