Re: Aggression - Valium alternative

[Guest guest]

Hi Fransel and Kim,

I was reading your messages and it broke my heart.

I just want to share some info I learned last weekend at ARI conference in Atlanta.

I meet this wonderful lady who is OT ( this is first time they ever had OT speaking at the conference). She is pretty well known In OT world but I did not know that at the time.

Anyway on Friday she had a short presentation which included the video about little boy, who was about one y.o. and could not do any basic stuff like sleeping ,eating, sitting, rolling over and etc. The insurance company spent over a million $$ by that time but nobody could figure out what was going on.From birth they had to hold him in upright position at all the time.They were not sure what was wrong with him either and suggested it was a brain injury.

When she got hold of the baby she said he has sensory defensiveness and taught the parents a technique to use and left the for the weekend.On day three he ate a baby food from a jar for the first time in his life and not one jar but THREE jars at once and took a nap. By day 10 he started sleeping through the night, eating, sitting, roiling over like a log.By day 14 he could walk, talk and everything what one year old babies do...

The OT name is Wilbarger.Her website is www. avanti-ed.com.They have a few products there but none of them have the technique .You really have to be taught how to do it.It's a simple technique you just have experience the right pressure and it's hard to explain someone without doing it on them.It includes some oral motor exercises, deep pressure brushing and deep pressure for all the joints.It only takes about 5 min. to do but you have to do it every 2 hours( 7 times a day ).Once you learn it it's pretty simple.

On her website find a workshop close to you and go there.I did not want to wait five months until they would come to Atlanta so I followed her for three days and she taught me how to do it.What a wonderful lady.

Both of my daughter's OTs knew the the technique but did not bother to say anything b/c they thought it's too much for the parents to do it so often.

Anyway my dd is 11y.o., asd, has apraxia and looked like she had a mini stroke a few years back.Her left side is much- much weaker and she speaks in the language like stroke patients do.She used to be very aggressive, she was kicked out of three therapy clinics in the last 2-3 years.Sometimes when we work on a new skill or word and she gets frustrated she will hit in the face.

We had done a lot of things for her in the last 18 months and she is getting better however we still have a long way to go.

I started implementing theirs technique on her last Sunday.She had great SLT on Mon., OT was good too but she got agitated at the end.

By Thur. her speech got more connected and she wanted to do new things.

On wed. her second OT was amazed by how patient she was to do hard things for her and how much she improved in one week since last Wed.

I took her shopping at Target to by some new tops.So we went in girl's section and they had a screaming baby there who would not stop crying but his mom would not leave the store ...I thought that would be the end of shopping for us b/c in the past my dd would run there and slapped the baby until he would stopped crying.

Not this time ! She looked at me then looked at the baby with concern.I said he is just hungry that's why he is crying...And she left him alone.We finished our shopping, walk to the car, she was holding my hand and walk next to me.Usually she is couple steps behind me.This time she was able to keep up with me no problem.I was so happy and proud of her!

My husband took my dd and son to Trader's Joe yesterday to buy me some flowers and reported the same thing: she was calm in the crowd and loud place ,was holding his hand and did great .Usually we would have to give her the iPod to keep her quiet.

So I am still brushing away...and looking forward to more results.

Just a few years ago it was non-stop screaming, never sleeping child, pooping everywhere except the potty...

Just hang in there!

Natasha.

Aggression - Valium alternative

Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim

[Guest guest]

Hi Natasha;

Thanks for taking the time to reply to this post on Mother's Day How

wonderful the Wilbarger protocol is working for your daughter! We have been

taught the protocol in the past (the brushing and the deep pressure) but have

not practiced every 2 hours.

Great suggestion to check out her site to see if there is a workshop close to me

(I'm in Canada). It would probably be best to relearn from the expert - I am

always unsure if I am doing the brushing properly. I am desperate, and if this

will help to calm some of her extreme sensory issues I am all for it!

You mentioned that a few years ago your child was pooping everywhere but the

potty - are you still working on this issue? What has worked for you? Have you

been told the brushing/deep pressure protocol will help in this regard as well?

I wish you and your daughter continued success! Blessings to you this Mother's

Day and to all the Moms who work so hard to help their children everyday...

Kim

>

> Hi Fransel and Kim,

> I was reading your messages and it broke my heart.

> I just want to share some info I learned last weekend at ARI conference in

Atlanta.

> I meet this wonderful lady who is OT ( this is first time they ever had OT

speaking at the conference). She is pretty well known In OT world but I did not

know that at the time.

> Anyway on Friday she had a short presentation which included the video about

little boy, who was about one y.o. and could not do any basic stuff like

sleeping ,eating, sitting, rolling over and etc. The insurance company spent

over a million $$ by that time but nobody could figure out what was going

on.From birth they had to hold him in upright position at all the time.They

were not sure what was wrong with him either and suggested it was a brain

injury.

> When she got hold of the baby she said he has sensory defensiveness and

taught the parents a technique to use and left the for the weekend.On day three

he ate a baby food from a jar for the first time in his life and not one jar but

THREE jars at once and took a nap. By day 10 he started sleeping through the

night, eating, sitting, roiling over like a log.By day 14 he could walk, talk

and everything what one year old babies do...

> The OT name is Wilbarger.Her website is www. avanti-ed.com.They have

a few products there but none of them have the technique .You really have to be

taught how to do it.It's a simple technique you just have experience the right

pressure and it's hard to explain someone without doing it on them.It includes

some oral motor exercises, deep pressure brushing and deep pressure for all the

joints.It only takes about 5 min. to do but you have to do it every 2 hours( 7

times a day ).Once you learn it it's pretty simple.

>

> On her website find a workshop close to you and go there.I did not want to

wait five months until they would come to Atlanta so I followed her for three

days and she taught me how to do it.What a wonderful lady.

> Both of my daughter's OTs knew the the technique but did not bother to say

anything b/c they thought it's too much for the parents to do it so often.

> Anyway my dd is 11y.o., asd, has apraxia and looked like she had a mini stroke

a few years back.Her left side is much- much weaker and she speaks in the

language like stroke patients do.She used to be very aggressive, she was kicked

out of three therapy clinics in the last 2-3 years.Sometimes when we work on a

new skill or word and she gets frustrated she will hit in the face.

> We had done a lot of things for her in the last 18 months and she is getting

better however we still have a long way to go.

> I started implementing theirs technique on her last Sunday.She had great SLT

on Mon., OT was good too but she got agitated at the end.

> By Thur. her speech got more connected and she wanted to do new things.

> On wed. her second OT was amazed by how patient she was to do hard things for

her and how much she improved in one week since last Wed.

> I took her shopping at Target to by some new tops.So we went in girl's section

and they had a screaming baby there who would not stop crying but his mom would

not leave the store ...I thought that would be the end of shopping for us b/c in

the past my dd would run there and slapped the baby until he would stopped

crying.

> Not this time ! She looked at me then looked at the baby with concern.I said

he is just hungry that's why he is crying...And she left him alone.We finished

our shopping, walk to the car, she was holding my hand and walk next to

me.Usually she is couple steps behind me.This time she was able to keep up with

me no problem.I was so happy and proud of her!

> My husband took my dd and son to Trader's Joe yesterday to buy me some flowers

and reported the same thing: she was calm in the crowd and loud place ,was

holding his hand and did great .Usually we would have to give her the iPod to

keep her quiet.

> So I am still brushing away...and looking forward to more results.

> Just a few years ago it was non-stop screaming, never sleeping child, pooping

everywhere except the potty...

>

> Just hang in there!

>

> Natasha.

> Aggression - Valium

alternative

>

>

>

> Hi all;

>

> Fransel, I empathize with what you are going through! My daughter is also

very aggressive and has extreme sound sensitivity as well. We are in crisis with

her again currently as the aggression has increased and she is throwing

furniture and anything she can get her hands on AT us... she used to just throw

stuff at the walls

>

> I am also trying to figure out how to calm her down ASAP as the whole family

has to walk on eggshells not to set her off. I have two other children and they

can't talk, or even be in her sight when she's around. I thank all the people

who have posted such wonderful helpful information.

>

> We too are trying to avoid the use of anti-psychotics but everyone

(including 2 DAN doctors) is recommending I put my daughter on risperidol

immediately. We have been old school hard core biomed for 8 years so this is

very difficult for me to accept. We've tried seemingly everything.

>

> She is also starting to urinate on the furniture again, something she has

not done in a year. She uses her bedroom as a toilet each morning, and sometimes

night as she withholds urine/feces and unloads on her bed, floor, etc - gets

violent when we try to put her on the toilet and won't go... however she has

been messing in her bedroom for years (this is not new).

>

> Sorry for unloading here - we are going through hell right now. My thoughts

and prayers are with you Fransel!

>

> Kim

>

[Guest guest]

Natasha, Kim, Fransel

 

It is truly an honor to get even a glimpse of you mothers and your struggle for your kids.....may God continue to guide you and give you courage and strength.....you are amazing and I hope you have people in your lives who recoginize this and are singing your praises. May your children continue to improve. Sometimes improvements are so slow and gradual that it becomes hard to discern them until we look backwards over time.

 

Love and respect,

 

Hi Natasha;Thanks for taking the time to reply to this post on Mother's Day How wonderful the Wilbarger protocol is working for your daughter! We have been taught the protocol in the past (the brushing and the deep pressure) but have not practiced every 2 hours.

Great suggestion to check out her site to see if there is a workshop close to me (I'm in Canada). It would probably be best to relearn from the expert - I am always unsure if I am doing the brushing properly. I am desperate, and if this will help to calm some of her extreme sensory issues I am all for it!

You mentioned that a few years ago your child was pooping everywhere but the potty - are you still working on this issue? What has worked for you? Have you been told the brushing/deep pressure protocol will help in this regard as well?

I wish you and your daughter continued success! Blessings to you this Mother's Day and to all the Moms who work so hard to help their children everyday...Kim

>> Hi Fransel and Kim,> I was reading your messages and it broke my heart.> I just want to share some info I learned last weekend at ARI conference in Atlanta.> I meet this wonderful lady who is OT ( this is first time they ever had OT speaking at the conference). She is pretty well known In OT world but I did not know that at the time.

> Anyway on Friday she had a short presentation which included the video about little boy, who was about one y.o. and could not do any basic stuff like sleeping ,eating, sitting, rolling over and etc. The insurance company spent over a million $$ by that time but nobody could figure out what was going on.From birth they had to hold him in upright position at all the time.They were not sure what was wrong with him either and suggested it was a brain injury.

> When she got hold of the baby she said he has sensory defensiveness and taught the parents a technique to use and left the for the weekend.On day three he ate a baby food from a jar for the first time in his life and not one jar but THREE jars at once and took a nap. By day 10 he started sleeping through the night, eating, sitting, roiling over like a log.By day 14 he could walk, talk and everything what one year old babies do...

> The OT name is Wilbarger.Her website is www. avanti-ed.com.They have a few products there but none of them have the technique .You really have to be taught how to do it.It's a simple technique you just have experience the right pressure and it's hard to explain someone without doing it on them.It includes some oral motor exercises, deep pressure brushing and deep pressure for all the joints.It only takes about 5 min. to do but you have to do it every 2 hours( 7 times a day ).Once you learn it it's pretty simple.

> > On her website find a workshop close to you and go there.I did not want to wait five months until they would come to Atlanta so I followed her for three days and she taught me how to do it.What a wonderful lady.

> Both of my daughter's OTs knew the the technique but did not bother to say anything b/c they thought it's too much for the parents to do it so often.> Anyway my dd is 11y.o., asd, has apraxia and looked like she had a mini stroke a few years back.Her left side is much- much weaker and she speaks in the language like stroke patients do.She used to be very aggressive, she was kicked out of three therapy clinics in the last 2-3 years.Sometimes when we work on a new skill or word and she gets frustrated she will hit in the face.

> We had done a lot of things for her in the last 18 months and she is getting better however we still have a long way to go.> I started implementing theirs technique on her last Sunday.She had great SLT on Mon., OT was good too but she got agitated at the end.

> By Thur. her speech got more connected and she wanted to do new things.> On wed. her second OT was amazed by how patient she was to do hard things for her and how much she improved in one week since last Wed.

> I took her shopping at Target to by some new tops.So we went in girl's section and they had a screaming baby there who would not stop crying but his mom would not leave the store ...I thought that would be the end of shopping for us b/c in the past my dd would run there and slapped the baby until he would stopped crying.

> Not this time ! She looked at me then looked at the baby with concern.I said he is just hungry that's why he is crying...And she left him alone.We finished our shopping, walk to the car, she was holding my hand and walk next to me.Usually she is couple steps behind me.This time she was able to keep up with me no problem.I was so happy and proud of her!

> My husband took my dd and son to Trader's Joe yesterday to buy me some flowers and reported the same thing: she was calm in the crowd and loud place ,was holding his hand and did great .Usually we would have to give her the iPod to keep her quiet.

> So I am still brushing away...and looking forward to more results.> Just a few years ago it was non-stop screaming, never sleeping child, pooping everywhere except the potty...> > Just hang in there!

> > Natasha.> Aggression - Valium alternative> > > > Hi all;> > Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls

> > I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information.

> > We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.

> > She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new).

> > Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!> > Kim>

[Guest guest]

Hi Kim,

I would have to say the diet (GFCFSF) was the biggest part of potty training.My dd had huge GI problems at the time,she was about 5y.o. After her gut heeled even a little bit in the beginning she had more time between the urge to go to the potty and to making to the potty.I think about 4-6 months into the diet every time she would have a bite of gluten or one sip on drinkable yogurt at school she would be vomiting and have diarrhea for the next three days and would be so out of it mentally as well.

After two years on the diet she stopped screaming, stopped being hyper all the time and was making to the potty on time most of the time.But no matter what we did we could not get rid of diapers at night time.

About a year ago I've meet a chriro who specializes in nutrition and hormones therapy ( all natural sup. and homeopathy).

She started my dd on supp. for thyroid and adrenals.We saw improvement right away during the day and some nights (maybe one dry per week) she would not have any accidents.And she could hold her urine for long period of time.

Then in Nov. of 2010 I meet a different doctor who does similar stuff plus a lot more.He also use homeopathy (herbs) plus he treats emotional side with flower essences.He made huge difference in my dd's life!

Right now she does not have any accidents during the day and for the last couple of months have dry diaper for 10 day then it will be a wet one and repeats again.

He also does scans ant tells you what is going on in your body.My dd was depressed so he gave her a remedy ,she is still on it,

I could not believe my own eyes when she started to smile again after two doses.For years she had this expression of a sick person in pain.

She started be more complaint as well.

For the last year we also did Brain Balance exercises( I got a book-Disconnected kids- and my husband and I did it with her every night 5-6 times a week).Also Brain Gym exercises ( dif. book) is a great book.

I also got eyelights glasses for her last October and I truly believe that brought her vision and hearing together.It's no more process delay between those two senses.

The Brain Balance exercises work on all sensory issues as well.So when I talked to Mrs.Wilbarger she said we already done so many good things to correct the sensory issues.She said 80% of our ASD kids have sensory defensiveness and 90% of brain injured people have it as well.Once you remove sensory defensiveness like a road block then a child will be able to learn everything else.

Thank you for your kind words and Happy Mother's day to you too!

Natasha.

Aggression - Valium alternative> > > > Hi all;> > Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls > > I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. > > We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.> > She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). > > Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!> > Kim>

[Guest guest]

Dear Kim I am crying while reading your post. Don't take the risperidal as it will create greater anxiety and increased violence in your child. I went through hell this morning as my son decided to ruin mother's day for the family. He tore up the card and threw objects in his room - tore magazines and ate the paper. He was so aggressive. The trigger may be a new mood supplement (valerian leaf extract) which is a natural valium. This morning was the third dose and it looks like it is not working. My husband thinks we should give it a second chance.I just gave him Sonne #7 detox for the first time. He is alone in his room now. We are staying away from him until it is safe. It's a wait and see.FranselSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 08 May 2011 13:39:00 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Aggression - Valium alternative Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim

[Guest guest]

Hi Fransel;

I am so sorry to hear about your day! I have totally been in the same situation

and I know how devastating it is to actually fear your child, and FOR your child

while they are in the midst of a rage.

It is so frustrating to have to depend on this supplement or that, waiting to

see what kind of fresh hell it could unleash for your child. It would be so

nice if there was a clear path to follow! I am praying you will find some calm

and peace soon.

Yes, it is my preference to avoid medications altogether but I am torn. I need

to get her to a safe place mentally so she is not a danger to herself, my

family, my belongings and out in public. I have been told by some parents to

stay away from risperidol, and others have sworn that it has been magical for

their kids - literally night and day. So far, I have not met anyone that has

been able to help us control her behaviours alternatively - but I am holding

onto faith I will find someone soon.

Natasha thanks again for your post regarding your child's diet. Yes, some kids

are just so reactive to food and thankfully some do respond when diet is

changed. It is so fabulous that you have had some competent and helpful

treatment from alternative sources to help with her aggression and toileting.

We have been super clean with her diet since 1 year of age. I can't say she is

the poster child for success with dietary intervention, but I'm sure she is

healthier from her organic, free range, GFCFSF sugar free etc etc diet. I am

praying to meet someone who can competently help our daughter without

medication, and without further " healing regressions " - so done with those!!

Kim

>

> Dear Kim

> I am crying while reading your post. Don't take the risperidal as it will

create greater anxiety and increased violence in your child. I went through hell

this morning as my son decided to ruin mother's day for the family. He tore up

the card and threw objects in his room - tore magazines and ate the paper. He

was so aggressive. The trigger may be a new mood supplement (valerian leaf

extract) which is a natural valium. This morning was the third dose and it looks

like it is not working. My husband thinks we should give it a second chance.

> I just gave him Sonne #7 detox for the first time. He is alone in his room

now. We are staying away from him until it is safe. It's a wait and see.

> Fransel

>

> Aggression - Valium alternative

>

> Hi all;

>

> Fransel, I empathize with what you are going through! My daughter is also

very aggressive and has extreme sound sensitivity as well. We are in crisis

with her again currently as the aggression has increased and she is throwing

furniture and anything she can get her hands on AT us... she used to just throw

stuff at the walls

>

> I am also trying to figure out how to calm her down ASAP as the whole family

has to walk on eggshells not to set her off. I have two other children and they

can't talk, or even be in her sight when she's around. I thank all the people

who have posted such wonderful helpful information.

>

> We too are trying to avoid the use of anti-psychotics but everyone (including

2 DAN doctors) is recommending I put my daughter on risperidol immediately. We

have been old school hard core biomed for 8 years so this is very difficult for

me to accept. We've tried seemingly everything.

>

> She is also starting to urinate on the furniture again, something she has not

done in a year. She uses her bedroom as a toilet each morning, and sometimes

night as she withholds urine/feces and unloads on her bed, floor, etc - gets

violent when we try to put her on the toilet and won't go... however she has

been messing in her bedroom for years (this is not new).

>

> Sorry for unloading here - we are going through hell right now. My thoughts

and prayers are with you Fransel!

>

> Kim

>

[Guest guest]

Aggression can be from PANDAS........auto immune reaction to strep! It is hitting a lot of our immune compromised kids really hard. go to www.pandasnetwork.org

Subject: Aggression - Valium alternativeTo: BorreliaMultipleInfectionsAndAutism Date: Sunday, May 8, 2011, 9:39 AM

Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to

urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim

[Guest guest]

Dearest Kim Natasha Thank you kindly for the insightful and promising words of advise. I feel so compelled to arrive at an answer soon for my family's mental well-being. I am googling for more answers non stop Sent from my iPad

Natasha, Kim, Fransel

It is truly an honor to get even a glimpse of you mothers and your struggle for your kids.....may God continue to guide you and give you courage and strength.....you are amazing and I hope you have people in your lives who recoginize this and are singing your praises. May your children continue to improve. Sometimes improvements are so slow and gradual that it becomes hard to discern them until we look backwards over time.

Love and respect,

Hi Natasha;Thanks for taking the time to reply to this post on Mother's Day How wonderful the Wilbarger protocol is working for your daughter! We have been taught the protocol in the past (the brushing and the deep pressure) but have not practiced every 2 hours.

Great suggestion to check out her site to see if there is a workshop close to me (I'm in Canada). It would probably be best to relearn from the expert - I am always unsure if I am doing the brushing properly. I am desperate, and if this will help to calm some of her extreme sensory issues I am all for it!

You mentioned that a few years ago your child was pooping everywhere but the potty - are you still working on this issue? What has worked for you? Have you been told the brushing/deep pressure protocol will help in this regard as well?

I wish you and your daughter continued success! Blessings to you this Mother's Day and to all the Moms who work so hard to help their children everyday...Kim

>> Hi Fransel and Kim,> I was reading your messages and it broke my heart.> I just want to share some info I learned last weekend at ARI conference in Atlanta.> I meet this wonderful lady who is OT ( this is first time they ever had OT speaking at the conference). She is pretty well known In OT world but I did not know that at the time.

> Anyway on Friday she had a short presentation which included the video about little boy, who was about one y.o. and could not do any basic stuff like sleeping ,eating, sitting, rolling over and etc. The insurance company spent over a million $$ by that time but nobody could figure out what was going on.From birth they had to hold him in upright position at all the time.They were not sure what was wrong with him either and suggested it was a brain injury.

> When she got hold of the baby she said he has sensory defensiveness and taught the parents a technique to use and left the for the weekend.On day three he ate a baby food from a jar for the first time in his life and not one jar but THREE jars at once and took a nap. By day 10 he started sleeping through the night, eating, sitting, roiling over like a log.By day 14 he could walk, talk and everything what one year old babies do...

> The OT name is Wilbarger.Her website is www. avanti-ed.com.They have a few products there but none of them have the technique .You really have to be taught how to do it.It's a simple technique you just have experience the right pressure and it's hard to explain someone without doing it on them.It includes some oral motor exercises, deep pressure brushing and deep pressure for all the joints.It only takes about 5 min. to do but you have to do it every 2 hours( 7 times a day ).Once you learn it it's pretty simple.

> > On her website find a workshop close to you and go there.I did not want to wait five months until they would come to Atlanta so I followed her for three days and she taught me how to do it.What a wonderful lady.

> Both of my daughter's OTs knew the the technique but did not bother to say anything b/c they thought it's too much for the parents to do it so often.> Anyway my dd is 11y.o., asd, has apraxia and looked like she had a mini stroke a few years back.Her left side is much- much weaker and she speaks in the language like stroke patients do.She used to be very aggressive, she was kicked out of three therapy clinics in the last 2-3 years.Sometimes when we work on a new skill or word and she gets frustrated she will hit in the face.

> We had done a lot of things for her in the last 18 months and she is getting better however we still have a long way to go.> I started implementing theirs technique on her last Sunday.She had great SLT on Mon., OT was good too but she got agitated at the end.

> By Thur. her speech got more connected and she wanted to do new things.> On wed. her second OT was amazed by how patient she was to do hard things for her and how much she improved in one week since last Wed.

> I took her shopping at Target to by some new tops.So we went in girl's section and they had a screaming baby there who would not stop crying but his mom would not leave the store ...I thought that would be the end of shopping for us b/c in the past my dd would run there and slapped the baby until he would stopped crying.

> Not this time ! She looked at me then looked at the baby with concern.I said he is just hungry that's why he is crying...And she left him alone.We finished our shopping, walk to the car, she was holding my hand and walk next to me.Usually she is couple steps behind me.This time she was able to keep up with me no problem.I was so happy and proud of her!

> My husband took my dd and son to Trader's Joe yesterday to buy me some flowers and reported the same thing: she was calm in the crowd and loud place ,was holding his hand and did great .Usually we would have to give her the iPod to keep her quiet.

> So I am still brushing away...and looking forward to more results.> Just a few years ago it was non-stop screaming, never sleeping child, pooping everywhere except the potty...> > Just hang in there!

> > Natasha.> Aggression - Valium alternative> > > > Hi all;> > Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls

> > I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information.

> > We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.

> > She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new).

> > Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!> > Kim>

[Guest guest]

I am wondering if when you have a child that does not respond

appropriatly to meds (I mean as most people).That these children

need an extensive Dna workup from someone knowledgeable.

My son is like yours and Fransels in lots of

ways.I have done naturals during pregnancy and through out my sons

baby hood.All the natural interventions failed(about 8years worth of

trying).Going to the best natural docs around.Spending so many 10"s

of thousands.So I turned to non naturals(NIDS protocal) and its been

the only thing I have seen any positives. I still have a long way to

get to normal,but I think the Dna route may be my next step.Or is

that a bad idea.Do I really want to know? What if theres no cure?

But I guess I would have a good direction to look at.Does anyone

think the yasko is the most thorough? Take care,Tammy F.

Hi Fransel;

I am so sorry to hear about your day! I have totally been

in the same situation and I know how devastating it is to

actually fear your child, and FOR your child while they

are in the midst of a rage.

It is so frustrating to have to depend on this supplement

or that, waiting to see what kind of fresh hell it could

unleash for your child. It would be so nice if there was a

clear path to follow! I am praying you will find some calm

and peace soon.

Yes, it is my preference to avoid medications altogether

but I am torn. I need to get her to a safe place mentally

so she is not a danger to herself, my family, my

belongings and out in public. I have been told by some

parents to stay away from risperidol, and others have

sworn that it has been magical for their kids - literally

night and day. So far, I have not met anyone that has been

able to help us control her behaviours alternatively - but

I am holding onto faith I will find someone soon.

Natasha thanks again for your post regarding your child's

diet. Yes, some kids are just so reactive to food and

thankfully some do respond when diet is changed. It is so

fabulous that you have had some competent and helpful

treatment from alternative sources to help with her

aggression and toileting. We have been super clean with

her diet since 1 year of age. I can't say she is the

poster child for success with dietary intervention, but

I'm sure she is healthier from her organic, free range,

GFCFSF sugar free etc etc diet. I am praying to meet

someone who can competently help our daughter without

medication, and without further "healing regressions" - so

done with those!!

Kim

>

> Dear Kim

> I am crying while reading your post. Don't take the

risperidal as it will create greater anxiety and increased

violence in your child. I went through hell this morning

as my son decided to ruin mother's day for the family. He

tore up the card and threw objects in his room - tore

magazines and ate the paper. He was so aggressive. The

trigger may be a new mood supplement (valerian leaf

extract) which is a natural valium. This morning was the

third dose and it looks like it is not working. My husband

thinks we should give it a second chance.

> I just gave him Sonne #7 detox for the first time. He

is alone in his room now. We are staying away from him

until it is safe. It's a wait and see.

> Fransel

>

>

Aggression - Valium alternative

>

> Hi all;

>

> Fransel, I empathize with what you are going through!

My daughter is also very aggressive and has extreme sound

sensitivity as well. We are in crisis with her again

currently as the aggression has increased and she is

throwing furniture and anything she can get her hands on

AT us... she used to just throw stuff at the walls

>

> I am also trying to figure out how to calm her down

ASAP as the whole family has to walk on eggshells not to

set her off. I have two other children and they can't

talk, or even be in her sight when she's around. I thank

all the people who have posted such wonderful helpful

information.

>

> We too are trying to avoid the use of anti-psychotics

but everyone (including 2 DAN doctors) is recommending I

put my daughter on risperidol immediately. We have been

old school hard core biomed for 8 years so this is very

difficult for me to accept. We've tried seemingly

everything.

>

> She is also starting to urinate on the furniture

again, something she has not done in a year. She uses her

bedroom as a toilet each morning, and sometimes night as

she withholds urine/feces and unloads on her bed, floor,

etc - gets violent when we try to put her on the toilet

and won't go... however she has been messing in her

bedroom for years (this is not new).

>

> Sorry for unloading here - we are going through hell

right now. My thoughts and prayers are with you Fransel!

>

> Kim

>

[Guest guest]

Thanks for the strep link , I will look at this more closely. Yes I'm sure

strep is probably contributing, along with all the other host of virus,

bacteria, fungi that our kids' immune systems can't deal with.

Tammy, did you mean DNA testing/supplementation as per Yasko? I'm not sure

about Fransel's child, but I have done her genetic testing and followed her

protocol for 2 years (disappointing results). You are right though, her

genetics are probably a part of the picture of her response/non-response to

supplements too.

> > >

> > > Dear Kim

> > > I am crying while reading your post. Don't take the risperidal as it

> > will create greater anxiety and increased violence in your child. I

> > went through hell this morning as my son decided to ruin mother's day

> > for the family. He tore up the card and threw objects in his room -

> > tore magazines and ate the paper. He was so aggressive. The trigger

> > may be a new mood supplement (valerian leaf extract) which is a

> > natural valium. This morning was the third dose and it looks like it

> > is not working. My husband thinks we should give it a second chance.

> > > I just gave him Sonne #7 detox for the first time. He is alone in

> > his room now. We are staying away from him until it is safe. It's a

> > wait and see.

> > > Fransel

> > >

> > > Aggression - Valium

> > alternative

> > >

> > > Hi all;

> > >

> > > Fransel, I empathize with what you are going through! My daughter is

> > also very aggressive and has extreme sound sensitivity as well. We are

> > in crisis with her again currently as the aggression has increased and

> > she is throwing furniture and anything she can get her hands on AT

> > us... she used to just throw stuff at the walls

> > >

> > > I am also trying to figure out how to calm her down ASAP as the

> > whole family has to walk on eggshells not to set her off. I have two

> > other children and they can't talk, or even be in her sight when she's

> > around. I thank all the people who have posted such wonderful helpful

> > information.

> > >

> > > We too are trying to avoid the use of anti-psychotics but everyone

> > (including 2 DAN doctors) is recommending I put my daughter on

> > risperidol immediately. We have been old school hard core biomed for 8

> > years so this is very difficult for me to accept. We've tried

> > seemingly everything.

> > >

> > > She is also starting to urinate on the furniture again, something

> > she has not done in a year. She uses her bedroom as a toilet each

> > morning, and sometimes night as she withholds urine/feces and unloads

> > on her bed, floor, etc - gets violent when we try to put her on the

> > toilet and won't go... however she has been messing in her bedroom for

> > years (this is not new).

> > >

> > > Sorry for unloading here - we are going through hell right now. My

> > thoughts and prayers are with you Fransel!

> > >

> > > Kim

> > >

> >

> >

>

[Guest guest]

Hi Fransel,Sorry to hear about your Mother's Day.Did you up the dose from the first day? If he is getting too much it can produce the opposite result. You may want to try less Valerian or discontinue the Valerian and go with the 5HTP  and see how that works. If it were my choice I would go with the 5 HTP since that is what gets you the serotonin.Keep me posted.Dear Kim I am crying while reading your post. Don't take the risperidal as it will create greater anxiety and increased violence in your child. I went through hell this morning as my son decided to ruin mother's day for the family. He tore up the card and threw objects in his room - tore magazines and ate the paper. He was so aggressive. The trigger may be a new mood supplement (valerian leaf extract) which is a natural valium. This morning was the third dose and it looks like it is not working. My husband thinks we should give it a second chance.I just gave him Sonne #7 detox for the first time. He is alone in his room now. We are staying away from him until it is safe. It's a wait and see.FranselFrom: "Kim" Sender: BorreliaMultipleInfectionsAndAutism Date: Sun, 08 May 2011 13:39:00 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject:  Aggression - Valium alternative Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls  I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim 

[Guest guest]

Hi Tammy ,

I am completely agreed with you.My dd has adverse reaction to many meds just as I have.We did genetic testing for our whole family and sure enough all four of us do not detox properly.But it was easy to see where it came from for our kids.They will need help with detox for the rest of their life.We used to do mb12 shots+ folinic acid and glutathione transdermally.Right now only do mb12 shots every day and sauna once a week.

We've done dan protocol with my dd: diets, chelation, HBOT-soft and hard chamber,treated her for PANDAS, sauna twice a day,ozone therapy,different IVs, PK protocol,spironolactone,antifungal ,valtrex and etc. for over three years with very little progress.

With MANY side effects and regressions.I have been fortune enough to experience many treatments myself.I almost died after being on Valtrex for week ....and I am verbal but nobody believed me either .It's not just possible to have side effects like that...-that's what they told me.I was physically in the great shape prior to that med. and it took me almost a year to get to that shape again! So I can only imagine what our non-verbal kids go through ....

When we found right homeopath last year she started making slow but study progress in all the areas.NO side effects!

I tried some of the stuff on myself and it's awesome, got rid of cold in 24 hours.None of us had been sick this winter at all.

I don't think we can treat the child in one area and expect progress .It have to be "whole" approach.Many different therapies together.

I've meet three adults at the conference in Atlanta and was able to ask them different ?-s.

One lady is 70 yo, ASD , has 2 daughters.She told us that she could not see any features in peoples faces and she did not know it for almost all of her life.She learned about it when she was picking up her husband of 30years from the airport and could not recognize his face from 30 feet away.She identify him by his height and his build.

So she came up with this device that trains ASD people to concentrate on eyes,nose and mouth.

All three of them said they do not like to talk to people, it is much easier for them to email.They said it takes to much energy mentally and physically to talk to someone....

All the stuff we don't know.... and we trying to help our kids so hard!

Aggression - Valium alternative> > Hi all;> > Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls > > I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. > > We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.> > She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). > > Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!> > Kim>

[Guest guest]

Yes we suspect that too. We are waiting for his blood results for PANDAS. It is scary to note that even without antibiotics we are already experiencing extreme behaviors. Too bad we missed the teleconference by Dr. K.FranselSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 8 May 2011 14:07:55 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Aggression - Valium alternative Aggression can be from PANDAS........auto immune reaction to strep! It is hitting a lot of our immune compromised kids really hard. go to www.pandasnetwork.org--- Subject: Aggression - Valium alternativeTo: BorreliaMultipleInfectionsAndAutism Date: Sunday, May 8, 2011, 9:39 AM Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting tourinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim

[Guest guest]

Inositol is helping sporadically to calm my son. He is going through the same thing- ripping, chewing and aggressive and unable to fall asleep at night. I think it is PANDAS

From: recoveringstan@...Reply-to: BorreliaMultipleInfectionsAndAutism To: BorreliaMultipleInfectionsAndAutism Sent: 5/8/2011 6:53:36 P.M. Eastern Daylight TimeSubj: Re: Aggression - Valium alternative

Hi Fransel,

Sorry to hear about your Mother's Day.

Did you up the dose from the first day? If he is getting too much it can produce the opposite result. You may want to try less Valerian or discontinue the Valerian and go with the 5HTP and see how that works. If it were my choice I would go with the 5 HTP since that is what gets you the serotonin.

Keep me posted.

Dear Kim I am crying while reading your post. Don't take the risperidal as it will create greater anxiety and increased violence in your child. I went through hell this morning as my son decided to ruin mother's day for the family. He tore up the card and threw objects in his room - tore magazines and ate the paper. He was so aggressive. The trigger may be a new mood supplement (valerian leaf extract) which is a natural valium. This morning was the third dose and it looks like it is not working. My husband thinks we should give it a second chance.I just gave him Sonne #7 detox for the first time. He is alone in his room now. We are staying away from him until it is safe. It's a wait and see.

Fransel

Sender: BorreliaMultipleInfectionsAndAutism

Date: Sun, 08 May 2011 13:39:00 -0000

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: Aggression - Valium alternative

Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim

[Guest guest]

Unisom is an over the counter sleep aid........works great!

Dear Kim I am crying while reading your post. Don't take the risperidal as it will create greater anxiety and increased violence in your child. I went through hell this morning as my son decided to ruin mother's day for the family. He tore up the card and threw objects in his room - tore magazines and ate the paper. He was so aggressive. The trigger may be a new mood supplement (valerian leaf extract) which is a natural valium. This morning was the third dose and it looks like it is not working. My husband thinks we should give it a second chance.I just gave him Sonne #7 detox for the first time. He is alone in his room now. We are staying away from him until it is safe. It's a wait and see.

Fransel

Sender: BorreliaMultipleInfectionsAndAutism

Date: Sun, 08 May 2011 13:39:00 -0000

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: Aggression - Valium alternative

Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8

years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim

[Guest guest]

Keep in mind that %) 05 PANDAS kids do NOT have high ASO/DNASE titers. When my sons symptoms were the worst his titers were the lowest in years. Find a doc that treats based on symptoms and NOT titers

Subject: Aggression - Valium alternativeTo: BorreliaMultipleInfectionsAndAutism Date: Sunday, May 8, 2011, 9:39 AM

Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to

urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim

[Guest guest]

Hi Natasha,

We were taught the brushing and deep pressure several years ago by our OT. She never mentioned oral motor exercises. Which oral motor exercises do you do? Thanks.

Re: Aggression - Valium alternative

Hi Fransel and Kim,

I was reading your messages and it broke my heart.

I just want to share some info I learned last weekend at ARI conference in Atlanta.

I meet this wonderful lady who is OT ( this is first time they ever had OT speaking at the conference). She is pretty well known In OT world but I did not know that at the time.

Anyway on Friday she had a short presentation which included the video about little boy, who was about one y.o. and could not do any basic stuff like sleeping ,eating, sitting, rolling over and etc. The insurance company spent over a million $$ by that time but nobody could figure out what was going on.From birth they had to hold him in upright position at all the time.They were not sure what was wrong with him either and suggested it was a brain injury.

When she got hold of the baby she said he has sensory defensiveness and taught the parents a technique to use and left the for the weekend.On day three he ate a baby food from a jar for the first time in his life and not one jar but THREE jars at once and took a nap. By day 10 he started sleeping through the night, eating, sitting, roiling over like a log.By day 14 he could walk, talk and everything what one year old babies do...

The OT name is Wilbarger.Her website is www. avanti-ed.com.They have a few products there but none of them have the technique .You really have to be taught how to do it.It's a simple technique you just have experience the right pressure and it's hard to explain someone without doing it on them.It includes some oral motor exercises, deep pressure brushing and deep pressure for all the joints.It only takes about 5 min. to do but you have to do it every 2 hours( 7 times a day ).Once you learn it it's pretty simple.

On her website find a workshop close to you and go there.I did not want to wait five months until they would come to Atlanta so I followed her for three days and she taught me how to do it.What a wonderful lady.

Both of my daughter's OTs knew the the technique but did not bother to say anything b/c they thought it's too much for the parents to do it so often.

Anyway my dd is 11y.o., asd, has apraxia and looked like she had a mini stroke a few years back.Her left side is much- much weaker and she speaks in the language like stroke patients do.She used to be very aggressive, she was kicked out of three therapy clinics in the last 2-3 years.Sometimes when we work on a new skill or word and she gets frustrated she will hit in the face.

We had done a lot of things for her in the last 18 months and she is getting better however we still have a long way to go.

I started implementing theirs technique on her last Sunday.She had great SLT on Mon., OT was good too but she got agitated at the end.

By Thur. her speech got more connected and she wanted to do new things.

On wed. her second OT was amazed by how patient she was to do hard things for her and how much she improved in one week since last Wed.

I took her shopping at Target to by some new tops.So we went in girl's section and they had a screaming baby there who would not stop crying but his mom would not leave the store ...I thought that would be the end of shopping for us b/c in the past my dd would run there and slapped the baby until he would stopped crying.

Not this time ! She looked at me then looked at the baby with concern.I said he is just hungry that's why he is crying...And she left him alone.We finished our shopping, walk to the car, she was holding my hand and walk next to me.Usually she is couple steps behind me.This time she was able to keep up with me no problem.I was so happy and proud of her!

My husband took my dd and son to Trader's Joe yesterday to buy me some flowers and reported the same thing: she was calm in the crowd and loud place ,was holding his hand and did great .Usually we would have to give her the iPod to keep her quiet.

So I am still brushing away...and looking forward to more results.

Just a few years ago it was non-stop screaming, never sleeping child, pooping everywhere except the potty...

Just hang in there!

Natasha.

Aggression - Valium alternative

Hi all;

Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls

I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information.

We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.

She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new).

Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!

Kim

[Guest guest]

Yes Kim Yasco is what I meant .Sad to hear your results of 2 years. Thanks,Tammy F. Subject: Re: Aggression - Valium alternativeTo: BorreliaMultipleInfectionsAndAutism Date: Sunday, May 8, 2011, 4:52 PM

Thanks for the strep link , I will look at this more closely. Yes I'm sure strep is probably contributing, along with all the other host of virus, bacteria, fungi that our kids' immune systems can't deal with.

Tammy, did you mean DNA testing/supplementation as per Yasko? I'm not sure about Fransel's child, but I have done her genetic testing and followed her protocol for 2 years (disappointing results). You are right though, her genetics are probably a part of the picture of her response/non-response to supplements too.

> > >

> > > Dear Kim

> > > I am crying while reading your post. Don't take the risperidal as it

> > will create greater anxiety and increased violence in your child. I

> > went through hell this morning as my son decided to ruin mother's day

> > for the family. He tore up the card and threw objects in his room -

> > tore magazines and ate the paper. He was so aggressive. The trigger

> > may be a new mood supplement (valerian leaf extract) which is a

> > natural valium. This morning was the third dose and it looks like it

> > is not working. My husband thinks we should give it a second chance.

> > > I just gave him Sonne #7 detox for the first time. He is alone in

> > his room now. We are staying away from him until it is safe. It's a

> > wait and see.

> > > Fransel

> > >

> > > Aggression - Valium

> > alternative

> > >

> > > Hi all;

> > >

> > > Fransel, I empathize with what you are going through! My daughter is

> > also very aggressive and has extreme sound sensitivity as well. We are

> > in crisis with her again currently as the aggression has increased and

> > she is throwing furniture and anything she can get her hands on AT

> > us... she used to just throw stuff at the walls

> > >

> > > I am also trying to figure out how to calm her down ASAP as the

> > whole family has to walk on eggshells not to set her off. I have two

> > other children and they can't talk, or even be in her sight when she's

> > around. I thank all the people who have posted such wonderful helpful

> > information.

> > >

> > > We too are trying to avoid the use of anti-psychotics but everyone

> > (including 2 DAN doctors) is recommending I put my daughter on

> > risperidol immediately. We have been old school hard core biomed for 8

> > years so this is very difficult for me to accept. We've tried

> > seemingly everything.

> > >

> > > She is also starting to urinate on the furniture again, something

> > she has not done in a year. She uses her bedroom as a toilet each

> > morning, and sometimes night as she withholds urine/feces and unloads

> > on her bed, floor, etc - gets violent when we try to put her on the

> > toilet and won't go... however she has been messing in her bedroom for

> > years (this is not new).

> > >

> > > Sorry for unloading here - we are going through hell right now. My

> > thoughts and prayers are with you Fransel!

> > >

> > > Kim

> > >

> >

> >

>

[Guest guest]

I claim no expertise in this area, except for my own observations regarding my own son. 5HTP, valerian, melatonin and many other compounds are high in indoleamines, which some kids cannot break down. My son shows toxic metabolites of tryptophan in his urine, and that may explain the aggression and violence we saw when he had anything related. There is a homeopathic called indole, which causes the body to excrete excess indoles. Some of the key indicators for using it are: constant motion of the fingers and feet, a raised red/pink rash on the cheeks, and trouble with getting up in the morning. His problem was gut related, and using the indole while getting rid of some of the nasty gut bugs he had really changed his violent tendencies. Please not that you can be deficient in the amino acid tryptophan, yet make toxic compounds from

it, leading to outbursts and "seizure like" behavior. Hope this helpsJeanSubject: Re: Aggression - Valium alternativeTo: BorreliaMultipleInfectionsAndAutism Date: Sunday, May 8, 2011, 4:36 PM

Hi Fransel;

I am so sorry to hear about your day! I have totally been in the same situation andthe poster child for success with dietary intervention, but I'm sure she is healthier from her organic, free range, GFCFSF sugar free etc etc diet. I am praying to meet someone who can competently help our daughter without medication, and without further "healing regressions" - so done with those!!

Kim

>

> Dear Kim

> I am crying while reading your post. Don't take the risperidal as it will create greater anxiety and increased violence in your child. I went through hell this morning as my son decided to ruin mother's day for the family. He tore up the card and threw objects in his room - tore magazines and ate the paper. He was so aggressive. The trigger may be a new mood supplement (valerian leaf extract) which is a natural valium. This morning was the third dose and it looks like it is not working. My husband thinks we should give it a second chance.

> I just gave him Sonne #7 detox for the first time. He is alone in his room now. We are staying away from him until it is safe. It's a wait and see.

> Fransel

>

> Aggression - Valium alternative

>

> Hi all;

>

> Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls

>

> I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information.

>

[Guest guest]



Hi ,

The oral motor is divided two ways.

If the child is compliant and will open their mouth without biting, (1) you take your thumb and do a side to side gentle sweep on the roof of the month just behind the front teeth. Do this three times. (2)Then with your two fingers( looks like V ), press on the lower teeth heavily three times.

For the non-compliant child,first part is the same and then use your thumb and press on the front of the lower teeth in a downward motion as if to open the mouth. Do this three times. Then move onto brushing and deep pressure .

If you familiar with PROMT exercises you can do that as well except she did not like the use of jigger.She said instead of stimulating muscles it relaxes them.

She also like the smelling exercises, listening programs or classic music, crossing midline exercises,etc.All this is from the book-Disconnected kids.

She does like astronaut program but it was to much for my dd,she could not stand the music in it.I think after brushing for a couple weeks I am going to introduce it again.

She said never ever tickle a child on the spectrum.Tickling is very offensive for sensory system.Normal people get rid of tension by laughing but ASD kids don't laugh and about 30 min later they are a mess.She also mention never look for immediate reaction, it take about 30 min. after you work on any sensory issues.

I hope it helps,

Natasha.

Aggression - Valium alternative

Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim

[Guest guest]

I read that this needs to be done 7 times a day, but what about after a week or

something? Is there an average length of time that it needs to be done 7 times

a day; does it taper off to only once a day eventually, etc.?

Love and prayers,

Heidi N

>

> Hi Fransel and Kim,

> I was reading your messages and it broke my heart.

> I just want to share some info I learned last weekend at ARI conference in

Atlanta.

> I meet this wonderful lady who is OT ( this is first time they ever had OT

speaking at the conference). She is pretty well known In OT world but I did not

know that at the time.

> Anyway on Friday she had a short presentation which included the video about

little boy, who was about one y.o. and could not do any basic stuff like

sleeping ,eating, sitting, rolling over and etc. The insurance company spent

over a million $$ by that time but nobody could figure out what was going

on.From birth they had to hold him in upright position at all the time.They

were not sure what was wrong with him either and suggested it was a brain

injury.

> When she got hold of the baby she said he has sensory defensiveness and

taught the parents a technique to use and left the for the weekend.On day three

he ate a baby food from a jar for the first time in his life and not one jar but

THREE jars at once and took a nap. By day 10 he started sleeping through the

night, eating, sitting, roiling over like a log.By day 14 he could walk, talk

and everything what one year old babies do...

> The OT name is Wilbarger.Her website is www. avanti-ed.com.They have

a few products there but none of them have the technique .You really have to be

taught how to do it.It's a simple technique you just have experience the right

pressure and it's hard to explain someone without doing it on them.It includes

some oral motor exercises, deep pressure brushing and deep pressure for all the

joints.It only takes about 5 min. to do but you have to do it every 2 hours( 7

times a day ).Once you learn it it's pretty simple.

>

> On her website find a workshop close to you and go there.I did not want to

wait five months until they would come to Atlanta so I followed her for three

days and she taught me how to do it.What a wonderful lady.

> Both of my daughter's OTs knew the the technique but did not bother to say

anything b/c they thought it's too much for the parents to do it so often.

> Anyway my dd is 11y.o., asd, has apraxia and looked like she had a mini stroke

a few years back.Her left side is much- much weaker and she speaks in the

language like stroke patients do.She used to be very aggressive, she was kicked

out of three therapy clinics in the last 2-3 years.Sometimes when we work on a

new skill or word and she gets frustrated she will hit in the face.

> We had done a lot of things for her in the last 18 months and she is getting

better however we still have a long way to go.

> I started implementing theirs technique on her last Sunday.She had great SLT

on Mon., OT was good too but she got agitated at the end.

> By Thur. her speech got more connected and she wanted to do new things.

> On wed. her second OT was amazed by how patient she was to do hard things for

her and how much she improved in one week since last Wed.

> I took her shopping at Target to by some new tops.So we went in girl's section

and they had a screaming baby there who would not stop crying but his mom would

not leave the store ...I thought that would be the end of shopping for us b/c in

the past my dd would run there and slapped the baby until he would stopped

crying.

> Not this time ! She looked at me then looked at the baby with concern.I said

he is just hungry that's why he is crying...And she left him alone.We finished

our shopping, walk to the car, she was holding my hand and walk next to

me.Usually she is couple steps behind me.This time she was able to keep up with

me no problem.I was so happy and proud of her!

> My husband took my dd and son to Trader's Joe yesterday to buy me some flowers

and reported the same thing: she was calm in the crowd and loud place ,was

holding his hand and did great .Usually we would have to give her the iPod to

keep her quiet.

> So I am still brushing away...and looking forward to more results.

> Just a few years ago it was non-stop screaming, never sleeping child, pooping

everywhere except the potty...

>

> Just hang in there!

>

> Natasha.

> Aggression - Valium

alternative

>

>

>

> Hi all;

>

> Fransel, I empathize with what you are going through! My daughter is also

very aggressive and has extreme sound sensitivity as well. We are in crisis with

her again currently as the aggression has increased and she is throwing

furniture and anything she can get her hands on AT us... she used to just throw

stuff at the walls

>

> I am also trying to figure out how to calm her down ASAP as the whole family

has to walk on eggshells not to set her off. I have two other children and they

can't talk, or even be in her sight when she's around. I thank all the people

who have posted such wonderful helpful information.

>

> We too are trying to avoid the use of anti-psychotics but everyone

(including 2 DAN doctors) is recommending I put my daughter on risperidol

immediately. We have been old school hard core biomed for 8 years so this is

very difficult for me to accept. We've tried seemingly everything.

>

> She is also starting to urinate on the furniture again, something she has

not done in a year. She uses her bedroom as a toilet each morning, and sometimes

night as she withholds urine/feces and unloads on her bed, floor, etc - gets

violent when we try to put her on the toilet and won't go... however she has

been messing in her bedroom for years (this is not new).

>

> Sorry for unloading here - we are going through hell right now. My thoughts

and prayers are with you Fransel!

>

> Kim

>

[Guest guest]

Thanks so much Natasha. My daughter's middle school teacher taught us those oral motor exercises, but we did them before meals and not with the brushing. It'll be interesting to see what happens when we do them together. I'll look into prompt and i believe I have the disconnected kids book. My daughter is 24 so i've read and tried so many things and my memory is really lousy. We just happen to be starting OT again today so I'l ask them also. Good luck to you.

Re: Aggression - Valium alternative

 Hi ,

The oral motor is divided two ways.

If the child is compliant and will open their mouth without biting, (1) you take your thumb and do a side to side gentle sweep on the roof of the month just behind the front teeth. Do this three times. (2)Then with your two fingers( looks like V ), press on the lower teeth heavily three times.

For the non-compliant child,first part is the same and then use your thumb and press on the front of the lower teeth in a downward motion as if to open the mouth. Do this three times. Then move onto brushing and deep pressure .

If you familiar with PROMT exercises you can do that as well except she did not like the use of jigger.She said instead of stimulating muscles it relaxes them.

She also like the smelling exercises, listening programs or classic music, crossing midline exercises,etc.All this is from the book-Disconnected kids.

She does like astronaut program but it was to much for my dd,she could not stand the music in it.I think after brushing for a couple weeks I am going to introduce it again.

She said never ever tickle a child on the spectrum.Tickling is very offensive for sensory system.Normal people get rid of tension by laughing but ASD kids don't laugh and about 30 min later they are a mess.She also mention never look for immediate reaction, it take about 30 min. after you work on any sensory issues.

I hope it helps,

Natasha.

Aggression - Valium alternative

Hi all;

Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls

I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information.

We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.

She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new).

Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!

Kim

[Guest guest]

Fransel, If you referred to Dr. K's teleconference hosted by LymeHope, the call has been postponed and yet to be rescheduled, because Dr. K has time conflict.LiminYes we suspect that too. We are waiting for his blood results for PANDAS. It is scary to note that even without antibiotics we are already experiencing extreme behaviors. Too bad we missed the teleconference by Dr. K.FranselSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 8 May 2011 14:07:55 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Aggression - Valium alternativeAggression can be from PANDAS........auto immune reaction to strep! It is hitting a lot of our immune compromised kids really hard. go to www.pandasnetwork.org--- Subject: Aggression - Valium alternativeTo: BorreliaMultipleInfectionsAndAutism Date: Sunday, May 8, 2011, 9:39 AM Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim

[Guest guest]

Ok thanks for the clarification.FranselSender: BorreliaMultipleInfectionsAndAutism Date: Tue, 10 May 2011 00:32:16 -0700To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Aggression - Valium alternative Fransel, If you referred to Dr. K's teleconference hosted by LymeHope, the call has been postponed and yet to be rescheduled, because Dr. K has time conflict.LiminYes we suspect that too. We are waiting for his blood results for PANDAS. It is scary to note that even without antibiotics we are already experiencing extreme behaviors. Too bad we missed the teleconference by Dr. K.FranselSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 8 May 2011 14:07:55 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Aggression - Valium alternativeAggression can be from PANDAS........auto immune reaction to strep! It is hitting a lot of our immune compromised kids really hard. go to www.pandasnetwork.org--- Subject: Aggression - Valium alternativeTo: BorreliaMultipleInfectionsAndAutism Date: Sunday, May 8, 2011, 9:39 AM Hi all;Fransel, I empathize with what you are going through! My daughter is also very aggressive and has extreme sound sensitivity as well. We are in crisis with her again currently as the aggression has increased and she is throwing furniture and anything she can get her hands on AT us... she used to just throw stuff at the walls I am also trying to figure out how to calm her down ASAP as the whole family has to walk on eggshells not to set her off. I have two other children and they can't talk, or even be in her sight when she's around. I thank all the people who have posted such wonderful helpful information. We too are trying to avoid the use of anti-psychotics but everyone (including 2 DAN doctors) is recommending I put my daughter on risperidol immediately. We have been old school hard core biomed for 8 years so this is very difficult for me to accept. We've tried seemingly everything.She is also starting to urinate on the furniture again, something she has not done in a year. She uses her bedroom as a toilet each morning, and sometimes night as she withholds urine/feces and unloads on her bed, floor, etc - gets violent when we try to put her on the toilet and won't go... however she has been messing in her bedroom for years (this is not new). Sorry for unloading here - we are going through hell right now. My thoughts and prayers are with you Fransel!Kim