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Re: Cheryl gastroparesis

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--- Caitlin Kennedy wrote:

>

> Please remind me again what was causing your gastroparesis? Was

it the oxycontin and then you switched to another med and it cleared

up?

Yep, Caitlin, that was it.

After 14 months of hell, including an unnecessary surgery to take out

a completely healthy gall bladder, and more than one doctor telling

me it was all in my head or I was just hysterical/depressed, and

every doctor telling me it couldn't possibly be my meds, I diagnosed

it myself.

What made me think it had to be the meds, despite what the doctors

claimed, was the fact that I developed Tardive Dyskenisia after

several months on an anti-nausea med being used to treat the

symptoms. One day that drug just turned on me and caused major

neurological problems, even though it wasn't listed on the

documentation's list of potential side effects. (It has been clearly

shown, however, that anti-nausea meds are the #2 cause of TD, right

behind anti-psychotics, because anti-nausea meds are derivatives of

anti-psychotics! They don't tell you that little tidbit when dosing

you up on this crap.)

The onset of the TD caused me to start thinking that if one med could

suddenly cause neurological problems after months of taking it with

no problems, why couldn't another med? So I stopped taking my

oxycontin (didn't quit opiates cold turkey after several years - that

would have been insane! - just switched to nothing but my hydrocodone

breakthrough at the same dose) and was immediately " cured. " Tried

taking one oxycontin a week later, and was sick as a dog for the next

twelve hours.

I've been clear of the problems for six months now. My pain doc

switched me over to Kadian, and so far so good. It may turn on me

one day too - I'd been on the oxycontin for several years with no

problems until suddenly one day it made me sick - but for right now

I'm healthy and my pain is under relatively good control. I've even

managed to put about 15 pounds back on! Which I never thought before

would be considered a good thing.

Oxycodone is now on my list of " allergic " meds that cannot be taken

under any circumstances. They tried to give it to me in the hospital

last fall when I was paralyzed, and actually tried to argue with me

about it when I explained why, saying that couldn't be true, but I

just refused to take it and they just had to deal.

Cheryl in AZ

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--- Caitlin Kennedy wrote:

>

> Please remind me again what was causing your gastroparesis? Was

it the oxycontin and then you switched to another med and it cleared

up?

Yep, Caitlin, that was it.

After 14 months of hell, including an unnecessary surgery to take out

a completely healthy gall bladder, and more than one doctor telling

me it was all in my head or I was just hysterical/depressed, and

every doctor telling me it couldn't possibly be my meds, I diagnosed

it myself.

What made me think it had to be the meds, despite what the doctors

claimed, was the fact that I developed Tardive Dyskenisia after

several months on an anti-nausea med being used to treat the

symptoms. One day that drug just turned on me and caused major

neurological problems, even though it wasn't listed on the

documentation's list of potential side effects. (It has been clearly

shown, however, that anti-nausea meds are the #2 cause of TD, right

behind anti-psychotics, because anti-nausea meds are derivatives of

anti-psychotics! They don't tell you that little tidbit when dosing

you up on this crap.)

The onset of the TD caused me to start thinking that if one med could

suddenly cause neurological problems after months of taking it with

no problems, why couldn't another med? So I stopped taking my

oxycontin (didn't quit opiates cold turkey after several years - that

would have been insane! - just switched to nothing but my hydrocodone

breakthrough at the same dose) and was immediately " cured. " Tried

taking one oxycontin a week later, and was sick as a dog for the next

twelve hours.

I've been clear of the problems for six months now. My pain doc

switched me over to Kadian, and so far so good. It may turn on me

one day too - I'd been on the oxycontin for several years with no

problems until suddenly one day it made me sick - but for right now

I'm healthy and my pain is under relatively good control. I've even

managed to put about 15 pounds back on! Which I never thought before

would be considered a good thing.

Oxycodone is now on my list of " allergic " meds that cannot be taken

under any circumstances. They tried to give it to me in the hospital

last fall when I was paralyzed, and actually tried to argue with me

about it when I explained why, saying that couldn't be true, but I

just refused to take it and they just had to deal.

Cheryl in AZ

Moderator

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-I tried a fentynal patch and was sick to my stomach for 8 hours. I

had to take it off. 30 minutes later the nauseousness was gone.

I take compazine for nausea. I hope that isn't the med that you took

for yours.

Cheryl V

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--- " lncvoss " wrote:

>

> -I tried a fentynal patch and was sick to my stomach for 8 hours.

Hi Cheryl V -

Nausea is a pretty common side effect to opiates. Lots of people

experience that.

Gastroparesis is actually a neurological problem, however - the

stomach must contract to move food through it, and in gastroparesis

the stomach actually becomes paralyzed so nothing moves through. The

food either sits in the stomach and becomes toxic or has to come back

up again. Obviously, terrible nausea and vomiting is a hallmark of

gastroparesis, but the problem is really the paralysis.

Gastroparesis is often a result of nerve damage from diabetes.

However, about 50 percent of cases are " iatrogenic, " meaning they

don't know the cause. The doctors kept telling me gastroparesis

couldn't be caused by opiates, but I now know differently.

Cheryl in AZ

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