Re: Re: Bruce Lublin dies

[Guest guest]

Hi Rita.

I agree with your nephrologist. As I've posted before, many IgAN patients

who reach dialysis are relatively young (middle-aged) and overall,

relatively healthy compared to many others. That makes it much easier to be

on dialysis.

Everywhere you will read that IgAN can recur in a transplanted kidney. First

of all, IgAN is not the only kidney disease where this happens. As with

anything else, there are transplants that fail early, but, it's extremely

rare for it to be due to recurring IgAN. Most often, even though a little

bit of IgAN recurs in it, the transplanted kidney lasts about as long as it

would with or without IgAN. Just the anti-rejection drugs alone that have to

be used are far more injurious to the kidney than IgAN is.

If and when I get to that point, believe me, recurring IgAN will be the

least of my worries.

Pierre

Re: Bruce Lublin dies

I am very impressed by Bruce Lublin´s story and his 30 years on

dialysis, mainly taking into account that the dialysis 30 years were

by far much less effective than nowadays.

One point of discussion here has been is the IgA can recur in the

transplanted kidney and cause its loss. Well I discuss this with my

nephrologist and said to me that patients who get a transplant

because of IGA usually do better than any other and that the

transplant is usually more successful. Also he mentions that one of

his patients who reached end stage renal failure because of IGa have

had a transplanted kidney for 30 years and it is still working

properly (he was quite young when he was transplanted)and he insisted

that these are all numbers referred to the past when

inmmunosuppressants drugs were not so goo, so it is to expect better

numbers for future. He also said that IGANERS are like " jewels "

or " peras en dulce " (very common spanish expresion which translation

will be something like " pears in syrup " ) between all the dialysis

patients (I found funny these expresions).

So have a nice day " pears in syrup " .

Rita

[Guest guest]

" peras in dulce "

I'll have to remember that. That's a beautiful expression. It's sounds even

better than what it would be in French - " des poires dans la sauce " : )

Thanks, Rita.

Pierre

Re: Bruce Lublin dies

I am very impressed by Bruce Lublin´s story and his 30 years on

dialysis, mainly taking into account that the dialysis 30 years were

by far much less effective than nowadays.

One point of discussion here has been is the IgA can recur in the

transplanted kidney and cause its loss. Well I discuss this with my

nephrologist and said to me that patients who get a transplant

because of IGA usually do better than any other and that the

transplant is usually more successful. Also he mentions that one of

his patients who reached end stage renal failure because of IGa have

had a transplanted kidney for 30 years and it is still working

properly (he was quite young when he was transplanted)and he insisted

that these are all numbers referred to the past when

inmmunosuppressants drugs were not so goo, so it is to expect better

numbers for future. He also said that IGANERS are like " jewels "

or " peras en dulce " (very common spanish expresion which translation

will be something like " pears in syrup " ) between all the dialysis

patients (I found funny these expresions).

So have a nice day " pears in syrup " .

Rita

> Bruce Lublin may have been one of the longest surviving patients on

> dialysis - over 30 years. Bruce died yesterday at his home in

Merton,

> Wisconsin. This is very sad news indeed, as I've always found

Bruce's story

> to be a most inspirational one.

>

> If you would like to read more, I've posted a link to the local

newspaper

> article on the News page of www.igan.ca , for your convenience.

>

> I don't know what kidney disease put Bruce Lublin on dialysis, and

he was

> not a member of this group, but he was an inspiration to many.

>

> Pierre