Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 Hello I think we may have looked into these markers in the many blood tests - soooo many tests performed. I am always careful about withholding supplements prior to tests as my son is very reactionary.I will mention this test to doc in next appt. Many thanks for sharing. My son is almost non verbal so your experience helps me a lot in understanding what my son is through. He has a lot of sensory issues and rage attacks. Frequency has increased in the last 6 months.Very difficult journey and so many protocols. Hard to decide which road to take. Right now I am seeing a Lyme-Autism dr, a naturopath acupuncturist, a healing doctor and on June 1 I will consult with another lyme specialist.Thanks for sharing. Sent from my iPad Fransel I am an adult also dealing with lyme. I am GF and LOD. In years past I did allergy testing (via blood - Sage labs) and found I had quite a few alleriges / sensitiivities I was not aware I had. So if you have not done that yet, I strongly recommend it. I also had the "prick" testing done and found it to be wrong so I do not promote that testing. In the beginning of my illness - it took me @ two years to finally get a lyme dx - I experienced horrible sensory issues - I remember riding in my husband's truck and looking out the window and wondering what was happening - it was an awful experience. Loud noises were bothersome, smells, motion(s),etc. So I completely empathize with him on that. Have you tested for coinfections - such as viral and or other bacterias? Typically they go hand in hand. And finally I would test for Nutritional deficiencies - this is very important. I recently read how one of the vitamin B deficiencies have been known to cause some of the sensitivities. The testing is the easy part - and maybe with some luck adjusting the nutritional levels will be too unless he is sensitive to certain things - go slow. I would also test if you have not already for HPU/KPU ( http://planetthrive.com/2010/04/hpukpu-protocol-for-lyme-and-autism/ )which will save you time (money and energy = peace)before you begin any of the other things. It is complicated, but I wish someone had known to tell me all of this way back when rather than me learning it myself over the past five years. The good news is yes, he can get better. I have and although I am not running marathons, I am living a pretty full life and often symptom free. Good luck! > > How does one know if you are sensitive to high oxalates? Does the OAT provide answers? Our doctor said my son did not have high oxalates based on his OAT but I failed to ask which part of the test said that? Does anyone know how to read an OAT result? > > I am still confused which diet to put my son on. We have been GFCFSCD for 8 years but my son's new diagnosis for Lyme has created more sensory intolerances. He has become very aggressive which I am sure is due to the infections. But if it is from oxalates and dumping because I have been giving high Oxalate foods such as nut breads, some fruits and vegetables, how does one know if there is an Oxalate issue? > > Our doctor recommends the No Amylose Diet to heal the gut but most foods are high Oxalate and nonSCD compliant. It is so confusing to add the diet into the mix when the treatment for lyme alone is a challenge. > > Today I bravely took my son for a walk and noticed that he at times keeps his eyes closed or covers his ears. What could this be? Everything seems painful to him these days. Things seem to subside a little bit with Motrin - proof that he has severe gut and brain inflammation. He is going to take Calm PRT for neurotransmitters, Norlox, Avipaxin, Omega3 DHA Select and Resveratrol for inflammation, K PAX multi-vitamins, S Boulardii and Custom Probiotics DLactate to strengthen his gut before the course of antibiotics. He also takes Rescue Remedy and Barberry. Comments? > > Also can anyone shed light please on Oxalate diagnosis? Many thanks for any and all advice. Thank you. > > Fransel > > Sent from my iPad > Quote Link to comment Share on other sites More sharing options...
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