Re: Succumbed to Valium

[Guest guest]

He probably needed a rest anyway. Sounds like a rough day. I agree

with Valium being safe short term.        I have been thinking about

your boy and what may happen with antibiotics. I am thinking that

maybe his body will be working on so much that he will be more

calm,and probably be in bed.I would think that he would not be able

to attend school.He will want and need more rest and looking after. 

That was my sons reaction.Although there are many spaztic times with

my son also. He struggled for many months,then went part time,then I

totally pulled him out to home school him.He gets a lot of rest now

and is a little more calm probably from less stress and knows what

to expect everyday.Also,we have been doing the NIDS protocal and

Valtrex has been the main med that has calmed my son.The only thing

that has made such positives. He was on antibiotics first for 2-2and

one half years  then had to back up and do the NIDS protocal because

antibiotics werent working because of his immune system being

clogged with viruses.                   .I hope this makes sense,as

I am very tired but I wanted to reply asap.             Tammy F.

 

Hello

I had a phone consult with the LLMD today. She assured

us that Valium is safe and would be given for only

2-3months. She says his tests don't show PANDAS but rather

inflammation. We are still waiting to get back test from

Neuroscience for his neurotransmitters. 

Before I started on Valium he had another episode at

the blood draw place. He kept on making himself drop,

rolled in the gutter, tore his magazine, and cried. He

said, " sad."  He acted up for 45 min. I decided to

give the Valium but forgot to cut the dose. I ended up

dosing with too much 10mg! Holy cow! He is now asleep and

snoring!

Sent from my iPad

On May 19, 2011, at 2:07 PM, Fund

wrote:

 

It sounds like your son may also have

PANDAS. My son has slowly backslided the

past several years not knowing it was

PANDAS. I would try to find a PANDAS doc and

start getting him treated as it can get

worse and worse till it's dangerous for

everyone.  Monocycline is good for pandas

and lyme

 

Subject: Re:

Re: Help my

son bit Me

To:

"BorreliaMultipleInfectionsAndAutism"

<BorreliaMultipleInfectionsAndAutism >

Date:

Wednesday, May

18, 2011, 7:21

PM

 

I am in

ER getting

tetanus shot.

Lyme doctor

will call in 2

kinds of ABX

at Rite Aid

for 2 month

treatment. Yes

skin broke. My

son very angry

kicking and

broke almost

all dishes

while crying.

We have to put

him on

something fast

whether ABX or

behavior meds.

Life in my

house not

normal and not

safe for other

son. This will

make his

father very

angry oh no...

Fransel

From:

"Kim"

Sender:

BorreliaMultipleInfectionsAndAutism

Date:

Wed, 18

May 2011

23:06:06 -0000

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo:

BorreliaMultipleInfectionsAndAutism

Subject:

Re: Help my

son bit Mr

 

I'm so

sorry you are

going through

this

Fransel... How

are you doing?

If it were me,

the first

thing I would

grab is my

colloidal

silver and

spray it on

the wound. I

am assuming he

broke skin?

Kim

> > >

> >

> > >

> >>

My son

aggressed in

school again -

while on their

community walk

he made

himself fall

in an

embankment

with no

antecedents.

He has done

this walk many

timed. Then

back in the

classroom he

threw objects

and kicked

staff just

because he was

told to

re-staple his

artwork. It

may be a die

off from

pathogens. He

is not on

herbs or ABX

yet. Only

thing

different is a

slight

increase in

custom

probiotics d

lactate. We

will try 5HTP

50mg this

afternoon. I

want to ask

about zeolite

- this is a

binder like

Sonne's #7

right? I see

it is

available in

capsule form

from

nutramedix. Is

this the one I

should get for

mopping up in

lieu of

charcoal? Tks

to all.

> > >

> >>

Fransel

> > >

> >>

> > >

> >

> > >

> >

> > >

>

> > >

> >

>

[Guest guest]

Hi Fransel,The inflammation is probably causing a good deal of the problem. You can try ibuprofen which is an anti-inflammatory and see if you get a good result. I have heard many people say their children are calm when they have taken some. It makes sense. If there is inflammation in the brain or the intestines it  probably is causing pain. Hello I had a phone consult with the LLMD today. She assured us that Valium is safe and would be given for only 2-3months. She says his tests don't show PANDAS but rather inflammation. We are still waiting to get back test from Neuroscience for his neurotransmitters. Before I started on Valium he had another episode at the blood draw place. He kept on making himself drop, rolled in the gutter, tore his magazine, and cried. He said, " sad."  He acted up for 45 min. I decided to give the Valium but forgot to cut the dose. I ended up dosing with too much 10mg! Holy cow! He is now asleep and snoring!Sent from my iPad It sounds like your son may also have PANDAS. My son has slowly backslided the past several years not knowing it was PANDAS. I would try to find a PANDAS doc and start getting him treated as it can get worse and worse till it's dangerous for everyone.  Monocycline is good for pandas and lyme --- On Thu, 5/19/11, Fransel Wyrzykowski  wrote:Subject: Re: Re: Help my son bit MeTo: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism >Date: Thursday, May 19, 2011, 1:55 PM  My son has vocal tics like weird vocalizations, lots of rocking, facial tics with jaw dropping, hand flicking, non verbal, weird handwriting where he traces letters over and over, his drawings are repetitious and dark turning paper into one big blot of ink.Lyme definitely exacerbated his autistic characteristics. Too bad I have to deal with this when he is bigger and stronger.  I thought that all the biomeds of 12 years would make him more manageable as I got older.Sent from my iPad Often when having a PANDAS rage the eyes will become dialated and the kid will look panic stricken. My son has PANDAS but no tics. Tics are a very good sign of PANDAS. My son did have a vocal tic.....would make a weird noise many times throughout the day. --- On Wed, 5/18/11, franselw@...  wrote:From: franselw@... Subject: Re: Re: Help my son bit MeTo: "BorreliaMultipleInfectionsAndAutism" <BorreliaMultipleInfectionsAndAutism >Date: Wednesday, May 18, 2011, 10:51 PM Before my son attacked me he was covering his eyes and ears with hands over his head. I noticed that his jaw had flickering movements like there were critters under his skin. Has anyone witnessed this? Is this what they call a facial tic? My son has taken valtrax and zpak before. He rarely takes them. We just finished 1.5 months of Diflucan.FranselFrom: w3m1@...Sender: BorreliaMultipleInfectionsAndAutism Date: Wed, 18 May 2011 21:36:13 -0400 (EDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Help my son bit Me Fransel,have you ever tried the azithro with your son? Is there another ABX that's helped him in the past. Aggression and biting is usually a bacteria or pain issue here.My daughter was on biaxin and it must have been attacking something in my daughter's body but not quite killing it. we had to use azithromax to kill what ever it was so she could feelbetter and her behavior also got better. I'm sorry i don't remember if things just started getting really bad in the last month or so and what exactly were you doing as far as treatments? Maybe something will click for one of us so we can help you. Also remember it's a full moon which can make everything so much worse.If the valium will get you thru until you can figure out what's going then that's a good thing.i agree with whoever suggested zyto. It's helped us figure out what was happening during times like this.I'm sorry for all you're going thru right now. Hang in there it will get better. You're in my prayers.    Re: Help my son bit Mr I'm so sorry you are going through this Fransel... How are you doing? If it were me, the first thing I would grab is my colloidal silver and spray it on the wound. I am assuming he broke skin?Kim > > > > > > > > > >> My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.> > > > >> Fransel> > > > >> > > > > > > > > > >> > > >> > >> >>

[Guest guest]

FranselI fully agree with . I read your mail from this morning saying it's been a better day, so seems like it is the way to go. I hope he feels better and you also get some rest from all the stress lived in past days. Pls dont forget to take care of yourself too, some L-theanine and RR for mom will help you feel better too. In prayer for blessings for your family,IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Sat, 21 May 2011 11:07:58 -0700To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Succumbed to Valium Hi Fransel,The inflammation is probably causing a good deal of the problem. You can try ibuprofen which is an anti-inflammatory and see if you get a good result. I have heard many people say their children are calm when they have taken some. It makes sense. If there is inflammation in the brain or the intestines it  probably is causing pain. Hello I had a phone consult with the LLMD today. She assured us that Valium is safe and would be given for only 2-3months. She says his tests don't show PANDAS but rather inflammation. We are still waiting to get back test from Neuroscience for his neurotransmitters. Before I started on Valium he had another episode at the blood draw place. He kept on making himself drop, rolled in the gutter, tore his magazine, and cried. He said, " sad."  He acted up for 45 min. I decided to give the Valium but forgot to cut the dose. I ended up dosing with too much 10mg! Holy cow! He is now asleep and snoring!Sent from my iPad It sounds like your son may also have PANDAS. My son has slowly backslided the past several years not knowing it was PANDAS. I would try to find a PANDAS doc and start getting him treated as it can get worse and worse till it's dangerous for everyone.  Monocycline is good for pandas and lyme --- On Thu, 5/19/11, Fransel Wyrzykowski  wrote:Subject: Re: Re: Help my son bit MeTo: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism >Date: Thursday, May 19, 2011, 1:55 PM  My son has vocal tics like weird vocalizations, lots of rocking, facial tics with jaw dropping, hand flicking, non verbal, weird handwriting where he traces letters over and over, his drawings are repetitious and dark turning paper into one big blot of ink.Lyme definitely exacerbated his autistic characteristics. Too bad I have to deal with this when he is bigger and stronger.  I thought that all the biomeds of 12 years would make him more manageable as I got older.Sent from my iPad Often when having a PANDAS rage the eyes will become dialated and the kid will look panic stricken. My son has PANDAS but no tics. Tics are a very good sign of PANDAS. My son did have a vocal tic.....would make a weird noise many times throughout the day. --- On Wed, 5/18/11, franselw@...  wrote:From: franselw@... Subject: Re: Re: Help my son bit MeTo: "BorreliaMultipleInfectionsAndAutism" <BorreliaMultipleInfectionsAndAutism >Date: Wednesday, May 18, 2011, 10:51 PM Before my son attacked me he was covering his eyes and ears with hands over his head. I noticed that his jaw had flickering movements like there were critters under his skin. Has anyone witnessed this? Is this what they call a facial tic? My son has taken valtrax and zpak before. He rarely takes them. We just finished 1.5 months of Diflucan.FranselFrom: w3m1@...Sender: BorreliaMultipleInfectionsAndAutism Date: Wed, 18 May 2011 21:36:13 -0400 (EDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Help my son bit Me Fransel,have you ever tried the azithro with your son? Is there another ABX that's helped him in the past. Aggression and biting is usually a bacteria or pain issue here.My daughter was on biaxin and it must have been attacking something in my daughter's body but not quite killing it. we had to use azithromax to kill what ever it was so she could feelbetter and her behavior also got better. I'm sorry i don't remember if things just started getting really bad in the last month or so and what exactly were you doing as far as treatments? Maybe something will click for one of us so we can help you. Also remember it's a full moon which can make everything so much worse.If the valium will get you thru until you can figure out what's going then that's a good thing.i agree with whoever suggested zyto. It's helped us figure out what was happening during times like this.I'm sorry for all you're going thru right now. Hang in there it will get better. You're in my prayers.    Re: Help my son bit Mr I'm so sorry you are going through this Fransel... How are you doing? If it were me, the first thing I would grab is my colloidal silver and spray it on the wound. I am assuming he broke skin?Kim > > > > > > > > > >> My son aggressed in school again - while on their community walk he made himself fall in an embankment with no antecedents. He has done this walk many timed. Then back in the classroom he threw objects and kicked staff just because he was told to re-staple his artwork. It may be a die off from pathogens. He is not on herbs or ABX yet. Only thing different is a slight increase in custom probiotics d lactate. We will try 5HTP 50mg this afternoon. I want to ask about zeolite - this is a binder like Sonne's #7 right? I see it is available in capsule form from nutramedix. Is this the one I should get for mopping up in lieu of charcoal? Tks to all.> > > > >> Fransel> > > > >> > > > > > > > > > >> > > >> > >> >>