Re: OT: Neurological Lyme symptoms...

[Guest guest]

Barb i was on IV rocephin last march and it literally destroyed my life here i am a neurological mess and if i could turn back the clock i would never ever had let them put me on them..They also did a study where they found out the iv is no more effective then orals.Its you and your husbands choice i just wish i was well informed back then as i feel my life wouldnt be in the chaos it is in now...Most days i feel like i am not gonna make it very sad but true..I wish you and yours the best in whatever treatment plan you take..

Subject: OT: Neurological Lyme symptoms...To: Lyme_and_Rife Date: Wednesday, July 25, 2012, 2:45 PM

My husband is currently using the gb4000 for his lyme. He has a lot of neurological Lyme symptoms...memory issues, major anxiety, brain fog, loses his thought mid sentence, confusion, etc in addition to physical symptoms. In the past he has been on doxy, ceftin and Bactrim (for a coinfection). We have an appointment with an infectious disease dr in September and from speaking with them it seems that they will put him on IV antibiotics.I am concerned because since November, everything is just getting worse....not better at all. I know that we need to take it slow and steady but I would think he should not be getting worse.... I'm concerned because of the neuro symptoms he has and I'm thinking (or more like hoping) that a round of IV antibiotics might help temporarily however the common sense voice in my head is telling me that it will make things worse.Can anyone offer any

advice?He is currently using the gb4000 once a week, taking charcoal, Isocort and adrenal support(he has adrenal fatigue). We have limited finances now that he is no longer working so I'm trying to figure out the best next step...Thanks in advance!Barb

[Guest guest]

barb,in 2007 my husband and i were both on 18 mos. abx. cocktails, and mepron and other 'treats' for 8 mos. for babs, and rifampin for 6 mos. for bart.  i have also never truly recovered from that. also, i still had the lyme, bart and babs after all that

also, in 2005 they put me on 4-5 mo of doxy and flagyl and it took 6 mo. to just get back to the level of sickness i was before the abx.  i had lots more problems with candida following all this

when i started in '07, the llmd gave us lots of info sheets to read.  one was to be signed, stating that we understood that the abx may not be effective.  so they knew.  after 18 mos. the dr and i both agreed it was not working for me.  husband was no better. 

interestingly, i had come across rife info and asked him about it.  i wanted to do it, but was very confused as to what machine to get.  legally, he really couldn't discuss it with me, but when i asked him 'what kind', he  said without hesitation, the doug coil.  again, he knew what would and wouldn't work.

i think that most here have not had good experiences with the abx.if i knew then what i know now, never would have gone that route. i wouldbarbara

 

Barb i was on IV rocephin last march and it literally destroyed my life here i am a neurological mess and if i could turn back the clock i would never ever had let them put me on them..They also did a study where they found out the iv is no more effective then orals.Its you and your husbands choice i just wish i was well informed back then as i feel my life wouldnt be in the chaos it is in now...Most days i feel like i am not gonna make it very sad but true..I wish you and yours the best in whatever treatment plan you take..

Subject: OT: Neurological Lyme symptoms...

To: Lyme_and_Rife Date: Wednesday, July 25, 2012, 2:45 PM

 

My husband is currently using the gb4000 for his lyme. He has a lot of neurological Lyme symptoms...memory issues, major anxiety, brain fog, loses his thought mid sentence, confusion, etc in addition to physical

symptoms. In the past he has been on doxy, ceftin and Bactrim (for a coinfection). We have an appointment with an infectious disease dr in September and from speaking with them it seems that they will put him on

IV antibiotics.I am concerned because since November, everything is just getting worse....not better at all. I know that we need to take it slow and steady but I would think he should not be getting worse.... I'm

concerned because of the neuro symptoms he has and I'm thinking (or more like hoping) that a round of IV antibiotics might help temporarily however the common sense voice in my head is telling me that it will

make things worse.Can anyone offer any

advice?He is currently using the gb4000 once a week, taking charcoal, Isocort and adrenal support(he has adrenal fatigue). We have limited finances now that he is no longer working so I'm trying to figure out the best

next step...Thanks in advance!Barb

[Guest guest]

Barbara,

Thank you for your feedback...this is what I thought.  I guess a

part of me wanted to think that if we hit the lyme with everything

(several different treatments) that he would see some improvement...

Barb

On 7/25/2012 8:11 PM, Barbara Pierce

wrote:

 

barb,

in 2007 my husband and i were both on 18 mos. abx.

cocktails, and mepron and other 'treats' for 8 mos. for

babs, and rifampin for 6 mos. for bart.  i have also never

truly recovered from that. also, i still had the lyme,

bart and babs after all that

also, in 2005 they put me on 4-5 mo of doxy and flagyl

and it took 6 mo. to just get back to the level of

sickness i was before the abx.  

i had lots more problems with candida following all

this

when i started in '07, the llmd gave us lots of info

sheets to read.  one was to be signed, stating that we

understood that the abx may not be effective.  so they

knew.  after 18 mos. the dr and i both agreed it was not

working for me.  husband was no better. 

interestingly, i had come across rife info and asked

him about it.  i wanted to do it, but was very confused as

to what machine to get.  legally, he really couldn't

discuss it with me, but when i asked him 'what kind', he

 said without hesitation, the doug coil.  again, he knew

what would and wouldn't work.

i think that most here have not had good experiences

with the abx.

if i knew then what i know now, never would have gone

that route. i would

barbara

On Wed, Jul 25, 2012 at 12:09 PM,

T.B

wrote:

 

Barb

i was on IV rocephin last march and it

literally destroyed my life here i am

a neurological mess and if i could

turn back the clock i would never ever

had let them put me on them..They also

did a study where they found out the

iv is no more effective then orals.Its

you and your husbands choice i just

wish i was well informed back then as

i feel my life wouldnt be in the chaos

it is in now...Most days i feel like i

am not gonna make it very sad but

true..I wish you and yours the best in

whatever treatment plan you take..

Subject: OT:

Neurological Lyme symptoms...

To: Lyme_and_Rife

Date: Wednesday, July 25, 2012, 2:45

PM

 

My husband is currently

using the gb4000 for his

lyme. He has a lot of

neurological Lyme

symptoms...memory issues,

major anxiety, brain fog,

loses his thought mid

sentence, confusion, etc

in addition to physical

symptoms. In the past he

has been on doxy, ceftin

and Bactrim (for a

coinfection). We have an

appointment with an

infectious disease dr in

September and from

speaking with them it

seems that they will put

him on

IV antibiotics.

I am concerned because

since November, everything

is just getting

worse....not better at

all. I know that we need

to take it slow and

steady but I would think

he should not be getting

worse.... I'm

concerned because of the

neuro symptoms he has and

I'm thinking (or more

like hoping) that a round

of IV antibiotics might

help temporarily

however the common sense

voice in my head is

telling me that it will

make things worse.

Can anyone offer any

advice?

He is currently using the

gb4000 once a week, taking

charcoal, Isocort

and adrenal support(he has

adrenal fatigue). We have

limited finances

now that he is no longer

working so I'm trying to

figure out the best

next step...

Thanks in advance!

Barb

[Guest guest]

HI

Is it Barara talking to Barb

Silver was more effective on my neurological symptoms than anything else . However only the detox of the gut freed me colinics aenamas colema low volume aenemas it touch the brain dep as it is the ned of the nerves from braina dn medualr chord

Kindly Marie

To: Lyme_and_Rife Sent: Thursday, July 26, 2012 7:32 AMSubject: Re: OT: Neurological Lyme symptoms...

Barbara,Thank you for your feedback...this is what I thought. I guess a part of me wanted to think that if we hit the lyme with everything (several different treatments) that he would see some improvement...Barb

barb,

in 2007 my husband and i were both on 18 mos. abx. cocktails, and mepron and other 'treats' for 8 mos. for babs, and rifampin for 6 mos. for bart. i have also never truly recovered from that. also, i still had the lyme, bart and babs after all that

also, in 2005 they put me on 4-5 mo of doxy and flagyl and it took 6 mo. to just get back to the level of sickness i was before the abx.

i had lots more problems with candida following all this

when i started in '07, the llmd gave us lots of info sheets to read. one was to be signed, stating that we understood that the abx may not be effective. so they knew. after 18 mos. the dr and i both agreed it was not working for me. husband was no better.

interestingly, i had come across rife info and asked him about it. i wanted to do it, but was very confused as to what machine to get. legally, he really couldn't discuss it with me, but when i asked him 'what kind', he said without hesitation, the doug coil. again, he knew what would and wouldn't work.

i think that most here have not had good experiences with the abx.

if i knew then what i know now, never would have gone that route. i would

barbara

Barb i was on IV rocephin last march and it literally destroyed my life here i am a neurological mess and if i could turn back the clock i would never ever had let them put me on them..They also did a study where they found out the iv is no more effective then orals.Its you and your husbands choice i just wish i was well informed back then as i feel my life wouldnt be in the chaos it is in now...Most days i feel like i am not gonna make it very sad but true..I wish you and yours the best in whatever treatment plan you take..

Subject: OT: Neurological Lyme symptoms...To: Lyme_and_Rife Date: Wednesday, July 25, 2012, 2:45 PM

My husband is currently using the gb4000 for his lyme. He has a lot of neurological Lyme symptoms...memory issues, major anxiety, brain fog, loses his thought mid sentence, confusion, etc in addition to physical symptoms. In the past he has been on doxy, ceftin and Bactrim (for a coinfection). We have an appointment with an infectious disease dr in September and from speaking with them it seems that they will put him on IV antibiotics.I am concerned because since November, everything is just getting worse....not better at all. I know that we need to take it slow and steady but I would think he should not be getting worse.... I'm concerned because of the neuro symptoms he has and I'm thinking (or more like hoping) that a round of IV antibiotics might help temporarily however the common sense voice in my head is telling me that it will make things worse.Can anyone offer

any advice?He is currently using the gb4000 once a week, taking charcoal, Isocort and adrenal support(he has adrenal fatigue). We have limited finances now that he is no longer working so I'm trying to figure out the best next step...Thanks in advance!Barb

[Guest guest]

barb,it is kind of discouraging, wanting to do the abx, thinking that killing everything will work.  well it does kill everything, except for what we want killed.  it actually leaves you in worse shape. 

 every once in a while i will get the thought, 'oh, abx, maybe i'll try again.'  then i think!!  and the thought leaves.  we are very conditioned to believe in the system. it is hard to break out of it.

and i agree with marie about the enemas.  they do make the difference.  i can be feeling badly, as in herxing or just yuk, and i do the enema and the c.e. and it is amazing the difference when i'm done.  when i started doing them is when i saw a difference in the length and intensity of the herxes and started feeling better.  

also, doing the mag. oil  helps with a lot of symptoms also.marie, yes it is barb talking to barbara.  barbara

 

HI

Is it Barara talking to Barb

Silver was more effective on my neurological symptoms than anything else . However only the detox of the gut freed me colinics aenamas colema low volume aenemas it touch the brain dep as it is the ned of the nerves from braina dn medualr chord

Kindly Marie

 

To: Lyme_and_Rife Sent: Thursday, July 26, 2012 7:32 AM

Subject: Re: OT: Neurological Lyme symptoms...

 

Barbara,Thank you for your feedback...this is what I thought.  I guess a part of me wanted to think that if we hit the lyme with everything (several different treatments) that he would see some improvement...

Barb

 

barb,

in 2007 my husband and i were both on 18 mos. abx. cocktails, and mepron and other 'treats' for 8 mos. for babs, and rifampin for 6 mos. for bart.  i have also never truly recovered from that. also, i still had the lyme, bart and babs after all that

also, in 2005 they put me on 4-5 mo of doxy and flagyl and it took 6 mo. to just get back to the level of sickness i was before the abx.  

i had lots more problems with candida following all this

when i started in '07, the llmd gave us lots of info sheets to read.  one was to be signed, stating that we understood that the abx may not be effective.  so they knew.  after 18 mos. the dr and i both agreed it was not working for me.  husband was no better. 

interestingly, i had come across rife info and asked him about it.  i wanted to do it, but was very confused as to what machine to get.  legally, he really couldn't discuss it with me, but when i asked him 'what kind', he  said without hesitation, the doug coil.  again, he knew what would and wouldn't work.

i think that most here have not had good experiences with the abx.

if i knew then what i know now, never would have gone that route. i would

barbara

 

Barb i was on IV rocephin last march and it literally destroyed my life here i am a neurological mess and if i could turn back the clock i would never ever had let them put me on them..They also did a study where they found out the iv is no more effective then orals.Its you and your husbands choice i just wish i was well informed back then as i feel my life wouldnt be in the chaos it is in now...Most days i feel like i am not gonna make it very sad but true..I wish you and yours the best in whatever treatment plan you take..

Subject: OT: Neurological Lyme symptoms...

To: Lyme_and_Rife Date: Wednesday, July 25, 2012, 2:45 PM

 

My husband is currently using the gb4000 for his lyme. He has a lot of neurological Lyme symptoms...memory issues, major anxiety, brain fog, loses his thought mid sentence, confusion, etc in addition to physical symptoms. In the past he has been on doxy, ceftin and Bactrim (for a coinfection). We have an appointment with an infectious disease dr in September and from speaking with them it seems that they will put him on IV antibiotics.I am concerned because since November, everything is just getting worse....not better at all. I know that we need to take it slow and steady but I would think he should not be getting worse.... I'm concerned because of the neuro symptoms he has and I'm thinking (or more like hoping) that a round of IV antibiotics might help temporarily however the common sense voice in my head is telling me that it will make things worse.Can anyone offer

any advice?He is currently using the gb4000 once a week, taking charcoal, Isocort and adrenal support(he has adrenal fatigue). We have limited finances now that he is no longer working so I'm trying to figure out the best next step...Thanks in advance!Barb

[Guest guest]

Ok a big hug to Barb and Barbara

Kindly Marie

To: Lyme_and_Rife Sent: Thursday, July 26, 2012 10:17 PMSubject: Re: OT: Neurological Lyme symptoms...

barb,

it is kind of discouraging, wanting to do the abx, thinking that killing everything will work. well it does kill everything, except for what we want killed. it actually leaves you in worse shape.

every once in a while i will get the thought, 'oh, abx, maybe i'll try again.' then i think!! and the thought leaves. we are very conditioned to believe in the system. it is hard to break out of it.

and i agree with marie about the enemas. they do make the difference. i can be feeling badly, as in herxing or just yuk, and i do the enema and the c.e. and it is amazing the difference when i'm done. when i started doing them is when i saw a difference in the length and intensity of the herxes and started feeling better.

also, doing the mag. oil helps with a lot of symptoms also.

marie, yes it is barb talking to barbara.

barbara

HI

Is it Barara talking to Barb

Silver was more effective on my neurological symptoms than anything else . However only the detox of the gut freed me colinics aenamas colema low volume aenemas it touch the brain dep as it is the ned of the nerves from braina dn medualr chord

Kindly Marie

To: Lyme_and_Rife Sent: Thursday, July 26, 2012 7:32 AMSubject: Re: OT: Neurological Lyme symptoms...

Barbara,Thank you for your feedback...this is what I thought. I guess a part of me wanted to think that if we hit the lyme with everything (several different treatments) that he would see some improvement...Barb

barb,

in 2007 my husband and i were both on 18 mos. abx. cocktails, and mepron and other 'treats' for 8 mos. for babs, and rifampin for 6 mos. for bart. i have also never truly recovered from that. also, i still had the lyme, bart and babs after all that

also, in 2005 they put me on 4-5 mo of doxy and flagyl and it took 6 mo. to just get back to the level of sickness i was before the abx.

i had lots more problems with candida following all this

when i started in '07, the llmd gave us lots of info sheets to read. one was to be signed, stating that we understood that the abx may not be effective. so they knew. after 18 mos. the dr and i both agreed it was not working for me. husband was no better.

interestingly, i had come across rife info and asked him about it. i wanted to do it, but was very confused as to what machine to get. legally, he really couldn't discuss it with me, but when i asked him 'what kind', he said without hesitation, the doug coil. again, he knew what would and wouldn't work.

i think that most here have not had good experiences with the abx.

if i knew then what i know now, never would have gone that route. i would

barbara

Barb i was on IV rocephin last march and it literally destroyed my life here i am a neurological mess and if i could turn back the clock i would never ever had let them put me on them..They also did a study where they found out the iv is no more effective then orals.Its you and your husbands choice i just wish i was well informed back then as i feel my life wouldnt be in the chaos it is in now...Most days i feel like i am not gonna make it very sad but true..I wish you and yours the best in whatever treatment plan you take..

Subject: OT: Neurological Lyme symptoms...To: Lyme_and_Rife Date: Wednesday, July 25, 2012, 2:45 PM

My husband is currently using the gb4000 for his lyme. He has a lot of neurological Lyme symptoms...memory issues, major anxiety, brain fog, loses his thought mid sentence, confusion, etc in addition to physical symptoms. In the past he has been on doxy, ceftin and Bactrim (for a coinfection). We have an appointment with an infectious disease dr in September and from speaking with them it seems that they will put him on IV antibiotics.I am concerned because since November, everything is just getting worse....not better at all. I know that we need to take it slow and steady but I would think he should not be getting worse.... I'm concerned because of the neuro symptoms he has and I'm thinking (or more like hoping) that a round of IV antibiotics might help temporarily however the common sense voice in my head is telling me that it will make things

worse.Can anyone offer any advice?He is currently using the gb4000 once a week, taking charcoal, Isocort and adrenal support(he has adrenal fatigue). We have limited finances now that he is no longer working so I'm trying to figure out the best next step...Thanks in advance!Barb