Re: intravenous Treatments

[Guest guest]

Yes Tammy my doc recommends intravenous treatments to bypass the gut since my son is herxing a lot. We are not yet there as we are still doing more blood urine and saliva tests. In the meantime we are addressing gut issues thru better diet and supplements and elimination. Am sure there's oxalate dumping issues like today he aggressed towards his therapist and he just had blueberries (high oxalate). Another problem of mine is how to eliminate his nut breads. I do not have a substitute as even quinoa is high oxalate and millet is +3. FranselSender: BorreliaMultipleInfectionsAndAutism Date: Mon, 25 Apr 2011 22:06:54 -0500To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: vertical streaks onbackof neck and upper back Hi Fransel,I see our boys reacting to many of the same things.  Itried risperidol also,it made my son worse also.We tried the naturalroute also and seemed worse than nonnatural.                           I have started the NIDS protocaland the doc. put him on amphotericin B,for yeast . He does not reacttoo terribly to it.The doc. says it does not go systemic.Its beenthe only stomach med he can take.I tried all naturals,nystatin,diflucan,enzymes.It only covers his stomach.  Also,I havestarted the Nids diet(no milk,or whole grains).I think I notice aslight calm in him.Although doing with out milk was hard for him atfist. I am pondering the Low oxilate and no amylose diet.I tried theLow oxilate before but I am not sure I tried for long enough.I amalso considering doing intravenious babesia treatment.Have you triedthat?                             I am just so thankful I have youand others to talk.It was just awful being offline for awhile.              Thankful for you,Tammy F.             Tammy we are experiencing the same - diagnosis is lymebartonella anaplasma and co-infections. My son becameaggressive with herbal treatments and nystatin so I triedrisperidal but made things worse so we quit on 4th day. Amvery scared to try new meds as he always goes thru theroof. What diet are you on? Our LLMD put us on modifiedSCD and no am.ylose diet. I am looking into the lowoxalate diet. Good luck to all of us in this support group- the road ahead is bumpy but we gotta hang in there forour loved ones.FranselSender: BorreliaMultipleInfectionsAndAutism Date: Mon, 25 Apr 2011 20:13:45 -0500To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: vertical streakson back of neck and upper back  My son had those through his fist 6 years of life.Offand on. His LLMD diagnosed it as Bartonella. He has beentreated for 2 years with mycobutin azithromiacin andinter muscular bicillin shots.He no longer has thoserashes.His body never did well on the meds(missed monthsand months of school) .I actually thought these medswhere useless for my son,untill I read your post andrealized my son no longer has those rashes.My son hasanother co-infection of Lyme that needs to betreated,but he does so terrible on meds,that I am scaredto try new things.Although maybe things are better nowthat he is on valtrex.Valtrex has been the best withnoticeable changes for my son.       But I believe it isvery important to treat with antibiotics for Lyme,Bartonella and Co-infections.But only treated by a Lymeliterate medical doctor.Good Luck,Tammy F. I uploaded photos of the streaks and named the file"MJ rash". The quality is not the best, buthopefully you can see. They are faint lines. Pleaselet me know if anyone recognizes these streaks.Thank you!>> Hi, my son has some thin vertical streaksacross the top of his back. They are darkred/purple. They are more along his shoulders andthe back of his neck. I first noticed two days ago,but I have been watching this closely and it seemsthey are now spreading lower. Anyone seen anythinglike this before? It is a first for us. Wondering ifit is viral or bacterial related. He has not beenphysically well for the past few days. Mostlyallergy/sinus type symptoms. Only a low grade feverin the 99's at most.> > Kari>

[Guest guest]

I have not checked this yet(for low oxilate),but my son seems to do

fine with plain white bread with no whole grains. That idea comes

from the NiDs idea on diet. The doc. says use it as needed,but don't

over do. It is pretty much dead food,so my son seems to not react to

it.                Tammy F.

 

Yes Tammy my doc recommends intravenous treatments to

bypass the gut since my son is herxing a lot. We are not

yet there as we are still doing more blood urine and

saliva tests. In the meantime we are addressing gut issues

thru better diet and supplements and elimination. Am sure

there's oxalate dumping issues like today he aggressed

towards his therapist and he just had blueberries (high

oxalate). Another problem of mine is how to eliminate his

nut breads. I do not have a substitute as even quinoa is

high oxalate and millet is +3.

Fransel

Sender:

BorreliaMultipleInfectionsAndAutism

Date: Mon, 25 Apr 2011 22:06:54 -0500

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo:

BorreliaMultipleInfectionsAndAutism

Subject: Re:

Re: vertical streaks

onback of neck and upper back

 

Hi Fransel,I see our boys reacting to many of the same

things.  I tried risperidol also,it made my son worse

also.We tried the natural route also and seemed worse

than non natural.                           I have

started the NIDS protocal and the doc. put him on

amphotericin B,for yeast . He does not react too

terribly to it.The doc. says it does not go systemic.Its

been the only stomach med he can take.I tried all

naturals ,nystatin,diflucan,enzymes.It only covers his

stomach.  Also,I have started the Nids diet(no milk,or

whole grains).I think I notice a slight calm in

him.Although doing with out milk was hard for him at

fist. I am pondering the Low oxilate and no amylose

diet.I tried the Low oxilate before but I am not sure I

tried for long enough.I am also considering doing

intravenious babesia treatment.Have you tried that?    

                        I am just so thankful I have you

and others to talk.It was just awful being offline for a

while.              Thankful for you,Tammy F.           

 

Tammy we are experiencing the same - diagnosis

is lyme bartonella anaplasma and co-infections.

My son became aggressive with herbal treatments

and nystatin so I tried risperidal but made

things worse so we quit on 4th day. Am very

scared to try new meds as he always goes thru

the roof. What diet are you on? Our LLMD put us

on modified SCD and no am.ylose diet. I am

looking into the low oxalate diet. Good luck to

all of us in this support group - the road ahead

is bumpy but we gotta hang in there for our

loved ones.

Fransel

Sender: BorreliaMultipleInfectionsAndAutism

Date: Mon, 25 Apr 2011 20:13:45 -0500

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: Re:

Re:

vertical streaks on back of neck and upper back

 

My son had those through his fist 6 years of

life.Off and on. His LLMD diagnosed it as

Bartonella. He has been treated for 2 years

with mycobutin azithromiacin and inter

muscular bicillin shots.He no longer has those

rashes.His body never did well on the

meds(missed months and months of school) .I

actually thought these meds where useless for

my son,untill I read your post and realized my

son no longer has those rashes.My son has

another co-infection of Lyme that needs to be

treated,but he does so terrible on meds,that I

am scared to try new things.Although maybe

things are better now that he is on

valtrex.Valtrex has been the best with

noticeable changes for my son.       But I

believe it is very important to treat with

antibiotics for Lyme ,Bartonella and

Co-infections.But only treated by a Lyme

literate medical doctor.Good Luck,Tammy F.

 

I uploaded photos of the streaks and

named the file "MJ rash". The quality is

not the best, but hopefully you can see.

They are faint lines. Please let me know

if anyone recognizes these streaks. Thank

you!

>

> Hi, my son has some thin vertical

streaks across the top of his back. They

are dark red/purple. They are more along

his shoulders and the back of his neck. I

first noticed two days ago, but I have

been watching this closely and it seems

they are now spreading lower. Anyone seen

anything like this before? It is a first

for us. Wondering if it is viral or

bacterial related. He has not been

physically well for the past few days.

Mostly allergy/sinus type symptoms. Only a

low grade fever in the 99's at most.

>

> Kari

>

[Guest guest]

Fransel,

We are starting low oxalate too and are having good success with coconut flour

instead of nut flour

Bethany

> >> >

> >> > Hi, my son has some thin vertical streaks across the top of his

> >> back. They are dark red/purple. They are more along his shoulders and

> >> the back of his neck. I first noticed two days ago, but I have been

> >> watching this closely and it seems they are now spreading lower.

> >> Anyone seen anything like this before? It is a first for us.

> >> Wondering if it is viral or bacterial related. He has not been

> >> physically well for the past few days. Mostly allergy/sinus type

> >> symptoms. Only a low grade fever in the 99's at most.

> >> >

> >> > Kari

> >> >

> >>

> >

> >

>