Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 My son is on SCD so he eats lots of nuts fruits vegetables and meats. That means high oxalates right? He is already taking Biotin8 at 8000mcg. That's plenty right? We also recently stopped MB12 shots with Nac and folinic as someone. mentioned that may be causing problems due to methylation. He did well when it was plain MB12 but since he has been taking it for over a year doc said stop. I read methylation and sulfation problems here. My son just started magnesium sulfate to calm him also. Is this a sulfation issue? I love the support this group gives. Everyone has invaluable insight.FranselSender: taca-usa Date: Thu, 14 Apr 2011 19:49:48 -0500To: taca-usa <taca-usa >ReplyTo: taca-usa Subject: Re: Raw cracking lips When my son had cracked lips and hair loss it was due to Vitamin A ... At a toxic level... Sent from my iPhone> Oh I have heard of people getting die-off effects just by adding in biotin.> So I guess a word of warning on that.> > > >> Biotin. Add heaps of it. It helps control yeast too. His bad attitude if>> you want to call it that the last few days could be oxalate dumping. Have>> you run out or stopped giving a high oxalate food recently? Nuts, spinach,>> rhubarb, quinoa, almond flour?>> >> Or if you haven't stopped giving those, but he eats a lot of that stuff, he>> just may be dumping oxalate from his cells deciding it's time to dump. I>> know you are treating for yeast too... the symptoms of yeast die-off and>> oxalate dumping look a lot alike.>> >> So anyway, the reason I mention this, oxalate messes with biotin so you can>> get biotin deficiency symptoms when oxalate is circulating (via high intake>> or dumping), like dry skin, chapped lips.>> >> Biotin regular supp dose is 300mcg. People doing the " low oxalate diet " >> have been known to take 10-40 milligrams (yes I wrote milligrams, not>> micrograms) to fight off oxalate 'badness.' LOL Maybe someone knows if yeast>> treatments causes oxalate to dump? Even if it isn't oxalate, biotin will>> help if you want to put something in and not on.>> >> >> >> >>> >>> >>> Has anyone observed this! Is it a vitamin deficiency or too much of one?>>> My doc also noted falling hair due to Diflucan.>>> Fransel>>> >>> >> >> >> >> -->> Toni>> >> ------>> Mind like a steel trap...>> Rusty and illegal in 37 states.>> > > > > -- > Toni> > ------> Mind like a steel trap...> Rusty and illegal in 37 states.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 You'd have to determine whether or not he has an oxalate issue. My daughter has an oxalate issue. I could tell she had an oxalate issue because she had chronic diarrhea and in the diarrhea, there were black specs. It was diarrhea that I couldn't stop by any other means than to go SCD/low oxalates. She had sandy stools, too. There were tiny little hard specs in it. She's still in diapers and when she poops, it sticks to her butt and is hard to wipe off. If she just had a BM, it sticks as though it were dried on there and was there for hours. That's an oxalate dump. Other indications of oxalate problems is when supps don't quite work as they should because oxalates are crowding the inside of cells. You're giving everything that you should with a supp to make it absorbable but it still doesn't quite work. That was an indication of oxalates in my daughter. Cloudy urine is another sign. It's because when they urinate, they sometimes pass oxalates through urine and they come out as these tiny, tiny crystals that when you look at it, it looks like it's cloudy. My son is on SCD so he eats lots of nuts fruits vegetables and meats. That means high oxalates right? He is already taking Biotin8 at 8000mcg. That's plenty right? We also recently stopped MB12 shots with Nac and folinic as someone. mentioned that may be causing problems due to methylation. He did well when it was plain MB12 but since he has been taking it for over a year doc said stop. I read methylation and sulfation problems here. My son just started magnesium sulfate to calm him also. Is this a sulfation issue? I love the support this group gives. Everyone has invaluable insight. Fransel Sender: taca-usa Date: Thu, 14 Apr 2011 19:49:48 -0500 To: taca-usa <taca-usa > ReplyTo: taca-usa Subject: Re: Raw cracking lips When my son had cracked lips and hair loss it was due to Vitamin A ... At a toxic level... Sent from my iPhone > Oh I have heard of people getting die-off effects just by adding in biotin.> So I guess a word of warning on that.> > > >> Biotin. Add heaps of it. It helps control yeast too. His bad attitude if>> you want to call it that the last few days could be oxalate dumping. Have>> you run out or stopped giving a high oxalate food recently? Nuts, spinach, >> rhubarb, quinoa, almond flour?>> >> Or if you haven't stopped giving those, but he eats a lot of that stuff, he>> just may be dumping oxalate from his cells deciding it's time to dump. I >> know you are treating for yeast too... the symptoms of yeast die-off and>> oxalate dumping look a lot alike.>> >> So anyway, the reason I mention this, oxalate messes with biotin so you can >> get biotin deficiency symptoms when oxalate is circulating (via high intake>> or dumping), like dry skin, chapped lips.>> >> Biotin regular supp dose is 300mcg. People doing the " low oxalate diet " >> have been known to take 10-40 milligrams (yes I wrote milligrams, not>> micrograms) to fight off oxalate 'badness.' LOL Maybe someone knows if yeast>> treatments causes oxalate to dump? Even if it isn't oxalate, biotin will >> help if you want to put something in and not on.>> >> >> >> >>> >>> >>> Has anyone observed this! Is it a vitamin deficiency or too much of one?>>> My doc also noted falling hair due to Diflucan.>>> Fransel >>> >>> >> >> >> >> -->> Toni>> >> ------>> Mind like a steel trap...>> Rusty and illegal in 37 states.>> > > > > -- > Toni> > ------> Mind like a steel trap...> Rusty and illegal in 37 states.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2011 Report Share Posted April 15, 2011 When we took plain MB12, we had less reactions than when it was in a formula with folinic acid and such. But, I am thinking it was extra die-off because we got an increase in symptoms for nearly 2 months and then the increase left, and was replaced with gains. It was very difficult to go through those 2 months of extra die-off. Love and prayers, Heidi N My son is on SCD so he eats lots of nuts fruits vegetables and meats. That means high oxalates right? He is already taking Biotin8 at 8000mcg. That's plenty right? We also recently stopped MB12 shots with Nac and folinic as someone. mentioned that may be causing problems due to methylation. He did well when it was plain MB12 but since he has been taking it for over a year doc said stop. I read methylation and sulfation problems here. My son just started magnesium sulfate to calm him also. Is this a sulfation issue? I love the support this group gives. Everyone has invaluable insight. Fransel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 Fransel We use Mag chloride flakes in bath instead of Epsom salts which is Mag sulfate and we use Mag chloride injections instead of Mag. sulfate injections.....because of sulfation issues....these work better in our family. My son is on SCD so he eats lots of nuts fruits vegetables and meats. That means high oxalates right? He is already taking Biotin8 at 8000mcg. That's plenty right? We also recently stopped MB12 shots with Nac and folinic as someone. mentioned that may be causing problems due to methylation. He did well when it was plain MB12 but since he has been taking it for over a year doc said stop. I read methylation and sulfation problems here. My son just started magnesium sulfate to calm him also. Is this a sulfation issue? I love the support this group gives. Everyone has invaluable insight. Fransel Sender: taca-usa Date: Thu, 14 Apr 2011 19:49:48 -0500 To: taca-usa <taca-usa > ReplyTo: taca-usa Subject: Re: Raw cracking lips When my son had cracked lips and hair loss it was due to Vitamin A ... At a toxic level... Sent from my iPhone > Oh I have heard of people getting die-off effects just by adding in biotin.> So I guess a word of warning on that.> > > >> Biotin. Add heaps of it. It helps control yeast too. His bad attitude if>> you want to call it that the last few days could be oxalate dumping. Have>> you run out or stopped giving a high oxalate food recently? Nuts, spinach, >> rhubarb, quinoa, almond flour?>> >> Or if you haven't stopped giving those, but he eats a lot of that stuff, he>> just may be dumping oxalate from his cells deciding it's time to dump. I >> know you are treating for yeast too... the symptoms of yeast die-off and>> oxalate dumping look a lot alike.>> >> So anyway, the reason I mention this, oxalate messes with biotin so you can >> get biotin deficiency symptoms when oxalate is circulating (via high intake>> or dumping), like dry skin, chapped lips.>> >> Biotin regular supp dose is 300mcg. People doing the " low oxalate diet " >> have been known to take 10-40 milligrams (yes I wrote milligrams, not>> micrograms) to fight off oxalate 'badness.' LOL Maybe someone knows if yeast>> treatments causes oxalate to dump? Even if it isn't oxalate, biotin will >> help if you want to put something in and not on.>> >> >> >> >>> >>> >>> Has anyone observed this! Is it a vitamin deficiency or too much of one?>>> My doc also noted falling hair due to Diflucan.>>> Fransel >>> >>> >> >> >> >> -->> Toni>> >> ------>> Mind like a steel trap...>> Rusty and illegal in 37 states.>> > > > > -- > Toni> > ------> Mind like a steel trap...> Rusty and illegal in 37 states.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Hello Everyone, I have 13 years olds son. He is autistic and have lyme. I did try everything he is in SCD ANd GAP diet. Lately his sleeping is not good he has a lot of sensory issue . He is un settle screams all the time he can not be quit. Somebody suggested to me her son was like that and when she star Low Oxalate diet he changed. I am so confuse know because everything I give him is high oxalate. I need help!!! I saw her son and he is quit and you can not even recognize weather he is autistic/lyme or not. Is there any one of the group who did this diet and get good success.Since 2004 I have been on the road and I am keep correcting my mistake and I am not even there yet. He is with DR K. last 2 years. He is not verbal I mean he ihas view words one single word but his understanding improve but he is going through a lot. Thank you. Idman > > When we took plain MB12, we had less reactions than when it was in a > formula with folinic acid and such. But, I am thinking it was extra > die-off because we got an increase in symptoms for nearly 2 months and > then the increase left, and was replaced with gains. It was very > difficult to go through those 2 months of extra die-off. > > Love and prayers, > > Heidi N > > > > My son is on SCD so he eats lots of nuts fruits vegetables and meats. > That means high oxalates right? He is already taking Biotin8 at 8000mcg. > That's plenty right? We also recently stopped MB12 shots with Nac and > folinic as someone. mentioned that may be causing problems due to > methylation. He did well when it was plain MB12 but since he has been > taking it for over a year doc said stop. I read methylation and > sulfation problems here. My son just started magnesium sulfate to calm > him also. Is this a sulfation issue? I love the support this group > gives. Everyone has invaluable insight. > Fransel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Hi Idman, My son has been on the LOD diet for more than an year and prior to that we did the BED and GAPS diets, but the LOD is the only diet that for first time we saw actually improvements, so I highly encourage you to try it if you suspect your son has oxalates problem. I still do some of the things from the BED diet (like fermenting vegetables and young coconut water) and thankfully to the LOD diet my son doesn't have anymore any urinating accidents (he used to urinate very often when he was on the BED diet, so that's when I started suspecting oxalates problem) and he is much much calmer, than before. There is yahoo group " Trying_Low_Oxalates " which I think it would be very useful to join it, if you haven't done it already. Tons of good info, how to start, recipies, also the moderator of the group - Owens is a scientist who started the whole connection between LOD and autism and she is also very helpful and almost always answers if you have any specific questions. HTH, Krassi > > > > When we took plain MB12, we had less reactions than when it was in a > > formula with folinic acid and such. But, I am thinking it was extra > > die-off because we got an increase in symptoms for nearly 2 months and > > then the increase left, and was replaced with gains. It was very > > difficult to go through those 2 months of extra die-off. > > > > Love and prayers, > > > > Heidi N > > > > > > > > My son is on SCD so he eats lots of nuts fruits vegetables and meats. > > That means high oxalates right? He is already taking Biotin8 at 8000mcg. > > That's plenty right? We also recently stopped MB12 shots with Nac and > > folinic as someone. mentioned that may be causing problems due to > > methylation. He did well when it was plain MB12 but since he has been > > taking it for over a year doc said stop. I read methylation and > > sulfation problems here. My son just started magnesium sulfate to calm > > him also. Is this a sulfation issue? I love the support this group > > gives. Everyone has invaluable insight. > > Fransel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Thank you Krassi, I order the cook book and join those yahoo groups. and Vit K C.Tamara. they both talking about how to adress Oxalate and different approach it is confusing.The main reason I am interesting the child I saw is one of the patient of DK and he is doing same protocol of my son Babasia and parasite and also doing injection DMPS and still calm. I always think my son is not calm because he i dealing a hard protocls but that is not the case. I tested oxalate my son.I did 24hr urining collection and was negative more than two times that was long time a go.what is confusing me is my son has normal bawol movement and normal form. but that lady when she saw my son she said he has oxalate issue. I never see any good improvment my son and I did everything you name it. Idman > > > > > > When we took plain MB12, we had less reactions than when it was in a > > > formula with folinic acid and such. But, I am thinking it was extra > > > die-off because we got an increase in symptoms for nearly 2 months and > > > then the increase left, and was replaced with gains. It was very > > > difficult to go through those 2 months of extra die-off. > > > > > > Love and prayers, > > > > > > Heidi N > > > > > > > > > > > > My son is on SCD so he eats lots of nuts fruits vegetables and meats. > > > That means high oxalates right? He is already taking Biotin8 at 8000mcg. > > > That's plenty right? We also recently stopped MB12 shots with Nac and > > > folinic as someone. mentioned that may be causing problems due to > > > methylation. He did well when it was plain MB12 but since he has been > > > taking it for over a year doc said stop. I read methylation and > > > sulfation problems here. My son just started magnesium sulfate to calm > > > him also. Is this a sulfation issue? I love the support this group > > > gives. Everyone has invaluable insight. > > > Fransel > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Idman, The urine testing for oxalates is not accurate (the same as you have heard already about testing for parasites, lyme and strep – you can always have false negative, I wish also things were easier with our kids and we had some reliable testings), so your best test is to go on low/medium oxalates foods for 1-2 weeks and if you see any improvements than you are on the right path. My son also had normal bowel movements when he was still high on oxalates. The only reason I suspected high oxalates was because he was urinating frequently, as I mentioned already and because he was very easily irritable. It was obvious that something was bothering him, although all the healthy foods I was giving him (he has been organic, GF/CF/SF and everything home-made for the last 3 years). So the first week we went with low and medium oxalate foods he immediately started urinating only once per hour (this was huge for us because prior to that every 10 min) and he became calmer happier boy. The beauty of the LOD diet is that you see the positives very soon, so you don't need to wait too long to decide if it is right for you or not. The only concerning part is once the body starts clearing from the oxalates – as in our case this started approximately 3-4 weeks after we started the LOD. My son was in big pain when urinating, so this is when was extremely helpful because she told me what supplements to give him to easy the dumping. This is when I realized how huge problem my son had and how the previous diet – the BED was not good for him, because his body was not processing the oxalates from quinoa and millet flours (my son used to eat BED bread made from quinoa and millet) and all the nuts. I am not saying BED or SCD is bad for everybody, I have heard many kids to amazing progress with these diets. But in our case it was not good and in fact was doing more harm than good. So my advice is – simply try it for 1-2 weeks and see if it is right for your son. Good luck! Krassi > > Thank you Krassi, I order the cook book and join those yahoo groups. > and Vit K C.Tamara. they both talking about how to adress Oxalate and different approach it is confusing.The main reason I am interesting the child I saw is one of the patient of DK and he is doing same protocol of my son Babasia and parasite and also doing injection DMPS and still calm. I always think my son is not calm because he i dealing a hard protocls but that is not the case. I tested oxalate my son.I did 24hr urining collection and was negative more than two times that was long time a go.what is confusing me is my son has normal bawol movement and normal form. but that lady when she saw my son she said he has oxalate issue. I never see any good improvment my son and I did everything you name it. > Idman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Thanks Krassi for sharing your experience with low oxalate diet. The urinating thing happens over here, too, but my son also drinks a lot, so I'm not sure what the cause is. We just had his urine checked at the pediatrician and nothing came back as the culprit. I don't remember the urination problem prior to changing to SCD...which makes me wonder now. He doesn't eat any grain or nuts but lots of veggies and some may be high in oxalates, I don't know. I am going to look into it. Are oxalate problems related to urinating large amounts? He urinates frequently and heavily. na > > > > Thank you Krassi, I order the cook book and join those yahoo groups. > > and Vit K C.Tamara. they both talking about how to adress Oxalate and different approach it is confusing.The main reason I am interesting the child I saw is one of the patient of DK and he is doing same protocol of my son Babasia and parasite and also doing injection DMPS and still calm. I always think my son is not calm because he i dealing a hard protocls but that is not the case. I tested oxalate my son.I did 24hr urining collection and was negative more than two times that was long time a go.what is confusing me is my son has normal bawol movement and normal form. but that lady when she saw my son she said he has oxalate issue. I never see any good improvment my son and I did everything you name it. > > Idman > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 na, In our case the urinating was frequent and in small amounts, very much like symptoms for urinary tract infection, however when we did the UTI test nothing showed up so I thought it should be something else…. At this point we were still consulting with Houston Homeopaths and they thought that it might be detoxying, however I was skeptic if it could be just detoxing, because he was not showing any improvements, but just getting worse. So in your case it might be also detoxying? Just a thought... By the way I also live in the Bay area so next time we get together with some of the moms who are also on this board I will let you know. Krassi > > Thanks Krassi for sharing your experience with low oxalate diet. The urinating thing happens over here, too, but my son also drinks a lot, so I'm not sure what the cause is. We just had his urine checked at the pediatrician and nothing came back as the culprit. I don't remember the urination problem prior to changing to SCD...which makes me wonder now. He doesn't eat any grain or nuts but lots of veggies and some may be high in oxalates, I don't know. > > I am going to look into it. Are oxalate problems related to urinating large amounts? He urinates frequently and heavily. > > na Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2011 Report Share Posted April 19, 2011 Thank you. It could definitely be related to detox...we have been increasing his detox supplements for the last six weeks. I'm glad you mentioned that. I am going to try low-ox, too, just to see if I notice a difference in the volume. He is still in diapers so it's hard for me to tell if he is going frequently...but I'm almost certain he is since his diaper is NEVER dry. na > > > > Thanks Krassi for sharing your experience with low oxalate diet. The urinating thing happens over here, too, but my son also drinks a lot, so I'm not sure what the cause is. We just had his urine checked at the pediatrician and nothing came back as the culprit. I don't remember the urination problem prior to changing to SCD...which makes me wonder now. He doesn't eat any grain or nuts but lots of veggies and some may be high in oxalates, I don't know. > > > > I am going to look into it. Are oxalate problems related to urinating large amounts? He urinates frequently and heavily. > > > > na > Quote Link to comment Share on other sites More sharing options...
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