Re: Anti-seizure meds

[Guest guest]

My son has three different kinds of sleep: 1)where he is very wakeful, i.e.

every 5-10 minutes he'll wake up and go right back to sleep 2)where he jerks

awake every so often and 3)where he has a night full of waking and jerks and

then a grand mal seizure in the morning. I think he probably has subclinical

seizures as well, but we haven't been able to do another EEG that would rule

that out. He has been on Keppra, which greatly increased his autism symptoms,

and now he is on zonisamide, which initially caused a spike in language followed

by a regression. His language is coming back since we started him on Transfer

Factor and HCL/pepsin. His seizure activity seems to be going down as well. We

are hoping to reduce his medication ASAP.

I would definitely avoid medication if you can! It's been a real hindrance to

progress.

>

> Hi all!

> We are just getting home after a 2 hr visit at a neurosurgeon (a friend of

ours recommended him, not that we want to have our child go through

neuro-surgery!). After looking at our son's medical history, which includes all

possible medical tests including MRI and 25 EEGs, he said it is sooo obvious

that the child has epileptic activity. He wants us to have a new MRI and EEG

done, (last MRI is from 4 yrs ago, last EEG from 1 yr ago) to confirm his

suspicion of sub-clinical seizures. Has someone had a child treated in this

aspect? With good/bad results? I am very surprised because 10 different

specialists had seen the same papers he saw today and not a single one mentioned

epilepsy as a possibility. So l have the feeling this might mean something.

This guy is a multi " laureate " MD and l wouldn't like to discard his point of

view so easily. Can someone relate? He did believe a chronic infection could

have lead to encephalitis, which then unleashed epileptic behavior in his

brain....

> Comments VERY welcome!

> Thank you to all!

> Isa

>

> Enviado desde mi oficina móvil BlackBerry® de Telcel

>