RE: Jackie -- Hello

[Guest guest]

Hi Jackie, I don't know if we've officially met, but I feel know you well enough that it seems we have. lol My Mother has spoken of you for years now (has it been years? Seems to be) and speaks caringly of you. ) Thank you for your encouragement. I try to keep all these things in mind, but find myself putting it off for another day (Scarlet O'Hara, I call it... I'll think about that anuthah day hehe). The Neuro I saw was new to practice and had completed two MS fellowships at the Mayo in Rochester. It was clear it hadn't done him much good. lol Or, perhaps it was that he'd not put what he'd

learned in to practice long enough? (Did enjoy the studen doc telling me some symptoms were because I'd had several children rofl). Later, when my Mother saw her Neuro, whose nurse had spoken highly of the Neuro I saw before I saw him, the nurse and Mom chatted a little about him. It was clear she also had come to the same impression I had. LOL He was a nice enough fellow, but... <g> I do wish, in retrospect, I'd had the MRI of more than just my brain. And I really should do something about seeing someone else soon. I don't know if the insurance will last much longer. When I gathered myself enough to hold back the tears, and growing frustration/anger, I mentioned to the Neuro the fact that so many MSers go for years

without leasions showing on an MRI. He seemed a bit iritated at that, conceded it was true, and said with a grudge in his tone that we could do a Lumbar Puncture if I wanted. I smiled and explained I'd not be doing that, as I realized false results can come depending on where you are in or out of an attack. I was educated enough, through my Mother, through this list, through my own research. I don't think Doc took that into consideration. It was nice when the Neuro "suggested" I do some reading and my DH laughed and told the Neuro he was talking to a "research queen". Yup, I'm just like everyone else here. LOLOL Thank you, Jackie. ) Challis Jackie Hanan

wrote: Hi Challis,…….I’m Jackie from Oregon, and I’m not sure we’ve met? I am glad you are posting again as I always enjoyed reading your messages. Don’t give up trying to get a dx. It took me awhile too, and sometimes when symptoms are vague, or could be related to a number of other things, the Dr.’s like to take a wait and see approach. I’m not saying you have vague symptoms, as to us they seemed anything but, but Dr’s like to see dramatic episodes of something before they

commit. My symptoms were mild compared to others, and I lived with them for 14 years before a Diagnostic Dr. decided to take a cervical MRI, and that’s where they found the lesion. That with the Brain MRI’s and the white spots in there, and then all the clinical signs he gave me the MS dx. Even with that, I still had Neuro’s hesitate to confirm. So I think it depends on the Dr., and where their head is at? That my friend is the frustrating part of the whole thing, is finding those Dr’s who will venture outside the box. I was told that some Neuro’s don’t specialize in Motor Neuron diseases, and so they don’t know very much about MS. Nice to finally meet! J I am a long time friend of your mothers, and she is one great lady! Jackie J

From: MSersLife [mailto:MSersLife ] On Behalf Of Smyelin groovySent: Tuesday, May 09, 2006 1:25 PMTo: MSersLife Subject: Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm

*okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms

disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk.

She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate.

Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.