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Update from the Klaps

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It's great to hear that 's responded well to treatment - hopefully he will

keep on improving.

Klap wrote: It's the Friday update from the Klaps

and it's good news :-)

's BUN went from 102 to 71. His serum creatinine went from 4.7 to

3.8.

This means he responded well to the Prednisone. The nurse was quick to

point out to me that we should still go on with all our transplant

procedures. This buys us the time we need to figure out who is a match

and whether is a good candidate for transplant without worrying

about him going into kidney failure at any second. It buys us some time.

It's really an answer to prayer.

I'm really pleasantly surprised! I didn't think the side effects were

worth the efforts! I've been pleased on both scores.

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Good news, hope this trend continues for you. Keep us posted please.

Re: update from the klaps

It's great to hear that 's responded well to treatment - hopefully

he will keep on improving.

Klap wrote: It's the Friday update from

the Klaps and it's good news :-)

's BUN went from 102 to 71. His serum creatinine went from 4.7 to

3.8.

This means he responded well to the Prednisone. The nurse was quick to

point out to me that we should still go on with all our transplant

procedures. This buys us the time we need to figure out who is a match

and whether is a good candidate for transplant without worrying

about him going into kidney failure at any second. It buys us some time.

It's really an answer to prayer.

I'm really pleasantly surprised! I didn't think the side effects were

worth the efforts! I've been pleased on both scores.

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  • 4 weeks later...
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Still hanging in there. Sorry to meet all the new people :-) That is

to say, sorry for the purpose that brought you here, but welcome.

It's a great source of support. I intend to take advantage more over

the next year.

My husband, , was having a rapid decrease in kidney function so

they put him on Prednisone. He had some good improvement, and they

lowered the dosage. His serum creatinine went back up. So they

increased the dosage again and so far it's stayed up, but it hasn't

increased any further.

Currently his serum creatinine is 4.7 and BUN is 70. The BUN did get

to around 100 earlier, so it's looking better.

Anyway, the family members who are testing to see if they qualify as

donors have gotten their bloodwork in. has an EKG and

ultrasound in early August to see if he's a viable candidate for

transplant.

He's looking puffy from the Pred. and having some swelling in his

ankles, but overall he's feeling pretty good, still working and

having pretty good energy. Can't do much better than that.

There has been a lot of discussion about the life span of the donated

kidney. 's neph. told him the new kidney will have a life span

of around 15 years. My sister-in-law who works in a kidney transplant

hospital was told 7. My guess is that they don't really know. I'll

choose the most optimistic route if I can :-)

I haven't had much time to read all the postings, but I do scan

through them. Blessings to each of you.

mklap3@...

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> kidney. 's neph. told him the new kidney will have a life span

> of around 15 years. My sister-in-law who works in a kidney transplant

> hospital was told 7. My guess is that they don't really know. I'll

> choose the most optimistic route if I can :-)

>

Regarding life span of a transplanted kidney, it is as unpredictible

as IGAN, so we have to learn how to live with " uncertainty " , now and

later. I asked my neph about this point, and he said to me that 50 %

of the transplanted kidneys last 10 years, and that 85 % last longer

than 5 years. But these are statistics which include all patients

including lots of diabetes patients and these drops statistics. Also

it is important that also older people are considered here. In Spain

(at least in my hospital) people with more than 65 years old are also

transplanted, and these also counts for statistics. The factor of

" good or bad luck " is crucial here. Some people are lucky and have

kidney which last 20-25 years, and others are not so lucky. Some

people after being transplanted have a normal renal function and some

not. Those who have a normal renal function after transplantation,

their transplant will last longer. As an example I have one friend who

was transplanted 5 years ago (he is now 37), and his kidney is still

working perfectly, and he was told that his transplant will last more

than 15 years. Other colleague who was transplanted a few months ago

has now 50 % of renal function, so it is to expect that his kidney

will last less.

It is also important to take into account that these are statistics

for the past, new immunosuppressant drugs are now on trials and these

may increase the life span for transplanted organs.

Also when one transplanted kidney fail it is possible to have a second

transplantation, although in this case it is more difficult to find a

good match, because of the antibodies build up during the first

transplantation.

Hope this helps,

Rita

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,

I don't understand why they're telling you so low longevity numbers. It is

impossible to forecast but I've heard of many lasting 25 years or more. Those

mainly used older immunosuppressants, newer ones being better. I would take what

they're saying with a grain of salt and be optimistic as you have said.

Marty

Update from the Klaps

Still hanging in there. Sorry to meet all the new people :-) That is

to say, sorry for the purpose that brought you here, but welcome.

It's a great source of support. I intend to take advantage more over

the next year.

My husband, , was having a rapid decrease in kidney function so

they put him on Prednisone. He had some good improvement, and they

lowered the dosage. His serum creatinine went back up. So they

increased the dosage again and so far it's stayed up, but it hasn't

increased any further.

Currently his serum creatinine is 4.7 and BUN is 70. The BUN did get

to around 100 earlier, so it's looking better.

Anyway, the family members who are testing to see if they qualify as

donors have gotten their bloodwork in. has an EKG and

ultrasound in early August to see if he's a viable candidate for

transplant.

He's looking puffy from the Pred. and having some swelling in his

ankles, but overall he's feeling pretty good, still working and

having pretty good energy. Can't do much better than that.

There has been a lot of discussion about the life span of the donated

kidney. 's neph. told him the new kidney will have a life span

of around 15 years. My sister-in-law who works in a kidney transplant

hospital was told 7. My guess is that they don't really know. I'll

choose the most optimistic route if I can :-)

I haven't had much time to read all the postings, but I do scan

through them. Blessings to each of you.

mklap3@...

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