Guest guest Posted July 2, 2011 Report Share Posted July 2, 2011 While the WB may be classified as negative, he is still showing Borrelia specific bands as active. Also, remember that a negative WB does not mean that the infection is gone, just that the body is not manufacturing antibodies to various bands anymore. It is more a measure of immune activity than a measure of infection. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of MandichSent: Saturday, July 02, 2011 6:19 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Doug Coil Anyone try the Doug Coil on themselves or their ASD children? I saw the video where Rosner interviews the original inventor and his story is compelling. I've read several other stories of success with this type of machine. We saw my son's LLMD last month and he said that Rife machines DO work for killing spirochetes. They may even penetrate the cysts. After a year and half of abx, my son finally got a normal, negative Bartonella lab result. The borrelia result was Igenix and CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one had never showed up before. But, he's still as autistic as ever...We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this past week. We were told that 80% of the kids have yeast die-off and get flu-like symptoms within the first 4 dives. Nothing happened (as usual), so we start the regular, 40-dive month-long program next week as planned.__________ Information from ESET NOD32 Antivirus, version of virus signature database 6260 (20110702) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6260 (20110702) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6260 (20110702) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Thanks, Anne. Yes, I realize that we are not out of the lyme woods, yet. That's why I'm interested to know if anyone here as zapped those little buggers with the Doug Coil. It sounds like a powerful device.To: BorreliaMultipleInfectionsAndAutism Sent: Sat, July 2, 2011 11:09:53 PMSubject: RE: Doug Coil While the WB may be classified as negative, he is still showing Borrelia specific bands as active. Also, remember that a negative WB does not mean that the infection is gone, just that the body is not manufacturing antibodies to various bands anymore. It is more a measure of immune activity than a measure of infection. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of MandichSent: Saturday, July 02, 2011 6:19 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Doug Coil Anyone try the Doug Coil on themselves or their ASD children? I saw the video where Rosner interviews the original inventor and his story is compelling. I've read several other stories of success with this type of machine. We saw my son's LLMD last month and he said that Rife machines DO work for killing spirochetes. They may even penetrate the cysts. After a year and half of abx, my son finally got a normal, negative Bartonella lab result. The borrelia result was Igenix and CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one had never showed up before. But, he's still as autistic as ever...We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this past week. We were told that 80% of the kids have yeast die-off and get flu-like symptoms within the first 4 dives. Nothing happened (as usual), so we start the regular, 40-dive month-long program next week as planned.__________ Information from ESET NOD32 Antivirus, version of virus signature database 6260 (20110702) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6260 (20110702) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6260 (20110702) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Dr K uses green lazer to kill pathogens .. i have been wondering about possibly using it instead of a rife machine.. I was on rife yahooo group.. boy, those people are suffering with their herxes..shoot.. i do not want to do that..I am wondering about homeopathic drainage also.. olga > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > where Rosner interviews the original inventor and his story is compelling. I've > read several other stories of success with this type of machine. We saw my son's > LLMD last month and he said that Rife machines DO work for killing spirochetes. > They may even penetrate the cysts. After a year and half of abx, my son finally > got a normal, negative Bartonella lab result. The borrelia result was Igenix and > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > had never showed up before. But, he's still as autistic as ever... > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > past week. We were told that 80% of the kids have yeast die-off and get flu-like > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > regular, 40-dive month-long program next week as planned. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Curiously, what did you use to treat Bartonella and Lyme? I think it's unusual to have no improvement from treatments. A lot doctors who are making people well that mainstream docs haven't been able to will say that symptoms over-rule lab tests. I actually have not heard of anyone using rifes/zappers on children. I have heard of talk about people considering it, but no one stated results. These machines are targeted by the FDA at times for investigations, so there is some fear about talking about them on the forums. When I pondered through the " rifing " Yahoo Group, I saw recoveries taking years, while also using additional treatments. So, I wasn't impressed enough to try it. I do think that it's a cheap treatment, since you zap instead of having to keep buying pills. At a local Lyme meeting I went to where some people talk about rifing/zapping, they said that the die-off is very bad at times -- that people have to be very careful about zapping for a very short while at first or they can get extreme die-off symptoms. Most on the rifing forums talk about die-off and actually use the die-off reaction as a way to determine how long to zap and if they still have the targeted pathogen in them. Since your doc is familiar with them, make sure you ask him lots of questions. Love and prayers, Heidi N > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > where Rosner interviews the original inventor and his story is compelling. I've > read several other stories of success with this type of machine. We saw my son's > LLMD last month and he said that Rife machines DO work for killing spirochetes. > They may even penetrate the cysts. After a year and half of abx, my son finally > got a normal, negative Bartonella lab result. The borrelia result was Igenix and > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > had never showed up before. But, he's still as autistic as ever... > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > past week. We were told that 80% of the kids have yeast die-off and get flu-like > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > regular, 40-dive month-long program next week as planned. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Wht dose of minocycline are you using? Thanks. Doug Coil Anyone try the Doug Coil on themselves or their ASD children? I saw the video where Rosner interviews the original inventor and his story is compelling. I've read several other stories of success with this type of machine. We saw my son's LLMD last month and he said that Rife machines DO work for killing spirochetes. They may even penetrate the cysts. After a year and half of abx, my son finally got a normal, negative Bartonella lab result. The borrelia result was Igenix and CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one had never showed up before. But, he's still as autistic as ever... We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this past week. We were told that 80% of the kids have yeast die-off and get flu-like symptoms within the first 4 dives. Nothing happened (as usual), so we start the regular, 40-dive month-long program next week as planned. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 We did a few months of amox., followed by a couple of months of zith, a few more months of zith/bactrim/mepron, then a couple of months of roxy and weekend tindamax, a couple of weeks of augmentin xr, then about 5 months of rifampin and omnicef with the last couple months adding biaxin. Now, he's on minocycline. Yes, his condition is a tough nut to crack. Band 30 could cross-react with a virus, so we may do a viral panel on him. In the past, we did Valtrex for 3 months with no response. He did have a reaction to the mmr, so perhaps, the inherited lyme and co. spread the gas, and the mmr started the fire. Before lyme treatments, the 3rd of 4 trials with high dose Vitamin A did cause some kind of a die-off. Yes, rifing takes a long time as does everything else...To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 7:59:29 AMSubject: Re: Doug Coil Curiously, what did you use to treat Bartonella and Lyme? I think it's unusual to have no improvement from treatments. A lot doctors who are making people well that mainstream docs haven't been able to will say that symptoms over-rule lab tests. I actually have not heard of anyone using rifes/zappers on children. I have heard of talk about people considering it, but no one stated results. These machines are targeted by the FDA at times for investigations, so there is some fear about talking about them on the forums. When I pondered through the "rifing" Yahoo Group, I saw recoveries taking years, while also using additional treatments. So, I wasn't impressed enough to try it. I do think that it's a cheap treatment, since you zap instead of having to keep buying pills. At a local Lyme meeting I went to where some people talk about rifing/zapping, they said that the die-off is very bad at times -- that people have to be very careful about zapping for a very short while at first or they can get extreme die-off symptoms. Most on the rifing forums talk about die-off and actually use the die-off reaction as a way to determine how long to zap and if they still have the targeted pathogen in them. Since your doc is familiar with them, make sure you ask him lots of questions. Love and prayers, Heidi N > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > where Rosner interviews the original inventor and his story is compelling. I've > read several other stories of success with this type of machine. We saw my son's > LLMD last month and he said that Rife machines DO work for killing spirochetes. > They may even penetrate the cysts. After a year and half of abx, my son finally > got a normal, negative Bartonella lab result. The borrelia result was Igenix and > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > had never showed up before. But, he's still as autistic as ever... > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > past week. We were told that 80% of the kids have yeast die-off and get flu-like > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > regular, 40-dive month-long program next week as planned. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 50 mg 2x/day.To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 8:05:06 AMSubject: Re: Doug Coil Wht dose of minocycline are you using? Thanks. Doug Coil Anyone try the Doug Coil on themselves or their ASD children? I saw the video where Rosner interviews the original inventor and his story is compelling. I've read several other stories of success with this type of machine. We saw my son's LLMD last month and he said that Rife machines DO work for killing spirochetes. They may even penetrate the cysts. After a year and half of abx, my son finally got a normal, negative Bartonella lab result. The borrelia result was Igenix and CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one had never showed up before. But, he's still as autistic as ever... We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this past week. We were told that 80% of the kids have yeast die-off and get flu-like symptoms within the first 4 dives. Nothing happened (as usual), so we start the regular, 40-dive month-long program next week as planned. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Did you see worse symptoms, less symptoms, or a mixture of some new ones and some decreased ones? What I usually see with the posts about antibiotics, is improvements, then a month later, gobs of worse symptoms, than over time improvements. Lyme, and probably other pathogens, put extra toxins in you when they are being killed. There are many things to consider. Some may have other problems causing most of the symptoms, some may not be able to digest/absorb the oral meds, or have another condition that makes them unable to metabolize and use antibiotics. It could also be that the die-off is making it look as if you are not making headway. But, then again, I have heard of people being on antibiotics for 3 years before they could return to work, and they are considered the more fortunate ones. I just couldn't do antibiotics long-term, but we have used them short-term with improvements. So, we are definitely responders to antibiotics. There is no doubt we have bacteria making us ill. Sometimes you have to really look hard to see improvements. Does you doctor use anything for yeast, inflammation or to mop up toxins. These things contribute to the symptoms and stress out their bodies, which seem to increase their inability to get results from the antibiotics. Healthy bacteria in their intestines breaks down the extra ammonia that is created when bad bacteria die. So, if one were to take antibiotics to kill bad bacteria, plus lose the needed good bacteria, plus also have yeast, you have a toxic soup. Your body needs to have resources to help the antibiotics work, but the more stressed it is, the less it can. If you want to continue with antibiotics, I would find people who had success using them and see what they used in addition to the antibiotics to restore their health. I know that cod liver oil is often used by docs who prescribe antibiotics long-term and something is also used for yeast. I would look into supportive treatments. Their immune systems are off-balance, so only killing pathogens doesn't seem to work well. I have seen a lot of people try minocycline and everyone stopped shortly after starting due to their teeth becoming grey. Also, minocyline is linked to black thyroid. Not saying not to use it, just saying this is why I chose other treatments. Love and prayers, Heidi N > > > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > > where Rosner interviews the original inventor and his story is compelling. I've > > > > read several other stories of success with this type of machine. We saw my > >son's > > > > LLMD last month and he said that Rife machines DO work for killing spirochetes. > > > > They may even penetrate the cysts. After a year and half of abx, my son finally > > > > got a normal, negative Bartonella lab result. The borrelia result was Igenix > >and > > > > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > > > had never showed up before. But, he's still as autistic as ever... > > > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > > past week. We were told that 80% of the kids have yeast die-off and get > >flu-like > > > > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > > > > regular, 40-dive month-long program next week as planned. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 His worse symptoms are fear/anxiety and verbal stimming that drives us nuts. I would say that these are mostly about the same as they were 4 to 5 years ago. The fear/anxiety may have slightly improved as he is more willing to do a few new things, but he still covers his ears and makes a scene if we dare take him inside a store or restaurant. The only thing (and we have tried a whole slew of worthless supplements) that seemed to lesson the verbal stimming was a 5-day burst of low dose prednisone with the 8th day miraculously giving us a relatively calm and non-stimmy boy. So, there has got to be some autoimmune component to his condition (and yes, I know prednisone should not be used with those who have lyme.) However, we ran a bunch of tests for auto-immune antibodies and everything was negative. His CAM Kinase II was 142, but that was it. Since abx, his speech may have improved from a 2-year-old level to a 3-year-old, but that could be due to speech therapy or just age progression. He still has trouble answering questions without continual prompting and he repeats nonsensical words and expressions over and over. At times, he still laughs and cries for no apparent reason just like a drunkard. I'm not positive how a child is suppose to herx, but my idea for adults is that they can feel so miserable that they need to sit or lie down. He's never ever herxed in that matter and he won't tell us if his head, stomach, etc. hurt. We only can guess by observation and we've rarely seen any outward signs of discomfort. If the Doug Coil works as advertised, we'd at least know that we are killing something. On abx or naturals, we have no idea...He has been on an antifungal for the last 2 to 3 years per his DAN. It seems to keep the yeast in check as his stools have been in good shape for the most part. We recently added Coco-Kefir and that (or something similar) might be worth keeping. Minocycline was part of a recent ASD study by the NIMH, but the results haven't been released yet. I am aware of the teeth issue... I wanted to try a short course of doxy, but mino is suppose to be a little bit better for summer sun-related adverse effects, so our LLMD chose that direction. Anyway, we'll keep plugging along and hope for the best. Maybe Hbot will do something positive for him.From: faithiseverything To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 1:57:09 PMSubject: Re: Doug Coil Did you see worse symptoms, less symptoms, or a mixture of some new ones and some decreased ones? What I usually see with the posts about antibiotics, is improvements, then a month later, gobs of worse symptoms, than over time improvements. Lyme, and probably other pathogens, put extra toxins in you when they are being killed. There are many things to consider. Some may have other problems causing most of the symptoms, some may not be able to digest/absorb the oral meds, or have another condition that makes them unable to metabolize and use antibiotics. It could also be that the die-off is making it look as if you are not making headway. But, then again, I have heard of people being on antibiotics for 3 years before they could return to work, and they are considered the more fortunate ones. I just couldn't do antibiotics long-term, but we have used them short-term with improvements. So, we are definitely responders to antibiotics. There is no doubt we have bacteria making us ill. Sometimes you have to really look hard to see improvements. Does you doctor use anything for yeast, inflammation or to mop up toxins. These things contribute to the symptoms and stress out their bodies, which seem to increase their inability to get results from the antibiotics. Healthy bacteria in their intestines breaks down the extra ammonia that is created when bad bacteria die. So, if one were to take antibiotics to kill bad bacteria, plus lose the needed good bacteria, plus also have yeast, you have a toxic soup. Your body needs to have resources to help the antibiotics work, but the more stressed it is, the less it can. If you want to continue with antibiotics, I would find people who had success using them and see what they used in addition to the antibiotics to restore their health. I know that cod liver oil is often used by docs who prescribe antibiotics long-term and something is also used for yeast. I would look into supportive treatments. Their immune systems are off-balance, so only killing pathogens doesn't seem to work well. I have seen a lot of people try minocycline and everyone stopped shortly after starting due to their teeth becoming grey. Also, minocyline is linked to black thyroid. Not saying not to use it, just saying this is why I chose other treatments. Love and prayers, Heidi N > > > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > > where Rosner interviews the original inventor and his story is compelling. I've > > > > read several other stories of success with this type of machine. We saw my > >son's > > > > LLMD last month and he said that Rife machines DO work for killing spirochetes. > > > > They may even penetrate the cysts. After a year and half of abx, my son finally > > > > got a normal, negative Bartonella lab result. The borrelia result was Igenix > >and > > > > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > > > had never showed up before. But, he's still as autistic as ever... > > > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > > past week. We were told that 80% of the kids have yeast die-off and get > >flu-like > > > > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > > > > regular, 40-dive month-long program next week as planned. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Just a suggestion but...have you tried testing him for the MTHFR gene variant? Possibly try him on a ‘broken down’ version of folic acid (methyltetrahydrofolate) to see if that helps. It has been a tremendous help for our son. We have also added a anti-anxiety/antidepressant (Anafranil) and Adderall XR for focus (a few weeks after Anafranil). It has helps a lot! Our son was also positive for Lyme (IGeneX) and had a CamKinase of 194! We are seeing great results on the Anafranil and even more on Adderall. He also takes Amoxicillin as per LLMD. I wish you and your family luck. From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of MandichSent: July-03-11 6:53 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Doug Coil His worse symptoms are fear/anxiety and verbal stimming that drives us nuts. I would say that these are mostly about the same as they were 4 to 5 years ago. The fear/anxiety may have slightly improved as he is more willing to do a few new things, but he still covers his ears and makes a scene if we dare take him inside a store or restaurant. The only thing (and we have tried a whole slew of worthless supplements) that seemed to lesson the verbal stimming was a 5-day burst of low dose prednisone with the 8th day miraculously giving us a relatively calm and non-stimmy boy. So, there has got to be some autoimmune component to his condition (and yes, I know prednisone should not be used with those who have lyme.) However, we ran a bunch of tests for auto-immune antibodies and everything was negative. His CAM Kinase II was 142, but that was it. Since abx, his speech may have improved from a 2-year-old level to a 3-year-old, but that could be due to speech therapy or just age progression. He still has trouble answering questions without continual prompting and he repeats nonsensical words and expressions over and over. At times, he still laughs and cries for no apparent reason just like a drunkard. I'm not positive how a child is suppose to herx, but my idea for adults is that they can feel so miserable that they need to sit or lie down. He's never ever herxed in that matter and he won't tell us if his head, stomach, etc. hurt. We only can guess by observation and we've rarely seen any outward signs of discomfort. If the Doug Coil works as advertised, we'd at least know that we are killing something. On abx or naturals, we have no idea...He has been on an antifungal for the last 2 to 3 years per his DAN. It seems to keep the yeast in check as his stools have been in good shape for the most part. We recently added Coco-Kefir and that (or something similar) might be worth keeping. Minocycline was part of a recent ASD study by the NIMH, but the results haven't been released yet. I am aware of the teeth issue... I wanted to try a short course of doxy, but mino is suppose to be a little bit better for summer sun-related adverse effects, so our LLMD chose that direction. Anyway, we'll keep plugging along and hope for the best. Maybe Hbot will do something positive for him. To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 1:57:09 PMSubject: Re: Doug Coil Did you see worse symptoms, less symptoms, or a mixture of some new ones and some decreased ones? What I usually see with the posts about antibiotics, is improvements, then a month later, gobs of worse symptoms, than over time improvements. Lyme, and probably other pathogens, put extra toxins in you when they are being killed. There are many things to consider. Some may have other problems causing most of the symptoms, some may not be able to digest/absorb the oral meds, or have another condition that makes them unable to metabolize and use antibiotics. It could also be that the die-off is making it look as if you are not making headway. But, then again, I have heard of people being on antibiotics for 3 years before they could return to work, and they are considered the more fortunate ones. I just couldn't do antibiotics long-term, but we have used them short-term with improvements. So, we are definitely responders to antibiotics. There is no doubt we have bacteria making us ill. Sometimes you have to really look hard to see improvements. Does you doctor use anything for yeast, inflammation or to mop up toxins. These things contribute to the symptoms and stress out their bodies, which seem to increase their inability to get results from the antibiotics. Healthy bacteria in their intestines breaks down the extra ammonia that is created when bad bacteria die. So, if one were to take antibiotics to kill bad bacteria, plus lose the needed good bacteria, plus also have yeast, you have a toxic soup. Your body needs to have resources to help the antibiotics work, but the more stressed it is, the less it can. If you want to continue with antibiotics, I would find people who had success using them and see what they used in addition to the antibiotics to restore their health. I know that cod liver oil is often used by docs who prescribe antibiotics long-term and something is also used for yeast. I would look into supportive treatments. Their immune systems are off-balance, so only killing pathogens doesn't seem to work well. I have seen a lot of people try minocycline and everyone stopped shortly after starting due to their teeth becoming grey. Also, minocyline is linked to black thyroid. Not saying not to use it, just saying this is why I chose other treatments.Love and prayers,Heidi N> >> > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > > where Rosner interviews the original inventor and his story is compelling. I've > >> > read several other stories of success with this type of machine. We saw my > >son's > >> > LLMD last month and he said that Rife machines DO work for killing spirochetes. > >> > They may even penetrate the cysts. After a year and half of abx, my son finally > >> > got a normal, negative Bartonella lab result. The borrelia result was Igenix > >and > >> > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > > > had never showed up before. But, he's still as autistic as ever...> > > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > > past week. We were told that 80% of the kids have yeast die-off and get > >flu-like > >> > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > >> > regular, 40-dive month-long program next week as planned.> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Our pediatric neuropsychiatrist did some initial gene testing on him in January and wants us to see a geneticist to go over the results. The waiting list to see the geneticist is months long, though. We see her again for a followup at the end of this month. I will ask her about these particular medications. Thanks for sharing and I hope they keep doing wonders for your son! Best wishes for you and your family, too.From: and Freeman To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 8:25:18 PMSubject: RE: Re: Doug Coil Just a suggestion but...have you tried testing him for the MTHFR gene variant? Possibly try him on a ‘broken down’ version of folic acid (methyltetrahydrofolate) to see if that helps. It has been a tremendous help for our son. We have also added a anti-anxiety/antidepressant (Anafranil) and Adderall XR for focus (a few weeks after Anafranil). It has helps a lot! Our son was also positive for Lyme (IGeneX) and had a CamKinase of 194! We are seeing great results on the Anafranil and even more on Adderall. He also takes Amoxicillin as per LLMD. I wish you and your family luck. From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of MandichSent: July-03-11 6:53 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Doug Coil His worse symptoms are fear/anxiety and verbal stimming that drives us nuts. I would say that these are mostly about the same as they were 4 to 5 years ago. The fear/anxiety may have slightly improved as he is more willing to do a few new things, but he still covers his ears and makes a scene if we dare take him inside a store or restaurant. The only thing (and we have tried a whole slew of worthless supplements) that seemed to lesson the verbal stimming was a 5-day burst of low dose prednisone with the 8th day miraculously giving us a relatively calm and non-stimmy boy. So, there has got to be some autoimmune component to his condition (and yes, I know prednisone should not be used with those who have lyme.) However, we ran a bunch of tests for auto-immune antibodies and everything was negative. His CAM Kinase II was 142, but that was it. Since abx, his speech may have improved from a 2-year-old level to a 3-year-old, but that could be due to speech therapy or just age progression. He still has trouble answering questions without continual prompting and he repeats nonsensical words and expressions over and over. At times, he still laughs and cries for no apparent reason just like a drunkard. I'm not positive how a child is suppose to herx, but my idea for adults is that they can feel so miserable that they need to sit or lie down. He's never ever herxed in that matter and he won't tell us if his head, stomach, etc. hurt. We only can guess by observation and we've rarely seen any outward signs of discomfort. If the Doug Coil works as advertised, we'd at least know that we are killing something. On abx or naturals, we have no idea...He has been on an antifungal for the last 2 to 3 years per his DAN. It seems to keep the yeast in check as his stools have been in good shape for the most part. We recently added Coco-Kefir and that (or something similar) might be worth keeping. Minocycline was part of a recent ASD study by the NIMH, but the results haven't been released yet. I am aware of the teeth issue... I wanted to try a short course of doxy, but mino is suppose to be a little bit better for summer sun-related adverse effects, so our LLMD chose that direction. Anyway, we'll keep plugging along and hope for the best. Maybe Hbot will do something positive for him. To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 1:57:09 PMSubject: Re: Doug Coil Did you see worse symptoms, less symptoms, or a mixture of some new ones and some decreased ones? What I usually see with the posts about antibiotics, is improvements, then a month later, gobs of worse symptoms, than over time improvements. Lyme, and probably other pathogens, put extra toxins in you when they are being killed. There are many things to consider. Some may have other problems causing most of the symptoms, some may not be able to digest/absorb the oral meds, or have another condition that makes them unable to metabolize and use antibiotics. It could also be that the die-off is making it look as if you are not making headway. But, then again, I have heard of people being on antibiotics for 3 years before they could return to work, and they are considered the more fortunate ones. I just couldn't do antibiotics long-term, but we have used them short-term with improvements. So, we are definitely responders to antibiotics. There is no doubt we have bacteria making us ill. Sometimes you have to really look hard to see improvements. Does you doctor use anything for yeast, inflammation or to mop up toxins. These things contribute to the symptoms and stress out their bodies, which seem to increase their inability to get results from the antibiotics. Healthy bacteria in their intestines breaks down the extra ammonia that is created when bad bacteria die. So, if one were to take antibiotics to kill bad bacteria, plus lose the needed good bacteria, plus also have yeast, you have a toxic soup. Your body needs to have resources to help the antibiotics work, but the more stressed it is, the less it can. If you want to continue with antibiotics, I would find people who had success using them and see what they used in addition to the antibiotics to restore their health. I know that cod liver oil is often used by docs who prescribe antibiotics long-term and something is also used for yeast. I would look into supportive treatments. Their immune systems are off-balance, so only killing pathogens doesn't seem to work well. I have seen a lot of people try minocycline and everyone stopped shortly after starting due to their teeth becoming grey. Also, minocyline is linked to black thyroid. Not saying not to use it, just saying this is why I chose other treatments.Love and prayers,Heidi N> >> > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > > where Rosner interviews the original inventor and his story is compelling. I've > >> > read several other stories of success with this type of machine. We saw my > >son's > >> > LLMD last month and he said that Rife machines DO work for killing spirochetes. > >> > They may even penetrate the cysts. After a year and half of abx, my son finally > >> > got a normal, negative Bartonella lab result. The borrelia result was Igenix > >and > >> > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > > > had never showed up before. But, he's still as autistic as ever...> > > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > > past week. We were told that 80% of the kids have yeast die-off and get > >flu-like > >> > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > >> > regular, 40-dive month-long program next week as planned.> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Herxing in children with autism is an increase in their symptoms or additional symptoms of any nature, maybe panic attacks or seeing things not there or stimming. Stimming is a very general term, and when I have had people describe it, it seemed more like an OCD thing. As a matter of fact, stimming is very similar to OCD, so much so, that I feel that stimming may really be from the same things that cause OCD - mostly Strep and Bartonella causing the body to not absorb B vitamins like inositol. It's sad to hear that you have made little progress. Autism is an inflammation loop. The immune system is out of whack. The pathogens and toxins are part of this issue, but rebalancing the immune system is part of the recovery. I got my kids' symptoms to decrease quickly because I focused mostly on comforting their bodies with anti-inflammatories, liver support, digestion support, nutrition, and nerve protection. There are many things in the files section for inflammation and nerve protection and liver support. I didn't even have to target the pathogens to get them into regular school, but it did of course help. I have to say that turmeric and Modifilan are just amazing and we might be on turmeric forever. Ginger root also is amazing. Not sure how these mix with antibiotics because I can't remember what was given when they took them. Probably all three, but given at different times. Resveratrol is also made from food, and was probably the first pathogen-killer we used. It gave die-off, then improvements in the anxiety that you describe. Cod liver oil was very needed for them for the first 2 years, not so much after. There are some who have reported not responding to antibiotics who did respond to herbals or homeopathy. One of mine had the Bartonella rash, and many things made it decrease, but the thing that made it go away more so than any thing else was the homeopathic remedy, " Nervous " by Natures Sunshine. They are discontinuing their homeopathic line, sadly. There is lots of talk that when you are very ill with symptoms of autism, you must really work hard at ridding tickborne infections, killing the Babesia, then the Bartonella, then the Lyme. They seem to need to be killed in that order for many to be successful. The immune system needs to be in good working order for the antibiotics to work for some. Think of people who die who get pneumonia even though they were put on gobs of antibiotics. The docs say their immune systems were too weak. What this means is that antibiotics are not enough. We must also support the body to work well, and if the body was healthy to begin with, they would never have gotten the pneumonia. Viruses are a big problem, and I have heard of those with Lyme state that they did not get better until they killed viruses, so that is another area. Sorry that this is so difficult, but it really is. I stress using immune boosters, gentle anti-inflammatories, digestion support, liver support etc. I see that you have started using coconut kefir. I have heard great things from this. I hear cabbage kefir is great as well. Many have raved about it. Love and prayers, Heidi N > > > > > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > > > > > where Rosner interviews the original inventor and his story is compelling. > >I've > > > > > > > > read several other stories of success with this type of machine. We saw my > > >son's > > > > > > LLMD last month and he said that Rife machines DO work for killing > >spirochetes. > > > > > > > > They may even penetrate the cysts. After a year and half of abx, my son > >finally > > > > > > > > got a normal, negative Bartonella lab result. The borrelia result was Igenix > > > >and > > > > > > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > > > > > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that > >one > > > > > > > had never showed up before. But, he's still as autistic as ever... > > > > > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > > > > > past week. We were told that 80% of the kids have yeast die-off and get > > >flu-like > > > > > > symptoms within the first 4 dives. Nothing happened (as usual), so we start > >the > > > > > > > > regular, 40-dive month-long program next week as planned. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 , I have quite a bit of experience with the doug coil and have also used it on children for issues other than lyme. It's REALLY powerful, so if you decide to use it I urge to go very slowly. Like five or ten seconds of treatment and then wait a few days kind of slow. You will have to decide what you feel comfortable with. Like every other treatment it works better for some people than others. Generally speaking it seems many in the rife community have a philosophy of using very few other supplements while rifing, and I think that reduces their positive outcomes. I think it should be considered as just one piece to a comprehensive treatment protocol. For my personal case I found it to be quite ineffective against co-infections. Perhaps I have a different strain that wasn't responding to the usual frx indicated for those infections. As others have mentioned I think the real trick in lyme/autism conditions is restoring a healthy bioterrain and clearing toxins, and not so much killing infection. All the best, Thane > > Thanks, Anne. Yes, I realize that we are not out of the lyme woods, yet. That's > why I'm interested to know if anyone here as zapped those little buggers with > the Doug Coil. It sounds like a powerful device. > > > > > > ________________________________ > > To: BorreliaMultipleInfectionsAndAutism > Sent: Sat, July 2, 2011 11:09:53 PM > Subject: RE: Doug Coil > > > While the WB may be classified as negative, he is still showing Borrelia > specific bands as active. Also, remember that a negative WB does not mean that > the infection is gone, just that the body is not manufacturing antibodies to > various bands anymore. It is more a measure of immune activity than a measure > of infection. > > Anne M., BSN, MSN/IH, RN > mcfighter@... > > From:BorreliaMultipleInfectionsAndAutism > [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of > Mandich > Sent: Saturday, July 02, 2011 6:19 PM > To: BorreliaMultipleInfectionsAndAutism > Subject: Doug Coil > > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > where Rosner interviews the original inventor and his story is compelling. I've > read several other stories of success with this type of machine. We saw my son's > LLMD last month and he said that Rife machines DO work for killing spirochetes. > They may even penetrate the cysts. After a year and half of abx, my son finally > got a normal, negative Bartonella lab result. The borrelia result was Igenix and > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > had never showed up before. But, he's still as autistic as ever... > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > past week. We were told that 80% of the kids have yeast die-off and get flu-like > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > regular, 40-dive month-long program next week as planned. > > > > > __________ Information from ESET NOD32 Antivirus, version of virus signature > database 6260 (20110702) __________ > > The message was checked by ESET NOD32 Antivirus. > > http://www.eset.com > > __________ Information from ESET NOD32 Antivirus, version of virus signature > database 6260 (20110702) __________ > > The message was checked by ESET NOD32 Antivirus. > > http://www.eset.com > > __________ Information from ESET NOD32 Antivirus, version of virus signature > database 6260 (20110702) __________ > > The message was checked by ESET NOD32 Antivirus. > > http://www.eset.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 My daughter had a verbal stim day and night for 4 1/2 years. It went away in days with the use of bsaid and bioguard by the makers of pca-rx. It was replaced by hitting the mouth and that was replaced by picking a scab on her ear. The last 2 lasted a couple months each. I use ldm-100 on the ear and it pretty much healed. She just started up again with her ear 3 days ago so we're back to putting ldm 100 on it. Bsaid does have strep strain in probiotics if that's a concern, good luck. Thanks for minocycline info. Re: Doug Coil Did you see worse symptoms, less symptoms, or a mixture of some new ones and some decreased ones? What I usually see with the posts about antibiotics, is improvements, then a month later, gobs of worse symptoms, than over time improvements. Lyme, and probably other pathogens, put extra toxins in you when they are being killed. There are many things to consider. Some may have other problems causing most of the symptoms, some may not be able to digest/absorb the oral meds, or have another condition that makes them unable to metabolize and use antibiotics. It could also be that the die-off is making it look as if you are not making headway. But, then again, I have heard of people being on antibiotics for 3 years before they could return to work, and they are considered the more fortunate ones. I just couldn't do antibiotics long-term, but we have used them short-term with improvements. So, we are definitely responders to antibiotics. There is no doubt we have bacteria making us ill. Sometimes you have to really look hard to see improvements. Does you doctor use anything for yeast, inflammation or to mop up toxins. These things contribute to the symptoms and stress out their bodies, which seem to increase their inability to get results from the antibiotics. Healthy bacteria in their intestines breaks down the extra ammonia that is created when bad bacteria die. So, if one were to take antibiotics to kill bad bacteria, plus lose the needed good bacteria, plus also have yeast, you have a toxic soup. Your body needs to have resources to help the antibiotics work, but the more stressed it is, the less it can. If you want to continue with antibiotics, I would find people who had success using them and see what they used in addition to the antibiotics to restore their health. I know that cod liver oil is often used by docs who prescribe antibiotics long-term and something is also used for yeast. I would look into supportive treatments. Their immune systems are off-balance, so only killing pathogens doesn't seem to work well. I have seen a lot of people try minocycline and everyone stopped shortly after starting due to their teeth becoming grey. Also, minocyline is linked to black thyroid. Not saying not to use it, just saying this is why I chose other treatments. Love and prayers, Heidi N > > > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > > where Rosner interviews the original inventor and his story is compelling. I've > > > > read several other stories of success with this type of machine. We saw my > >son's > > > > LLMD last month and he said that Rife machines DO work for killing spirochetes. > > > > They may even penetrate the cysts. After a year and half of abx, my son finally > > > > got a normal, negative Bartonella lab result. The borrelia result was Igenix > >and > > > > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > > > had never showed up before. But, he's still as autistic as ever... > > > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > > past week. We were told that 80% of the kids have yeast die-off and get > >flu-like > > > > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > > > > regular, 40-dive month-long program next week as planned. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 Thane,Thanks for sharing your experiences with the Doug Coil. Yes, if I obtained one, I planned to only expose my son for a few seconds at a time. I think it might also be a good treatment for my wife with lyme who can't swallow pills. Rife on!Best Wishes,To: BorreliaMultipleInfectionsAndAutism Sent: Mon, July 4, 2011 7:52:25 AMSubject: Re: Doug Coil , I have quite a bit of experience with the doug coil and have also used it on children for issues other than lyme. It's REALLY powerful, so if you decide to use it I urge to go very slowly. Like five or ten seconds of treatment and then wait a few days kind of slow. You will have to decide what you feel comfortable with. Like every other treatment it works better for some people than others. Generally speaking it seems many in the rife community have a philosophy of using very few other supplements while rifing, and I think that reduces their positive outcomes. I think it should be considered as just one piece to a comprehensive treatment protocol. For my personal case I found it to be quite ineffective against co-infections. Perhaps I have a different strain that wasn't responding to the usual frx indicated for those infections. As others have mentioned I think the real trick in lyme/autism conditions is restoring a healthy bioterrain and clearing toxins, and not so much killing infection. All the best, Thane > > Thanks, Anne. Yes, I realize that we are not out of the lyme woods, yet. That's > why I'm interested to know if anyone here as zapped those little buggers with > the Doug Coil. It sounds like a powerful device. > > > > > > ________________________________ > > To: BorreliaMultipleInfectionsAndAutism > Sent: Sat, July 2, 2011 11:09:53 PM > Subject: RE: Doug Coil > > > While the WB may be classified as negative, he is still showing Borrelia > specific bands as active. Also, remember that a negative WB does not mean that > the infection is gone, just that the body is not manufacturing antibodies to > various bands anymore. It is more a measure of immune activity than a measure > of infection. > > Anne M., BSN, MSN/IH, RN > mcfighter@... > > From:BorreliaMultipleInfectionsAndAutism > [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of > Mandich > Sent: Saturday, July 02, 2011 6:19 PM > To: BorreliaMultipleInfectionsAndAutism > Subject: Doug Coil > > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > where Rosner interviews the original inventor and his story is compelling. I've > read several other stories of success with this type of machine. We saw my son's > LLMD last month and he said that Rife machines DO work for killing spirochetes. > They may even penetrate the cysts. After a year and half of abx, my son finally > got a normal, negative Bartonella lab result. The borrelia result was Igenix and > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > had never showed up before. But, he's still as autistic as ever... > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > past week. We were told that 80% of the kids have yeast die-off and get flu-like > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > regular, 40-dive month-long program next week as planned. > > > > > __________ Information from ESET NOD32 Antivirus, version of virus signature > database 6260 (20110702) __________ > > The message was checked by ESET NOD32 Antivirus. > > http://www.eset.com > > __________ Information from ESET NOD32 Antivirus, version of virus signature > database 6260 (20110702) __________ > > The message was checked by ESET NOD32 Antivirus. > > http://www.eset.com > > __________ Information from ESET NOD32 Antivirus, version of virus signature > database 6260 (20110702) __________ > > The message was checked by ESET NOD32 Antivirus. > > http://www.eset.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2011 Report Share Posted July 5, 2011 HBOT recommended? I thought it oxigenated lyme bacteria and makes things worse? Are you using the soft chamber? FranselSender: BorreliaMultipleInfectionsAndAutism Date: Sat, 2 Jul 2011 18:19:01 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Doug Coil Anyone try the Doug Coil on themselves or their ASD children? I saw the video where Rosner interviews the original inventor and his story is compelling. I've read several other stories of success with this type of machine. We saw my son's LLMD last month and he said that Rife machines DO work for killing spirochetes. They may even penetrate the cysts. After a year and half of abx, my son finally got a normal, negative Bartonella lab result. The borrelia result was Igenix and CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one had never showed up before. But, he's still as autistic as ever...We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this past week. Wewere told that 80% of the kids have yeast die-off and get flu-like symptoms within the first 4 dives. Nothing happened (as usual), so we start the regular, 40-dive month-long program next week as planned. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2011 Report Share Posted July 5, 2011 , did you get die-offs from this course of ABX treatment. Our doc treats aggressively too but we have not started. Still getting gut stronger. FranselSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 3 Jul 2011 08:04:04 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Doug Coil We did a few months of amox., followed by a couple of months of zith, a few more months of zith/bactrim/mepron, then a couple of months of roxy and weekend tindamax, a couple of weeks of augmentin xr, then about 5 months of rifampin and omnicef with the last couple months adding biaxin. Now, he's on minocycline. Yes, his condition is a tough nut to crack. Band 30 could cross-react with a virus, so we may do a viral panel on him. In the past, we did Valtrex for 3 months with no response. He did have a reaction to the mmr, so perhaps, the inherited lyme and co. spread the gas, and the mmr started the fire. Before lyme treatments, the 3rd of 4 trials with high dose Vitamin A did cause some kind of a die-off. Yes,rifing takes a long time as does everything else...To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 7:59:29 AMSubject: Re: Doug Coil Curiously, what did you use to treat Bartonella and Lyme? I think it's unusual to have no improvement from treatments. A lot doctors who are making people well that mainstream docs haven't been able to will say that symptoms over-rule lab tests. I actually have not heard of anyone using rifes/zappers on children. I have heard of talk about people considering it, but no one stated results. These machines are targeted by the FDA at times for investigations, so there is some fear about talking about them on the forums. When I pondered through the "rifing" Yahoo Group, I saw recoveries taking years, while also using additional treatments. So, I wasn't impressed enough to try it. I do think that it's a cheap treatment, since you zap instead of having to keep buying pills. At a local Lyme meeting I went to where some people talk about rifing/zapping, they said that the die-off is very bad at times -- that people have to be very careful aboutzapping for a very short while at first or they can get extreme die-off symptoms. Most on the rifing forums talk about die-off and actually use the die-off reaction as a way to determine how long to zap and if they still have the targeted pathogen in them. Since your doc is familiar with them, make sure you ask him lots of questions. Love and prayers,Heidi N >> Anyone try the Doug Coil on themselves or their ASD children? I saw the video > where Rosner interviews the original inventor and his story is compelling. I've > read several other stories of success with this type of machine. We saw my son's > LLMD last month and he said that Rife machines DO work for killing spirochetes. > They may even penetrate the cysts. After a year and half of abx, my son finally > got a normal, negative Bartonella lab result. The borrelia result was Igenix and > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > had never showed up before. But, he's still as autistic as ever...> > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > past week. We were told that 80% of the kids have yeast die-off and get flu-like > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > regular, 40-dive month-long program next week as planned.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2011 Report Share Posted July 5, 2011 The jury is still out. Some say it helps, some say it hurts, some say it doesn't do anything. We're getting 40 free dives and it helped wildcondor (http://www.wildcondor.com/hyperbaric.html) who tried everything through the years. She used the hard chamber. We're using the soft one. Here's another link that supports its use: http://www.hboinfo.com/bb_coinfections_hate_hbot.htmThe philanthropist running the operation swears by it and he's treated hundreds of disabled kids (some with lyme) through the years. We shall see.. Speaking of which, we are off to the "little blue house" for the next 4 weeks now... Be well. To: BorreliaMultipleInfectionsAndAutism <BorreliaMultipleInfectionsAndAutism >Sent: Tue, July 5, 2011 2:15:04 AMSubject: Re: Doug Coil HBOT recommended? I thought it oxigenated lyme bacteria and makes things worse? Are you using the soft chamber? Fransel Sender: BorreliaMultipleInfectionsAndAutism Date: Sat, 2 Jul 2011 18:19:01 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Doug Coil Anyone try the Doug Coil on themselves or their ASD children? I saw the video where Rosner interviews the original inventor and his story is compelling. I've read several other stories of success with this type of machine. We saw my son's LLMD last month and he said that Rife machines DO work for killing spirochetes. They may even penetrate the cysts. After a year and half of abx, my son finally got a normal, negative Bartonella lab result. The borrelia result was Igenix and CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one had never showed up before. But, he's still as autistic as ever...We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this past week. We were told that 80% of the kids have yeast die-off and get flu-like symptoms within the first 4 dives. Nothing happened (as usual), so we start the regular, 40-dive month-long program next week as planned. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2011 Report Share Posted July 5, 2011 I can't say for certainty that we got any die-off from abx. With high dose vit. A once and with diflucan once or twice we know we had die-off because of the rash and his reaction. With abx, any die-off he might have experienced was too subtle to notice.To: BorreliaMultipleInfectionsAndAutism <BorreliaMultipleInfectionsAndAutism >Sent: Tue, July 5, 2011 2:28:46 AMSubject: Re: Re: Doug Coil , did you get die-offs from this course of ABX treatment. Our doc treats aggressively too but we have not started. Still getting gut stronger. Fransel Sender: BorreliaMultipleInfectionsAndAutism Date: Sun, 3 Jul 2011 08:04:04 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Doug Coil We did a few months of amox., followed by a couple of months of zith, a few more months of zith/bactrim/mepron, then a couple of months of roxy and weekend tindamax, a couple of weeks of augmentin xr, then about 5 months of rifampin and omnicef with the last couple months adding biaxin. Now, he's on minocycline. Yes, his condition is a tough nut to crack. Band 30 could cross-react with a virus, so we may do a viral panel on him. In the past, we did Valtrex for 3 months with no response. He did have a reaction to the mmr, so perhaps, the inherited lyme and co. spread the gas, and the mmr started the fire. Before lyme treatments, the 3rd of 4 trials with high dose Vitamin A did cause some kind of a die-off. Yes, rifing takes a long time as does everything else...To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 7:59:29 AMSubject: Re: Doug Coil Curiously, what did you use to treat Bartonella and Lyme? I think it's unusual to have no improvement from treatments. A lot doctors who are making people well that mainstream docs haven't been able to will say that symptoms over-rule lab tests. I actually have not heard of anyone using rifes/zappers on children. I have heard of talk about people considering it, but no one stated results. These machines are targeted by the FDA at times for investigations, so there is some fear about talking about them on the forums. When I pondered through the "rifing" Yahoo Group, I saw recoveries taking years, while also using additional treatments. So, I wasn't impressed enough to try it. I do think that it's a cheap treatment, since you zap instead of having to keep buying pills. At a local Lyme meeting I went to where some people talk about rifing/zapping, they said that the die-off is very bad at times -- that people have to be very careful about zapping for a very short while at first or they can get extreme die-off symptoms. Most on the rifing forums talk about die-off and actually use the die-off reaction as a way to determine how long to zap and if they still have the targeted pathogen in them. Since your doc is familiar with them, make sure you ask him lots of questions. Love and prayers, Heidi N > > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > where Rosner interviews the original inventor and his story is compelling. I've > read several other stories of success with this type of machine. We saw my son's > LLMD last month and he said that Rife machines DO work for killing spirochetes. > They may even penetrate the cysts. After a year and half of abx, my son finally > got a normal, negative Bartonella lab result. The borrelia result was Igenix and > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > had never showed up before. But, he's still as autistic as ever... > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > past week. We were told that 80% of the kids have yeast die-off and get flu-like > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > regular, 40-dive month-long program next week as planned. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2011 Report Share Posted July 6, 2011 You are very lucky . Hope my son survived ABX treatment too as he has very leaky gut. FranselSender: BorreliaMultipleInfectionsAndAutism Date: Tue, 5 Jul 2011 04:02:04 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Doug Coil I can't say for certainty that we got any die-off from abx. With high dose vit. A once and with diflucan once or twice we know we had die-off because of the rash and his reaction. With abx, any die-off he might have experienced was too subtle to notice.To: BorreliaMultipleInfectionsAndAutism<BorreliaMultipleInfectionsAndAutism >Sent: Tue, July 5, 2011 2:28:46 AMSubject: Re: Re: Doug Coil , did you get die-offs from this course of ABX treatment. Our doc treats aggressively too but we have not started. Still getting gut stronger. FranselSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 3 Jul 2011 08:04:04 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Doug Coil We did a few months of amox., followed by a couple of months of zith, a few more months of zith/bactrim/mepron, then a couple of months of roxy and weekend tindamax, a couple of weeks of augmentin xr, then about 5 months of rifampin and omnicef with the last couple months adding biaxin. Now, he's on minocycline. Yes, his condition is a tough nut to crack. Band 30 could cross-react with a virus, so we may do a viral panel on him. In the past, we did Valtrex for 3 months with no response. He did have a reaction to the mmr, so perhaps, the inherited lyme and co. spread the gas, and the mmr started the fire. Before lyme treatments, the 3rd of 4 trials with high dose Vitamin A did cause some kind of a die-off. Yes,rifing takes a long time as does everything else...To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 7:59:29 AMSubject: Re: Doug Coil Curiously, what did you use to treat Bartonella and Lyme? I think it's unusual to have no improvement from treatments. A lot doctors who are making people well that mainstream docs haven't been able to will say that symptoms over-rule lab tests. I actually have not heard of anyone using rifes/zappers on children. I have heard of talk about people considering it, but no one stated results. These machines are targeted by the FDA at times for investigations, so there is some fear about talking about them on the forums. When I pondered through the "rifing" Yahoo Group, I saw recoveries taking years, while also using additional treatments. So, I wasn't impressed enough to try it. I do think that it's a cheap treatment, since you zap instead of having to keep buying pills. At a local Lyme meeting I went to where some people talk about rifing/zapping, they said that the die-off is very bad at times -- that people have to be very careful aboutzapping for a very short while at first or they can get extreme die-off symptoms. Most on the rifing forums talk about die-off and actually use the die-off reaction as a way to determine how long to zap and if they still have the targeted pathogen in them. Since your doc is familiar with them, make sure you ask him lots of questions. Love and prayers,Heidi N >> Anyone try the Doug Coil on themselves or their ASD children? I saw the video > where Rosner interviews the original inventor and his story is compelling. I've > read several other stories of success with this type of machine. We saw my son's > LLMD last month and he said that Rife machines DO work for killing spirochetes. > They may even penetrate the cysts. After a year and half of abx, my son finally > got a normal, negative Bartonella lab result. The borrelia result was Igenix and > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > had never showed up before. But, he's still as autistic as ever...> > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > past week. We were told that 80% of the kids have yeast die-off and get flu-like > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > regular, 40-dive month-long program next week as planned.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2011 Report Share Posted July 6, 2011 Holy Basil and Cat's Claw are both great for stomach issues. Holy Basil helps me with acid reflux and heartburn. Cat's Claw helps to heal the gut as well as dealing with many viruses and pathogens.You are very lucky . Hope my son survived ABX treatment too as he has very leaky gut.FranselFrom: Mandich Sender: BorreliaMultipleInfectionsAndAutism Date: Tue, 5 Jul 2011 04:02:04 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Doug Coil I can't say for certainty that we got any die-off from abx. With high dose vit. A once and with diflucan once or twice we know we had die-off because of the rash and his reaction. With abx, any die-off he might have experienced was too subtle to notice.From: "franselw@..." To: BorreliaMultipleInfectionsAndAutism <BorreliaMultipleInfectionsAndAutism >Sent: Tue, July 5, 2011 2:28:46 AMSubject: Re: Re: Doug Coil , did you get die-offs from this course of ABX treatment. Our doc treats aggressively too but we have not started. Still getting gut stronger.FranselFrom: Mandich Sender: BorreliaMultipleInfectionsAndAutism Date: Sun, 3 Jul 2011 08:04:04 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Doug Coil We did a few months of amox., followed by a couple of months of zith, a few more months of zith/bactrim/mepron, then a couple of months of roxy and weekend tindamax, a couple of weeks of augmentin xr, then about 5 months of rifampin and omnicef with the last couple months adding biaxin. Now, he's on minocycline. Yes, his condition is a tough nut to crack. Band 30 could cross-react with a virus, so we may do a viral panel on him. In the past, we did Valtrex for 3 months with no response. He did have a reaction to the mmr, so perhaps, the inherited lyme and co. spread the gas, and the mmr started the fire. Before lyme treatments, the 3rd of 4 trials with high dose Vitamin A did cause some kind of a die-off. Yes, rifing takes a long time as does everything else...From: faithiseverything To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 7:59:29 AMSubject: Re: Doug Coil Curiously, what did you use to treat Bartonella and Lyme? I think it's unusual to have no improvement from treatments. A lot doctors who are making people well that mainstream docs haven't been able to will say that symptoms over-rule lab tests. I actually have not heard of anyone using rifes/zappers on children. I have heard of talk about people considering it, but no one stated results. These machines are targeted by the FDA at times for investigations, so there is some fear about talking about them on the forums. When I pondered through the "rifing" Yahoo Group, I saw recoveries taking years, while also using additional treatments. So, I wasn't impressed enough to try it. I do think that it's a cheap treatment, since you zap instead of having to keep buying pills. At a local Lyme meeting I went to where some people talk about rifing/zapping, they said that the die-off is very bad at times -- that people have to be very careful about zapping for a very short while at first or they can get extreme die-off symptoms. Most on the rifing forums talk about die-off and actually use the die-off reaction as a way to determine how long to zap and if they still have the targeted pathogen in them. Since your doc is familiar with them, make sure you ask him lots of questions. Love and prayers,Heidi N >> Anyone try the Doug Coil on themselves or their ASD children? I saw the video > where Rosner interviews the original inventor and his story is compelling. I've > read several other stories of success with this type of machine. We saw my son's > LLMD last month and he said that Rife machines DO work for killing spirochetes. > They may even penetrate the cysts. After a year and half of abx, my son finally > got a normal, negative Bartonella lab result. The borrelia result was Igenix and > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > had never showed up before. But, he's still as autistic as ever...> > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > past week. We were told that 80% of the kids have yeast die-off and get flu-like > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > regular, 40-dive month-long program next week as planned.> > > Quote Link to comment Share on other sites More sharing options...
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