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Re: Update - Glenda

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has Osteogenesis Imperfecta type 3, the second to worst type (the worst

is type 2....up until a couple of years ago, type 2 babies were so brittle that

they didn't survive the birth). Most people with OI type 3 have severe scoliosis

and hundreds of broken bones, and end being about 3 feet tall and use a

wheelchair. A new treatment is changing that for new babies, but virtually all

existing sufferers are like this.

had an accident with his wheelchair where it tipped over and he broke a

lot of bones, including his spine.

Hi mother posts updates about once a month, and we must be due for one now. I'll

keep you posted.

Love Glenda

millgate@...

Update - Glenda

Glenda, please tell and his parents that I will keep him in my

thoughts and prayers. How did he break his neck, anyway?

Love Lana

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Hi Glenda,

Thanks for the update on . Please reassure him and his family

that we are continuing praying for his recovery.

Love and Hugs to them all, and to you and Danny.

Lilian

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