Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Phyllis, thanks so much for your encouraging letter it helped me see the other side of the coin. I never thought I'd say it but I think you might be right, legalize all of them, just keep them off the streets. Anyway thanks a lot and God bless. Snowy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Greetings all, Thanks for all who share daily. I appreciate it. My Dad has LBD, and was in hospital recovering from a bad fall where he had broken 6 ribs, then onto skill nursing home for rehab. Just recently he was placed in a Long Term Care facility and my Mom, sisters and I have been taking turns with shifts to be with him daily. He's been on Seroquel. Apparently yesterday morning he was upset so the staff gave him depicote (sp?). Tho it took longer to work, he did well with it, and did not appear as sleepy. I'm not familiar with this drug so I thought to check with everyone here to see if you know abt this kind - depicote? I'm concerned when " new meds " are given and not sure if this is something commonly happens but seems to me they would have to have dr approval. And what's more, I feel like medications are not consistent in terms of time given and etc. Esp when he acts up and becomes upset and agitated. Its been a long hard road. Esp over Christmas. Thanks, Sheri A. Farinha Chief Executive Officer NorCal Services for Deaf & Hard of Hearing 4708 Roseville Rd, Suite 111 North Highlands, CA 95660 www.norcalcenter.org Email: SFarinha@... Pager: xoSheri@... Telephone: VP: (916)993-3040 or (916)626-4928 Re: Drugs for incontinence Hi Imogene Sometimes I feel as though I am Jim's shadow but it is so necessary at the moment. He cannot remember where to find the bathroom so I go with him every time. On the night of Christmas Day, he had the most disturbed sleep to date. Between 2 am and 3 am he (= we) got up at least 6 times to go to the bathroom ... I stopped counting after that ... followed by other trips at 4 am, 5.30 and 6 am. By then I was absolutely wiped out. The next night I decided to see if my little theory worked - that is, if the incontinence pills worked on the first night, then this could be a useful way of letting me catch up on much needed sleep. It worked! And for that I was so thankful. I gave him one Desmopressin and the only trips to the bathroom were at 11.30 pm and 5 am. Those solid blocks of sleep made me feel like a million dollars the next morning, and able to face things again. His sleep has been like this for the last two nights as well, without any incontinence medication. It will be interesting to see what tonight brings ..... Elaine (61) from Sydney Australia Caring for Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 I wish a very Happy New Year to everyone and to our loved ones... Ferhan ________________________________ To: LBDcaregivers Sent: Thu, December 30, 2010 7:20:14 PM Subject: Re: Re: Drugs Greetings all, Thanks for all who share daily. I appreciate it. My Dad has LBD, and was in hospital recovering from a bad fall where he had broken 6 ribs, then onto skill nursing home for rehab. Just recently he was placed in a Long Term Care facility and my Mom, sisters and I have been taking turns with shifts to be with him daily. He's been on Seroquel. Apparently yesterday morning he was upset so the staff gave him depicote (sp?). Tho it took longer to work, he did well with it, and did not appear as sleepy. I'm not familiar with this drug so I thought to check with everyone here to see if you know abt this kind - depicote? I'm concerned when " new meds " are given and not sure if this is something commonly happens but seems to me they would have to have dr approval. And what's more, I feel like medications are not consistent in terms of time given and etc. Esp when he acts up and becomes upset and agitated. Its been a long hard road. Esp over Christmas. Thanks, Sheri A. Farinha Chief Executive Officer NorCal Services for Deaf & Hard of Hearing 4708 Roseville Rd, Suite 111 North Highlands, CA 95660 www.norcalcenter.org Email: SFarinha@... Pager: xoSheri@... Telephone: VP: (916)993-3040 or (916)626-4928 Re: Drugs for incontinence Hi Imogene Sometimes I feel as though I am Jim's shadow but it is so necessary at the moment. He cannot remember where to find the bathroom so I go with him every time. On the night of Christmas Day, he had the most disturbed sleep to date. Between 2 am and 3 am he (= we) got up at least 6 times to go to the bathroom ... I stopped counting after that ... followed by other trips at 4 am, 5.30 and 6 am. By then I was absolutely wiped out. The next night I decided to see if my little theory worked - that is, if the incontinence pills worked on the first night, then this could be a useful way of letting me catch up on much needed sleep. It worked! And for that I was so thankful. I gave him one Desmopressin and the only trips to the bathroom were at 11.30 pm and 5 am. Those solid blocks of sleep made me feel like a million dollars the next morning, and able to face things again. His sleep has been like this for the last two nights as well, without any incontinence medication. It will be interesting to see what tonight brings ..... Elaine (61) from Sydney Australia Caring for Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Hi, Depakote is used for seizures, migraines and bipolar mood disorder (manic depressive). They must have felt he was manic. They definitely needed a doctor's prescription for this one, BUT, some of the placements have standing orders for certain types of meds. They are usually things like tylenol, so I would be curious how they got to use Depakote...I would have to ask, myself. From what reading I've done, it isn't that uncommon to prescribe Depakote to LBD patients and it is safer than the anti-psychotics. I'm sure others will know more, however, as I'm fairly new to LBD myself (my Dad). Lori Re: Drugs for incontinence Hi Imogene Sometimes I feel as though I am Jim's shadow but it is so necessary at the moment. He cannot remember where to find the bathroom so I go with him every time. On the night of Christmas Day, he had the most disturbed sleep to date. Between 2 am and 3 am he (= we) got up at least 6 times to go to the bathroom ... I stopped counting after that ... followed by other trips at 4 am, 5.30 and 6 am. By then I was absolutely wiped out. The next night I decided to see if my little theory worked - that is, if the incontinence pills worked on the first night, then this could be a useful way of letting me catch up on much needed sleep. It worked! And for that I was so thankful. I gave him one Desmopressin and the only trips to the bathroom were at 11.30 pm and 5 am. Those solid blocks of sleep made me feel like a million dollars the next morning, and able to face things again. His sleep has been like this for the last two nights as well, without any incontinence medication. It will be interesting to see what tonight brings ..... Elaine (61) from Sydney Australia Caring for Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Hi Lori, thanks for this info. To clarify, (now that I got more info from my sister) Depakote is one of the meds he has been taking but usually at noon. There's a lot of meds he is prescribed to be taking. In fact, I finally got a list of all his meds so sharing below: Finasteride 5mg QD Lisinopri 20mg. QD Exelon 95mg/24hr QD Docusate 100mg BID Trazadone 25mg QD Ambien 5mg QD Depakote 250mg BID Tamsulosin 0.4mg QD Seroquel 50mg BID Norco 325 mg Q4H Tylenol 325 mg PRN Magneisum oxide 800mg PRN Thanks, Sheri A. Farinha Chief Executive Officer NorCal Services for Deaf & Hard of Hearing 4708 Roseville Rd, Suite 111 North Highlands, CA 95660 www.norcalcenter.org Email: SFarinha@... Pager: xoSheri@... Telephone: VP: (916)993-3040 or (916)626-4928 Re: Re: Drugs Hi, Depakote is used for seizures, migraines and bipolar mood disorder (manic depressive). They must have felt he was manic. They definitely needed a doctor's prescription for this one, BUT, some of the placements have standing orders for certain types of meds. They are usually things like tylenol, so I would be curious how they got to use Depakote...I would have to ask, myself. From what reading I've done, it isn't that uncommon to prescribe Depakote to LBD patients and it is safer than the anti-psychotics. I'm sure others will know more, however, as I'm fairly new to LBD myself (my Dad). Lori Re: Drugs for incontinence Hi Imogene Sometimes I feel as though I am Jim's shadow but it is so necessary at the moment. He cannot remember where to find the bathroom so I go with him every time. On the night of Christmas Day, he had the most disturbed sleep to date. Between 2 am and 3 am he (= we) got up at least 6 times to go to the bathroom ... I stopped counting after that ... followed by other trips at 4 am, 5.30 and 6 am. By then I was absolutely wiped out. The next night I decided to see if my little theory worked - that is, if the incontinence pills worked on the first night, then this could be a useful way of letting me catch up on much needed sleep. It worked! And for that I was so thankful. I gave him one Desmopressin and the only trips to the bathroom were at 11.30 pm and 5 am. Those solid blocks of sleep made me feel like a million dollars the next morning, and able to face things again. His sleep has been like this for the last two nights as well, without any incontinence medication. It will be interesting to see what tonight brings ..... Elaine (61) from Sydney Australia Caring for Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms began at least 5 years before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 Sheri - These are way too many medications. Though I don't know what the first two are--and they may be necessary for something else--taking Depakoe AND Trazadone AND Seroquel AND Ambien are too much. I can't imagine how he is functioning. How could any of us function normally with all of these meds? Besides everything else, Ambien should never be given to anyone with LBD or to any elderly person. They react badly to it. Please try to find a doctor who will listen to you. Bring them information from the LBDA website if they don't have knowledge. If he was upset, our doctor has recommended finding out why first--before giving meds. I don't mean to sound harsh, but it's always upsetting to hear that the only way to stop someone's upsetment is with drugs. > > Hi Lori, thanks for this info. To clarify, (now that I got more info from my sister) Depakote is one of the meds he has been taking but usually at noon. There's a lot of meds he is prescribed to be taking. In fact, I finally got a list of all his meds so sharing below: > > Finasteride 5mg QD > Lisinopri 20mg. QD > Exelon 95mg/24hr QD > Docusate 100mg BID > Trazadone 25mg QD > Ambien 5mg QD > Depakote 250mg BID > Tamsulosin 0.4mg QD > Seroquel 50mg BID > Norco 325 mg Q4H > Tylenol 325 mg PRN > Magneisum oxide 800mg PRN > > Thanks, > > > Sheri A. Farinha > Chief Executive Officer > NorCal Services for Deaf & Hard of Hearing > 4708 Roseville Rd, Suite 111 > North Highlands, CA 95660 > www.norcalcenter.org > Email: SFarinha@... > Pager: xoSheri@... > Telephone: > VP: (916)993-3040 or (916)626-4928 > > > > Re: Re: Drugs > > Hi, > > Depakote is used for seizures, migraines and bipolar mood disorder (manic depressive). They must have felt he was manic. They definitely needed a doctor's prescription for this one, BUT, some of the placements have standing orders for certain types of meds. They are usually things like tylenol, so I would be curious how they got to use Depakote...I would have to ask, myself. From what reading I've done, it isn't that uncommon to prescribe Depakote to LBD patients and it is safer than the anti-psychotics. I'm sure others will know more, however, as I'm fairly new to LBD myself (my Dad). > > Lori > Re: Drugs for incontinence > > Hi Imogene > > Sometimes I feel as though I am Jim's shadow but it is so necessary at the > moment. > > He cannot remember where to find the bathroom so I go with him every time. > > On the night of Christmas Day, he had the most disturbed sleep to date. > Between 2 am and 3 am he (= we) got up at least 6 times to go to the > bathroom ... I stopped counting after that ... followed by other trips at 4 > am, 5.30 and 6 am. By then I was absolutely wiped out. > > The next night I decided to see if my little theory worked - that is, if the > incontinence pills worked on the first night, then this could be a useful > way of letting me catch up on much needed sleep. > > It worked! And for that I was so thankful. I gave him one Desmopressin and > the only trips to the bathroom were at 11.30 pm and 5 am. Those solid blocks > of sleep made me feel like a million dollars the next morning, and able to > face things again. His sleep has been like this for the last two nights as > well, without any incontinence medication. > > It will be interesting to see what tonight brings ..... > > Elaine (61) from Sydney Australia > > Caring for Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms > began at least 5 years before. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 sheri how long has he been on that many mediccations, i too take a box full of meds, and alot of it is pain management, morphine, diluadid, morphine instant releaze, and i am getting back on neurontin. i know some of htose meds, like mag oxide the body needs for kidneys and other important body organs. i belive one is a stool softener.  i can personally say , that since i am an lbd'er. that not all drugs on the bad list are bad for ALL lbd'ers. ambien being a sleep aide, does that help him sleep all nite?? does he not have night terrors etc.  the depakote, you siad it was used for an agreesion issue i think. is this a new use for depakote??? i thought that depakote was generally for seizure disorder. but then neurontin is nmormally for seizures but has found to be wonderful for neuropthy.  seroquel i have nor had my father , never used so i cant say too much about that. sinemet is not on your list but niether myself nor my father can/could take, made the dr jekyll side of lbd come out.  norco is that a pain medicine and he takes tylenol, maybe instead lorcet can be substitued for both, my dad did well on lortab/lorcet, he took 10mg tab every bhours beucase his hip redislocated after surgery adn we opted not to have it reopererated on becuaes he couldnt/wouldnt wear the brace therefore the hip would continue dislocating. however daddy at taht point was about 200 lbs.  another point is that when adding /taking off/ changing any medicion  think like a turtle change in low daosages and very slowly. it is very very importatn that this is done as sudden change of dosages may cuase more negative reactions.  also, a sudden different mood swing or agitation can be caused by uti's or a cold or something. sudden agitation usually signals something is wrong, and majority of time it is a uti. could be a dirty diaper and daiper rash/bedsores too.  just a few thougths, hugs. sharon m daughter of leonard diag may 2004, passed 9/25/05 me, diag may 2007 Subject: Re: Drugs To: LBDcaregivers Date: Saturday, January 1, 2011, 9:15 AM  Sheri - These are way too many medications. Though I don't know what the first two are--and they may be necessary for something else--taking Depakoe AND Trazadone AND Seroquel AND Ambien are too much. I can't imagine how he is functioning. How could any of us function normally with all of these meds? Besides everything else, Ambien should never be given to anyone with LBD or to any elderly person. They react badly to it. Please try to find a doctor who will listen to you. Bring them information from the LBDA website if they don't have knowledge. If he was upset, our doctor has recommended finding out why first--before giving meds. I don't mean to sound harsh, but it's always upsetting to hear that the only way to stop someone's upsetment is with drugs. > > Hi Lori, thanks for this info. To clarify, (now that I got more info from my sister) Depakote is one of the meds he has been taking but usually at noon. There's a lot of meds he is prescribed to be taking. In fact, I finally got a list of all his meds so sharing below: > > Finasteride 5mg QD > Lisinopri 20mg. QD > Exelon 95mg/24hr QD > Docusate 100mg BID > Trazadone 25mg QD > Ambien 5mg QD > Depakote 250mg BID > Tamsulosin 0.4mg QD > Seroquel 50mg BID > Norco 325 mg Q4H > Tylenol 325 mg PRN > Magneisum oxide 800mg PRN > > Thanks, > > > Sheri A. Farinha > Chief Executive Officer > NorCal Services for Deaf & Hard of Hearing > 4708 Roseville Rd, Suite 111 > North Highlands, CA 95660 > www.norcalcenter.org > Email: SFarinha@... > Pager: xoSheri@... > Telephone: > VP: (916)993-3040 or (916)626-4928 > > > > Re: Re: Drugs > > Hi, > > Depakote is used for seizures, migraines and bipolar mood disorder (manic depressive). They must have felt he was manic. They definitely needed a doctor's prescription for this one, BUT, some of the placements have standing orders for certain types of meds. They are usually things like tylenol, so I would be curious how they got to use Depakote...I would have to ask, myself. From what reading I've done, it isn't that uncommon to prescribe Depakote to LBD patients and it is safer than the anti-psychotics. I'm sure others will know more, however, as I'm fairly new to LBD myself (my Dad). > > Lori > Re: Drugs for incontinence > > Hi Imogene > > Sometimes I feel as though I am Jim's shadow but it is so necessary at the > moment. > > He cannot remember where to find the bathroom so I go with him every time. > > On the night of Christmas Day, he had the most disturbed sleep to date. > Between 2 am and 3 am he (= we) got up at least 6 times to go to the > bathroom ... I stopped counting after that ... followed by other trips at 4 > am, 5.30 and 6 am. By then I was absolutely wiped out. > > The next night I decided to see if my little theory worked - that is, if the > incontinence pills worked on the first night, then this could be a useful > way of letting me catch up on much needed sleep. > > It worked! And for that I was so thankful. I gave him one Desmopressin and > the only trips to the bathroom were at 11.30 pm and 5 am. Those solid blocks > of sleep made me feel like a million dollars the next morning, and able to > face things again. His sleep has been like this for the last two nights as > well, without any incontinence medication. > > It will be interesting to see what tonight brings ..... > > Elaine (61) from Sydney Australia > > Caring for Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms > began at least 5 years before. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 Hi Norma, thanks for this feedback. I will share with my Mom and my sisters. I'm not sure why either except it is what the dr has ordered. It could be some are pain pills from when he fell and broke his ribs. My Mom plans to talk with the adminstrator next week and the dr too to discuss his meds. We too felt that it was a lot of meds but we aren't experts so tis why I wanted to share here. Thank you, Sheri A. Farinha Chief Executive Officer NorCal Services for Deaf & Hard of Hearing 4708 Roseville Rd, Suite 111 North Highlands, CA 95660 www.norcalcenter.org Email: SFarinha@... Pager: xoSheri@... Telephone: VP: (916)993-3040 or (916)626-4928 Re: Re: Drugs > > Hi, > > Depakote is used for seizures, migraines and bipolar mood disorder (manic depressive). They must have felt he was manic. They definitely needed a doctor's prescription for this one, BUT, some of the placements have standing orders for certain types of meds. They are usually things like tylenol, so I would be curious how they got to use Depakote...I would have to ask, myself. From what reading I've done, it isn't that uncommon to prescribe Depakote to LBD patients and it is safer than the anti-psychotics. I'm sure others will know more, however, as I'm fairly new to LBD myself (my Dad). > > Lori > Re: Drugs for incontinence > > Hi Imogene > > Sometimes I feel as though I am Jim's shadow but it is so necessary at the > moment. > > He cannot remember where to find the bathroom so I go with him every time. > > On the night of Christmas Day, he had the most disturbed sleep to date. > Between 2 am and 3 am he (= we) got up at least 6 times to go to the > bathroom ... I stopped counting after that ... followed by other trips at 4 > am, 5.30 and 6 am. By then I was absolutely wiped out. > > The next night I decided to see if my little theory worked - that is, if the > incontinence pills worked on the first night, then this could be a useful > way of letting me catch up on much needed sleep. > > It worked! And for that I was so thankful. I gave him one Desmopressin and > the only trips to the bathroom were at 11.30 pm and 5 am. Those solid blocks > of sleep made me feel like a million dollars the next morning, and able to > face things again. His sleep has been like this for the last two nights as > well, without any incontinence medication. > > It will be interesting to see what tonight brings ..... > > Elaine (61) from Sydney Australia > > Caring for Jim (82) who was offically diagnosed LBD Oct 2009, but symptoms > began at least 5 years before. > > Quote Link to comment Share on other sites More sharing options...
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