Guest guest Posted January 12, 2010 Report Share Posted January 12, 2010 Hi Joe, I'm sorry to hear you were diagnosed with bronchiectasis. Glad you found this support group. It'll be a great source of education, help, and friendship. Some of our members developed bronch when young, but most of us acquired it later in life. The severity of bronchiectasis varies tremendously. Do you need daily physical drainage and medicine to control symptoms? I hope not. The positive thing about bronch is that most people can live productive lives with it. My name is Kay and I live in Northern California. I'm sixty two years old and have had this problem for about six years. I've had to do the percussion and coughing daily in the past. Strong antibiotics seem to have knocked out most of the bugs living in my lungs. I walk/run almost daily, do yoga and aerobics, care for my home and yard, and take care of my grandchildren when needed. My problem escalates when I get a cold and it goes into my lungs. I'll let others fill you in on other aspects of bronchiectasis you might be interested in. Welcome to our group. Where do you live, and what did you get your master's in? Four of my kids have master's: one in classical clarinet performance and all four in education. Kay - ---- Original Message -----To: bronchiectasis Sent: Tuesday, January 12, 2010 5:37:29 PM GMT -08:00 US/Canada PacificSubject: intro Hello,My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2010 Report Share Posted January 13, 2010 Joe I too have the bronc for 40+years. It is sometimes hard to deal with. Lung surgery in 1968 to eliminate the worst of the infection. But 10 or so years ago, I developed really severe bronc that was almost fatal. I use Advair, combivent and singulair, also Mucinex to thin the mucus to cough it out. My case, I get really loaded in afternoons with so much mucus and then keep coughing it up to rid of it. If I withold it, I get really sick to chest. The Mucinex really helps with out the percussion. It is a must that I clean my chest just before I go to bed. Mucinex with cough suppressant will help in a better nights sleep. But generally within 5 minutes after lying down, I will have to get up and clear chest again. (Head down to waist level.) Bronc is an embarrassing condition to have to deal with especially around other people. I have had 2 broncoscopes and Xrays. Beware of the CT scans as many times more radiation is used. It is more detailed but the risks of excess radiation. The hot humid weather is very hard for me to deal with. But, I keep chugging along. My doctor said it was like bronchitis that has gone haywire. AL If you can find someone else to do the percussion on you it will be much more effective. I bought a firm foam wedge about 36" x 36" to lay on top of our bed, which itself is raised six inches at the head. Then I put two firm pillows under my hips, with my head lower than the hips on top of the wedge. This creates quite a bit of slant, which helps the trapped mucus come up as the percussion proceeds. The best is to do it on all four sides of your upper body/lung area, coughing up stuff as needed in between the percussion pounding (I call it pounding, but it isn't quite as hard as a true "pound"). I originally found basic info on how to do the percussion therapy on a university medical school web-site (can't remember which university) devoted to cystic fibrosis. Of course, CF is generally more serious than bronchiectasis and involves other body systems besides the lungs that also have genetic insufficiencies, but some of the same principles of care apply. You might Google various words and phrases to see what's out there. That's what I did. Best of luck to you in getting started on caring for yourself. My personal opinion is not to overdo on CT Xray tests or antibiotics. You're young, and radiation carries very real cumulative risk of cancer, and antibiotics stop working if overused. Do all you can with physical self-care of your lungs via percussion (daily if you need it), vigorous exercise, and a healthy diet. Explore natural complimentary measures like eating garlic, turmeric, lots of vegetables, little or no meat, doing yoga to encourage relaxation and drainage through it's many downward positions and stretches. Stay away from those with colds, wash your hands frequently, use the alcohol hand sanitizers in your car or backpack after being outside your home. My biggest problem is catching my grandkids colds, that then go into my lungs even if the cold was very mild. I sometimes have to do the percussion two or three times a day when this happens, and it can go on for a month or more. You'll love the supportive folks you meet in this group. Kay intro > >  > > > > > > > Hello, > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2010 Report Share Posted January 13, 2010 Generic name for the medicine is Guaifenesin. (An expectorant) for congestion relief. Also check out Robitussin trade name. _____________________________________________________________________________________________ Could somebody tell me something similiar to Mucinex. as I cannot buy it in Queensland. It would be handy when away and drainage is not as simple. From: "allang88aol" <allang88aol>To: bronchiectasis Sent: Thu, 14 January, 2010 7:06:09 AMSubject: Re: Re: intro Joe I too have the bronc for 40+years. It is sometimes hard to deal with. Lung surgery in 1968 to eliminate the worst of the infection. But 10 or so years ago, I developed really severe bronc that was almost fatal. I use Advair, combivent and singulair, also Mucinex to thin the mucus to cough it out. My case, I get really loaded in afternoons with so much mucus and then keep coughing it up to rid of it. If I withold it, I get really sick to chest. The Mucinex really helps with out the percussion. It is a must that I clean my chest just before I go to bed. Mucinex with cough suppressant will help in a better nights sleep. But generally within 5 minutes after lying down, I will have to get up and clear chest again. (Head down to waist level.) Bronc is an embarrassing condition to have to deal with especially around other people. I have had 2 broncoscopes and Xrays. Beware of the CT scans as many times more radiation is used. It is more detailed but the risks of excess radiation. The hot humid weather is very hard for me to deal with. But, I keep chugging along. My doctor said it was like bronchitis that has gone haywire. AL In a message dated 1/13/2010 3:23:01 P.M. Eastern Standard Time, ericnkayncomcast (DOT) net writes: If you can find someone else to do the percussion on you it will be much more effective. I bought a firm foam wedge about 36" x 36" to lay on top of our bed, which itself is raised six inches at the head. Then I put two firm pillows under my hips, with my head lower than the hips on top of the wedge. This creates quite a bit of slant, which helps the trapped mucus come up as the percussion proceeds. The best is to do it on all four sides of your upper body/lung area, coughing up stuff as needed in between the percussion pounding (I call it pounding, but it isn't quite as hard as a true "pound"). I originally found basic info on how to do the percussion therapy on a university medical school web-site (can't remember which university) devoted to cystic fibrosis. Of course, CF is generally more serious than bronchiectasis and involves other body systems besides the lungs that also have genetic insufficiencies, but some of the same principles of care apply. You might Google various words and phrases to see what's out there. That's what I did. Best of luck to you in getting started on caring for yourself. My personal opinion is not to overdo on CT Xray tests or antibiotics. You're young, and radiation carries very real cumulative risk of cancer, and antibiotics stop working if overused. Do all you can with physical self-care of your lungs via percussion (daily if you need it), vigorous exercise, and a healthy diet. Explore natural complimentary measures like eating garlic, turmeric, lots of vegetables, little or no meat, doing yoga to encourage relaxation and drainage through it's many downward positions and stretches. Stay away from those with colds, wash your hands frequently, use the alcohol hand sanitizers in your car or backpack after being outside your home. My biggest problem is catching my grandkids colds, that then go into my lungs even if the cold was very mild. I sometimes have to do the percussion two or three times a day when this happens, and it can go on for a month or more. You'll love the supportive folks you meet in this group. Kay intro > >  > > > > > > > Hello, > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts.> See what's on at the movies in your area. Find out now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2010 Report Share Posted January 13, 2010 I live in Southeastern Louisiana. My BA is in Philosophy and Theological Studies and my MA is in Theology. Honestly, I'm not sure what I'm supposed to do. I've been a little freaked out because this was the first year I've had 3 rounds of Bronchitis, all three since August. As far as meds and treatments go, when I met with my doctor, she told me that I had it and that I should do the hand cup patting thing around my chest and to do the drain exercise that consists of elevating the hip area and making sure my head is lower then the hips. I've also been taking antibiotics as I get sick. Outside of this, the doctor explained it in mostly medical terminology and said that I had it. Thus, I'm trying to understand as much as I can so I can ask my doctors about it, such as how bad and widespread is mine. There seems to be so much up in the air and so much I don't know about it. I feel somewhat like I was thrown in and told to swim. Also, the only real information I've been able to get on bronchiectasis is via google, and not from anyone, up to now, that either has it, or is very familiar with it. I am very grateful I found this group and am excited not only for the advice and help, but also for the possible friendships. > > > > > Hi Joe, > > > > I'm sorry to hear you were diagnosed with bronchiectasis. Glad you found this support group. It'll be a great source of education, help, and friendship. Some of our members developed bronch when young, but most of us acquired it later in life. The severity of bronchiectasis varies tremendously. Do you need daily physical drainage and medicine to control symptoms? I hope not. The positive thing about bronch is that most people can live productive lives with it. > > > > My name is Kay and I live in Northern California. I'm sixty two years old and have had this problem for about six years. I've had to do the percussion and coughing daily in the past. Strong antibiotics seem to have knocked out most of the bugs living in my lungs. I walk/run almost daily, do yoga and aerobics, care for my home and yard, and take care of my grandchildren when needed. My problem escalates when I get a cold and it goes into my lungs. > > > > I'll let others fill you in on other aspects of bronchiectasis you might be interested in. Welcome to our group. Where do you live, and what did you get your master's in? Four of my kids have master's: one in classical clarinet performance and all four in education. > > > > Kay > - > > ---- Original Message ----- > > To: bronchiectasis > Sent: Tuesday, January 12, 2010 5:37:29 PM GMT -08:00 US/Canada Pacific > Subject: intro > >  > > > > > > > Hello, > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2010 Report Share Posted January 13, 2010 Joe, You may want to look at the National Jewish Hospital and Reseach center in Denver, they are one of the best for Broncheactisis and lung problems. I have been there and found them very thorough and helpful. www.nationaljewish.org Myriam To: bronchiectasis Sent: Wed, January 13, 2010 1:38:31 PMSubject: Re: intro I live in Southeastern Louisiana. My BA is in Philosophy and Theological Studies and my MA is in Theology. Honestly, I'm not sure what I'm supposed to do. I've been a little freaked out because this was the first year I've had 3 rounds of Bronchitis, all three since August. As far as meds and treatments go, when I met with my doctor, she told me that I had it and that I should do the hand cup patting thing around my chest and to do the drain exercise that consists of elevating the hip area and making sure my head is lower then the hips. I've also been taking antibiotics as I get sick. Outside of this, the doctor explained it in mostly medical terminology and said that I had it. Thus, I'm trying to understand as much as I can so I can ask my doctors about it, such as how bad and widespread is mine.There seems to be so much up in the air and so much I don't know about it. I feel somewhat like I was thrown in and told to swim. Also, the only real information I've been able to get on bronchiectasis is via google, and not from anyone, up to now, that either has it, or is very familiar with it. I am very grateful I found this group and am excited not only for the advice and help, but also for the possible friendships.>> > > > Hi Joe, > > > > I'm sorry to hear you were diagnosed with bronchiectasis. Glad you found this support group. It'll be a great source of education, help, and friendship. Some of our members developed bronch when young, but most of us acquired it later in life. The severity of bronchiectasis varies tremendously. Do you need daily physical drainage and medicine to control symptoms? I hope not. The positive thing about bronch is that most people can live productive lives with it. > > > > My name is Kay and I live in Northern California. I'm sixty two years old and have had this problem for about six years. I've had to do the percussion and coughing daily in the past. Strong antibiotics seem to have knocked out most of the bugs living in my lungs. I walk/run almost daily, do yoga and aerobics, care for my home and yard, and take care of my grandchildren when needed. My problem escalates when I get a cold and it goes into my lungs. > > > > I'll let others fill you in on other aspects of bronchiectasis you might be interested in. Welcome to our group. Where do you live, and what did you get your master's in? Four of my kids have master's: one in classical clarinet performance and all four in education. > > > > Kay > - > > ---- Original Message ----- > From: "ph " <bennj831@.. .> > To: bronchiectasis@ yahoogroups. com > Sent: Tuesday, January 12, 2010 5:37:29 PM GMT -08:00 US/Canada Pacific > Subject: intro > >  > > > > > > > Hello, > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2010 Report Share Posted January 13, 2010 If you can find someone else to do the percussion on you it will be much more effective. I bought a firm foam wedge about 36" x 36" to lay on top of our bed, which itself is raised six inches at the head. Then I put two firm pillows under my hips, with my head lower than the hips on top of the wedge. This creates quite a bit of slant, which helps the trapped mucus come up as the percussion proceeds. The best is to do it on all four sides of your upper body/lung area, coughing up stuff as needed in between the percussion pounding (I call it pounding, but it isn't quite as hard as a true "pound"). I originally found basic info on how to do the percussion therapy on a university medical school web-site (can't remember which university) devoted to cystic fibrosis. Of course, CF is generally more serious than bronchiectasis and involves other body systems besides the lungs that also have genetic insufficiencies, but some of the same principles of care apply. You might Google various words and phrases to see what's out there. That's what I did. Best of luck to you in getting started on caring for yourself. My personal opinion is not to overdo on CT Xray tests or antibiotics. You're young, and radiation carries very real cumulative risk of cancer, and antibiotics stop working if overused. Do all you can with physical self-care of your lungs via percussion (daily if you need it), vigorous exercise, and a healthy diet. Explore natural complimentary measures like eating garlic, turmeric, lots of vegetables, little or no meat, doing yoga to encourage relaxation and drainage through it's many downward positions and stretches. Stay away from those with colds, wash your hands frequently, use the alcohol hand sanitizers in your car or backpack after being outside your home. My biggest problem is catching my grandkids colds, that then go into my lungs even if the cold was very mild. I sometimes have to do the percussion two or three times a day when this happens, and it can go on for a month or more. You'll love the supportive folks you meet in this group. Kay intro > >  > > > > > > > Hello, > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2010 Report Share Posted January 13, 2010 Could somebody tell me something similiar to Mucinex. as I cannot buy it in Queensland. It would be handy when away and drainage is not as simple. To: bronchiectasis Sent: Thu, 14 January, 2010 7:06:09 AMSubject: Re: Re: intro Joe I too have the bronc for 40+years. It is sometimes hard to deal with. Lung surgery in 1968 to eliminate the worst of the infection. But 10 or so years ago, I developed really severe bronc that was almost fatal. I use Advair, combivent and singulair, also Mucinex to thin the mucus to cough it out. My case, I get really loaded in afternoons with so much mucus and then keep coughing it up to rid of it. If I withold it, I get really sick to chest. The Mucinex really helps with out the percussion. It is a must that I clean my chest just before I go to bed. Mucinex with cough suppressant will help in a better nights sleep. But generally within 5 minutes after lying down, I will have to get up and clear chest again. (Head down to waist level.) Bronc is an embarrassing condition to have to deal with especially around other people. I have had 2 broncoscopes and Xrays. Beware of the CT scans as many times more radiation is used. It is more detailed but the risks of excess radiation. The hot humid weather is very hard for me to deal with. But, I keep chugging along. My doctor said it was like bronchitis that has gone haywire. AL In a message dated 1/13/2010 3:23:01 P.M. Eastern Standard Time, ericnkayncomcast (DOT) net writes: If you can find someone else to do the percussion on you it will be much more effective. I bought a firm foam wedge about 36" x 36" to lay on top of our bed, which itself is raised six inches at the head. Then I put two firm pillows under my hips, with my head lower than the hips on top of the wedge. This creates quite a bit of slant, which helps the trapped mucus come up as the percussion proceeds. The best is to do it on all four sides of your upper body/lung area, coughing up stuff as needed in between the percussion pounding (I call it pounding, but it isn't quite as hard as a true "pound"). I originally found basic info on how to do the percussion therapy on a university medical school web-site (can't remember which university) devoted to cystic fibrosis. Of course, CF is generally more serious than bronchiectasis and involves other body systems besides the lungs that also have genetic insufficiencies, but some of the same principles of care apply. You might Google various words and phrases to see what's out there. That's what I did. Best of luck to you in getting started on caring for yourself. My personal opinion is not to overdo on CT Xray tests or antibiotics. You're young, and radiation carries very real cumulative risk of cancer, and antibiotics stop working if overused. Do all you can with physical self-care of your lungs via percussion (daily if you need it), vigorous exercise, and a healthy diet. Explore natural complimentary measures like eating garlic, turmeric, lots of vegetables, little or no meat, doing yoga to encourage relaxation and drainage through it's many downward positions and stretches. Stay away from those with colds, wash your hands frequently, use the alcohol hand sanitizers in your car or backpack after being outside your home. My biggest problem is catching my grandkids colds, that then go into my lungs even if the cold was very mild. I sometimes have to do the percussion two or three times a day when this happens, and it can go on for a month or more. You'll love the supportive folks you meet in this group. Kay intro > >  > > > > > > > Hello, > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts.> See what's on at the movies in your area. Find out now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Hi, Joe. I'm from Brooklyn, NY. I'm going to be 62 next week (How can that be?). I got my BA in Anthropology in 1968, and I'm a grad school (Brown University) dropout. I have traveled in the States, to Europe, the Caribbean and Venezuela and Mexico but not yet to Australia. I retired from the NYC Police Pension Fund in 2008 on a disability. Besides having cylindrical bronchiectasis, which caused me to cough endlessly*, I had aspiration pneumonia and now sport a stomach tube from which I take nutrition and water. I am thankful for this support group. It's good to welcome you. D.*I am currently taking 3 antibiotics for ten days of the month on a rotating basis. I hardly cough anymore, but when I do it's hard to stop. Unfortunately, I spend too much of the time having to spit out the mucus that builds up. Ugh To: bronchiectasis From: bennj831@...Date: Tue, 12 Jan 2010 17:37:29 -0800Subject: intro Hello,My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Hi, Joe. I'm from Brooklyn, NY. I'm going to be 62 next week (How can that be?). I got my BA in Anthropology in 1968, and I'm a grad school (Brown University) dropout. I have traveled in the States, to Europe, the Caribbean and Venezuela and Mexico but not yet to Australia. I retired from the NYC Police Pension Fund in 2008 on a disability. Besides having cylindrical bronchiectasis, which caused me to cough endlessly*, I had aspiration pneumonia and now sport a stomach tube from which I take nutrition and water. I am thankful for this support group. It's good to welcome you. D.*I am currently taking 3 antibiotics for ten days of the month on a rotating basis. I hardly cough anymore, but when I do it's hard to stop. Unfortunately, I spend too much of the time having to spit out the mucus that builds up. Ugh To: bronchiectasis From: bennj831@...Date: Tue, 12 Jan 2010 17:37:29 -0800Subject: intro Hello,My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Thank you very much for the site. I shall definitely look into it. > > > > > > > > > > Hi Joe, > > > > > > > > I'm sorry to hear you were diagnosed with bronchiectasis. Glad you found this support group. It'll be a great source of education, help, and friendship. Some of our members developed bronch when young, but most of us acquired it later in life. The severity of bronchiectasis varies tremendously. Do you need daily physical drainage and medicine to control symptoms? I hope not. The positive thing about bronch is that most people can live productive lives with it. > > > > > > > > My name is Kay and I live in Northern California. I'm sixty two years old and have had this problem for about six years. I've had to do the percussion and coughing daily in the past. Strong antibiotics seem to have knocked out most of the bugs living in my lungs. I walk/run almost daily, do yoga and aerobics, care for my home and yard, and take care of my grandchildren when needed. My problem escalates when I get a cold and it goes into my lungs. > > > > > > > > I'll let others fill you in on other aspects of bronchiectasis you might be interested in. Welcome to our group. Where do you live, and what did you get your master's in? Four of my kids have master's: one in classical clarinet performance and all four in education. > > > > > > > > Kay > > - > > > > ---- Original Message ----- > > From: " ph " <bennj831@ .> > > To: bronchiectasis@ yahoogroups. com > > Sent: Tuesday, January 12, 2010 5:37:29 PM GMT -08:00 US/Canada Pacific > > Subject: intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Thank you very much for the site. I shall definitely look into it. > > > > > > > > > > Hi Joe, > > > > > > > > I'm sorry to hear you were diagnosed with bronchiectasis. Glad you found this support group. It'll be a great source of education, help, and friendship. Some of our members developed bronch when young, but most of us acquired it later in life. The severity of bronchiectasis varies tremendously. Do you need daily physical drainage and medicine to control symptoms? I hope not. The positive thing about bronch is that most people can live productive lives with it. > > > > > > > > My name is Kay and I live in Northern California. I'm sixty two years old and have had this problem for about six years. I've had to do the percussion and coughing daily in the past. Strong antibiotics seem to have knocked out most of the bugs living in my lungs. I walk/run almost daily, do yoga and aerobics, care for my home and yard, and take care of my grandchildren when needed. My problem escalates when I get a cold and it goes into my lungs. > > > > > > > > I'll let others fill you in on other aspects of bronchiectasis you might be interested in. Welcome to our group. Where do you live, and what did you get your master's in? Four of my kids have master's: one in classical clarinet performance and all four in education. > > > > > > > > Kay > > - > > > > ---- Original Message ----- > > From: " ph " <bennj831@ .> > > To: bronchiectasis@ yahoogroups. com > > Sent: Tuesday, January 12, 2010 5:37:29 PM GMT -08:00 US/Canada Pacific > > Subject: intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 The only reason why I needed a CT scan was because I have pain around my rib cage that is probably caused by the chest condition I have called Pectus Excavatum. On top of the pain it causes, it also makes my rib cage area fairly tender to the touch; thus, I'm a tad nervous about the procussion. However, do what you got to do, I guess. I'm trying to get into a new lifestyle with what I eat and the amount of exercise I do. Alot of it is simply on paper at the moment because I want to sit down with my doctor and make sure I'm doing what I ought and not overdoing it. I used to be fairly active. The school I went to had 3 flights of stairs that I would go up and down several times a day, sometimes even skipping steps on the way up. Now, however, I've been pretty had to stay in bed or in my parents' house. I am able to walk around outside now and then, but it isn't for long. So, I'm hoping to get back into the swing of things as soon as I can. > > > > > > > > > > Hi Joe, > > > > > > > > I'm sorry to hear you were diagnosed with bronchiectasis. Glad you found this support group. It'll be a great source of education, help, and friendship. Some of our members developed bronch when young, but most of us acquired it later in life. The severity of bronchiectasis varies tremendously. Do you need daily physical drainage and medicine to control symptoms? I hope not. The positive thing about bronch is that most people can live productive lives with it. > > > > > > > > My name is Kay and I live in Northern California. I'm sixty two years old and have had this problem for about six years. I've had to do the percussion and coughing daily in the past. Strong antibiotics seem to have knocked out most of the bugs living in my lungs. I walk/run almost daily, do yoga and aerobics, care for my home and yard, and take care of my grandchildren when needed. My problem escalates when I get a cold and it goes into my lungs. > > > > > > > > I'll let others fill you in on other aspects of bronchiectasis you might be interested in. Welcome to our group. Where do you live, and what did you get your master's in? Four of my kids have master's: one in classical clarinet performance and all four in education. > > > > > > > > Kay > > - > > > > ---- Original Message ----- > > From: " ph " <bennj831@> > > To: bronchiectasis > > Sent: Tuesday, January 12, 2010 5:37:29 PM GMT -08:00 US/Canada Pacific > > Subject: intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 The only reason why I needed a CT scan was because I have pain around my rib cage that is probably caused by the chest condition I have called Pectus Excavatum. On top of the pain it causes, it also makes my rib cage area fairly tender to the touch; thus, I'm a tad nervous about the procussion. However, do what you got to do, I guess. I'm trying to get into a new lifestyle with what I eat and the amount of exercise I do. Alot of it is simply on paper at the moment because I want to sit down with my doctor and make sure I'm doing what I ought and not overdoing it. I used to be fairly active. The school I went to had 3 flights of stairs that I would go up and down several times a day, sometimes even skipping steps on the way up. Now, however, I've been pretty had to stay in bed or in my parents' house. I am able to walk around outside now and then, but it isn't for long. So, I'm hoping to get back into the swing of things as soon as I can. > > > > > > > > > > Hi Joe, > > > > > > > > I'm sorry to hear you were diagnosed with bronchiectasis. Glad you found this support group. It'll be a great source of education, help, and friendship. Some of our members developed bronch when young, but most of us acquired it later in life. The severity of bronchiectasis varies tremendously. Do you need daily physical drainage and medicine to control symptoms? I hope not. The positive thing about bronch is that most people can live productive lives with it. > > > > > > > > My name is Kay and I live in Northern California. I'm sixty two years old and have had this problem for about six years. I've had to do the percussion and coughing daily in the past. Strong antibiotics seem to have knocked out most of the bugs living in my lungs. I walk/run almost daily, do yoga and aerobics, care for my home and yard, and take care of my grandchildren when needed. My problem escalates when I get a cold and it goes into my lungs. > > > > > > > > I'll let others fill you in on other aspects of bronchiectasis you might be interested in. Welcome to our group. Where do you live, and what did you get your master's in? Four of my kids have master's: one in classical clarinet performance and all four in education. > > > > > > > > Kay > > - > > > > ---- Original Message ----- > > From: " ph " <bennj831@> > > To: bronchiectasis > > Sent: Tuesday, January 12, 2010 5:37:29 PM GMT -08:00 US/Canada Pacific > > Subject: intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Yes, the humid weather does become a challenge; I discovered that quickly. Thank you for the thought on Mucinex, it is really appreciated. Also, thank you for the support. > > Joe > > I too have the bronc for 40+years. It is sometimes hard to deal with. > Lung surgery > in 1968 to eliminate the worst of the infection. But 10 or so years ago, I > developed really severe bronc that was almost fatal. I use Advair, > combivent and singulair, also Mucinex to thin the mucus to cough it out. My > case, I get really loaded in afternoons with so much mucus and then keep > coughing it up to rid of it. If I withold it, I get really sick to chest. The > Mucinex really helps with out the percussion. It is a must that I clean my > chest just before I go to bed. Mucinex with cough suppressant will help in > a better nights sleep. But generally within 5 minutes after lying down, I > will have to get up and clear chest again. (Head down to waist level.) > Bronc is an embarrassing condition to have to deal with especially around > other people. I have had 2 broncoscopes and Xrays. Beware of the CT scans as > many times more radiation is used. It is more detailed but the risks of > excess radiation. The hot humid weather is very hard for me to deal with. > But, I keep chugging along. > > My doctor said it was like bronchitis that has gone haywire. > > AL > > > In a message dated 1/13/2010 3:23:01 P.M. Eastern Standard Time, > ericnkayn@... writes: > > > > > > If you can find someone else to do the percussion on you it will be much > more effective. I bought a firm foam wedge about 36 " x 36 " to lay on top of > our bed, which itself is raised six inches at the head. Then I put two > firm pillows under my hips, with my head lower than the hips on top of the > wedge. This creates quite a bit of slant, which helps the trapped mucus come > up as the percussion proceeds. The best is to do it on all four sides of > your upper body/lung area, coughing up stuff as needed in between the > percussion pounding (I call it pounding, but it isn't quite as hard as a true > " pound " ). > I originally found basic info on how to do the percussion therapy on a > university medical school web-site (can't remember which university) devoted > to cystic fibrosis. Of course, CF is generally more serious than > bronchiectasis and involves other body systems besides the lungs that also have > genetic insufficiencies, but some of the same principles of care apply. You > might Google various words and phrases to see what's out there. That's what I > did. > Best of luck to you in getting started on caring for yourself. My > personal opinion is not to overdo on CT Xray tests or antibiotics. You're young, > and radiation carries very real cumulative risk of cancer, and antibiotics > stop working if overused. Do all you can with physical self-care of your > lungs via percussion (daily if you need it), vigorous exercise, and a > healthy diet. Explore natural complimentary measures like eating garlic, > turmeric, lots of vegetables, little or no meat, doing yoga to encourage > relaxation and drainage through it's many downward positions and stretches. Stay > away from those with colds, wash your hands frequently, use the alcohol hand > sanitizers in your car or backpack after being outside your home. My > biggest problem is catching my grandkids colds, that then go into my lungs even > if the cold was very mild. I sometimes have to do the percussion two or > three times a day when this happens, and it can go on for a month or more. > You'll love the supportive folks you meet in this group. > Kay > intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my > MA during this past summer, I became sick. I ended up having a CT scan > done for a separate condition during this same time. The doctor saw from > the CT scan that I had bronchiectasis. I am currently trying to figure out > more of what this disease is and how to live every day with it, what helps > and hurts. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Yes, the humid weather does become a challenge; I discovered that quickly. Thank you for the thought on Mucinex, it is really appreciated. Also, thank you for the support. > > Joe > > I too have the bronc for 40+years. It is sometimes hard to deal with. > Lung surgery > in 1968 to eliminate the worst of the infection. But 10 or so years ago, I > developed really severe bronc that was almost fatal. I use Advair, > combivent and singulair, also Mucinex to thin the mucus to cough it out. My > case, I get really loaded in afternoons with so much mucus and then keep > coughing it up to rid of it. If I withold it, I get really sick to chest. The > Mucinex really helps with out the percussion. It is a must that I clean my > chest just before I go to bed. Mucinex with cough suppressant will help in > a better nights sleep. But generally within 5 minutes after lying down, I > will have to get up and clear chest again. (Head down to waist level.) > Bronc is an embarrassing condition to have to deal with especially around > other people. I have had 2 broncoscopes and Xrays. Beware of the CT scans as > many times more radiation is used. It is more detailed but the risks of > excess radiation. The hot humid weather is very hard for me to deal with. > But, I keep chugging along. > > My doctor said it was like bronchitis that has gone haywire. > > AL > > > In a message dated 1/13/2010 3:23:01 P.M. Eastern Standard Time, > ericnkayn@... writes: > > > > > > If you can find someone else to do the percussion on you it will be much > more effective. I bought a firm foam wedge about 36 " x 36 " to lay on top of > our bed, which itself is raised six inches at the head. Then I put two > firm pillows under my hips, with my head lower than the hips on top of the > wedge. This creates quite a bit of slant, which helps the trapped mucus come > up as the percussion proceeds. The best is to do it on all four sides of > your upper body/lung area, coughing up stuff as needed in between the > percussion pounding (I call it pounding, but it isn't quite as hard as a true > " pound " ). > I originally found basic info on how to do the percussion therapy on a > university medical school web-site (can't remember which university) devoted > to cystic fibrosis. Of course, CF is generally more serious than > bronchiectasis and involves other body systems besides the lungs that also have > genetic insufficiencies, but some of the same principles of care apply. You > might Google various words and phrases to see what's out there. That's what I > did. > Best of luck to you in getting started on caring for yourself. My > personal opinion is not to overdo on CT Xray tests or antibiotics. You're young, > and radiation carries very real cumulative risk of cancer, and antibiotics > stop working if overused. Do all you can with physical self-care of your > lungs via percussion (daily if you need it), vigorous exercise, and a > healthy diet. Explore natural complimentary measures like eating garlic, > turmeric, lots of vegetables, little or no meat, doing yoga to encourage > relaxation and drainage through it's many downward positions and stretches. Stay > away from those with colds, wash your hands frequently, use the alcohol hand > sanitizers in your car or backpack after being outside your home. My > biggest problem is catching my grandkids colds, that then go into my lungs even > if the cold was very mild. I sometimes have to do the percussion two or > three times a day when this happens, and it can go on for a month or more. > You'll love the supportive folks you meet in this group. > Kay > intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my > MA during this past summer, I became sick. I ended up having a CT scan > done for a separate condition during this same time. The doctor saw from > the CT scan that I had bronchiectasis. I am currently trying to figure out > more of what this disease is and how to live every day with it, what helps > and hurts. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 I'm so sorry you have to spend so much time in bed! What a bummer. Get a second opinion if your pulmonologist doesn't have much to say. And do try to build up your exercise capacity by walking a little more each day, if you can. Can you get light hand weights to use in bed or in a chair? Bless you friend, Kay intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 I'm so sorry you have to spend so much time in bed! What a bummer. Get a second opinion if your pulmonologist doesn't have much to say. And do try to build up your exercise capacity by walking a little more each day, if you can. Can you get light hand weights to use in bed or in a chair? Bless you friend, Kay intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 I have one of those pedometers so I do try to walk a certain amount each day. I've also been trying to eat healthier in general, more salads and fruits. I think I have some light hand weights, but I can't dig around for them just yet, but I will as soon as I can. Thank you for the idea for sure about doing them in the bed or the chair.To: bronchiectasis Sent: Thu, January 14, 2010 12:42:12 PMSubject: Re: Re: intro I'm so sorry you have to spend so much time in bed! What a bummer. Get a second opinion if your pulmonologist doesn't have much to say. And do try to build up your exercise capacity by walking a little more each day, if you can. Can you get light hand weights to use in bed or in a chair? Bless you friend, Kay intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 I have one of those pedometers so I do try to walk a certain amount each day. I've also been trying to eat healthier in general, more salads and fruits. I think I have some light hand weights, but I can't dig around for them just yet, but I will as soon as I can. Thank you for the idea for sure about doing them in the bed or the chair.To: bronchiectasis Sent: Thu, January 14, 2010 12:42:12 PMSubject: Re: Re: intro I'm so sorry you have to spend so much time in bed! What a bummer. Get a second opinion if your pulmonologist doesn't have much to say. And do try to build up your exercise capacity by walking a little more each day, if you can. Can you get light hand weights to use in bed or in a chair? Bless you friend, Kay intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010  When I was stuck in bed and was sick and tired of being sick and tired, I thought of weight exercises to push the aches and pains out. I didn't have weights, so my lady suggested small tins of canned food. I started with small can of tomato paste and worked my way up to 1/2 L plastic bottles of oil. After that I was up and around. It may sound a little strange but it worked for me. Leon R. intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010  When I was stuck in bed and was sick and tired of being sick and tired, I thought of weight exercises to push the aches and pains out. I didn't have weights, so my lady suggested small tins of canned food. I started with small can of tomato paste and worked my way up to 1/2 L plastic bottles of oil. After that I was up and around. It may sound a little strange but it worked for me. Leon R. intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 sounds like a very good ideathank youTo: bronchiectasis Sent: Fri, January 15, 2010 9:46:57 AMSubject: Re: Re: intro  When I was stuck in bed and was sick and tired of being sick and tired, I thought of weight exercises to push the aches and pains out. I didn't have weights, so my lady suggested small tins of canned food. I started with small can of tomato paste and worked my way up to 1/2 L plastic bottles of oil. After that I was up and around. It may sound a little strange but it worked for me. Leon R. intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 sounds like a very good ideathank youTo: bronchiectasis Sent: Fri, January 15, 2010 9:46:57 AMSubject: Re: Re: intro  When I was stuck in bed and was sick and tired of being sick and tired, I thought of weight exercises to push the aches and pains out. I didn't have weights, so my lady suggested small tins of canned food. I started with small can of tomato paste and worked my way up to 1/2 L plastic bottles of oil. After that I was up and around. It may sound a little strange but it worked for me. Leon R. intro > > > >  > > > > > > > > > > > > > > Hello, > > > > My name is Joe. I am 25 with both my BA and MA. After finishing my MA during this past summer, I became sick. I ended up having a CT scan done for a separate condition during this same time. The doctor saw from the CT scan that I had bronchiectasis. I am currently trying to figure out more of what this disease is and how to live every day with it, what helps and hurts. > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Hi bennj831...some people don't tolerate postural drainage (lying with hips higher than shoulders) due to reflux. Even lying flat while hand-cupping can help but if you can find some kind of vibration device - a belt, anything - this helps without taking so much energy..There are devices such as an Acapella & Flutter Valve (google the names, shouldn't be hard to source where you are), but a cheapie version is a 1L bottle and about a foot of 1/2" tube (or wider). You fill the bottle about 2/3rds full and blow into it through the tube, focussing on abdomen breathing, squeezing all the air from your lungs. The vibration caused by the bubbles can help loosen secretions. Some hospitals or clinics give out the bottles (used saline ..) and tubing in Australia... maybe those US side would know who/where could help you?Apart from antibiotics the big thing with bronch is clearing secretions - how doesn't matter so much - just so long as anything down there is up and out! There's an article I can send you privately, which really enlightened me despite having been diagnosed...39 yrs ago (omg!). I was very much in the 'thrown in the deep end' no info, age 18, (can understand your feelings well) until only several years ago when I made the wonderful discovery of this site. Best thing ever ...you couldn't find a more warm-hearted, inspirational group, well-laced with large doses of humour. And a ton of useful info, support Happy breathing JJoy -- -- "Wealth is nothing, position is nothing, fame is nothing.Who you become inside is everything.What happens to you is not as important as how you react to what happens." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Hi bennj831...some people don't tolerate postural drainage (lying with hips higher than shoulders) due to reflux. Even lying flat while hand-cupping can help but if you can find some kind of vibration device - a belt, anything - this helps without taking so much energy..There are devices such as an Acapella & Flutter Valve (google the names, shouldn't be hard to source where you are), but a cheapie version is a 1L bottle and about a foot of 1/2" tube (or wider). You fill the bottle about 2/3rds full and blow into it through the tube, focussing on abdomen breathing, squeezing all the air from your lungs. The vibration caused by the bubbles can help loosen secretions. Some hospitals or clinics give out the bottles (used saline ..) and tubing in Australia... maybe those US side would know who/where could help you?Apart from antibiotics the big thing with bronch is clearing secretions - how doesn't matter so much - just so long as anything down there is up and out! There's an article I can send you privately, which really enlightened me despite having been diagnosed...39 yrs ago (omg!). I was very much in the 'thrown in the deep end' no info, age 18, (can understand your feelings well) until only several years ago when I made the wonderful discovery of this site. Best thing ever ...you couldn't find a more warm-hearted, inspirational group, well-laced with large doses of humour. And a ton of useful info, support Happy breathing JJoy -- -- "Wealth is nothing, position is nothing, fame is nothing.Who you become inside is everything.What happens to you is not as important as how you react to what happens." Quote Link to comment Share on other sites More sharing options...
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