Re: dealing with Cryoglobulinemia/Parma

[Guest guest]

--- parma wrote:

> I have rheumatoid arthritis, Cryoglobulinemia, and

fibromyalgia.

>The pain is always with me. i am on norco and now

they are trying lyrica. Both seem to help but if my

body temp drops there is nothing that can be done. I

cannnot stand the thought of living with this forever

but i know i will.

Hi Parma

I had never heard of Cryoglobulinemia before, and I'm

very sorry that you have it. I know you know all about

it but here is a link from the Cleveland Clinic, for

the other members:

http://tinyurl.com/2myeyr

I did see a site that sells all kinds of down filled

clothing, that is supposed to keep you warm at all

times. Have you tried anything like that?

If it's possible to live in a warm climate year

around, naturally that would help too.

Can you possibly see a counselor, to help you cope

with living? It really helps to have someone to talk

to about pain, and all it's frustrations.

Once again, I am sorry this has happened to you. I'm

glad that the Norco, and Lyrica help. What dose of

Lyrica are you taking?

Kaylene

Moderator

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