Re: Hi, new here also

[Guest guest]

>

> Hi,

> My name is Kathe. I'm 53 yrs. old. I have chronic fatigue immune

> dysfunction. Due to this illness I sought out a CFID doc for

> treatment. One of the things recommended to me was neurontin for

> nerve pain and insomnia. What the doc failed to tell me was that

> neurontin is very addictive.

>

> I certainly have learned a lot more about this drug since I've

been

> taking it, none of it good. The drug has caused problems with my

> vision, and really isn't working as well since I've been on it for

> over a yr.

>

> I've wanted to get off of this drug, but found that as I slowly

> lessend the the dosage, I was hit with terrible withdrawal

symptoms.

> I do know that you have to come off this drug slowly. I am doing

> that without much benefit.

>

> The scary thing is there are a number of people that have gotten

off

> this drug completely, and are still having problems even after

being

> off of it for a while.

>

> I certainly don't know what else to do that I haven't been doing.

I

> eat an organic diet. I keep my sugar intake as low as possible. I

> drink lots of water. It's bad enough that my illness inpacts my

> life, let along having to endure terrible withdrawal.

>

> I'm open to idea's! Thanks for listening.

>

> Kathe

>

Hi Kathe,

Welcome to the group. I've heard a lot of terrible stories about

neurontin. It is often prescribed for people with migraines when

other medications don't work. A friend of mine tried it and had

some very serious issues and side effects.

This group advocates a very slow withdrawal. You don't mention the

size of your reductions, but it's possible that they may still be

too large.

It sounds like your diet is generally good. You might want to take

a look at the dietary guidelines posted in our files here. You

mention that you don't eat much sugar....we do recommend eliminating

all sugar here. I'm sure will have some more specific

suggestions for you when she gets to your post.

Hugs,