RE: Anafranil

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The Anafranil is a tricyclic antidepressant and has calmed him down quite a bit without taking away his motivation. The Adderall is a stimulant and it has also helped his focus. I think every person is different. This is just my opinion BUT I feel like these poor kids (and adults) who have had attacks on the brain are not being helped by the proper meds. We can try to kill the invader with multiple Abx but they also may need other meds like antidepressants or anticonvulsant meds to restore balance to the brain. I have read a lot of what Dr. Amen Rxs to his patients and I think (again, JMO) that between the LLMD and other sources of expertise we can get our son back on track. From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of franselw@...Sent: July-05-11 4:07 AMTo: BorreliaMultipleInfectionsAndAutismSubject: Anafranil Hello . Are these behavior meds? They have helped? Just checking for options. Fransel Sender: BorreliaMultipleInfectionsAndAutism Date: Sun, 3 Jul 2011 21:25:18 -0300To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: RE: Re: Doug Coil Just a suggestion but...have you tried testing him for the MTHFR gene variant? Possibly try him on a ‘broken down’ version of folic acid (methyltetrahydrofolate) to see if that helps. It has been a tremendous help for our son. We have also added a anti-anxiety/antidepressant (Anafranil) and Adderall XR for focus (a few weeks after Anafranil). It has helps a lot! Our son was also positive for Lyme (IGeneX) and had a CamKinase of 194! We are seeing great results on the Anafranil and even more on Adderall. He also takes Amoxicillin as per LLMD. I wish you and your family luck. From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of MandichSent: July-03-11 6:53 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Doug Coil His worse symptoms are fear/anxiety and verbal stimming that drives us nuts. I would say that these are mostly about the same as they were 4 to 5 years ago. The fear/anxiety may have slightly improved as he is more willing to do a few new things, but he still covers his ears and makes a scene if we dare take him inside a store or restaurant. The only thing (and we have tried a whole slew of worthless supplements) that seemed to lesson the verbal stimming was a 5-day burst of low dose prednisone with the 8th day miraculously giving us a relatively calm and non-stimmy boy. So, there has got to be some autoimmune component to his condition (and yes, I know prednisone should not be used with those who have lyme.) However, we ran a bunch of tests for auto-immune antibodies and everything was negative. His CAM Kinase II was 142, but that was it. Since abx, his speech may have improved from a 2-year-old level to a 3-year-old, but that could be due to speech therapy or just age progression. He still has trouble answering questions without continual prompting and he repeats nonsensical words and expressions over and over. At times, he still laughs and cries for no apparent reason just like a drunkard. I'm not positive how a child is suppose to herx, but my idea for adults is that they can feel so miserable that they need to sit or lie down. He's never ever herxed in that matter and he won't tell us if his head, stomach, etc. hurt. We only can guess by observation and we've rarely seen any outward signs of discomfort. If the Doug Coil works as advertised, we'd at least know that we are killing something. On abx or naturals, we have no idea...He has been on an antifungal for the last 2 to 3 years per his DAN. It seems to keep the yeast in check as his stools have been in good shape for the most part. We recently added Coco-Kefir and that (or something similar) might be worth keeping. Minocycline was part of a recent ASD study by the NIMH, but the results haven't been released yet. I am aware of the teeth issue... I wanted to try a short course of doxy, but mino is suppose to be a little bit better for summer sun-related adverse effects, so our LLMD chose that direction. Anyway, we'll keep plugging along and hope for the best. Maybe Hbot will do something positive for him. To: BorreliaMultipleInfectionsAndAutism Sent: Sun, July 3, 2011 1:57:09 PMSubject: Re: Doug Coil Did you see worse symptoms, less symptoms, or a mixture of some new ones and some decreased ones? What I usually see with the posts about antibiotics, is improvements, then a month later, gobs of worse symptoms, than over time improvements. Lyme, and probably other pathogens, put extra toxins in you when they are being killed. There are many things to consider. Some may have other problems causing most of the symptoms, some may not be able to digest/absorb the oral meds, or have another condition that makes them unable to metabolize and use antibiotics. It could also be that the die-off is making it look as if you are not making headway. But, then again, I have heard of people being on antibiotics for 3 years before they could return to work, and they are considered the more fortunate ones. I just couldn't do antibiotics long-term, but we have used them short-term with improvements. So, we are definitely responders to antibiotics. There is no doubt we have bacteria making us ill. Sometimes you have to really look hard to see improvements. Does you doctor use anything for yeast, inflammation or to mop up toxins. These things contribute to the symptoms and stress out their bodies, which seem to increase their inability to get results from the antibiotics. Healthy bacteria in their intestines breaks down the extra ammonia that is created when bad bacteria die. So, if one were to take antibiotics to kill bad bacteria, plus lose the needed good bacteria, plus also have yeast, you have a toxic soup. Your body needs to have resources to help the antibiotics work, but the more stressed it is, the less it can. If you want to continue with antibiotics, I would find people who had success using them and see what they used in addition to the antibiotics to restore their health. I know that cod liver oil is often used by docs who prescribe antibiotics long-term and something is also used for yeast. I would look into supportive treatments. Their immune systems are off-balance, so only killing pathogens doesn't seem to work well. I have seen a lot of people try minocycline and everyone stopped shortly after starting due to their teeth becoming grey. Also, minocyline is linked to black thyroid. Not saying not to use it, just saying this is why I chose other treatments.Love and prayers,Heidi N> >> > Anyone try the Doug Coil on themselves or their ASD children? I saw the video > > where Rosner interviews the original inventor and his story is compelling. I've > >> > read several other stories of success with this type of machine. We saw my > >son's > >> > LLMD last month and he said that Rife machines DO work for killing spirochetes. > >> > They may even penetrate the cysts. After a year and half of abx, my son finally > >> > got a normal, negative Bartonella lab result. The borrelia result was Igenix > >and > >> > CDC negative, too. He only had a 41 IND for IGM and a 30 and 41 (double star) > > with 31 and 83-93 both IND for the IGG. The 30 came out of nowhere as that one > > > had never showed up before. But, he's still as autistic as ever...> > > > We did start minocycline as he is 8 now and we did 4 initial mHBOT dives this > > past week. We were told that 80% of the kids have yeast die-off and get > >flu-like > >> > symptoms within the first 4 dives. Nothing happened (as usual), so we start the > >> > regular, 40-dive month-long program next week as planned.> > > > > >>