Guest guest Posted May 2, 2011 Report Share Posted May 2, 2011 Thanks. I just bought the Bach flower rescue remedy. Hope it does the job. I've also increased the GABA and Melatonin. Holding off on valium as I got scared after postings here warned me of side effects.FranselSender: BorreliaMultipleInfectionsAndAutism Date: Mon, 02 May 2011 22:01:19 -0500To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium I forgot about the Rescue Remedy.My son got some relief with usingit as needed.I went by the instructions on the bottle. I used thechildrens Rescue Remedy only. Modifilan made my son worse.I onlytried it one day for him. I used it also.I thought it was greatuntil(about 2 weeks into it) I started getting toxins pulling frommy tissues(I think that is what was happening),by using it.I thinkit was pulling too quickly so I got scared of it.My babesia flaredlike mad.    Tammy F. I called the Vitamin Shoppe and they have the bach flowerrescue remedy. I will just get the most expensive kind.How do you give it? Away from anything? I will googleModifilan source. Thanks for your suggestion. I feel I amracing with time to find a remedy. FranselFrom: franselw@...Sender: BorreliaMultipleInfectionsAndAutism Date: Tue, 3 May 2011 01:07:38 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Yes he seems to be having lots of sensory issues. Wherepls can I get all this stuff. This may be a betteralternative to valium. I have to get it ASAP!FranselFrom: w3m1@...Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 2 May 2011 20:23:01 -0400 (EDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Fransel,When we get aggresion here bach flower rescueremedy and modifilan always work. They're also goodfor die off. Does your son seem to be in pain? Re: Valium Dear Isa - thank you for your words ofcomfort. I am hoping valium will betemporary. Lyme has led to this situation. Ithink maybe the kind of probiotics I amgiving? Custom Probiotics D lactate -lactobacilli with bifido - baby scoop- maynot be agreeable? He is not yet on ABX as weare still addressing gut issues andfinishing up Diflucan. I have nothing formopping up yeast die off as charcoal causedbehaviors too. I could not find apple pectinbinder in powder form. Capsule I foundcontains stearic acid so no good. Don't knowwhat else to use for die-offs if that is theissue. Thank you for any advice out there.FranselFrom: isaguzmandiaz2@...Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 2 May 2011 20:50:57+0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium You HAVE a reason to be desperate.Sorry l cant help you more, just want tosay l will raise my prayer for yourfamily right now and to remind you towean your child out of this medicationslowly, if you give it for several days,dont forget to wean him off of it.Removing it at once can create otherproblems you dont have. None of us wantsto have a child on this kind ofmedication, but if there is nothing elseto do, l just pray it is for the bestand that it is temporary. My heart goesout to you. May l ask what do you thinkhas been the culprit to the situation?Anything specific that might haveunleashed this behavior? Perhaps somebrainstorming could shed some light.From mom to mom, l send you Angels andthe Peace that surpases allunderstanding.IsaEnviado desde mi oficina móvilBlackBerry® de TelcelFrom: franselw@...Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 2 May 201118:30:59 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >;TACA USA<taca-usa >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Valium My son is extremely violent today- DAN doc is putting him temporarilyon valium 5mg up to 2x daily ratherthan giving anti psychotic medsuntil we are able to treat lyme withantibiotics. Any thoughts anyone?Sorry for sounding desperate.Fransel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2011 Report Share Posted May 3, 2011 Have you had tests that show he needs GABA. Too much GABA can produce exactly the opposite of what you want to achieve and can increase aggression. Thanks. I just bought the Bach flower rescue remedy. Hope it does the job. I've also increased the GABA and Melatonin. Holding off on valium as I got scared after postings here warned me of side effects.FranselFrom: Tammy Farmer Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 02 May 2011 22:01:19 -0500To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium I forgot about the Rescue Remedy.My son got some relief with using it as needed.I went by the instructions on the bottle. I used the childrens Rescue Remedy only. Modifilan made my son worse.I only tried it one day for him. I used it also.I thought it was great until(about 2 weeks into it) I started getting toxins pulling from my tissues(I think that is what was happening),by using it.I think it was pulling too quickly so I got scared of it.My babesia flared like mad. Tammy F. I called the Vitamin Shoppe and they have the bach flower rescue remedy. I will just get the most expensive kind. How do you give it? Away from anything? I will google Modifilan source. Thanks for your suggestion. I feel I am racing with time to find a remedy.FranselFrom: franselw@...Sender: BorreliaMultipleInfectionsAndAutism Date: Tue, 3 May 2011 01:07:38 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Yes he seems to be having lots of sensory issues. Where pls can I get all this stuff. This may be a better alternative to valium. I have to get it ASAP!FranselFrom: w3m1@...Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 2 May 2011 20:23:01 -0400 (EDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Fransel,When we get aggresion here bach flower rescue remedy and modifilan always work. They're also good for die off. Does your son seem to be in pain? Valium My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate.Fransel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2011 Report Share Posted May 3, 2011 Hello Ana,How much GABA is too much? I was told that it was ok to give as much as 3000mg per day. What tests are there for GABA? I also give L Theanine.Sent from my iPad Have you had tests that show he needs GABA. Too much GABA can produce exactly the opposite of what you want to achieve and can increase aggression. Thanks. I just bought the Bach flower rescue remedy. Hope it does the job. I've also increased the GABA and Melatonin. Holding off on valium as I got scared after postings here warned me of side effects.FranselSender: BorreliaMultipleInfectionsAndAutism Date: Mon, 02 May 2011 22:01:19 -0500To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium I forgot about the Rescue Remedy.My son got some relief with using it as needed.I went by the instructions on the bottle. I used the childrens Rescue Remedy only. Modifilan made my son worse.I only tried it one day for him. I used it also.I thought it was great until(about 2 weeks into it) I started getting toxins pulling from my tissues(I think that is what was happening),by using it.I think it was pulling too quickly so I got scared of it.My babesia flared like mad. Tammy F. I called the Vitamin Shoppe and they have the bach flower rescue remedy. I will just get the most expensive kind. How do you give it? Away from anything? I will google Modifilan source. Thanks for your suggestion. I feel I am racing with time to find a remedy.FranselFrom: franselw@...Sender: BorreliaMultipleInfectionsAndAutism Date: Tue, 3 May 2011 01:07:38 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Yes he seems to be having lots of sensory issues. Where pls can I get all this stuff. This may be a better alternative to valium. I have to get it ASAP!FranselFrom: w3m1@...Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 2 May 2011 20:23:01 -0400 (EDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Fransel,When we get aggresion here bach flower rescue remedy and modifilan always work. They're also good for die off. Does your son seem to be in pain? Valium My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate.Fransel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2011 Report Share Posted May 3, 2011 Hi Fransel, I have been reading your posts but don't really post but I can totally relate to you. I too have a just turned 18 year old. I think all the suggestions you are getting are great and things we do daily we our son. But there are times when nothing seems to work except for giving him some motrin. I think sometimes they get really big headaches. My son will hit my head after he hits his. Or he will just hit us for no reason or will hit us if we just say no to something. During these episodes his behaivors excelate and he becomes very hard to handle and there is no stopping him. Sometimes he will bang his head on the wall causing holes, or on his desk and even the sidewalk. I can usually see it in his face ...he just looks miserable. Yesterday morning he came down to breakfast with one of these looks and hit his dad b/c he said no to playing with the sink. I gave him some motrin before sending him to school and he seemed to have a good day. I push detox on my son, we do yasko, ivs, etc on him. Sometimes it is probably too much for his body to handle. The schools don't really know how to handle them except for drugging them. Before he leaves for school I give him all calming supplements, yasko rnas and dab some lavender oil on his forehead. Usually this is enough. We also give 4 gaba(750 mgs) a day plus 2 ZENS at night. A UAA is used to look a gaba levels. According to Yasko, L-thenine is a methyl donor is good for some genetics but hard on others. Other supplements I use for calming is valerian and magnesium. Also use charcoal to mop up toxins. I hope this helps and don't feel alone. Sandy > > > >> Thanks. I just bought the Bach flower rescue remedy. Hope it does the job. I've also increased the GABA and Melatonin. Holding off on valium as I got scared after postings here warned me of side effects. > >> > >> Fransel > >> > >> > >> Sender: BorreliaMultipleInfectionsAndAutism > >> Date: Mon, 02 May 2011 22:01:19 -0500 > >> To: <BorreliaMultipleInfectionsAndAutism > > >> ReplyTo: BorreliaMultipleInfectionsAndAutism > >> Subject: Re: Valium > >> > >> > >> I forgot about the Rescue Remedy.My son got some relief with using it as needed.I went by the instructions on the bottle. I used the childrens Rescue Remedy only. Modifilan made my son worse.I only tried it one day for him. I used it also.I thought it was great until(about 2 weeks into it) I started getting toxins pulling from my tissues(I think that is what was happening),by using it.I think it was pulling too quickly so I got scared of it.My babesia flared like mad. Tammy F. > >> > >>> > >>> I called the Vitamin Shoppe and they have the bach flower rescue remedy. I will just get the most expensive kind. How do you give it? Away from anything? I will google Modifilan source. Thanks for your suggestion. I feel I am racing with time to find a remedy. > >>> > >>> Fransel > >>> > >>> From: franselw@... > >>> Sender: BorreliaMultipleInfectionsAndAutism > >>> Date: Tue, 3 May 2011 01:07:38 +0000 > >>> To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism@yahoogro\ ups.com> > >>> ReplyTo: BorreliaMultipleInfectionsAndAutism > >>> Subject: Re: Valium > >>> > >>> > >>> Yes he seems to be having lots of sensory issues. Where pls can I get all this stuff. This may be a better alternative to valium. I have to get it ASAP! > >>> > >>> Fransel > >>> > >>> From: w3m1@... > >>> Sender: BorreliaMultipleInfectionsAndAutism > >>> Date: Mon, 2 May 2011 20:23:01 -0400 (EDT) > >>> To: <BorreliaMultipleInfectionsAndAutism > > >>> ReplyTo: BorreliaMultipleInfectionsAndAutism > >>> Subject: Re: Valium > >>> > >>> > >>> > >>> Fransel, > >>> When we get aggresion here bach flower rescue remedy and modifilan always work. They're also good for die off. Does your son seem to be in pain? > >>> > >>> > >>> > >>> > >>> Valium > >>> > >>> > >>> My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate. > >>> Fransel > >> > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2011 Report Share Posted May 3, 2011 It may be ok to initially give as much as 3000 mg for asomeone that has extremely low levels and is large enough to tolerate that amount, but remember that L Theanine also contributes to the production of GABA. How old is your child and how much does he weigh?The question of too much is based on the weight of the person taking the supplements and what the levels are before you start to supplement. We had blood tests for amino acids ordered by our pediatrician. The lab reference range is so wide that most of his results were interpreted as normal by the MDs, but I have been supplementing for the amino acids that were near or below the low level of the reference range and I have seen some great results. When I received the test results I researched the function of each amino acid by searches on the internet and compared that information to the behaviour that he presented with. He is very anxious with a strong fight or flight response. He would often bite his hand and hit his head when he is overwhelmed. By adding foods to his diet that contain or produce the amino acids he was lacking in, as well as giving amino acid supplements I have seen a great reduction in his self injurious behaviour. I based starting dosage on what our DAN doctor suggested, and adjusted up or down based on observing the changes in my son. The calming supplements that produced these results for us are 5 HTP (Griffonia) which contributes to serotonin production and Tyrosine which contributes to dopamine production. His test levels were quite near the bottom of the reference range. It is important to note that I also start on low dosages and I have not had to use large amounts to see results. 100 mg of 5 HTP and 125 mg of tyrosine is all it takes. Now that he has been on these for 1 month I will be adding some other amino acids that were also low to see what more progress we can get. The other supplements he currently gets focus on antiviral, antiinflammatory and antifungal as well as stress reduction and methylation. At this time he also gets bromelain, cod liver oil with vitamin D, turmeric, folic acid, B12, niacin, resveratrol, OLE, cat's claw, coconut oil, and Holy Basil. I also give him Vega Whole Food Optimizer, and chlorella. For die off, look for foods that contain pectin like banana or apple, and help detox the liver the and kidneys with a detox tea.Can you give more details surrounding the violence? Also don't forget to look at any sensory issues your child may have. Does the violence occur when their is a lot of sensory overload or too high a demand on performance or compliance. Aggression is often a response to fear and the need to feel safe or the need to gain control of one's environment. If so, then the environment needs to be adjusted as well as addressing neurotransmitter issues. If it were me, I would get the plasma amino acid tests done ASAP or if you think you can, you may want to stop everything and see what behaviour you get after a few days of his body getting everything out of his system.Hope this is helpful and that you see some improvement soon. Hello Ana,How much GABA is too much? I was told that it was ok to give as much as 3000mg per day. What tests are there for GABA? I also give L Theanine.Sent from my iPad Have you had tests that show he needs GABA. Too much GABA can produce exactly the opposite of what you want to achieve and can increase aggression. On 2-May-11, at 9:17 PM, franselw@... wrote:Thanks. I just bought the Bach flower rescue remedy. Hope it does the job. I've also increased the GABA and Melatonin. Holding off on valium as I got scared after postings here warned me of side effects.FranselFrom: Tammy Farmer Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 02 May 2011 22:01:19 -0500To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium I forgot about the Rescue Remedy.My son got some relief with using it as needed.I went by the instructions on the bottle. I used the childrens Rescue Remedy only. Modifilan made my son worse.I only tried it one day for him. I used it also.I thought it was great until(about 2 weeks into it) I started getting toxins pulling from my tissues(I think that is what was happening),by using it.I think it was pulling too quickly so I got scared of it.My babesia flared like mad. Tammy F. I called the Vitamin Shoppe and they have the bach flower rescue remedy. I will just get the most expensive kind. How do you give it? Away from anything? I will google Modifilan source. Thanks for your suggestion. I feel I am racing with time to find a remedy.FranselFrom: franselw@...Sender: BorreliaMultipleInfectionsAndAutism Date: Tue, 3 May 2011 01:07:38 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Yes he seems to be having lots of sensory issues. Where pls can I get all this stuff. This may be a better alternative to valium. I have to get it ASAP!FranselFrom: w3m1@...Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 2 May 2011 20:23:01 -0400 (EDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Fransel,When we get aggresion here bach flower rescue remedy and modifilan always work. They're also good for die off. Does your son seem to be in pain? Valium My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate.Fransel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2011 Report Share Posted May 3, 2011 Dear My son's aggression stems from sensory overload as he covers his ears and eyes, does not like to turn on lights, wants to feel my nails rub against his palms. He also gets frustrated and overwhelmed by commands. He processes info too slowly and is always getting stuck with transitions. He was not like this before the lyme hit a year ago. He is almost non verbal.FranselSender: BorreliaMultipleInfectionsAndAutism Date: Tue, 3 May 2011 10:41:56 -0700To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium alternative It may be ok to initially give as much as 3000 mg for asomeone that has extremely low levels and is large enough to tolerate that amount, but remember that L Theanine also contributes to the production of GABA. How old is your child and how much does he weigh?The question of too much is based on the weight of the person taking the supplements and what the levels are before you start to supplement. We had blood tests for amino acids ordered by our pediatrician. The lab reference range is so wide that most of his results were interpreted as normal by the MDs, but I have been supplementing for the amino acids that were near or below the low level of the reference range and I have seen some great results. When I received the test results I researched the function of each amino acid by searches on the internet and compared that information to the behaviour that he presented with. He is very anxious with a strong fight or flight response. He would often bite his hand and hit his head when he is overwhelmed. By adding foods to his diet that contain or produce the amino acids he was lacking in, as well as giving amino acid supplements I have seen a great reduction in his self injurious behaviour. I based starting dosage on what our DAN doctor suggested, and adjusted up or down based on observing the changes in my son. The calming supplements that produced these results for us are 5 HTP (Griffonia) which contributes to serotonin production and Tyrosine which contributes to dopamine production. His test levels were quite near the bottom of the reference range. It is important to note that I also start on low dosages and I have not had to use large amounts to see results. 100 mg of 5 HTP and 125 mg of tyrosine is all it takes. Now that he has been on these for 1 month I will be adding some other amino acids that were also low to see what more progress we can get. The other supplements he currently gets focus on antiviral, antiinflammatory and antifungal as well as stress reduction and methylation. At this time he also gets bromelain, cod liver oil with vitamin D, turmeric, folic acid, B12, niacin, resveratrol, OLE, cat's claw, coconut oil, and Holy Basil. I also give him Vega Whole Food Optimizer, and chlorella. For die off, look for foods that contain pectin like banana or apple, and help detox the liver the and kidneys with a detox tea.Can you give more details surrounding the violence? Also don't forget to look at any sensory issues your child may have. Does the violence occur when their is a lot of sensory overload or too high a demand on performance or compliance. Aggression is often a response to fear and the need to feel safe or the need to gain control of one's environment. If so, then the environment needs to be adjusted as well as addressing neurotransmitter issues. If it were me, I would get the plasma amino acid tests done ASAP or if you think you can, you may want to stop everything and see what behaviour you get after a few days of his body getting everything out of his system.Hope this is helpful and that you see some improvement soon. Hello Ana,How much GABA is too much? I was told that it was ok to give as much as 3000mg per day. What tests are there for GABA? I also give L Theanine.Sent from my iPad Have you had tests that show he needs GABA. Too much GABA can produce exactly the opposite of what you want to achieve and can increase aggression. On 2-May-11, at 9:17 PM, franselw@... wrote:Thanks. I just bought the Bach flower rescue remedy. Hope it does the job. I've also increased the GABA and Melatonin. Holding off on valium as I got scared after postings here warned me of side effects.FranselFrom: Tammy Farmer Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 02 May 2011 22:01:19 -0500To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium I forgot about the Rescue Remedy.My son got some relief with using it as needed.I went by the instructions on the bottle. I used the childrens Rescue Remedy only. Modifilan made my son worse.I only tried it one day for him. I used it also.I thought it was great until(about 2 weeks into it) I started getting toxins pulling from my tissues(I think that is what was happening),by using it.I think it was pulling too quickly so I got scared of it.My babesia flared like mad. Tammy F. I called the Vitamin Shoppe and they have the bach flower rescue remedy. I will just get the most expensive kind. How do you give it? Away from anything? I will google Modifilan source. Thanks for your suggestion. I feel I am racing with time to find a remedy.FranselFrom: franselw@...Sender: BorreliaMultipleInfectionsAndAutism Date: Tue, 3 May 2011 01:07:38 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Yes he seems to be having lots of sensory issues. Where pls can I get all this stuff. This may be a better alternative to valium. I have to get it ASAP!FranselFrom: w3m1@...Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 2 May 2011 20:23:01 -0400 (EDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Fransel,When we get aggresion here bach flower rescue remedy and modifilan always work. They're also good for die off. Does your son seem to be in pain? Valium My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate.Fransel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 I had numbness in my feet that resolved treating parasites. For me, sensory overload, light sensitivity and insensitivity in my hands was from strep which resolves on augmentin. I always thought those symptoms were bartonella die off, but I later figured out that I flare strep when killing bartonella -- I think they are intertwined. If I treat both bartonella and strep together my die off stress is almost non-existant. Caryn > >> > >>> Thanks. I just bought the Bach flower rescue remedy. Hope it does > >>> the job. I've also increased the GABA and Melatonin. Holding off > >>> on valium as I got scared after postings here warned me of side > >>> effects. > >>> > >>> Fransel > >>> > >>> > >>> Sender: BorreliaMultipleInfectionsAndAutism > >>> Date: Mon, 02 May 2011 22:01:19 -0500 > >>> To: <BorreliaMultipleInfectionsAndAutism > > >>> ReplyTo: BorreliaMultipleInfectionsAndAutism > >>> Subject: Re: Valium > >>> > >>> > >>> I forgot about the Rescue Remedy.My son got some relief with > >>> using it as needed.I went by the instructions on the bottle. I > >>> used the childrens Rescue Remedy only. Modifilan made my son > >>> worse.I only tried it one day for him. I used it also.I thought > >>> it was great until(about 2 weeks into it) I started getting > >>> toxins pulling from my tissues(I think that is what was > >>> happening),by using it.I think it was pulling too quickly so I > >>> got scared of it.My babesia flared like mad. Tammy F. > >>> > >>>> > >>>> I called the Vitamin Shoppe and they have the bach flower rescue > >>>> remedy. I will just get the most expensive kind. How do you give > >>>> it? Away from anything? I will google Modifilan source. Thanks > >>>> for your suggestion. I feel I am racing with time to find a remedy. > >>>> > >>>> Fransel > >>>> > >>>> From: franselw@... > >>>> Sender: BorreliaMultipleInfectionsAndAutism > >>>> Date: Tue, 3 May 2011 01:07:38 +0000 > >>>> To: > >>>> BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAu > >>>> tism > > >>>> ReplyTo: BorreliaMultipleInfectionsAndAutism > >>>> Subject: Re: Valium > >>>> > >>>> > >>>> Yes he seems to be having lots of sensory issues. Where pls can > >>>> I get all this stuff. This may be a better alternative to > >>>> valium. I have to get it ASAP! > >>>> > >>>> Fransel > >>>> > >>>> From: w3m1@... > >>>> Sender: BorreliaMultipleInfectionsAndAutism > >>>> Date: Mon, 2 May 2011 20:23:01 -0400 (EDT) > >>>> To: <BorreliaMultipleInfectionsAndAutism > > >>>> ReplyTo: BorreliaMultipleInfectionsAndAutism > >>>> Subject: Re: Valium > >>>> > >>>> > >>>> > >>>> Fransel, > >>>> When we get aggresion here bach flower rescue remedy and > >>>> modifilan always work. They're also good for die off. Does your > >>>> son seem to be in pain? > >>>> > >>>> > >>>> > >>>> > >>>> Valium > >>>> > >>>> > >>>> My son is extremely violent today - DAN doc is putting him > >>>> temporarily on valium 5mg up to 2x daily rather than giving anti > >>>> psychotic meds until we are able to treat lyme with antibiotics. > >>>> Any thoughts anyone? Sorry for sounding desperate. > >>>> Fransel > >>> > >>> > >>> > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 I had read that GABA can turn into glutamate for some children deborah > > > >> Thanks. I just bought the Bach flower rescue remedy. Hope it does the job. I've also increased the GABA and Melatonin. Holding off on valium as I got scared after postings here warned me of side effects. > >> > >> Fransel > >> > >> > >> Sender: BorreliaMultipleInfectionsAndAutism > >> Date: Mon, 02 May 2011 22:01:19 -0500 > >> To: <BorreliaMultipleInfectionsAndAutism > > >> ReplyTo: BorreliaMultipleInfectionsAndAutism > >> Subject: Re: Valium > >> > >> > >> I forgot about the Rescue Remedy.My son got some relief with using it as needed.I went by the instructions on the bottle. I used the childrens Rescue Remedy only. Modifilan made my son worse.I only tried it one day for him. I used it also.I thought it was great until(about 2 weeks into it) I started getting toxins pulling from my tissues(I think that is what was happening),by using it.I think it was pulling too quickly so I got scared of it.My babesia flared like mad. Tammy F. > >> > >>> > >>> I called the Vitamin Shoppe and they have the bach flower rescue remedy. I will just get the most expensive kind. How do you give it? Away from anything? I will google Modifilan source. Thanks for your suggestion. I feel I am racing with time to find a remedy. > >>> > >>> Fransel > >>> > >>> From: franselw@... > >>> Sender: BorreliaMultipleInfectionsAndAutism > >>> Date: Tue, 3 May 2011 01:07:38 +0000 > >>> To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism@yahoogro\ ups.com> > >>> ReplyTo: BorreliaMultipleInfectionsAndAutism > >>> Subject: Re: Valium > >>> > >>> > >>> Yes he seems to be having lots of sensory issues. Where pls can I get all this stuff. This may be a better alternative to valium. I have to get it ASAP! > >>> > >>> Fransel > >>> > >>> From: w3m1@... > >>> Sender: BorreliaMultipleInfectionsAndAutism > >>> Date: Mon, 2 May 2011 20:23:01 -0400 (EDT) > >>> To: <BorreliaMultipleInfectionsAndAutism > > >>> ReplyTo: BorreliaMultipleInfectionsAndAutism > >>> Subject: Re: Valium > >>> > >>> > >>> > >>> Fransel, > >>> When we get aggresion here bach flower rescue remedy and modifilan always work. They're also good for die off. Does your son seem to be in pain? > >>> > >>> > >>> > >>> > >>> Valium > >>> > >>> > >>> My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate. > >>> Fransel > >> > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 My best treatments for bartonella have been rifampin and zithromax together and Zhang's HH. I also had bartonella die off on lauriciden. My son does well on septra and cipro and also on HH. I feel that resveratrol reduced symptoms but did not give die off. Caryn > > >> > > >>> Thanks. I just bought the Bach flower rescue remedy. Hope it does > > >>> the job. I've also increased the GABA and Melatonin. Holding off > > >>> on valium as I got scared after postings here warned me of side > > >>> effects. > > >>> > > >>> Fransel > > >>> > > >>> From: Tammy Farmer <stoplyme@> > > >>> Sender: BorreliaMultipleInfectionsAndAutism > > >>> Date: Mon, 02 May 2011 22:01:19 -0500 > > >>> To: <BorreliaMultipleInfectionsAndAutism > > > >>> ReplyTo: BorreliaMultipleInfectionsAndAutism > > >>> Subject: Re: Valium > > >>> > > >>> > > >>> I forgot about the Rescue Remedy.My son got some relief with > > >>> using it as needed.I went by the instructions on the bottle. I > > >>> used the childrens Rescue Remedy only. Modifilan made my son > > >>> worse.I only tried it one day for him. I used it also.I thought > > >>> it was great until(about 2 weeks into it) I started getting > > >>> toxins pulling from my tissues(I think that is what was > > >>> happening),by using it.I think it was pulling too quickly so I > > >>> got scared of it.My babesia flared like mad. Tammy F. > > >>> > > >>>> > > >>>> I called the Vitamin Shoppe and they have the bach flower rescue > > >>>> remedy. I will just get the most expensive kind. How do you give > > >>>> it? Away from anything? I will google Modifilan source. Thanks > > >>>> for your suggestion. I feel I am racing with time to find a remedy. > > >>>> > > >>>> Fransel > > >>>> > > >>>> From: franselw@ > > >>>> Sender: BorreliaMultipleInfectionsAndAutism > > >>>> Date: Tue, 3 May 2011 01:07:38 +0000 > > >>>> To: > > >>>> BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAu > > >>>> tism > > > >>>> ReplyTo: BorreliaMultipleInfectionsAndAutism > > >>>> Subject: Re: Valium > > >>>> > > >>>> > > >>>> Yes he seems to be having lots of sensory issues. Where pls can > > >>>> I get all this stuff. This may be a better alternative to > > >>>> valium. I have to get it ASAP! > > >>>> > > >>>> Fransel > > >>>> > > >>>> From: w3m1@ > > >>>> Sender: BorreliaMultipleInfectionsAndAutism > > >>>> Date: Mon, 2 May 2011 20:23:01 -0400 (EDT) > > >>>> To: <BorreliaMultipleInfectionsAndAutism > > > >>>> ReplyTo: BorreliaMultipleInfectionsAndAutism > > >>>> Subject: Re: Valium > > >>>> > > >>>> > > >>>> > > >>>> Fransel, > > >>>> When we get aggresion here bach flower rescue remedy and > > >>>> modifilan always work. They're also good for die off. Does your > > >>>> son seem to be in pain? > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> Valium > > >>>> > > >>>> > > >>>> My son is extremely violent today - DAN doc is putting him > > >>>> temporarily on valium 5mg up to 2x daily rather than giving anti > > >>>> psychotic meds until we are able to treat lyme with antibiotics. > > >>>> Any thoughts anyone? Sorry for sounding desperate. > > >>>> Fransel > > >>> > > >>> > > >>> > > >> > > >> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2011 Report Share Posted May 6, 2011 Dear Fransel,I am sorry to hear of all the sensory issues your son has to deal with, and I am not surprised that you see aggression when he is overloaded. This is part of the "flight or fight" response that is so hard for our kids to keep in check. I have come to realize that the root of most of my son's problems are his sensory issues and his reactions to overload. The school needs to recognize this and adaptations need to be made so that the sensory overload is minimized wherever possible. I am a bit surprised that you are using melatonin throughout the day, as this is something I have only heard being used for sleep issues. The secretion of melatonin follows a daily rhythm governed by the body's master clock. This clock is located in the brain and is synchronized by regular exposure to the 24-hour cycle of darkness and light. Melatonin's natural secretion in the body peaks at night, so giving it during the day seems counter intuitive and could be causing his biological systems great confusion. Melatonin is a derivative from serotonin which is a calming neurotransmitter. Not all serotonin is converted to Melatonin. Serotonin is used for proper functioning in the nervous system, so I would think that you would be better off increasing serotonin and dopamine levels for daytime calming, reduced anxiety and aggression. It should also be noted during puberty melatonin levels are naturally reduced in a body, so giving it in high levels is probably creating further hormone imbalances and confusion to your son's body. In fact his body may have interpreted the excess melatonin as a need to reduce serotonin production, which in turn may adversely affect his central nervous system and produce more anxiety and more sensory overload.Some people use GABA for calming, but that may only be effective if your child is deficient in aminobutyric acid. I try to reproduce natural balance in the body so we are using 5 HTP (5 hydroxytryptophan) for serotonin production and Tyrosine for dopamine, as well as Holy Basil for cortisol reduction. Cortisol is a hormone released when the body is under stress, and Holy Basil is an adaptogen which means that it adapts to various needs and helps to restore the natural balance in the body. Since we started using 5 HTP, Tyrsoine, and Holy Basil my son no longer bites his hand and hits his head when overwhelmed, frustrated or in pain. He still has many sensory issues, but appears to be better able to manage the anxiety and fear.Have you had a heavy metals and minerals test done? Your son may also be deficient in magnesium which helps to calm the body. Heavy metals also disregulate the body, and you will need to detox heavy metals if you hope to get rid of the lyme. Also look at parasites like worms/tapeworms. Tapeworms excrete neurotoxins which can lead to aggression, and are often found in bodies with reduced immune capacity.Inflammation also plays a role in aggression. You may need to look at natural antiinflammatories to help with that. I know many people are hesitant to address more than one thing at a time, but I think it is important to help the body deal with all its challenges with as few supplements as possible. So it is important to pick supplements that do more than one thing at a time. For example Olive leaf extract - antiviral, antifungal, anitinflammatory and is known to deal with a huge variety of bacteria etc,Resveratrol - increase cognitive speed and is thought to be useful in fighting retroviruses, cancer, HIV, etc.Cat's claw - an immune modulator which is excellent for retroviruses and many bacteria etc. I also believe it has had a part in reducing my son's aggression.Bromelain - anti-inflammatory, helps with food digestion, helps to breakdown fibrin which is often key to helping your supplements deal with the biofilm which forms in the gutTurmeric - anti-fungal, anti-inflammatory, helps with worms, helps the liver, stimulates bile productionChlorella - is a super food which contains many amino acids, chlorophyl, tyrosine, and helps with detox because it releases and binds heavy metals.Cod Liver Oil with vitamin A and D - anti-inflammatory and good for brain function. If you want a supplement to be better absorbed you need to give it with an oil.Coconut oil - Medium chain fatty acids, excellent for brain function, contains laurine, and is also an anti-fungal. Seems better able to handle sensory input.MB12 Nasal Spray - critical to the methylation cycle which detoxifies the body and often helps with speechFolic acid - which should be supplemented when using MB12 and often helps with calmingB6 - many of our children are deficient in B6 which is important for digestion of proteins, fats and carbohydratesVitamin C - powerful antioxidantCalcium/Magnesium supplement - Stan is low in calcium and magnesiumIf you are high in heavy metals the metals displace other minerals so it is important that you replenish good minerals while detoxing the heavy metalsGrapefruit seed extract - natural antibiotic good for many types of bacteriaPectin - from apples or banana - binder for die off and the fruits have lots of good vitamins tooVega whole food optimizer - great nutritional supplement and ingredients to help with hormone balanceiodine - almost every body is deficient in iodine unless you eat lots of seaweed and the thyroid needs sufficient levels to maintain hormonal balanceSorry this became such a long winded e-mail but I wanted to share what has been helpful for us. Everything has been connected for us and just one thing has not counteracted a problem entirely, using things that work together has been crucial in seeing accelerated gains. Reducing inflammation, killing bacteria, viruses and parasites, mopping up die off, eliminating heavy metals, getting rid of biofilm and healing the gut, restoring vitamin and mineral levels and re-establishing the bodies overall balance have all addressed different parts of our puzzle.Dear My son's aggression stems from sensory overload as he covers his ears and eyes, does not like to turn on lights, wants to feel my nails rub against his palms. He also gets frustrated and overwhelmed by commands. He processes info too slowly and is always getting stuck with transitions. He was not like this before the lyme hit a year ago. He is almost non verbal.FranselFrom: and Stan Sender: BorreliaMultipleInfectionsAndAutism Date: Tue, 3 May 2011 10:41:56 -0700To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium alternative It may be ok to initially give as much as 3000 mg for asomeone that has extremely low levels and is large enough to tolerate that amount, but remember that L Theanine also contributes to the production of GABA. How old is your child and how much does he weigh?The question of too much is based on the weight of the person taking the supplements and what the levels are before you start to supplement. We had blood tests for amino acids ordered by our pediatrician. The lab reference range is so wide that most of his results were interpreted as normal by the MDs, but I have been supplementing for the amino acids that were near or below the low level of the reference range and I have seen some great results. When I received the test results I researched the function of each amino acid by searches on the internet and compared that information to the behaviour that he presented with. He is very anxious with a strong fight or flight response. He would often bite his hand and hit his head when he is overwhelmed. By adding foods to his diet that contain or produce the amino acids he was lacking in, as well as giving amino acid supplements I have seen a great reduction in his self injurious behaviour. I based starting dosage on what our DAN doctor suggested, and adjusted up or down based on observing the changes in my son. The calming supplements that produced these results for us are 5 HTP (Griffonia) which contributes to serotonin production and Tyrosine which contributes to dopamine production. His test levels were quite near the bottom of the reference range. It is important to note that I also start on low dosages and I have not had to use large amounts to see results. 100 mg of 5 HTP and 125 mg of tyrosine is all it takes. Now that he has been on these for 1 month I will be adding some other amino acids that were also low to see what more progress we can get. The other supplements he currently gets focus on antiviral, antiinflammatory and antifungal as well as stress reduction and methylation. At this time he also gets bromelain, cod liver oil with vitamin D, turmeric, folic acid, B12, niacin, resveratrol, OLE, cat's claw, coconut oil, and Holy Basil. I also give him Vega Whole Food Optimizer, and chlorella. For die off, look for foods that contain pectin like banana or apple, and help detox the liver the and kidneys with a detox tea.Can you give more details surrounding the violence? Also don't forget to look at any sensory issues your child may have. Does the violence occur when their is a lot of sensory overload or too high a demand on performance or compliance. Aggression is often a response to fear and the need to feel safe or the need to gain control of one's environment. If so, then the environment needs to be adjusted as well as addressing neurotransmitter issues. If it were me, I would get the plasma amino acid tests done ASAP or if you think you can, you may want to stop everything and see what behaviour you get after a few days of his body getting everything out of his system.Hope this is helpful and that you see some improvement soon. Hello Ana,How much GABA is too much? I was told that it was ok to give as much as 3000mg per day. What tests are there for GABA? I also give L Theanine.Sent from my iPad Have you had tests that show he needs GABA. Too much GABA can produce exactly the opposite of what you want to achieve and can increase aggression. On 2-May-11, at 9:17 PM, franselw@... wrote:Thanks. I just bought the Bach flower rescue remedy. Hope it does the job. I've also increased the GABA and Melatonin. Holding off on valium as I got scared after postings here warned me of side effects.FranselFrom: Tammy Farmer Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 02 May 2011 22:01:19 -0500To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium I forgot about the Rescue Remedy.My son got some relief with using it as needed.I went by the instructions on the bottle. I used the childrens Rescue Remedy only. Modifilan made my son worse.I only tried it one day for him. I used it also.I thought it was great until(about 2 weeks into it) I started getting toxins pulling from my tissues(I think that is what was happening),by using it.I think it was pulling too quickly so I got scared of it.My babesia flared like mad. Tammy F. I called the Vitamin Shoppe and they have the bach flower rescue remedy. I will just get the most expensive kind. How do you give it? Away from anything? I will google Modifilan source. Thanks for your suggestion. I feel I am racing with time to find a remedy.FranselFrom: franselw@...Sender: BorreliaMultipleInfectionsAndAutism Date: Tue, 3 May 2011 01:07:38 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Yes he seems to be having lots of sensory issues. Where pls can I get all this stuff. This may be a better alternative to valium. I have to get it ASAP!FranselFrom: w3m1@...Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 2 May 2011 20:23:01 -0400 (EDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Valium Fransel,When we get aggresion here bach flower rescue remedy and modifilan always work. They're also good for die off. Does your son seem to be in pain? Valium My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate.Fransel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2011 Report Share Posted May 7, 2011 Hi , Did you do any testing to know that you needed to raise dopamine and serotonin levels? Thanks. Valium My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate. Fransel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2011 Report Share Posted May 7, 2011 Hi Yes, we had a blood test done which was processed by our local Children's Hospital - Plasma Amino Acid levels - which indicated that he was deficient in Tryptophan and Tyrosine. Hi ,Did you do any testing to know that you needed to raise dopamine and serotonin levels? Thanks. Valium My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate.Fransel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2011 Report Share Posted May 8, 2011 Thanks . We've only done urine amino acid test, so I'll try the plasma test. Valium My son is extremely violent today - DAN doc is putting him temporarily on valium 5mg up to 2x daily rather than giving anti psychotic meds until we are able to treat lyme with antibiotics. Any thoughts anyone? Sorry for sounding desperate. Fransel Quote Link to comment Share on other sites More sharing options...
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