Guest guest Posted July 26, 2012 Report Share Posted July 26, 2012 Not sure if my last post went threw as i was cut off. Anyway i want to thank everyone here who has taken there time with giving me there insight.I came here because as you know i have been extremely sick since last march.I came here for hopefully sound answers and advice..I have been through the ropes with our tradional health care system only to be told theres something really wrong but we dont know what it is and we cant help you.Anyway thats neither here nor there.. Its great that everyone on here has such a diverse set of opinions on what has worked and what hasnt.But you have to understand we are all differnt our level of sickness and our genetic makeup..I find it very disheartening that someone would even tell me that perhaps i dont wantb to get well here that i am not ready for it..Well jesus christ why do you think i am here posting i am trying to find answers and advice and if something makes sense to me i try it but if it makes me far worse off after using it a few times then i stop.To be told to keep using that herb etc is crazy its its bringing you to new lows that are freightening.I am new to this and i feel like a lost child and sure i need guidance thats why i here but remember its all about finding what works for you ..I seem to be babling here so i will end it here. Again thank you for everyone who took there time here with trying to help.I cant tell you how deeply appreciative i am.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2012 Report Share Posted July 27, 2012 I remember being new to this--this disease, the politics, the treatments, the controversy, and eventually the endless failures of modern medicine. I prayed for a diagnosis for so long, was so excited to finally have a name for what was going on with my body, but after a short time on the Internet was as down as ever. What to do? What to believe? At that point, I felt terrible, but I was functional. Not like I would like, but functional. Little did I know that this disease would take me down--WAY down--before I would find some answers. Which I pray I finally have. At first, there was no way that I would take IV antibiotics. But I got sick enough that I did. They even helped...until the crash after coming off of them. So then I was even sicker. So many times, I have asked myself, what else can this disease take away from me? Unfortunately, the answer has always been " yet one more thing. " It is frightening. But the truth is, that you're going to get worse. You can either get worse because you are healing and detoxing, or you can get worse by just letting the disease do its thing. Personally, I prefer to get better. I know you want that too. Who doesn't? The question that we all have to face is " What am I willing to do to get better? " This is going to sound a little strange and maybe even a little funny. In my efforts to get well, I have tangled with doctors who were clueless, gone on 700 mile round-trip car rides in a single day to get to an LLMD, flown to another state on a monthly basis, gone through PICC lines and giving myself IV antibiotics and now B12 shots, and pain and exhaustion and and and...the list could go on. So what am I having a hard time with? Coffee Enemas. Seriously. It has to be one of the easiest things in the list, and person after person on here says they make all the difference. But I'm having a hard time with it. I think of the joke that a GI doc made in Readers Digest. When a patient would tell him they'd had a coffee enema, he said, " What do you say? Would you like cream with that? " I have an even bigger hang-up with letting my kids know what I'm doing (they're 11 and 13), but since we homeschool, it's either let them know or stay up all night--not really an option. So I have to answer the question--do I want to get well bad enough that I am willing to take this step? I know I don't detox enough, and it will slow me down, keep me sicker longer if I don't. My son is 13. In less than 5 years, he could be moving out. Will I be well by then? It depends in part on what I'm willing to do. So I don't see a choice. I see an uncomfortable discussion and a lot of " eeewww! " s (and probably laughing) in the near future. But I hope and pray that on the other side of it, that I'll make it back to the karate floor with my kids before they're grown and gone. To the backyard. To the baseball games. To their lives--full-time. Would I have ever dreamed of doing this before joining this group? Not too likely. But I'm listening to them, and I'm learning from them. Pick one piece of advice at a time and really try it. Well, two pieces. First of all, slow. The hardest word in all of this. Slow. Then, by all means, keep drinking water, but also find something that will get the poison out. We use nicer words like toxins. They're poisons. These bacteria want to get us while they're alive, and they will do their best to take us down when we beat them. So they poison us when they die. And we have to remove the poison, just as surely as if we drank from a bottle with a skull and crossbones on it. Yes. It will make you feel worse. But if you're listening, it's the die-off that's making you feel bad, not the things that pull those poisons out. One dose won't do it. Two probably won't either. So you keep detoxing until you do get better. And then you treat again and start all over. The question isn't, " Do you want to get well? " . The question is " What are you willing to do to get well? " It took me 8 years to get a diagnosis. That was 6 years ago. I know what it's like to get worse. And I know how frightening each step down can be. But for once, for once, I know that each time I feel worse, I took some of those bacteria down. And they're not coming back this time. Not if I keep going. Which I will, Lord willing. But I've got to do whatever it takes to get rid of those poisons, or I'm going to let those bacteria take me down anyway. Keep me in the bed. I'm tired of my bed. I'm ready to be out of it. What are you tired of? And what are you willing to do to get away from it? We're here to help. We all face the struggles. We all have to cross those lines. And we all have to feel worse before we feel better. You've come this far. You can do this. Those things that seem to make sense? The ideas that the only way to get better is to feel better each day? Toss them out. Because you have never fought this type of beast. It's the body's suicide bomber. " If I'm going down, I'm going to take you with me. " What other disease does that? So you have to change your tac plan. Coil, feel worse, detox it out, start again. And then one day you realize you don't get as sick anymore. So you increase your treatment time by a little. And start again. And then one day the herxes will stop. It will be a long time. But one day, there won't be any Lyme left to kill. And you will look back and say, " Wow. That was so worth it. " Listen to the great teachers here. Learn from their trial and error. They were where you are, maybe even worse. Many of them are better now. Some maybe even well. But they went through the same misery to get there. I'm going to listen. I hope you will too. Hope all are seeing better days. Lorrie > > Not sure if my last post went threw as i was cut off. > Anyway i want to thank everyone here who has taken there time with giving me there insight.I came here because as you know i have been extremely sick since last march.I came here for hopefully sound answers and advice..I have been through the ropes with our tradional health care system only to be told theres something really wrong but we dont know what it is and we cant help you.Anyway thats neither here nor there.. > Its great that everyone on here has such a diverse set of opinions on what has worked and what hasnt.But you have to understand we are all differnt our level of sickness and our genetic makeup..I find it very disheartening that someone would even tell me that perhaps i dont wantb to get well here that i am not ready for it..Well jesus christ why do you think i am here posting i am trying to find answers and advice and if something makes sense to me i try it but if it makes me far worse off after using it a few times then i stop.To be told to keep using that herb etc is crazy its its bringing you to new lows that are freightening.I am new to this and i feel like a lost child and sure i need guidance thats why i here but remember its all about finding what works for you ..I seem to be babling here so i will end it here. > Again thank you for everyone who took there time here with trying to help.I cant tell you how deeply appreciative i am.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2012 Report Share Posted July 27, 2012 Hi Lorry we can relate to you for sure Thank you too Marie To: Lyme_and_Rife Sent: Thursday, July 26, 2012 7:32 PMSubject: Re: Thanks Everyone I remember being new to this--this disease, the politics, the treatments, the controversy, and eventually the endless failures of modern medicine. I prayed for a diagnosis for so long, was so excited to finally have a name for what was going on with my body, but after a short time on the Internet was as down as ever. What to do? What to believe? At that point, I felt terrible, but I was functional. Not like I would like, but functional. Little did I know that this disease would take me down--WAY down--before I would find some answers. Which I pray I finally have. At first, there was no way that I would take IV antibiotics. But I got sick enough that I did. They even helped...until the crash after coming off of them. So then I was even sicker. So many times, I have asked myself, what else can this disease take away from me? Unfortunately, the answer has always been "yet one more thing."It is frightening. But the truth is, that you're going to get worse. You can either get worse because you are healing and detoxing, or you can get worse by just letting the disease do its thing. Personally, I prefer to get better. I know you want that too. Who doesn't? The question that we all have to face is "What am I willing to do to get better?"This is going to sound a little strange and maybe even a little funny. In my efforts to get well, I have tangled with doctors who were clueless, gone on 700 mile round-trip car rides in a single day to get to an LLMD, flown to another state on a monthly basis, gone through PICC lines and giving myself IV antibiotics and now B12 shots, and pain and exhaustion and and and...the list could go on. So what am I having a hard time with? Coffee Enemas. Seriously. It has to be one of the easiest things in the list, and person after person on here says they make all the difference. But I'm having a hard time with it. I think of the joke that a GI doc made in Readers Digest. When a patient would tell him they'd had a coffee enema, he said, "What do you say? Would you like cream with that?" I have an even bigger hang-up with letting my kids know what I'm doing (they're 11 and 13), but since we homeschool, it's either let them know or stay up all night--not really an option. So I have to answer the question--do I want to get well bad enough that I am willing to take this step? I know I don't detox enough, and it will slow me down, keep me sicker longer if I don't. My son is 13. In less than 5 years, he could be moving out. Will I be well by then? It depends in part on what I'm willing to do. So I don't see a choice. I see an uncomfortable discussion and a lot of "eeewww!"s (and probably laughing) in the near future. But I hope and pray that on the other side of it, that I'll make it back to the karate floor with my kids before they're grown and gone. To the backyard. To the baseball games. To their lives--full-time. Would I have ever dreamed of doing this before joining this group? Not too likely. But I'm listening to them, and I'm learning from them. Pick one piece of advice at a time and really try it. Well, two pieces. First of all, slow. The hardest word in all of this. Slow. Then, by all means, keep drinking water, but also find something that will get the poison out. We use nicer words like toxins. They're poisons. These bacteria want to get us while they're alive, and they will do their best to take us down when we beat them. So they poison us when they die. And we have to remove the poison, just as surely as if we drank from a bottle with a skull and crossbones on it. Yes. It will make you feel worse. But if you're listening, it's the die-off that's making you feel bad, not the things that pull those poisons out. One dose won't do it. Two probably won't either. So you keep detoxing until you do get better. And then you treat again and start all over. The question isn't, "Do you want to get well?". The question is "What are you willing to do to get well?"It took me 8 years to get a diagnosis. That was 6 years ago. I know what it's like to get worse. And I know how frightening each step down can be. But for once, for once, I know that each time I feel worse, I took some of those bacteria down. And they're not coming back this time. Not if I keep going. Which I will, Lord willing. But I've got to do whatever it takes to get rid of those poisons, or I'm going to let those bacteria take me down anyway. Keep me in the bed. I'm tired of my bed. I'm ready to be out of it. What are you tired of? And what are you willing to do to get away from it?We're here to help. We all face the struggles. We all have to cross those lines. And we all have to feel worse before we feel better. You've come this far. You can do this. Those things that seem to make sense? The ideas that the only way to get better is to feel better each day? Toss them out. Because you have never fought this type of beast. It's the body's suicide bomber. "If I'm going down, I'm going to take you with me." What other disease does that? So you have to change your tac plan. Coil, feel worse, detox it out, start again. And then one day you realize you don't get as sick anymore. So you increase your treatment time by a little. And start again. And then one day the herxes will stop. It will be a long time. But one day, there won't be any Lyme left to kill. And you will look back and say, "Wow. That was so worth it."Listen to the great teachers here. Learn from their trial and error. They were where you are, maybe even worse. Many of them are better now. Some maybe even well. But they went through the same misery to get there. I'm going to listen. I hope you will too. Hope all are seeing better days. Lorrie>> Not sure if my last post went threw as i was cut off.> Anyway i want to thank everyone here who has taken there time with giving me there insight.I came here because as you know i have been extremely sick since last march.I came here for hopefully sound answers and advice..I have been through the ropes with our tradional health care system only to be told theres something really wrong but we dont know what it is and we cant help you.Anyway thats neither here nor there..> Its great that everyone on here has such a diverse set of opinions on what has worked and what hasnt.But you have to understand we are all differnt our level of sickness and our genetic makeup..I find it very disheartening that someone would even tell me that perhaps i dont wantb to get well here that i am not ready for it..Well jesus christ why do you think i am here posting i am trying to find answers and advice and if something makes sense to me i try it but if it makes me far worse off after using it a few times then i stop.To be told to keep using that herb etc is crazy its its bringing you to new lows that are freightening.I am new to this and i feel like a lost child and sure i need guidance thats why i here but remember its all about finding what works for you .I seem to be babling here so i will end it here.> Again thank you for everyone who took there time here with trying to help.I cant tell you how deeply appreciative i am..> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2012 Report Share Posted July 27, 2012 That is nice of you to say Terrance and I am sure we are all very apprieciative. We are doing this when we dont know you, because we feel for you and want to help and are confident we can. but believe me when I tell you, this is a lyme forum, no man or woman knows anothers suffering, but we have ALL been where you are to some degree, many likely worse. I dont know who or what got you here, but there was no way I was joining a " forum " for a good month or more, I was way too confused and mentally and physically impaired. I felt like a skeleton with half eaten flesh and rigamortis. You are describing lyme symptoms perfectly and getting our corrolating reports, so at least you are diagnosed, and you know there is no help from the people in white, so you have to find the answers yourself, with guidence from people like us and books. As long as you are not incredibly stubborn continually, you will find some things that will, over some amount of time, work for you as detoxifying agents. Go back and study our answers more closely, you will find a lot of good information there that you didnt see the first time. There are many different types of " detoxers " . Right now I think you primarilly want ones that will promote your systems. Your swollen lymph is proof, telling you you need to listen to us, your systems are seriously backed up. Milk thistle and red root are the first two that come to mind. and dont take the amount written on the bottle. take it like a lyme sufferer who needs to detox like superman. you will come out of this, you need to be able to focus on healing and detoxing yourself. I am very glad you are eating well. keep trying, you will get there. PS, Youre not drinking half your weight in water literally are you? it should b in ozs. and Do you know your heavy metal status, and I dont mean how long you can head bang for? Later bud, Cameron. > > Not sure if my last post went threw as i was cut off. > Anyway i want to thank everyone here who has taken there time with giving me there insight.I came here because as you know i have been extremely sick since last march.I came here for hopefully sound answers and advice..I have been through the ropes with our tradional health care system only to be told theres something really wrong but we dont know what it is and we cant help you.Anyway thats neither here nor there.. > Its great that everyone on here has such a diverse set of opinions on what has worked and what hasnt.But you have to understand we are all differnt our level of sickness and our genetic makeup..I find it very disheartening that someone would even tell me that perhaps i dont wantb to get well here that i am not ready for it..Well jesus christ why do you think i am here posting i am trying to find answers and advice and if something makes sense to me i try it but if it makes me far worse off after using it a few times then i stop.To be told to keep using that herb etc is crazy its its bringing you to new lows that are freightening.I am new to this and i feel like a lost child and sure i need guidance thats why i here but remember its all about finding what works for you ..I seem to be babling here so i will end it here. > Again thank you for everyone who took there time here with trying to help.I cant tell you how deeply appreciative i am.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2012 Report Share Posted July 27, 2012 Also toxines piles up even thought we detox it unpile only when we succeed in unpiling it faster than it piles up . As a result the symptoms increases even thought we are not killing for a while because all the spyros doe snto dye at once some take a few days after beeing shaked . I have noticed that when I was over duing the killing it iwas a catastrophy for up to a month I would nto hink i would ever recuperate from this and it was agravating contiually hti si ssuper scary , every time it was colonics that took me out of trouble not one not two but 3 a week when it was to severe plus the colema , I was extremly sick to death in fact . Hopin you will try everything and pile up detox untilfinding the right combination for you do not expect an immediat result if you see it agravate less to began with itis a result then you add more detox diffrent or more frequently and associate every thing that did a littl ebot and at some point the tide began to go down, I have been in your situation more than one year after having passed one year palying with death . So I can relate with you . And remmeber people here who answer you they are also very sick do not get desapointed ig they do not talk to you with diplomacy they are aslo very tyred they give you a good push hoping it helps sometime it is a little bit mo rethan what you were expeting , they are ture to be tyred also and gather their strenght to answer you . Nobody is perfect Kindly Marie To: Lyme_and_Rife Sent: Thursday, July 26, 2012 8:27 PMSubject: Re: Thanks Everyone That is nice of you to say Terrance and I am sure we are all very apprieciative. We are doing this when we dont know you, because we feel for you and want to help and are confident we can. but believe me when I tell you, this is a lyme forum, no man or woman knows anothers suffering, but we have ALL been where you are to some degree, many likely worse. I dont know who or what got you here, but there was no way I was joining a "forum" for a good month or more, I was way too confused and mentally and physically impaired. I felt like a skeleton with half eaten flesh and rigamortis. You are describing lyme symptoms perfectly and getting our corrolating reports, so at least you are diagnosed, and you know there is no help from the people in white, so you have to find the answers yourself, with guidence from people like us and books. As long as you are not incredibly stubborn continually, you will find some things that will, over some amount of time, work for you as detoxifying agents. Go back and study our answers more closely, you will find a lot of good information there that you didnt see the first time. There are many different types of "detoxers". Right now I think you primarilly want ones that will promote your systems. Your swollen lymph is proof, telling you you need to listen to us, your systems are seriously backed up. Milk thistle and red root are the first two that come to mind. and dont take the amount written on the bottle. take it like a lyme sufferer who needs to detox like superman. you will come out of this, you need to be able to focus on healing and detoxing yourself. I am very glad you are eating well. keep trying, you will get there.PS, Youre not drinking half your weight in water literally are you? it should b in ozs. and Do you know your heavy metal status, and I dont mean how long you can head bang for?Later bud, Cameron.>> Not sure if my last post went threw as i was cut off.> Anyway i want to thank everyone here who has taken there time with giving me there insight.I came here because as you know i have been extremely sick since last march.I came here for hopefully sound answers and advice..I have been through the ropes with our tradional health care system only to be told theres something really wrong but we dont know what it is and we cant help you.Anyway thats neither here nor there..> Its great that everyone on here has such a diverse set of opinions on what has worked and what hasnt.But you have to understand we are all differnt our level of sickness and our genetic makeup..I find it very disheartening that someone would even tell me that perhaps i dont wantb to get well here that i am not ready for it..Well jesus christ why do you think i am here posting i am trying to find answers and advice and if something makes sense to me i try it but if it makes me far worse off after using it a few times then i stop.To be told to keep using that herb etc is crazy its its bringing you to new lows that are freightening.I am new to this and i feel like a lost child and sure i need guidance thats why i here but remember its all about finding what works for you .I seem to be babling here so i will end it here.> Again thank you for everyone who took there time here with trying to help.I cant tell you how deeply appreciative i am..> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2012 Report Share Posted July 28, 2012 Hi Terry, Many here on group are trying to give you good information.... Please keep in mind, these are suggestions, you are never bound to follow any one persons advice unless you choose to do so... You and only you have to make your own decisions, as you are the one who must either suffer the consequences of failure or enjoy the benefits of progress... Nobody can chose this for you, it is all up to you on what you decide to do for yourself... Not only are you getting a lot of good information, but also a lot of compassion and that counts for a lot as we all do know how you feel... What you are experiencing is common for many of us at some point, most do improve using good protocols... Take care, Jim > > Not sure if my last post went threw as i was cut off. > Anyway i want to thank everyone here who has taken there time with giving me there insight.I came here because as you know i have been extremely sick since last march.I came here for hopefully sound answers and advice..I have been through the ropes with our tradional health care system only to be told theres something really wrong but we dont know what it is and we cant help you.Anyway thats neither here nor there.. > Its great that everyone on here has such a diverse set of opinions on what has worked and what hasnt.But you have to understand we are all differnt our level of sickness and our genetic makeup..I find it very disheartening that someone would even tell me that perhaps i dont wantb to get well here that i am not ready for it..Well jesus christ why do you think i am here posting i am trying to find answers and advice and if something makes sense to me i try it but if it makes me far worse off after using it a few times then i stop.To be told to keep using that herb etc is crazy its its bringing you to new lows that are freightening.I am new to this and i feel like a lost child and sure i need guidance thats why i here but remember its all about finding what works for you ..I seem to be babling here so i will end it here. > Again thank you for everyone who took there time here with trying to help.I cant tell you how deeply appreciative i am.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2012 Report Share Posted July 28, 2012 Very nicely said Lorrie... Jim :-) > > > > Not sure if my last post went threw as i was cut off. > > Anyway i want to thank everyone here who has taken there time with giving me there insight.I came here because as you know i have been extremely sick since last march.I came here for hopefully sound answers and advice..I have been through the ropes with our tradional health care system only to be told theres something really wrong but we dont know what it is and we cant help you.Anyway thats neither here nor there.. > > Its great that everyone on here has such a diverse set of opinions on what has worked and what hasnt.But you have to understand we are all differnt our level of sickness and our genetic makeup..I find it very disheartening that someone would even tell me that perhaps i dont wantb to get well here that i am not ready for it..Well jesus christ why do you think i am here posting i am trying to find answers and advice and if something makes sense to me i try it but if it makes me far worse off after using it a few times then i stop.To be told to keep using that herb etc is crazy its its bringing you to new lows that are freightening.I am new to this and i feel like a lost child and sure i need guidance thats why i here but remember its all about finding what works for you ..I seem to be babling here so i will end it here. > > Again thank you for everyone who took there time here with trying to help.I cant tell you how deeply appreciative i am.. > > > Quote Link to comment Share on other sites More sharing options...
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