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Hello Pierre,

I know you've been telling us about how its all imminent but it does come as

a shock to hear your news...........I wish you well.

Good luck.

Sally.

My results

Anyone interested in the results of my visit to the nephrology clinic today?

Here goes:

First of all, I forgot to pick up my copy of the lab results at the desk

before I left, so, for some values, I don't have the exact numbers.

Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all Ok.

However, my serum creatinine is way up, somewhere above 460. Since my

nephrologist has always said I would need dialysis when it reached 500 (size

matters with serum creatinine, and I'm not very big), and based on my

symptoms, she says I'm ready to start now. My fistula is looking good and

they should be able to use it. In fact, it seems to be developing in two

separate directions, maybe three, just as I thought. She will order vein

mapping to get a better idea.

She was ready to start me on hemodialysis right now, like, as soon as

possible, but then she noticed that she has two conflicting lab results, one

of which may have been dated wrong. So, just to be sure, she had me go to

the lab right there to do blood work. If it comes out 450 or more, I'm on

dialysis. If it comes out under that, I may be able to wait another month,

but probably not more than that. So, just waiting. If nobody calls, I guess

I'm Ok for a little while yet. She does seem to believe in starting dialysis

early as opposed to waiting until the last possible moment, and I can't say

I disagree with that. This is textbook of how it should be done: my

phosphorus and other levels, as well as my overall nutrition have been well

managed, the access (fistula) had been prepared well in advance, the

treatment options education done and we're ready to roll anytime.

In the meantime, I have a follow-up appointment a month from now, with a lab

requisition for blood work a week before going, and, if I start vomitting my

food between now and then, I'm to forget about trying to contact my

nephrologist and go directly to the hospital where my dialysis centre will

be (about a 15 minute drive if there's no traffic).

So there you go. Funny how it just happens like that. You have kidney

disease for 25 years, with nothing too eventful other than a few

hypertensive emergencies now and again, you go to dozens, maybe a hundred or

more nephrology appointments over the years, and finally, you reach the

appointment when they tell you it's time, or almost anyway. I expected it

though, as I could tell myself I have been significantly sicker and tired

the past 2 or 3 months.

Of course, with the way my serum creatinine has been going up and down for

the past year, it still could come out under 400 today. I just don't know

yet.

Pierre

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Thanks Sally. Well, it had to come to this eventually. At least it's not

emergency dialysis. My neph said I actually looked pretty good for someone

who is at esrd.

Pierre

My results

>

>

> Anyone interested in the results of my visit to the nephrology clinic

today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all Ok.

> However, my serum creatinine is way up, somewhere above 460. Since my

> nephrologist has always said I would need dialysis when it reached 500

(size

> matters with serum creatinine, and I'm not very big), and based on my

> symptoms, she says I'm ready to start now. My fistula is looking good and

> they should be able to use it. In fact, it seems to be developing in two

> separate directions, maybe three, just as I thought. She will order vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon as

> possible, but then she noticed that she has two conflicting lab results,

one

> of which may have been dated wrong. So, just to be sure, she had me go to

> the lab right there to do blood work. If it comes out 450 or more, I'm on

> dialysis. If it comes out under that, I may be able to wait another month,

> but probably not more than that. So, just waiting. If nobody calls, I

guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I can't

say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have been

well

> managed, the access (fistula) had been prepared well in advance, the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now, with a

lab

> requisition for blood work a week before going, and, if I start vomitting

my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a hundred

or

> more nephrology appointments over the years, and finally, you reach the

> appointment when they tell you it's time, or almost anyway. I expected it

> though, as I could tell myself I have been significantly sicker and tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and down for

> the past year, it still could come out under 400 today. I just don't know

> yet.

>

> Pierre

>

>

>

>

>

>

>

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Pierre,

I know today was a difficult day for you although your message seemed

upbeat. Hang in there and please know that we are all here for you.

I have class tonight so I will chat with you tomorrow.

> Anyone interested in the results of my visit to the nephrology

clinic today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the

desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all

Ok.

> However, my serum creatinine is way up, somewhere above 460. Since

my

> nephrologist has always said I would need dialysis when it reached

500 (size

> matters with serum creatinine, and I'm not very big), and based on

my

> symptoms, she says I'm ready to start now. My fistula is looking

good and

> they should be able to use it. In fact, it seems to be developing

in two

> separate directions, maybe three, just as I thought. She will order

vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon

as

> possible, but then she noticed that she has two conflicting lab

results, one

> of which may have been dated wrong. So, just to be sure, she had me

go to

> the lab right there to do blood work. If it comes out 450 or more,

I'm on

> dialysis. If it comes out under that, I may be able to wait another

month,

> but probably not more than that. So, just waiting. If nobody calls,

I guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I

can't say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have

been well

> managed, the access (fistula) had been prepared well in advance, the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now,

with a lab

> requisition for blood work a week before going, and, if I start

vomitting my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis

centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have

kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a

hundred or

> more nephrology appointments over the years, and finally, you reach

the

> appointment when they tell you it's time, or almost anyway. I

expected it

> though, as I could tell myself I have been significantly sicker and

tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and

down for

> the past year, it still could come out under 400 today. I just

don't know

> yet.

>

> Pierre

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I totally second this. You know where I am Pierre.

Love

Re: My results

Pierre,

I know today was a difficult day for you although your message seemed

upbeat. Hang in there and please know that we are all here for you.

I have class tonight so I will chat with you tomorrow.

> Anyone interested in the results of my visit to the nephrology

clinic today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the

desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all

Ok.

> However, my serum creatinine is way up, somewhere above 460. Since

my

> nephrologist has always said I would need dialysis when it reached

500 (size

> matters with serum creatinine, and I'm not very big), and based on

my

> symptoms, she says I'm ready to start now. My fistula is looking

good and

> they should be able to use it. In fact, it seems to be developing

in two

> separate directions, maybe three, just as I thought. She will order

vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon

as

> possible, but then she noticed that she has two conflicting lab

results, one

> of which may have been dated wrong. So, just to be sure, she had me

go to

> the lab right there to do blood work. If it comes out 450 or more,

I'm on

> dialysis. If it comes out under that, I may be able to wait another

month,

> but probably not more than that. So, just waiting. If nobody calls,

I guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I

can't say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have

been well

> managed, the access (fistula) had been prepared well in advance, the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now,

with a lab

> requisition for blood work a week before going, and, if I start

vomitting my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis

centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have

kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a

hundred or

> more nephrology appointments over the years, and finally, you reach

the

> appointment when they tell you it's time, or almost anyway. I

expected it

> though, as I could tell myself I have been significantly sicker and

tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and

down for

> the past year, it still could come out under 400 today. I just

don't know

> yet.

>

> Pierre

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Pierre,

I'm very sorry to hear this. Hopefully it will go back down. I reached dialysis

21 years (to the month) from when I was initially (not biopsied) diagnosed. Even

though I had all those years to prepare for the eventuality, it was not easy

when the day finally came.

All the best,

Marty

Re: My results

Pierre,

I know today was a difficult day for you although your message seemed

upbeat. Hang in there and please know that we are all here for you.

I have class tonight so I will chat with you tomorrow.

> Anyone interested in the results of my visit to the nephrology

clinic today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the

desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all

Ok.

> However, my serum creatinine is way up, somewhere above 460. Since

my

> nephrologist has always said I would need dialysis when it reached

500 (size

> matters with serum creatinine, and I'm not very big), and based on

my

> symptoms, she says I'm ready to start now. My fistula is looking

good and

> they should be able to use it. In fact, it seems to be developing

in two

> separate directions, maybe three, just as I thought. She will order

vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon

as

> possible, but then she noticed that she has two conflicting lab

results, one

> of which may have been dated wrong. So, just to be sure, she had me

go to

> the lab right there to do blood work. If it comes out 450 or more,

I'm on

> dialysis. If it comes out under that, I may be able to wait another

month,

> but probably not more than that. So, just waiting. If nobody calls,

I guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I

can't say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have

been well

> managed, the access (fistula) had been prepared well in advance, the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now,

with a lab

> requisition for blood work a week before going, and, if I start

vomitting my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis

centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have

kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a

hundred or

> more nephrology appointments over the years, and finally, you reach

the

> appointment when they tell you it's time, or almost anyway. I

expected it

> though, as I could tell myself I have been significantly sicker and

tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and

down for

> the past year, it still could come out under 400 today. I just

don't know

> yet.

>

> Pierre

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Here comes Pierre, boldly striding into the future lighting the way for us

mere mortals as per usual. I am glad that your transitition has been well

planned in advance and relatively stressfree. I imagine you feel a bit like

I do when sitting in the dentist's waiting room knowing I have to get a

filling (in that I know it's going to be better after but God help me for

the next hour). It sounds like your renal team is taking good care of you,

and that you are in the best of hands. You don't need my good wishes but

you have them anyway!

Reply-To: iga-nephropathy

To: <iga-nephropathy >

Subject: My results

Date: Wed, 21 Aug 2002 16:36:32 -0400

Anyone interested in the results of my visit to the nephrology clinic today?

Here goes:

First of all, I forgot to pick up my copy of the lab results at the desk

before I left, so, for some values, I don't have the exact numbers.

Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all Ok.

However, my serum creatinine is way up, somewhere above 460. Since my

nephrologist has always said I would need dialysis when it reached 500 (size

matters with serum creatinine, and I'm not very big), and based on my

symptoms, she says I'm ready to start now. My fistula is looking good and

they should be able to use it. In fact, it seems to be developing in two

separate directions, maybe three, just as I thought. She will order vein

mapping to get a better idea.

She was ready to start me on hemodialysis right now, like, as soon as

possible, but then she noticed that she has two conflicting lab results, one

of which may have been dated wrong. So, just to be sure, she had me go to

the lab right there to do blood work. If it comes out 450 or more, I'm on

dialysis. If it comes out under that, I may be able to wait another month,

but probably not more than that. So, just waiting. If nobody calls, I guess

I'm Ok for a little while yet. She does seem to believe in starting dialysis

early as opposed to waiting until the last possible moment, and I can't say

I disagree with that. This is textbook of how it should be done: my

phosphorus and other levels, as well as my overall nutrition have been well

managed, the access (fistula) had been prepared well in advance, the

treatment options education done and we're ready to roll anytime.

In the meantime, I have a follow-up appointment a month from now, with a lab

requisition for blood work a week before going, and, if I start vomitting my

food between now and then, I'm to forget about trying to contact my

nephrologist and go directly to the hospital where my dialysis centre will

be (about a 15 minute drive if there's no traffic).

So there you go. Funny how it just happens like that. You have kidney

disease for 25 years, with nothing too eventful other than a few

hypertensive emergencies now and again, you go to dozens, maybe a hundred or

more nephrology appointments over the years, and finally, you reach the

appointment when they tell you it's time, or almost anyway. I expected it

though, as I could tell myself I have been significantly sicker and tired

the past 2 or 3 months.

Of course, with the way my serum creatinine has been going up and down for

the past year, it still could come out under 400 today. I just don't know

yet.

Pierre

_________________________________________________________________

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Pierre,

Best of luck to you, You have been an inspiration to us all. When one

suffers we all suffer. I am behind you all the way. My prayers go out

daily for you.

Good Luck,

Shanna

> Here comes Pierre, boldly striding into the future lighting the way

for us

> mere mortals as per usual. I am glad that your transitition has

been well

> planned in advance and relatively stressfree. I imagine you feel a

bit like

> I do when sitting in the dentist's waiting room knowing I have to

get a

> filling (in that I know it's going to be better after but God help

me for

> the next hour). It sounds like your renal team is taking good care

of you,

> and that you are in the best of hands. You don't need my good

wishes but

> you have them anyway!

>

>

>

> From: " Pierre " <placha073@r...>

> Reply-To: iga-nephropathy@y...

> To: <iga-nephropathy@y...>

> Subject: My results

> Date: Wed, 21 Aug 2002 16:36:32 -0400

>

> Anyone interested in the results of my visit to the nephrology

clinic today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the

desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all

Ok.

> However, my serum creatinine is way up, somewhere above 460. Since

my

> nephrologist has always said I would need dialysis when it reached

500 (size

> matters with serum creatinine, and I'm not very big), and based on

my

> symptoms, she says I'm ready to start now. My fistula is looking

good and

> they should be able to use it. In fact, it seems to be developing

in two

> separate directions, maybe three, just as I thought. She will order

vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon

as

> possible, but then she noticed that she has two conflicting lab

results, one

> of which may have been dated wrong. So, just to be sure, she had me

go to

> the lab right there to do blood work. If it comes out 450 or more,

I'm on

> dialysis. If it comes out under that, I may be able to wait another

month,

> but probably not more than that. So, just waiting. If nobody calls,

I guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I

can't say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have

been well

> managed, the access (fistula) had been prepared well in advance,

the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now,

with a lab

> requisition for blood work a week before going, and, if I start

vomitting my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis

centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have

kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a

hundred or

> more nephrology appointments over the years, and finally, you reach

the

> appointment when they tell you it's time, or almost anyway. I

expected it

> though, as I could tell myself I have been significantly sicker and

tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and

down for

> the past year, it still could come out under 400 today. I just

don't know

> yet.

>

> Pierre

>

> _________________________________________________________________

> Send and receive Hotmail on your mobile device:

http://mobile.msn.com

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Thanks , and Marty too.

Striding boldly into the future sounds like something out of the original

Star Trek : )

The transition has been well planned, but, on the other hand, even though

you know it's coming, it still comes as a bit of a surprise. You always sort

of think or hope it may still be some time away. I wish I could remember

that lady's name whose fistula blew up the first time they tried to use it,

right after many of us on the group had tried to reassure her about starting

dialysis. I wonder what ever happened to her.

Pierre

My results

> Date: Wed, 21 Aug 2002 16:36:32 -0400

>

> Anyone interested in the results of my visit to the nephrology clinic

today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all Ok.

> However, my serum creatinine is way up, somewhere above 460. Since my

> nephrologist has always said I would need dialysis when it reached 500

(size

> matters with serum creatinine, and I'm not very big), and based on my

> symptoms, she says I'm ready to start now. My fistula is looking good and

> they should be able to use it. In fact, it seems to be developing in two

> separate directions, maybe three, just as I thought. She will order vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon as

> possible, but then she noticed that she has two conflicting lab results,

one

> of which may have been dated wrong. So, just to be sure, she had me go to

> the lab right there to do blood work. If it comes out 450 or more, I'm on

> dialysis. If it comes out under that, I may be able to wait another month,

> but probably not more than that. So, just waiting. If nobody calls, I

guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I can't

say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have been

well

> managed, the access (fistula) had been prepared well in advance, the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now, with a

lab

> requisition for blood work a week before going, and, if I start vomitting

my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a hundred

or

> more nephrology appointments over the years, and finally, you reach the

> appointment when they tell you it's time, or almost anyway. I expected it

> though, as I could tell myself I have been significantly sicker and tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and down for

> the past year, it still could come out under 400 today. I just don't know

> yet.

>

> Pierre

>

> _________________________________________________________________

> Send and receive Hotmail on your mobile device: http://mobile.msn.com

>

>

>

>

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Pierre,

I have only written a couple of emails to you/the group. However, I have

read every single email, from you explaining our illness to those who have

found the group - who are at first scared and need answers. I then wait for

you to reply like you did with me.

I know that everybody who is in the group wishes you all the best with your

recovery.

I will now name you as " Uncle " Pierre!

So, chin up old chap and please hurry up n' get well soon, or I will have to

answer those emails which require your special touch!

Regards

Ian - Richmond, Surrey

My results

>

>

> Anyone interested in the results of my visit to the nephrology clinic

today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all Ok.

> However, my serum creatinine is way up, somewhere above 460. Since my

> nephrologist has always said I would need dialysis when it reached 500

(size

> matters with serum creatinine, and I'm not very big), and based on my

> symptoms, she says I'm ready to start now. My fistula is looking good and

> they should be able to use it. In fact, it seems to be developing in two

> separate directions, maybe three, just as I thought. She will order vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon as

> possible, but then she noticed that she has two conflicting lab results,

one

> of which may have been dated wrong. So, just to be sure, she had me go to

> the lab right there to do blood work. If it comes out 450 or more, I'm on

> dialysis. If it comes out under that, I may be able to wait another month,

> but probably not more than that. So, just waiting. If nobody calls, I

guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I can't

say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have been

well

> managed, the access (fistula) had been prepared well in advance, the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now, with a

lab

> requisition for blood work a week before going, and, if I start vomitting

my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a hundred

or

> more nephrology appointments over the years, and finally, you reach the

> appointment when they tell you it's time, or almost anyway. I expected it

> though, as I could tell myself I have been significantly sicker and tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and down for

> the past year, it still could come out under 400 today. I just don't know

> yet.

>

> Pierre

>

>

>

>

>

>

>

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PS Pierre, When I feel down,I like to treat myself something special.

Buying J E W E L R Y usually makes me feel better. (Expensive trash with

flash makes me feel the best!) So go out and treat yourself today to your

special " trash with flash " item, you deserve it! :)

Connie, USA

My results

Anyone interested in the results of my visit to the nephrology clinic today?

Here goes:

First of all, I forgot to pick up my copy of the lab results at the desk

before I left, so, for some values, I don't have the exact numbers.

Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all Ok.

However, my serum creatinine is way up, somewhere above 460. Since my

nephrologist has always said I would need dialysis when it reached 500 (size

matters with serum creatinine, and I'm not very big), and based on my

symptoms, she says I'm ready to start now. My fistula is looking good and

they should be able to use it. In fact, it seems to be developing in two

separate directions, maybe three, just as I thought. She will order vein

mapping to get a better idea.

She was ready to start me on hemodialysis right now, like, as soon as

possible, but then she noticed that she has two conflicting lab results, one

of which may have been dated wrong. So, just to be sure, she had me go to

the lab right there to do blood work. If it comes out 450 or more, I'm on

dialysis. If it comes out under that, I may be able to wait another month,

but probably not more than that. So, just waiting. If nobody calls, I guess

I'm Ok for a little while yet. She does seem to believe in starting dialysis

early as opposed to waiting until the last possible moment, and I can't say

I disagree with that. This is textbook of how it should be done: my

phosphorus and other levels, as well as my overall nutrition have been well

managed, the access (fistula) had been prepared well in advance, the

treatment options education done and we're ready to roll anytime.

In the meantime, I have a follow-up appointment a month from now, with a lab

requisition for blood work a week before going, and, if I start vomitting my

food between now and then, I'm to forget about trying to contact my

nephrologist and go directly to the hospital where my dialysis centre will

be (about a 15 minute drive if there's no traffic).

So there you go. Funny how it just happens like that. You have kidney

disease for 25 years, with nothing too eventful other than a few

hypertensive emergencies now and again, you go to dozens, maybe a hundred or

more nephrology appointments over the years, and finally, you reach the

appointment when they tell you it's time, or almost anyway. I expected it

though, as I could tell myself I have been significantly sicker and tired

the past 2 or 3 months.

Of course, with the way my serum creatinine has been going up and down for

the past year, it still could come out under 400 today. I just don't know

yet.

Pierre

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Another way to look at this (since everyone has already given you the

crossed fingers):

You'll know that many more answers to all the questions that all of

us have and will be even more indispensible!!

Ingrid

> PS Pierre, When I feel down,I like to treat myself something

special.

> Buying J E W E L R Y usually makes me feel better. (Expensive trash

with

> flash makes me feel the best!) So go out and treat yourself today

to your

> special " trash with flash " item, you deserve it! :)

> Connie, USA

>

> My results

>

>

> Anyone interested in the results of my visit to the nephrology

clinic today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the

desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all

Ok.

> However, my serum creatinine is way up, somewhere above 460. Since

my

> nephrologist has always said I would need dialysis when it reached

500 (size

> matters with serum creatinine, and I'm not very big), and based on

my

> symptoms, she says I'm ready to start now. My fistula is looking

good and

> they should be able to use it. In fact, it seems to be developing

in two

> separate directions, maybe three, just as I thought. She will order

vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon

as

> possible, but then she noticed that she has two conflicting lab

results, one

> of which may have been dated wrong. So, just to be sure, she had me

go to

> the lab right there to do blood work. If it comes out 450 or more,

I'm on

> dialysis. If it comes out under that, I may be able to wait another

month,

> but probably not more than that. So, just waiting. If nobody calls,

I guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I

can't say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have

been well

> managed, the access (fistula) had been prepared well in advance, the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now,

with a lab

> requisition for blood work a week before going, and, if I start

vomitting my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis

centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have

kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a

hundred or

> more nephrology appointments over the years, and finally, you reach

the

> appointment when they tell you it's time, or almost anyway. I

expected it

> though, as I could tell myself I have been significantly sicker and

tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and

down for

> the past year, it still could come out under 400 today. I just

don't know

> yet.

>

> Pierre

>

>

>

>

>

>

>

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You know Ingrid,

Not that I feel indispensable or anything, but, I really am the kind of

person who likes to learn new things, and while I'm not looking forward to

it (who would!), I am interested in learning all about dialysis.

A very interesting and inspiring internet friend of mine in France has been

doing his physically-challenged daughter's hemodialysis at home for many

years, entirely on his own. He knows as much about it as any nurse or

technician or nephrologist, and gets very good results because of his really

hands-on, one-patient approach. He has written to me about some of the

technical aspects and challenges at times, and it's very interesting. He

even fixes the hemodialysis machine himself when it breaks down, which seems

to happen regularly.

We have a pilot home nightly hemodialysis program here which is getting

great results. I wouldn't mind getting in on that eventually, if only

because they give patients extensive training before they start, such that

you pretty much become your own dialysis tech. On the other hand though, I

like talking to people and seeing things going on, so, I might find it a

little boring just doing it at home.

Pierre

My results

> >

> >

> > Anyone interested in the results of my visit to the nephrology

> clinic today?

> >

> > Here goes:

> >

> > First of all, I forgot to pick up my copy of the lab results at the

> desk

> > before I left, so, for some values, I don't have the exact numbers.

> >

> > Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all

> Ok.

> > However, my serum creatinine is way up, somewhere above 460. Since

> my

> > nephrologist has always said I would need dialysis when it reached

> 500 (size

> > matters with serum creatinine, and I'm not very big), and based on

> my

> > symptoms, she says I'm ready to start now. My fistula is looking

> good and

> > they should be able to use it. In fact, it seems to be developing

> in two

> > separate directions, maybe three, just as I thought. She will order

> vein

> > mapping to get a better idea.

> >

> > She was ready to start me on hemodialysis right now, like, as soon

> as

> > possible, but then she noticed that she has two conflicting lab

> results, one

> > of which may have been dated wrong. So, just to be sure, she had me

> go to

> > the lab right there to do blood work. If it comes out 450 or more,

> I'm on

> > dialysis. If it comes out under that, I may be able to wait another

> month,

> > but probably not more than that. So, just waiting. If nobody calls,

> I guess

> > I'm Ok for a little while yet. She does seem to believe in starting

> dialysis

> > early as opposed to waiting until the last possible moment, and I

> can't say

> > I disagree with that. This is textbook of how it should be done: my

> > phosphorus and other levels, as well as my overall nutrition have

> been well

> > managed, the access (fistula) had been prepared well in advance, the

> > treatment options education done and we're ready to roll anytime.

> >

> > In the meantime, I have a follow-up appointment a month from now,

> with a lab

> > requisition for blood work a week before going, and, if I start

> vomitting my

> > food between now and then, I'm to forget about trying to contact my

> > nephrologist and go directly to the hospital where my dialysis

> centre will

> > be (about a 15 minute drive if there's no traffic).

> >

> > So there you go. Funny how it just happens like that. You have

> kidney

> > disease for 25 years, with nothing too eventful other than a few

> > hypertensive emergencies now and again, you go to dozens, maybe a

> hundred or

> > more nephrology appointments over the years, and finally, you reach

> the

> > appointment when they tell you it's time, or almost anyway. I

> expected it

> > though, as I could tell myself I have been significantly sicker and

> tired

> > the past 2 or 3 months.

> >

> > Of course, with the way my serum creatinine has been going up and

> down for

> > the past year, it still could come out under 400 today. I just

> don't know

> > yet.

> >

> > Pierre

> >

> >

> >

> >

> >

> >

> >

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Great suggestion Connie! Already beat you to it though. I had a little

advanced knowledge about my serum creatinine being over 450 a little over a

week ago. I didn't want to mention it on the group until I could see my

nephrologist and know all the facts. So, last week, I decided to buy a new

TV and DVD player as a treat. It took me all week to decide how I would hook

all this up with the cable box, VCR and stereo, out of the dozens of

possible combinations! While I was there, I also got a nice little shortwave

radio I had my eye on. My wife doesn't know about that one yet : )

I figured, what the heck! I can just see my home hemodialysis machine set up

in the living room next to the couch, so I can watch some late night movies

while I'm doing it : )

Pierre

RE: My results

> PS Pierre, When I feel down,I like to treat myself something special.

> Buying J E W E L R Y usually makes me feel better. (Expensive trash with

> flash makes me feel the best!) So go out and treat yourself today to your

> special " trash with flash " item, you deserve it! :)

> Connie, USA

>

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Share on other sites

Thanks Ian. I'm very touched by all the messages from everyone. I have only

one nephew, and even he doesn't call Uncle Pierre : )

Pierre

My results

> >

> >

> > Anyone interested in the results of my visit to the nephrology clinic

> today?

> >

> > Here goes:

> >

> > First of all, I forgot to pick up my copy of the lab results at the desk

> > before I left, so, for some values, I don't have the exact numbers.

> >

> > Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all Ok.

> > However, my serum creatinine is way up, somewhere above 460. Since my

> > nephrologist has always said I would need dialysis when it reached 500

> (size

> > matters with serum creatinine, and I'm not very big), and based on my

> > symptoms, she says I'm ready to start now. My fistula is looking good

and

> > they should be able to use it. In fact, it seems to be developing in two

> > separate directions, maybe three, just as I thought. She will order vein

> > mapping to get a better idea.

> >

> > She was ready to start me on hemodialysis right now, like, as soon as

> > possible, but then she noticed that she has two conflicting lab results,

> one

> > of which may have been dated wrong. So, just to be sure, she had me go

to

> > the lab right there to do blood work. If it comes out 450 or more, I'm

on

> > dialysis. If it comes out under that, I may be able to wait another

month,

> > but probably not more than that. So, just waiting. If nobody calls, I

> guess

> > I'm Ok for a little while yet. She does seem to believe in starting

> dialysis

> > early as opposed to waiting until the last possible moment, and I can't

> say

> > I disagree with that. This is textbook of how it should be done: my

> > phosphorus and other levels, as well as my overall nutrition have been

> well

> > managed, the access (fistula) had been prepared well in advance, the

> > treatment options education done and we're ready to roll anytime.

> >

> > In the meantime, I have a follow-up appointment a month from now, with a

> lab

> > requisition for blood work a week before going, and, if I start

vomitting

> my

> > food between now and then, I'm to forget about trying to contact my

> > nephrologist and go directly to the hospital where my dialysis centre

will

> > be (about a 15 minute drive if there's no traffic).

> >

> > So there you go. Funny how it just happens like that. You have kidney

> > disease for 25 years, with nothing too eventful other than a few

> > hypertensive emergencies now and again, you go to dozens, maybe a

hundred

> or

> > more nephrology appointments over the years, and finally, you reach the

> > appointment when they tell you it's time, or almost anyway. I expected

it

> > though, as I could tell myself I have been significantly sicker and

tired

> > the past 2 or 3 months.

> >

> > Of course, with the way my serum creatinine has been going up and down

for

> > the past year, it still could come out under 400 today. I just don't

know

> > yet.

> >

> > Pierre

> >

> >

> >

> >

> >

> >

> >

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Hi Connie.

One thing about approaching dialysis is that, by the time you need it, you

feel so sick most of the time that it's got to be an improvement. If I can

get off some of these blood pressure pills because of it, I'll be very

happy.

I can't thank you enough for your kind words.

Pierre

My results

>

>

> Anyone interested in the results of my visit to the nephrology clinic

today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all Ok.

> However, my serum creatinine is way up, somewhere above 460. Since my

> nephrologist has always said I would need dialysis when it reached 500

(size

> matters with serum creatinine, and I'm not very big), and based on my

> symptoms, she says I'm ready to start now. My fistula is looking good and

> they should be able to use it. In fact, it seems to be developing in two

> separate directions, maybe three, just as I thought. She will order vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon as

> possible, but then she noticed that she has two conflicting lab results,

one

> of which may have been dated wrong. So, just to be sure, she had me go to

> the lab right there to do blood work. If it comes out 450 or more, I'm on

> dialysis. If it comes out under that, I may be able to wait another month,

> but probably not more than that. So, just waiting. If nobody calls, I

guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I can't

say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have been

well

> managed, the access (fistula) had been prepared well in advance, the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now, with a

lab

> requisition for blood work a week before going, and, if I start vomitting

my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a hundred

or

> more nephrology appointments over the years, and finally, you reach the

> appointment when they tell you it's time, or almost anyway. I expected it

> though, as I could tell myself I have been significantly sicker and tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and down for

> the past year, it still could come out under 400 today. I just don't know

> yet.

>

> Pierre

>

>

>

>

>

>

>

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Hi Curtis.

Thanks for your good wishes and words of encouragement.

When I started this group, I initially intended to limit it to pre-esrd

patients. My thinking was that it might easier to keep things positive and

upbeat that way (I tend to be a big believer in being optimistic and

positive). Good thing I didn't, or else I would now have to find another

group for myself : )

Pierre

My results

>

>

> Anyone interested in the results of my visit to the nephrology clinic

today?

>

> Here goes:

>

> First of all, I forgot to pick up my copy of the lab results at the desk

> before I left, so, for some values, I don't have the exact numbers.

>

> Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all Ok.

> However, my serum creatinine is way up, somewhere above 460. Since my

> nephrologist has always said I would need dialysis when it reached 500

(size

> matters with serum creatinine, and I'm not very big), and based on my

> symptoms, she says I'm ready to start now. My fistula is looking good and

> they should be able to use it. In fact, it seems to be developing in two

> separate directions, maybe three, just as I thought. She will order vein

> mapping to get a better idea.

>

> She was ready to start me on hemodialysis right now, like, as soon as

> possible, but then she noticed that she has two conflicting lab results,

one

> of which may have been dated wrong. So, just to be sure, she had me go to

> the lab right there to do blood work. If it comes out 450 or more, I'm on

> dialysis. If it comes out under that, I may be able to wait another month,

> but probably not more than that. So, just waiting. If nobody calls, I

guess

> I'm Ok for a little while yet. She does seem to believe in starting

dialysis

> early as opposed to waiting until the last possible moment, and I can't

say

> I disagree with that. This is textbook of how it should be done: my

> phosphorus and other levels, as well as my overall nutrition have been

well

> managed, the access (fistula) had been prepared well in advance, the

> treatment options education done and we're ready to roll anytime.

>

> In the meantime, I have a follow-up appointment a month from now, with a

lab

> requisition for blood work a week before going, and, if I start vomitting

my

> food between now and then, I'm to forget about trying to contact my

> nephrologist and go directly to the hospital where my dialysis centre will

> be (about a 15 minute drive if there's no traffic).

>

> So there you go. Funny how it just happens like that. You have kidney

> disease for 25 years, with nothing too eventful other than a few

> hypertensive emergencies now and again, you go to dozens, maybe a hundred

or

> more nephrology appointments over the years, and finally, you reach the

> appointment when they tell you it's time, or almost anyway. I expected it

> though, as I could tell myself I have been significantly sicker and tired

> the past 2 or 3 months.

>

> Of course, with the way my serum creatinine has been going up and down for

> the past year, it still could come out under 400 today. I just don't know

> yet.

>

> Pierre

>

>

>

>

>

>

>

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Shanna,

Well I hope you don't suffer too much : )

All of you younger people in the group keep me feeling young too. I greatly

appreciate your kinds words and your prayers.

Pierre (I can live with the dialysis, but I wish I could be 25 again)

My results

> > Date: Wed, 21 Aug 2002 16:36:32 -0400

> >

> > Anyone interested in the results of my visit to the nephrology

> clinic today?

> >

> > Here goes:

> >

> > First of all, I forgot to pick up my copy of the lab results at the

> desk

> > before I left, so, for some values, I don't have the exact numbers.

> >

> > Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all

> Ok.

> > However, my serum creatinine is way up, somewhere above 460. Since

> my

> > nephrologist has always said I would need dialysis when it reached

> 500 (size

> > matters with serum creatinine, and I'm not very big), and based on

> my

> > symptoms, she says I'm ready to start now. My fistula is looking

> good and

> > they should be able to use it. In fact, it seems to be developing

> in two

> > separate directions, maybe three, just as I thought. She will order

> vein

> > mapping to get a better idea.

> >

> > She was ready to start me on hemodialysis right now, like, as soon

> as

> > possible, but then she noticed that she has two conflicting lab

> results, one

> > of which may have been dated wrong. So, just to be sure, she had me

> go to

> > the lab right there to do blood work. If it comes out 450 or more,

> I'm on

> > dialysis. If it comes out under that, I may be able to wait another

> month,

> > but probably not more than that. So, just waiting. If nobody calls,

> I guess

> > I'm Ok for a little while yet. She does seem to believe in starting

> dialysis

> > early as opposed to waiting until the last possible moment, and I

> can't say

> > I disagree with that. This is textbook of how it should be done: my

> > phosphorus and other levels, as well as my overall nutrition have

> been well

> > managed, the access (fistula) had been prepared well in advance,

> the

> > treatment options education done and we're ready to roll anytime.

> >

> > In the meantime, I have a follow-up appointment a month from now,

> with a lab

> > requisition for blood work a week before going, and, if I start

> vomitting my

> > food between now and then, I'm to forget about trying to contact my

> > nephrologist and go directly to the hospital where my dialysis

> centre will

> > be (about a 15 minute drive if there's no traffic).

> >

> > So there you go. Funny how it just happens like that. You have

> kidney

> > disease for 25 years, with nothing too eventful other than a few

> > hypertensive emergencies now and again, you go to dozens, maybe a

> hundred or

> > more nephrology appointments over the years, and finally, you reach

> the

> > appointment when they tell you it's time, or almost anyway. I

> expected it

> > though, as I could tell myself I have been significantly sicker and

> tired

> > the past 2 or 3 months.

> >

> > Of course, with the way my serum creatinine has been going up and

> down for

> > the past year, it still could come out under 400 today. I just

> don't know

> > yet.

> >

> > Pierre

> >

> > _________________________________________________________________

> > Send and receive Hotmail on your mobile device:

> http://mobile.msn.com

>

>

>

>

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Marty,

Well, it may still be a few days or weeks. Looks like there's a window of

about a month to play with. My nephrologist said I could wait a month if I

wanted to. I said, you tell me when to go, and I'll be there.

I was rather hoping you would remain one of the few members with actual

dialysis experience : )

Pierre

Re: My results

>

> Pierre,

>

> I know today was a difficult day for you although your message seemed

> upbeat. Hang in there and please know that we are all here for you.

> I have class tonight so I will chat with you tomorrow.

>

>

>

>

> > Anyone interested in the results of my visit to the nephrology

> clinic today?

> >

> > Here goes:

> >

> > First of all, I forgot to pick up my copy of the lab results at the

> desk

> > before I left, so, for some values, I don't have the exact numbers.

> >

> > Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all

> Ok.

> > However, my serum creatinine is way up, somewhere above 460. Since

> my

> > nephrologist has always said I would need dialysis when it reached

> 500 (size

> > matters with serum creatinine, and I'm not very big), and based on

> my

> > symptoms, she says I'm ready to start now. My fistula is looking

> good and

> > they should be able to use it. In fact, it seems to be developing

> in two

> > separate directions, maybe three, just as I thought. She will order

> vein

> > mapping to get a better idea.

> >

> > She was ready to start me on hemodialysis right now, like, as soon

> as

> > possible, but then she noticed that she has two conflicting lab

> results, one

> > of which may have been dated wrong. So, just to be sure, she had me

> go to

> > the lab right there to do blood work. If it comes out 450 or more,

> I'm on

> > dialysis. If it comes out under that, I may be able to wait another

> month,

> > but probably not more than that. So, just waiting. If nobody calls,

> I guess

> > I'm Ok for a little while yet. She does seem to believe in starting

> dialysis

> > early as opposed to waiting until the last possible moment, and I

> can't say

> > I disagree with that. This is textbook of how it should be done: my

> > phosphorus and other levels, as well as my overall nutrition have

> been well

> > managed, the access (fistula) had been prepared well in advance, the

> > treatment options education done and we're ready to roll anytime.

> >

> > In the meantime, I have a follow-up appointment a month from now,

> with a lab

> > requisition for blood work a week before going, and, if I start

> vomitting my

> > food between now and then, I'm to forget about trying to contact my

> > nephrologist and go directly to the hospital where my dialysis

> centre will

> > be (about a 15 minute drive if there's no traffic).

> >

> > So there you go. Funny how it just happens like that. You have

> kidney

> > disease for 25 years, with nothing too eventful other than a few

> > hypertensive emergencies now and again, you go to dozens, maybe a

> hundred or

> > more nephrology appointments over the years, and finally, you reach

> the

> > appointment when they tell you it's time, or almost anyway. I

> expected it

> > though, as I could tell myself I have been significantly sicker and

> tired

> > the past 2 or 3 months.

> >

> > Of course, with the way my serum creatinine has been going up and

> down for

> > the past year, it still could come out under 400 today. I just

> don't know

> > yet.

> >

> > Pierre

>

>

>

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Thanks . I remember some evening classes when I was in university. 7 to

10 PM. Pretty though some nights, I thought. Little did I know that a couple

of years or so later I would be on the bridge of a destroyer working the

midnight watch after a full 8 to 4 PM workday routine, not counting the star

sightings early in the morning for navigation : ) Come to think of it, the

IgAN started not too long after. You never stop trying to find a reason for

it, you know. I still do it after 25 years.

Pierre

Re: My results

> Pierre,

>

> I know today was a difficult day for you although your message seemed

> upbeat. Hang in there and please know that we are all here for you.

> I have class tonight so I will chat with you tomorrow.

>

>

>

>

> > Anyone interested in the results of my visit to the nephrology

> clinic today?

> >

> > Here goes:

> >

> > First of all, I forgot to pick up my copy of the lab results at the

> desk

> > before I left, so, for some values, I don't have the exact numbers.

> >

> > Hemoglobin (Hg), hematocrit (Hct), potassium and phosphorus are all

> Ok.

> > However, my serum creatinine is way up, somewhere above 460. Since

> my

> > nephrologist has always said I would need dialysis when it reached

> 500 (size

> > matters with serum creatinine, and I'm not very big), and based on

> my

> > symptoms, she says I'm ready to start now. My fistula is looking

> good and

> > they should be able to use it. In fact, it seems to be developing

> in two

> > separate directions, maybe three, just as I thought. She will order

> vein

> > mapping to get a better idea.

> >

> > She was ready to start me on hemodialysis right now, like, as soon

> as

> > possible, but then she noticed that she has two conflicting lab

> results, one

> > of which may have been dated wrong. So, just to be sure, she had me

> go to

> > the lab right there to do blood work. If it comes out 450 or more,

> I'm on

> > dialysis. If it comes out under that, I may be able to wait another

> month,

> > but probably not more than that. So, just waiting. If nobody calls,

> I guess

> > I'm Ok for a little while yet. She does seem to believe in starting

> dialysis

> > early as opposed to waiting until the last possible moment, and I

> can't say

> > I disagree with that. This is textbook of how it should be done: my

> > phosphorus and other levels, as well as my overall nutrition have

> been well

> > managed, the access (fistula) had been prepared well in advance, the

> > treatment options education done and we're ready to roll anytime.

> >

> > In the meantime, I have a follow-up appointment a month from now,

> with a lab

> > requisition for blood work a week before going, and, if I start

> vomitting my

> > food between now and then, I'm to forget about trying to contact my

> > nephrologist and go directly to the hospital where my dialysis

> centre will

> > be (about a 15 minute drive if there's no traffic).

> >

> > So there you go. Funny how it just happens like that. You have

> kidney

> > disease for 25 years, with nothing too eventful other than a few

> > hypertensive emergencies now and again, you go to dozens, maybe a

> hundred or

> > more nephrology appointments over the years, and finally, you reach

> the

> > appointment when they tell you it's time, or almost anyway. I

> expected it

> > though, as I could tell myself I have been significantly sicker and

> tired

> > the past 2 or 3 months.

> >

> > Of course, with the way my serum creatinine has been going up and

> down for

> > the past year, it still could come out under 400 today. I just

> don't know

> > yet.

> >

> > Pierre

>

>

>

>

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Oncle Pierre? (Isn't that the French version?)

Reply-To: iga-nephropathy

To: <iga-nephropathy >

Subject: Re: My results

Date: Thu, 22 Aug 2002 19:19:53 -0400

Thanks Ian. I'm very touched by all the messages from everyone. I have only

one nephew, and even he doesn't call Uncle Pierre : )

Pierre

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

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I used to call my uncles that, be were aren't quite that formal anymore in

this generation : )

Pierre

Re: My results

> Date: Thu, 22 Aug 2002 19:19:53 -0400

>

> Thanks Ian. I'm very touched by all the messages from everyone. I have

only

> one nephew, and even he doesn't call Uncle Pierre : )

> Pierre

>

> _________________________________________________________________

> Send and receive Hotmail on your mobile device: http://mobile.msn.com

>

>

>

>

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lol

RE: My results

>

>

> > PS Pierre, When I feel down,I like to treat myself something special.

> > Buying J E W E L R Y usually makes me feel better. (Expensive trash with

> > flash makes me feel the best!) So go out and treat yourself today to

your

> > special " trash with flash " item, you deserve it! :)

> > Connie, USA

> >

>

>

>

>

>

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Good for you Pierre, Electronics are Toys for Boys at least that's what I

tell my husband when he brings home something that " has a cord with a remote

control " . We have so many different remotes that I gave up my rights years

ago. We could get a universal remote, but no, that would take away the fun

for my husband because he has control of whether we are watching TV, or

listening to music or watching a movie on either on the VCR or DVD player

because he knows I can't figure it out which remote to use!! Enjoy your

toys. Connie, USA

Re: My results

Great suggestion Connie! Already beat you to it though. I had a little

advanced knowledge about my serum creatinine being over 450 a little over a

week ago. I didn't want to mention it on the group until I could see my

nephrologist and know all the facts. So, last week, I decided to buy a new

TV and DVD player as a treat. It took me all week to decide how I would hook

all this up with the cable box, VCR and stereo, out of the dozens of

possible combinations! While I was there, I also got a nice little shortwave

radio I had my eye on. My wife doesn't know about that one yet : )

I figured, what the heck! I can just see my home hemodialysis machine set up

in the living room next to the couch, so I can watch some late night movies

while I'm doing it : )

Pierre

RE: My results

> PS Pierre, When I feel down,I like to treat myself something special.

> Buying J E W E L R Y usually makes me feel better. (Expensive trash with

> flash makes me feel the best!) So go out and treat yourself today to your

> special " trash with flash " item, you deserve it! :)

> Connie, USA

>

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Hehe, it's lovely to know that you too practise some form of " retail

therapy " . Whenever I'm feeling low, I go out and " splurge " on some expensive

fruit that I normally don't buy, like strawberries and avocados.

Unfortunately I am allergic to the chemicals that off-gas from new plastic

products (like computers and other electronics) and treated wood products so

I can't buy those. But my favorite thing to do that always perks me up is

going for long solo treks in the tropical jungle, and camping out by a

waterfall or river for a night or two. There's something so rejuvenating

about the sweet woodsy air, and swimming in the clear cold water, watching

the fish flip and turn, and I love the color green - there's plenty of it :)

----Original Message Follows----

Reply-To: iga-nephropathy

To: <iga-nephropathy >

Subject: RE: My results

Date: Mon, 26 Aug 2002 17:17:39 -0400

Good for you Pierre, Electronics are Toys for Boys at least that's what I

tell my husband when he brings home something that " has a cord with a remote

control " . We have so many different remotes that I gave up my rights years

ago. We could get a universal remote, but no, that would take away the fun

for my husband because he has control of whether we are watching TV, or

listening to music or watching a movie on either on the VCR or DVD player

because he knows I can't figure it out which remote to use!! Enjoy your

toys. Connie, USA

Re: My results

Great suggestion Connie! Already beat you to it though. I had a little

advanced knowledge about my serum creatinine being over 450 a little over a

week ago. I didn't want to mention it on the group until I could see my

nephrologist and know all the facts. So, last week, I decided to buy a new

TV and DVD player as a treat. It took me all week to decide how I would hook

all this up with the cable box, VCR and stereo, out of the dozens of

possible combinations! While I was there, I also got a nice little shortwave

radio I had my eye on. My wife doesn't know about that one yet : )

I figured, what the heck! I can just see my home hemodialysis machine set up

in the living room next to the couch, so I can watch some late night movies

while I'm doing it : )

Pierre

RE: My results

> PS Pierre, When I feel down,I like to treat myself something special.

> Buying J E W E L R Y usually makes me feel better. (Expensive trash with

> flash makes me feel the best!) So go out and treat yourself today to

your

> special " trash with flash " item, you deserve it! :)

> Connie, USA

>

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Grace, I agree, there is something about smelling the fresh air, romping

and swimming in the water and feeling like you have " a little piece of

paradise for the day " It clears your head... I always ask my husband " what

do you think the rest of the world is doing today " ? Connie, USA

Re: My results

Great suggestion Connie! Already beat you to it though. I had a little

advanced knowledge about my serum creatinine being over 450 a little over

a

week ago. I didn't want to mention it on the group until I could see my

nephrologist and know all the facts. So, last week, I decided to buy a new

TV and DVD player as a treat. It took me all week to decide how I would

hook

all this up with the cable box, VCR and stereo, out of the dozens of

possible combinations! While I was there, I also got a nice little

shortwave

radio I had my eye on. My wife doesn't know about that one yet : )

I figured, what the heck! I can just see my home hemodialysis machine set

up

in the living room next to the couch, so I can watch some late night

movies

while I'm doing it : )

Pierre

RE: My results

> PS Pierre, When I feel down,I like to treat myself something special.

> Buying J E W E L R Y usually makes me feel better. (Expensive trash with

> flash makes me feel the best!) So go out and treat yourself today to

your

> special " trash with flash " item, you deserve it! :)

> Connie, USA

>

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