Re: Things are looking up!!

[Guest guest]

Just happened to be on the computer when your email arrived. I'm doing a 24

hour collection today, so, just hanging around. Feels like Sunday, since

it's a holiday here.

Great news. What was your creatinine before all this?

Pierre

P.S. Vermont is a beautiful state. Ottawa is 2 hours west of Montreal, and

Montreal isn't too far from Vermont. I was there a couple of times. I was a

fan of the Newhart show in the 80's and I just had to see what it really

looked like : )

Things are looking up!!

> I just came from my neph's office and after 3 months of high dose

> prednisone & cytoxan then 4 months of prednisone and imuran. My

> protien is finnaly below 1gm(.835)!!!, My creatinine has leveled off

> at 2.0, My hematocrit is finnally above 30 (31-I got severely anemic

> on the cytoxan). I still have plenty of blood in my urine but

> don't " we " all!

>

> The plan is to wean the prednisone immediately and if my numbers

> look good in three months I will come off the Imuran because my neph

> does not belive in staying on it unless it is absolutly necessary.

>

> I was so excited I had to stop by my husband office and give him the

> good news. It's a beautiful day in Vermont!!!

> MLBNVT

>

>

>

>

>

[Guest guest]

My creatinine was 2.2 before I started this course of treatment, but

it was rising at a rate of .1/month, It is very encouraging to just

see it stabilize and buy me some time.........MLBNVT

> Just happened to be on the computer when your email arrived. I'm

doing a 24

> hour collection today, so, just hanging around. Feels like Sunday,

since

> it's a holiday here.

>

> Great news. What was your creatinine before all this?

>

> Pierre

> P.S. Vermont is a beautiful state. Ottawa is 2 hours west of

Montreal, and

> Montreal isn't too far from Vermont. I was there a couple of times.

I was a

> fan of the Newhart show in the 80's and I just had to see what it

really

> looked like : )

>

>

> Things are looking up!!

>

>

> > I just came from my neph's office and after 3 months of high dose

> > prednisone & cytoxan then 4 months of prednisone and imuran. My

> > protien is finnaly below 1gm(.835)!!!, My creatinine has leveled

off

> > at 2.0, My hematocrit is finnally above 30 (31-I got severely

anemic

> > on the cytoxan). I still have plenty of blood in my urine but

> > don't " we " all!

> >

> > The plan is to wean the prednisone immediately and if my

numbers

> > look good in three months I will come off the Imuran because my

neph

> > does not belive in staying on it unless it is absolutly necessary.

> >

> > I was so excited I had to stop by my husband office and give him

the

> > good news. It's a beautiful day in Vermont!!!

> > MLBNVT

> >

> >

> >

> >

> >

[Guest guest]

Not that much of a change, but certainly, it's good to have it stable like

that. I hope it stays that way for you.

Pierre

Re: Things are looking up!!

> My creatinine was 2.2 before I started this course of treatment, but

> it was rising at a rate of .1/month, It is very encouraging to just

> see it stabilize and buy me some time.........MLBNVT

>

[Guest guest]

CONGRATS,

Doesn't it just feel so good?? Enjoy the sun and summer in New

England. i miss it a lot!!

Ingrid

> I just came from my neph's office and after 3 months of high dose

> prednisone & cytoxan then 4 months of prednisone and imuran. My

> protien is finnaly below 1gm(.835)!!!, My creatinine has leveled

off

> at 2.0, My hematocrit is finnally above 30 (31-I got severely

anemic

> on the cytoxan). I still have plenty of blood in my urine but

> don't " we " all!

>

> The plan is to wean the prednisone immediately and if my numbers

> look good in three months I will come off the Imuran because my

neph

> does not belive in staying on it unless it is absolutly necessary.

>

> I was so excited I had to stop by my husband office and give him

the

> good news. It's a beautiful day in Vermont!!!

> MLBNVT