Re: Family told to keep son home

[Guest guest]

Oh, I'm so sorry things have not improved. I am pretty new and so I don't know

that I have anything great to add, but I'll tell you that when my son is falling

apart the treatment that works best is to take him for Zyto testing and

treatment using BioSet technology. How I understand it is that it reads the

body and figures out what the person is sensitive to or reacting to. It looks

for imbalances on an energetic level and starts at the very basic levels

(minerals, hormones, amino acids, etc.) and works up. The imbalances can be

corrected (temporarily) and may give the person relief from the discomfort.

This is not a fix but may give you more insight into what he is reacting to for

the time being.

I think you mentioned you are in southern CA. We are in northern CA and if

you'd like to me to call our practitioner and ask about locations near you, I'd

be willing to.

I totally know the feeling of playing the guessing game and waiting for

something to work. I pray for your strength!!

na

> >

> >> My son aggressed in school again - while on their community walk he made

himself fall in an embankment with no antecedents. He has done this walk many

timed. Then back in the classroom he threw objects and kicked staff just because

he was told to re-staple his artwork. It may be a die off from pathogens. He is

not on herbs or ABX yet. Only thing different is a slight increase in custom

probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about

zeolite - this is a binder like Sonne's #7 right? I see it is available in

capsule form from nutramedix. Is this the one I should get for mopping up in

lieu of charcoal? Tks to all.

> >> Fransel

> >>

> >

> >

>

[Guest guest]

My son has been like that for the past 5 months. I looked at the PANDAS symptoms and instinctively knew that is what it was. My DAN dr prescribed arithromycin without blood test confirmation. It's been a week and he is so much better already. Please try to get a prescription and start high dose ASAP.

From: franselw@...Reply-to: BorreliaMultipleInfectionsAndAutism To: BorreliaMultipleInfectionsAndAutism Sent: 5/17/2011 2:47:41 P.M. Eastern Daylight TimeSubj: Family told to keep son home

Today I received the sad news to keep my son from attending school while an emergency IEP is called. School said that attendance poses a danger to himself, his classmates and teachers. What I have given my son for mood support has not been working - he is 18 yrs old 130lbs: 5HTP 100mg in the morning, 1 drop Barberry by Nutramedix 2x daily, Sonne's #7 edible clay half tsp mixed with water for detox early morning, Bach rescue remedy 4 drops several x in the day, magnesium citrate 2caps daily, lavender oil in Epsom salt bath 20 min every night, GFCFSF-SCD-LOD, Ltheanine with GABA 2 caps, melatonin 2.5mg slow release at bedtime, other supps. Not yet on ABX for Lyme & co.

Is there anything there that has worked for your kids to help with mood support? We are still waiting for tests to be reviewed by our doctor before she lays down course of treatment. I am almost certain he has PANDAS.

I am hoping that we do not r esort to behavior meds. He has pathogen overload. It can't be yeast as he just finished diflucan one month at high dose. Mopping up only with pectins as he is reactive to charcoal and alkaseltzer gold.

Grateful if someone can give me some advice on mood support or any other suggestions. Thank you very much everyone. Sent from my iPad

Thank you for suggesting this ad well

Fransel

From: franselw@...

Date: Fri, 13 May 2011 19:43:17 +0000

To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >

ReplyTo: franselw@...

Subject: Fw: 5HTP Dosage

Fransel

From: franselw@...

Sender: BorreliaMultipleInfectionsAndAutism

Date: Fri, 13 May 2011 18:33:11 +0000

To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: 5HTP Dosage

Thanks for your post . I will give the second dose of 5HTP 50mg now as he got one

Fransel

Sender: BorreliaMultipleInfectionsAndAutism

Date: Fri, 13 May 2011 09:46:37 -0700

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: Re: Zeolite by Nutramedix - need something for mopping up toxins

Hi Fransel,

You may need to increase the 5 HTP, and you have to give it regularly. My son is only 45 lbs and gets 100 mg in the morning. This is half the dose the naturopath said we could use. Also, how are his lips? If his lips are still bothering him, he could be in a great deal of pain, which of course will add to the aggression. You mentioned herpes in one of your previous posts. There was time when I used to get many blisters on my lips or they would often get chapped and the pain was excruciating. What helped was putting mositurizer on them. I have used Burts Bees lip balm, and coconut oil also works well. They key is to keep them as covered as possible until the inflammation goes down and the lips are completely healed.

My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.Fransel

[Guest guest]

Don’t be too quick to rule out yeast.  There are some yeast strains that are only controlled by Diflucan, not eliminated.  I have to take Diflucan on a daily basis, plus other yeast support, or I will have a major flare.  Pathogen overload can cause major mood swings and behavior issues.  When will you see or talk with the doctor? Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Fransel WyrzykowskiSent: Tuesday, May 17, 2011 11:47 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Family told to keep son home Today I received the sad news to keep my son from attending school while an emergency IEP is called. School said that attendance poses a danger to himself, his classmates and teachers. What I have given my son for mood support has not been working - he is 18 yrs old 130lbs: 5HTP 100mg in the morning, 1 drop Barberry by Nutramedix 2x daily, Sonne's #7 edible clay half tsp mixed with water for detox early morning, Bach rescue remedy 4 drops several x in the day, magnesium citrate 2caps daily, lavender oil in Epsom salt bath 20 min every night, GFCFSF-SCD-LOD, Ltheanine with GABA 2 caps, melatonin 2.5mg slow release at bedtime, other supps. Not yet on ABX for Lyme & co. Is there anything there that has worked for your kids to help with mood support? We are still waiting for tests to be reviewed by our doctor before she lays down course of treatment. I am almost certain he has PANDAS. I am hoping that we do not resort to behavior meds. He has pathogen overload. It can't be yeast as he just finished diflucan one month at high dose. Mopping up only with pectins as he is reactive to charcoal and alkaseltzer gold. Grateful if someone can give me some advice on mood support or any other suggestions. Thank you very much everyone. Sent from my iPad Thank you for suggesting this ad well FranselFrom: franselw@... Date: Fri, 13 May 2011 19:43:17 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: franselw@... Subject: Fw: 5HTP Dosage FranselFrom: franselw@... Sender: BorreliaMultipleInfectionsAndAutism Date: Fri, 13 May 2011 18:33:11 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: 5HTP Dosage Thanks for your post . I will give the second dose of 5HTP 50mg now as he got one Fransel Sender: BorreliaMultipleInfectionsAndAutism Date: Fri, 13 May 2011 09:46:37 -0700To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Zeolite by Nutramedix - need something for mopping up toxins Hi Fransel, You may need to increase the 5 HTP, and you have to give it regularly. My son is only 45 lbs and gets 100 mg in the morning. This is half the dose the naturopath said we could use. Also, how are his lips? If his lips are still bothering him, he could be in a great deal of pain, which of course will add to the aggression. You mentioned herpes in one of your previous posts. There was time when I used to get many blisters on my lips or they would often get chapped and the pain was excruciating. What helped was putting mositurizer on them. I have used Burts Bees lip balm, and coconut oil also works well. They key is to keep them as covered as possible until the inflammation goes down and the lips are completely healed. My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.Fransel __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com

[Guest guest]

Fransel;

I'm so sorry for what you're going through... I am surprised we haven't had the

same action for my eldest... they have had to clear the classroom on several

occasions due to her violent outbursts.

Another mom on this board mentioned using melatonin throughout the day to help

control behaviours - maybe you can discuss this with your doc. I have yet to

try this but I may look into it to help calm behaviours.

Ya, yeast can be ongoing and quite an issue even with a month on prescription

antifungals. We were on for a year+ (plus herbal antifungals) and we STILL had

yeast issues.

Please keep posting - I hope things settle for you soon!

Kim

> >

> >> My son aggressed in school again - while on their community walk he made

himself fall in an embankment with no antecedents. He has done this walk many

timed. Then back in the classroom he threw objects and kicked staff just because

he was told to re-staple his artwork. It may be a die off from pathogens. He is

not on herbs or ABX yet. Only thing different is a slight increase in custom

probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about

zeolite - this is a binder like Sonne's #7 right? I see it is available in

capsule form from nutramedix. Is this the one I should get for mopping up in

lieu of charcoal? Tks to all.

> >> Fransel

> >>

> >

> >

>

[Guest guest]

Even when you do find something that works, it will likely not rid it

immediately and forever. My kids got better over time, and there was always a

fluctuation here and there. Currently, Lutimax is working well for my angry

girl, but I can not say if it will last. She also needs iodine supplementation.

She is also on Mellatonin, no wheat, no potatoes and organic. She also can not

eat oats, and even gluten free breads can set her off. But, over time it has

improved immensely. So, I say to work with the school to come up with a plan,

because it will take a while to get the moods under control. With our special

needs children, they fluctuate often. If you could go to the school and

observe, you might also find something setting him off (I did almost every

time), or at least learn more about his environment so you can better know what

changes he needs. Don't trust the school to make all the decisions. School

personnel are not as bright as they portray to be, and I have been downright

shocked at some of the things I have seen at school, for example: dishonesty,

giving my kids wheat, not letting them go to the bathroom even when they are

crying tears to go, around very strong toxic smells daily, and more. So, you

see, try to visit the school to see how he reacts. Even if the teachers are

doing great, you will see your son's behaviors which will help you learn more

about what his needs are.

Love and prayers,

Heidi N

> > >

> > >> My son aggressed in school again - while on their community walk he made

himself fall in an embankment with no antecedents. He has done this walk many

timed. Then back in the classroom he threw objects and kicked staff just because

he was told to re-staple his artwork. It may be a die off from pathogens. He is

not on herbs or ABX yet. Only thing different is a slight increase in custom

probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about

zeolite - this is a binder like Sonne's #7 right? I see it is available in

capsule form from nutramedix. Is this the one I should get for mopping up in

lieu of charcoal? Tks to all.

> > >> Fransel

> > >>

> > >

> > >

> >

>

[Guest guest]

Hello naYes I would very much like a referral to a zyto scan testing center here in southern California. I've been reading about these zyto tests here and wondered what it was all about. I googled and got some info. If it worked for your son then I'm willing to give it a try - nothing to lose.Thank you.Sent from my iPad

Oh, I'm so sorry things have not improved. I am pretty new and so I don't know that I have anything great to add, but I'll tell you that when my son is falling apart the treatment that works best is to take him for Zyto testing and treatment using BioSet technology. How I understand it is that it reads the body and figures out what the person is sensitive to or reacting to. It looks for imbalances on an energetic level and starts at the very basic levels (minerals, hormones, amino acids, etc.) and works up. The imbalances can be corrected (temporarily) and may give the person relief from the discomfort. This is not a fix but may give you more insight into what he is reacting to for the time being.

I think you mentioned you are in southern CA. We are in northern CA and if you'd like to me to call our practitioner and ask about locations near you, I'd be willing to.

I totally know the feeling of playing the guessing game and waiting for something to work. I pray for your strength!!

na

> >

> >> My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.

> >> Fransel

> >>

> >

> >

>

[Guest guest]

Yes I actually have a consult scheduled tomorrow as an emergency. My regular visit to review the tests is on may 26 Thursday. Thank you for responding.Sent from my iPad

My son has been like that for the past 5 months. I looked at the PANDAS symptoms and instinctively knew that is what it was. My DAN dr prescribed arithromycin without blood test confirmation. It's been a week and he is so much better already. Please try to get a prescription and start high dose ASAP.

From: franselw@...Reply-to: BorreliaMultipleInfectionsAndAutism To: BorreliaMultipleInfectionsAndAutism Sent: 5/17/2011 2:47:41 P.M. Eastern Daylight TimeSubj: Family told to keep son home

Today I received the sad news to keep my son from attending school while an emergency IEP is called. School said that attendance poses a danger to himself, his classmates and teachers. What I have given my son for mood support has not been working - he is 18 yrs old 130lbs: 5HTP 100mg in the morning, 1 drop Barberry by Nutramedix 2x daily, Sonne's #7 edible clay half tsp mixed with water for detox early morning, Bach rescue remedy 4 drops several x in the day, magnesium citrate 2caps daily, lavender oil in Epsom salt bath 20 min every night, GFCFSF-SCD-LOD, Ltheanine with GABA 2 caps, melatonin 2.5mg slow release at bedtime, other supps. Not yet on ABX for Lyme & co.

Is there anything there that has worked for your kids to help with mood support? We are still waiting for tests to be reviewed by our doctor before she lays down course of treatment. I am almost certain he has PANDAS.

I am hoping that we do not r esort to behavior meds. He has pathogen overload. It can't be yeast as he just finished diflucan one month at high dose. Mopping up only with pectins as he is reactive to charcoal and alkaseltzer gold.

Grateful if someone can give me some advice on mood support or any other suggestions. Thank you very much everyone. Sent from my iPad

Thank you for suggesting this ad well

Fransel

From: franselw@...

Date: Fri, 13 May 2011 19:43:17 +0000

To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >

ReplyTo: franselw@...

Subject: Fw: 5HTP Dosage

Fransel

From: franselw@...

Sender: BorreliaMultipleInfectionsAndAutism

Date: Fri, 13 May 2011 18:33:11 +0000

To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: 5HTP Dosage

Thanks for your post . I will give the second dose of 5HTP 50mg now as he got one

Fransel

Sender: BorreliaMultipleInfectionsAndAutism

Date: Fri, 13 May 2011 09:46:37 -0700

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: Re: Zeolite by Nutramedix - need something for mopping up toxins

Hi Fransel,

You may need to increase the 5 HTP, and you have to give it regularly. My son is only 45 lbs and gets 100 mg in the morning. This is half the dose the naturopath said we could use. Also, how are his lips? If his lips are still bothering him, he could be in a great deal of pain, which of course will add to the aggression. You mentioned herpes in one of your previous posts. There was time when I used to get many blisters on my lips or they would often get chapped and the pain was excruciating. What helped was putting mositurizer on them. I have used Burts Bees lip balm, and coconut oil also works well. They key is to keep them as covered as possible until the inflammation goes down and the lips are completely healed.

My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.Fransel

[Guest guest]

Hello AnneMy son was not improving while on diflucan and afterwards. Can a person be on it for months? We are currently on Yeast Aid by Kirkman after diflucan. May I ask what you take for mopping up die offs? That may be contributing to the violent outbursts. Do you know if edible clay acts like charcoal? Sent from my iPad

Don’t be too quick to rule out yeast. There are some yeast strains that are only controlled by Diflucan, not eliminated. I have to take Diflucan on a daily basis, plus other yeast support, or I will have a major flare. Pathogen overload can cause major mood swings and behavior issues. When will you see or talk with the doctor? Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Fransel WyrzykowskiSent: Tuesday, May 17, 2011 11:47 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Family told to keep son home Today I received the sad news to keep my son from attending school while an emergency IEP is called. School said that attendance poses a danger to himself, his classmates and teachers. What I have given my son for mood support has not been working - he is 18 yrs old 130lbs: 5HTP 100mg in the morning, 1 drop Barberry by Nutramedix 2x daily, Sonne's #7 edible clay half tsp mixed with water for detox early morning, Bach rescue remedy 4 drops several x in the day, magnesium citrate 2caps daily, lavender oil in Epsom salt bath 20 min every night, GFCFSF-SCD-LOD, Ltheanine with GABA 2 caps, melatonin 2.5mg slow release at bedtime, other supps. Not yet on ABX for Lyme & co. Is there anything there that has worked for your kids to help with mood support? We are still waiting for tests to be reviewed by our doctor before she lays down course of treatment. I am almost certain he has PANDAS. I am hoping that we do not resort to behavior meds. He has pathogen overload. It can't be yeast as he just finished diflucan one month at high dose. Mopping up only with pectins as he is reactive to charcoal and alkaseltzer gold. Grateful if someone can give me some advice on mood support or any other suggestions. Thank you very much everyone. Sent from my iPad Thank you for suggesting this ad well FranselFrom: franselw@... Date: Fri, 13 May 2011 19:43:17 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: franselw@... Subject: Fw: 5HTP Dosage FranselFrom: franselw@... Sender: BorreliaMultipleInfectionsAndAutism Date: Fri, 13 May 2011 18:33:11 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: 5HTP Dosage Thanks for your post . I will give the second dose of 5HTP 50mg now as he got one Fransel Sender: BorreliaMultipleInfectionsAndAutism Date: Fri, 13 May 2011 09:46:37 -0700To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Zeolite by Nutramedix - need something for mopping up toxins Hi Fransel, You may need to increase the 5 HTP, and you have to give it regularly. My son is only 45 lbs and gets 100 mg in the morning. This is half the dose the naturopath said we could use. Also, how are his lips? If his lips are still bothering him, he could be in a great deal of pain, which of course will add to the aggression. You mentioned herpes in one of your previous posts. There was time when I used to get many blisters on my lips or they would often get chapped and the pain was excruciating. What helped was putting mositurizer on them. I have used Burts Bees lip balm, and coconut oil also works well. They key is to keep them as covered as possible until the inflammation goes down and the lips are completely healed. My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.Fransel __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com

[Guest guest]

good luck. As a single mom with a 14 yr old who was not sleeping and has crazy OCD and aggression I know how difficult it is. I am crossing my fingers that you can start right away and get some relief. has the formula for how much zith to take if you want to make sure he is on a high enough dose.

From: franselw@...Reply-to: BorreliaMultipleInfectionsAndAutism To: BorreliaMultipleInfectionsAndAutism Sent: 5/17/2011 5:30:50 P.M. Eastern Daylight TimeSubj: Re: Family told to keep son home

Yes I actually have a consult scheduled tomorrow as an emergency. My regular visit to review the tests is on may 26 Thursday. Thank you for responding.Sent from my iPad

My son has been like that for the past 5 months. I looked at the PANDAS symptoms and instinctively knew that is what it was. My DAN dr prescribed arithromycin without blood test confirmation. It's been a week and he is so much better already. Please try to get a prescription and start high dose ASAP.

From: franselw@...Reply-to: BorreliaMultipleInfectionsAndAutism To: BorreliaMultipleInfectionsAndAutism Sent: 5/17/2011 2:47:41 P.M. Eastern Daylight TimeSubj: Family told to keep son home

Today I received the sad news to keep my son from attending school while an emergency IEP is called. School said that attendance poses a danger to himself, his classmates and teachers. What I have given my son for mood support has not been working - he is 18 yrs old 130lbs: 5HTP 100mg in the morning, 1 drop Barberry by Nutramedix 2x daily, Sonne's #7 edible clay half tsp mixed with water for detox early morning, Bach rescue remedy 4 drops several x in the day, magnesium citrate 2caps daily, lavender oil in Epsom salt bath 20 min every night, GFCFSF-SCD-LOD, Ltheanine with GABA 2 caps, melatonin 2.5mg slow release at bedtime, other supps. Not yet on ABX for Lyme & co.

Is there anything there that has worked for your kids to help with mood support? We are still waiting for tests to be reviewed by our doctor before she lays down course of treatment. I am almost certain he has PANDAS.

I am hoping that we do not r esort to behavior meds. He has pathogen overload. It can't be yeast as he just finished diflucan one month at high dose. Mopping up only with pectins as he is reactive to charcoal and alkaseltzer gold.

Grateful if someone can give me some advice on mood support or any other suggestions. Thank you very much everyone. Sent from my iPad

Thank you for suggesting this ad well

Fransel

From: franselw@...

Date: Fri, 13 May 2011 19:43:17 +0000

To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >

ReplyTo: franselw@...

Subject: Fw: 5HTP Dosage

Fransel

From: franselw@...

Sender: BorreliaMultipleInfectionsAndAutism

Date: Fri, 13 May 2011 18:33:11 +0000

To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: 5HTP Dosage

Thanks for your post . I will give the second dose of 5HTP 50mg now as he got one

Fransel

Sender: BorreliaMultipleInfectionsAndAutism

Date: Fri, 13 May 2011 09:46:37 -0700

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: Re: Zeolite by Nutramedix - need something for mopping up toxins

Hi Fransel,

You may need to increase the 5 HTP, and you have to give it regularly. My son is only 45 lbs and gets 100 mg in the morning. This is half the dose the naturopath said we could use. Also, how are his lips? If his lips are still bothering him, he could be in a great deal of pain, which of course will add to the aggression. You mentioned herpes in one of your previous posts. There was time when I used to get many blisters on my lips or they would often get chapped and the pain was excruciating. What helped was putting mositurizer on them. I have used Burts Bees lip balm, and coconut oil also works well. They key is to keep them as covered as possible until the inflammation goes down and the lips are completely healed.

My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.Fransel

[Guest guest]

Oh my gosh - a year on antifungals? Did you have to rotate? I am worried about die offs! I didn't think yeast was ever an issue since we were on SCD. I wish these nasty yeast would just go away and not leave a mess! I am so tired now but can put the Ipad down. There is so much to learn from each others posts. The answers don't come easy and not the same fix for all.I also need good probiotics - right now we are still on the child dose of custom probiotics d lactate formula. Are you guys using this?Sent from my iPad

Fransel;

I'm so sorry for what you're going through... I am surprised we haven't had the same action for my eldest... they have had to clear the classroom on several occasions due to her violent outbursts.

Another mom on this board mentioned using melatonin throughout the day to help control behaviours - maybe you can discuss this with your doc. I have yet to try this but I may look into it to help calm behaviours.

Ya, yeast can be ongoing and quite an issue even with a month on prescription antifungals. We were on for a year+ (plus herbal antifungals) and we STILL had yeast issues.

Please keep posting - I hope things settle for you soon!

Kim

> >

> >> My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.

> >> Fransel

> >>

> >

> >

>

[Guest guest]

Thank you Sent from my iPad

good luck. As a single mom with a 14 yr old who was not sleeping and has crazy OCD and aggression I know how difficult it is. I am crossing my fingers that you can start right away and get some relief. has the formula for how much zith to take if you want to make sure he is on a high enough dose.

From: franselw@...Reply-to: BorreliaMultipleInfectionsAndAutism To: BorreliaMultipleInfectionsAndAutism Sent: 5/17/2011 5:30:50 P.M. Eastern Daylight TimeSubj: Re: Family told to keep son home

Yes I actually have a consult scheduled tomorrow as an emergency. My regular visit to review the tests is on may 26 Thursday. Thank you for responding.Sent from my iPad

My son has been like that for the past 5 months. I looked at the PANDAS symptoms and instinctively knew that is what it was. My DAN dr prescribed arithromycin without blood test confirmation. It's been a week and he is so much better already. Please try to get a prescription and start high dose ASAP.

From: franselw@...Reply-to: BorreliaMultipleInfectionsAndAutism To: BorreliaMultipleInfectionsAndAutism Sent: 5/17/2011 2:47:41 P.M. Eastern Daylight TimeSubj: Family told to keep son home

Today I received the sad news to keep my son from attending school while an emergency IEP is called. School said that attendance poses a danger to himself, his classmates and teachers. What I have given my son for mood support has not been working - he is 18 yrs old 130lbs: 5HTP 100mg in the morning, 1 drop Barberry by Nutramedix 2x daily, Sonne's #7 edible clay half tsp mixed with water for detox early morning, Bach rescue remedy 4 drops several x in the day, magnesium citrate 2caps daily, lavender oil in Epsom salt bath 20 min every night, GFCFSF-SCD-LOD, Ltheanine with GABA 2 caps, melatonin 2.5mg slow release at bedtime, other supps. Not yet on ABX for Lyme & co.

Is there anything there that has worked for your kids to help with mood support? We are still waiting for tests to be reviewed by our doctor before she lays down course of treatment. I am almost certain he has PANDAS.

I am hoping that we do not r esort to behavior meds. He has pathogen overload. It can't be yeast as he just finished diflucan one month at high dose. Mopping up only with pectins as he is reactive to charcoal and alkaseltzer gold.

Grateful if someone can give me some advice on mood support or any other suggestions. Thank you very much everyone. Sent from my iPad

Thank you for suggesting this ad well

Fransel

From: franselw@...

Date: Fri, 13 May 2011 19:43:17 +0000

To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >

ReplyTo: franselw@...

Subject: Fw: 5HTP Dosage

Fransel

From: franselw@...

Sender: BorreliaMultipleInfectionsAndAutism

Date: Fri, 13 May 2011 18:33:11 +0000

To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: 5HTP Dosage

Thanks for your post . I will give the second dose of 5HTP 50mg now as he got one

Fransel

Sender: BorreliaMultipleInfectionsAndAutism

Date: Fri, 13 May 2011 09:46:37 -0700

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: Re: Zeolite by Nutramedix - need something for mopping up toxins

Hi Fransel,

You may need to increase the 5 HTP, and you have to give it regularly. My son is only 45 lbs and gets 100 mg in the morning. This is half the dose the naturopath said we could use. Also, how are his lips? If his lips are still bothering him, he could be in a great deal of pain, which of course will add to the aggression. You mentioned herpes in one of your previous posts. There was time when I used to get many blisters on my lips or they would often get chapped and the pain was excruciating. What helped was putting mositurizer on them. I have used Burts Bees lip balm, and coconut oil also works well. They key is to keep them as covered as possible until the inflammation goes down and the lips are completely healed.

My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.Fransel

[Guest guest]

I have been on Diflucan for years, and Sporanox for years before that, probably about 9-10 years in total.  Sporanox is another antifungal, which actually works better for me and my yeast control; but it also interacts with some of the antibiotics that I need to keep Lyme and Co under control.  I take Marshmallow Root, Slippery Elm, Guar Gum, and Chlorella to help my GI and absorb toxins.  There are some common absorption properties between charcoal and edible clay, but also some differences.  If he only tolerates edible clay, then use it. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Fransel WyrzykowskiSent: Tuesday, May 17, 2011 2:38 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Family told to keep son home Hello Anne My son was not improving while on diflucan and afterwards. Can a person be on it for months? We are currently on Yeast Aid by Kirkman after diflucan. May I ask what you take for mopping up die offs? That may be contributing to the violent outbursts. Do you know if edible clay acts like charcoal? Sent from my iPad Don’t be too quick to rule out yeast. There are some yeast strains that are only controlled by Diflucan, not eliminated. I have to take Diflucan on a daily basis, plus other yeast support, or I will have a major flare. Pathogen overload can cause major mood swings and behavior issues. When will you see or talk with the doctor? Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Fransel WyrzykowskiSent: Tuesday, May 17, 2011 11:47 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Family told to keep son home Today I received the sad news to keep my son from attending school while an emergency IEP is called. School said that attendance poses a danger to himself, his classmates and teachers. What I have given my son for mood support has not been working - he is 18 yrs old 130lbs: 5HTP 100mg in the morning, 1 drop Barberry by Nutramedix 2x daily, Sonne's #7 edible clay half tsp mixed with water for detox early morning, Bach rescue remedy 4 drops several x in the day, magnesium citrate 2caps daily, lavender oil in Epsom salt bath 20 min every night, GFCFSF-SCD-LOD, Ltheanine with GABA 2 caps, melatonin 2.5mg slow release at bedtime, other supps. Not yet on ABX for Lyme & co. Is there anything there that has worked for your kids to help with mood support? We are still waiting for tests to be reviewed by our doctor before she lays down course of treatment. I am almost certain he has PANDAS. I am hoping that we do not resort to behavior meds. He has pathogen overload. It can't be yeast as he just finished diflucan one month at high dose. Mopping up only with pectins as he is reactive to charcoal and alkaseltzer gold. Grateful if someone can give me some advice on mood support or any other suggestions. Thank you very much everyone. Sent from my iPad Thank you for suggesting this ad well FranselFrom: franselw@... Date: Fri, 13 May 2011 19:43:17 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: franselw@... Subject: Fw: 5HTP Dosage FranselFrom: franselw@... Sender: BorreliaMultipleInfectionsAndAutism Date: Fri, 13 May 2011 18:33:11 +0000To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: 5HTP Dosage Thanks for your post . I will give the second dose of 5HTP 50mg now as he got one Fransel Sender: BorreliaMultipleInfectionsAndAutism Date: Fri, 13 May 2011 09:46:37 -0700To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Zeolite by Nutramedix - need something for mopping up toxins Hi Fransel, You may need to increase the 5 HTP, and you have to give it regularly. My son is only 45 lbs and gets 100 mg in the morning. This is half the dose the naturopath said we could use. Also, how are his lips? If his lips are still bothering him, he could be in a great deal of pain, which of course will add to the aggression. You mentioned herpes in one of your previous posts. There was time when I used to get many blisters on my lips or they would often get chapped and the pain was excruciating. What helped was putting mositurizer on them. I have used Burts Bees lip balm, and coconut oil also works well. They key is to keep them as covered as possible until the inflammation goes down and the lips are completely healed. My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.Fransel __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com__________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com__________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6130 (20110517) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com

[Guest guest]

We are going tomorrow and I will get a contact number for you. If anything, I

think it will give you information about what the biggest issues are and some

practitioners will use the information to tell you what treatment will work best

with his body.

na

> > > >

> > > >> My son aggressed in school again - while on their community walk he

made himself fall in an embankment with no antecedents. He has done this walk

many timed. Then back in the classroom he threw objects and kicked staff just

because he was told to re-staple his artwork. It may be a die off from

pathogens. He is not on herbs or ABX yet. Only thing different is a slight

increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I

want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is

available in capsule form from nutramedix. Is this the one I should get for

mopping up in lieu of charcoal? Tks to all.

> > > >> Fransel

> > > >>

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Fransel,

My son's doctor told me that she does not like to use Diflucan because causes

havoc to the liver and it is quite damaging to it.

I am not sure but I think anger has to do with liver problems, perhaps it will

be worthwhile to try to help the liver at this point in time using liver live(

Bioray) or other liver mixture as it is very clear that the other things you

have been giving to keep him calm are not working perhaps liver life may help to

settle him .

Just my thought.

Olga

> >

> >> My son aggressed in school again - while on their community walk he made

himself fall in an embankment with no antecedents. He has done this walk many

timed. Then back in the classroom he threw objects and kicked staff just because

he was told to re-staple his artwork. It may be a die off from pathogens. He is

not on herbs or ABX yet. Only thing different is a slight increase in custom

probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about

zeolite - this is a binder like Sonne's #7 right? I see it is available in

capsule form from nutramedix. Is this the one I should get for mopping up in

lieu of charcoal? Tks to all.

> >> Fransel

> >>

> >

> >

>

[Guest guest]

Yes, any systemic drug can be hard on the liver. We had to have regular blood

testing to check for elevated liver enzymes.

> > >

> > >> My son aggressed in school again - while on their community walk he made

himself fall in an embankment with no antecedents. He has done this walk many

timed. Then back in the classroom he threw objects and kicked staff just because

he was told to re-staple his artwork. It may be a die off from pathogens. He is

not on herbs or ABX yet. Only thing different is a slight increase in custom

probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about

zeolite - this is a binder like Sonne's #7 right? I see it is available in

capsule form from nutramedix. Is this the one I should get for mopping up in

lieu of charcoal? Tks to all.

> > >> Fransel

> > >>

> > >

> > >

> >

>

[Guest guest]

Heidi,

Are you using Lutimax and Enzo Professional together? Do you find that they do

the same thing, or are they completely different?

We have had great success with Lutimax lately, but are thinking of adding Enzo.

Thanks,

Bethany

> > > >

> > > >> My son aggressed in school again - while on their community walk he

made himself fall in an embankment with no antecedents. He has done this walk

many timed. Then back in the classroom he threw objects and kicked staff just

because he was told to re-staple his artwork. It may be a die off from

pathogens. He is not on herbs or ABX yet. Only thing different is a slight

increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I

want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is

available in capsule form from nutramedix. Is this the one I should get for

mopping up in lieu of charcoal? Tks to all.

> > > >> Fransel

> > > >>

> > > >

> > > >

> > >

> >

>

[Guest guest]

Yes, using both. Lutimax feels like it makes more blood go to the front of the

brain where focus is. It also seems to have a compounding effect. In that it

works more every day than the day before. Also, I think it is helping with

empathy, able to understand others' feelings, because my daughter seems to be

thinking more along those lines, and she usually is totally inconsiderate. She

came home and told me that she can now pay attention to what the teacher says.

So, wow, is what I have to say. Yes, the Enzo: profeesional is different. It

also helps with clear thinking for us and more stable moods. Not sure how. I

guess I would have to pick Lutimax over the Enzo if I had to choose, but the

Enzo is working well enough for me to continue paying the high price for it.

These are only short-term observations of about a month's use. Things might

change down the road because they often do.

Love and prayers,

Heidi N

> > > > >

> > > > >> My son aggressed in school again - while on their community walk he

made himself fall in an embankment with no antecedents. He has done this walk

many timed. Then back in the classroom he threw objects and kicked staff just

because he was told to re-staple his artwork. It may be a die off from

pathogens. He is not on herbs or ABX yet. Only thing different is a slight

increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I

want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is

available in capsule form from nutramedix. Is this the one I should get for

mopping up in lieu of charcoal? Tks to all.

> > > > >> Fransel

> > > > >>

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

As heartbreaking as it is, maybe it will help your son to have some time at

home. When a situation is bad at school, it will stay that way even after you

fix the biolgical issues. The teachers and students come to expect that sort of

behavior out of the difficult student and the difficult student will play the

role he has been characterized with. This can be about expectations as well as

repition. Our ASD students tend to stick to their routines. When aggression has

become part of the routine, they dutifully play the part they auditioned for and

won.

If he takes a break to heal (emotionally and biologically) whatever is initially

setting of the aggression, it might give them time to organize the way they

support him. Rewrite the scene so to speak.

Or they may change placement, which gives him a fresh start.

Also consider that an aggressive student is emotionally and physically damaging

to staff and other students. It can cause a great deal of anxiety, which

effects the other students behavior and the teacher's performance as an

educator. This is not the student's fault, but it is the case.

Finally, I agree with Heidi that many teachers and professionals are putting on

a show of expertise that they do not actually have. Never assume they know the

best thing to do, and be prepared to change placement if necessary.

Jen