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They had many ??s about this disease, as it's unfamiliar to most.

Has not told his boss. In my opinion, he should. I'm sure she'll hear talk. Any one care to give their opinion? doesn't want to tell her, but I think it's the professional thing to do. I so appreciate you all being there.

Hi Kath,

I went through that "should I should I not" when I was first diagnosed back in 1988. In the end I felt it was right firstly my boss needed to know why I was away sick (I went in to hosp for a few days to have all the tests done.) So I explained what was wrong and the ??? came back by the dozen. The main thing is he appreciated my honesty. I'm glad I did tell him when I was reasonably OK as later I got worse and then had severe pancreatitis after an ERCP. So then he understood and was very good about having days off for trips to clinic etc.

So for I would suggest that perhaps as his condition is worsening that to talk with his boss about things would be a good thing. After all he then will know that isn't having time off to play hooky!

Barbara (UK)

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Kath, My 2 cents vote for him telling the boss. I was a skilled trades supr for a few years and there were a number of times I was able to help someone in a bind because of health because I knew what was going on. That will not hold true for everyone, but, even the most hard nosed boss has a family. An awful lot of bosses I knew had a #1 rule. Family First.

Also if the rifampin starts working ween off the cholyst.,as lots of times it will bind your other meds up and dispose of them if the times spans are not closely followed. Tim L

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My vote is to tell her. If he starts missing work, it

is better that the boss knows ahead of time, than

after the fact. Besides, having the boss in your

corner never hurt anybody. My boss goes to bat for

me, and makes things easier on me.

=====

Michigan Hunter . Dx UC 1984, Jpouch 99/2000, PSC dx 97, first PSC symptoms

2000.

__________________________________________________

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  • 5 years later...
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Thanks for the warm welcomes. It is helpful to know that some of my feelings

about this pain are common to others. My pain is from extensive retina surgeries

and is nearly constant. I have just started with a pain specialist, so I am on a

roller coaster ride of meds right now. I guess many of you have been on that

ride.

Did others have trouble getting the doctors believe you about the pain and the

level of it? I thought if I had to hear, " There are no pain receptors in the

retina. Therefore, you have no pain there. " one more time I would loose what I

had left of my mind.

Peggy, I really appreciated the links and thought I might self diagnosis as

optic neuritis. Well, that's not it. It was good to read about this, I thought

I'd read all there was to read. Thank you.

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