Re: Re: New to lyme/autism

[Guest guest]

you tell what nutritional levels are at, you can do a simple blood test for this OATS test via urine and stool tests to see how EFAs are being absorbed

From: briannahall80

Sent: Thursday, April 21, 2011 5:07 PM

To: BorreliaMultipleInfectionsAndAutism

Subject: Re: New to lyme/autism

Hi Christel,Thank you for your feedback. How did you test for metabolic issues? Was this through a specialist or your primary doctor? There is a neurometabolic center here at UCSF. Has anyone on here gone to them?na>> yes to both I have my youngest with lyme and she is undersized. she has a metabolic disorder tided into her lyme and when we tested her growth hormons are off. so I would encourage you to look into that, as far as the one side I had a son that after vaccine injury crawled with one hand fisted instead of open. this can be a palsey type thing. and can be related to PANDAS> > > > From: briannahall80 > Sent: Monday, April 18, 2011 12:15 PM> To: BorreliaMultipleInfectionsAndAutism > Subject: New to lyme/autism> > > > Hello!> I am the mother of two young children (12 months and 29 months). We have recently found out that our family (me, my children, my mother, and probably husband) has lyme and co-infections. We sort of stumbled upon this by visiting with a DAN doctor when we became concerned that our son was showing signs of autism. I actually work in the field of autism and I am just astounded with the connection of lyme and autism. The past few months have been quite surreal in that I can't seem to wrap my brain around all of the information out out there. We are doing SCD, which was a huge undertaking, lots of supplements for methylation, and herbals/homeopathics for the lyme and viral load. We have seen progress in both of our children, but I am realizing that this is a long process and that the healing goes in regression/progression cycles, which can be very unnerving. I feel like I'm constantly questioning everything when we are in a regression.> > I am very glad to have found this group because we don't seem to "fit in" anywhere. There is a big autism community out there, but not a lot of awareness about the lyme/autism connection. For those of you who have been doing this for awhile I have a few questions:> > 1. My 12 month old daughter has had weakness on her right side since birth. She crawled with her hand flipped so that the top of her hand touched the floor. Now that she is walking, she has a very obvious limp. We had an MRI done at 6 months and she has no sign of stroke or tumor. Our DAN/LLMD says he has never seen this before, but I don't think he's treated many babies for lyme. My question is: Is this related to lyme? Did any of your children exhibit this when they were younger? She has babesia and bartonella co-infections. She is also very small for her age...is this possibly related?> > 2. Will the diet issues resolve as the infections resolve? For instance, will an oxalate or salicylate issue resolve as the body heals or is this something that never goes away? Are there tests to see if you have these issues? > > Thank you so much and sorry for the long post. I appreciate any input. We are in the Bay Area in CA. If there is anyone else in this area that knows of a support group or would like to get together please email me. > > Thanks,> na H>