Guest guest Posted July 23, 2011 Report Share Posted July 23, 2011 Another drug I would avoid is Propofol. I've read on Jacuelin McCandless site, that Propofol is thought to trigger mito desease in adults. My friend asked dr. K. about which sedation he would recomend and he named Versed ( midazolam) and Ketamine as the safest in North America. people also report good things about Sevoflurane, only 2-5 % of it is metabolized by the body, so its toxicity is minimal. Docs used Sevoflurane on my son 3 weeks ago, when he had surgery (removed tonsills and adenoids) and it felt like he didnt have any side effects, at least immidiately. Dina. > > Since there are many posts on the autism forums of parents stating their children either developed autism or had a significant increase in symptoms of autism or another disabling feature after nitrous or anesthesia, it's good to print off and keep such articles on hand in case we need it. I had one that became temporarily blind after receiving Nitrous at the dentist's to get a tooth pulled. He had been supplemented well with MB 12 and it didn't prevent the reaction, so in the future, I will be avoiding all Nitrous. I Googled and found that some people become permanently blind just be having Nitrous at the dentist's office. Shocking, isn't it. Anyhow, here's an interesting sharing of a nurse's experience and knowledge concerning children with autism. > > Anesthesia and ASD - an RN's perspective > > http://www.autism.com/fam_AnesthesiaandtheAutisticchild.asp > > Love and prayers, > > Heidi N > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2011 Report Share Posted July 24, 2011 Thanks so much, Dina and Heidi. This info is really timely, since we are considering ear tubes. We are trying the chiropractic route first, though. So far it's not helped the ears clear, although he is feeling much better. Bethany > > > > Since there are many posts on the autism forums of parents stating their children either developed autism or had a significant increase in symptoms of autism or another disabling feature after nitrous or anesthesia, it's good to print off and keep such articles on hand in case we need it. I had one that became temporarily blind after receiving Nitrous at the dentist's to get a tooth pulled. He had been supplemented well with MB 12 and it didn't prevent the reaction, so in the future, I will be avoiding all Nitrous. I Googled and found that some people become permanently blind just be having Nitrous at the dentist's office. Shocking, isn't it. Anyhow, here's an interesting sharing of a nurse's experience and knowledge concerning children with autism. > > > > Anesthesia and ASD - an RN's perspective > > > > http://www.autism.com/fam_AnesthesiaandtheAutisticchild.asp > > > > Love and prayers, > > > > Heidi N > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2011 Report Share Posted July 24, 2011 I also what to thank you Heidi & Tami!! This is also timely for us as just broke his arm....knowing about the Nitrous issues the docs & I worked around this (the doc was surprised I knew about the MB12 issues with Nitrous & worked well with me as we worked through resetting his arm...broken in 2 places). What this reminded me to do was pass this link/info to my desinated guardian/family in case something ever happens to me they would need to know this as well. At the same time I passed 3 medical personel (including contact phone #'s including cc's to those people reminding them of this) that I trust to be used as advisers as they've followed much of what/why we do (one of these is the pediatrician that I am helping recover her child....we had just worked together w/this for her child). A good reminder to all is Important! RitaG > > > > > > Since there are many posts on the autism forums of parents stating their children either developed autism or had a significant increase in symptoms of autism or another disabling feature after nitrous or anesthesia, it's good to print off and keep such articles on hand in case we need it. I had one that became temporarily blind after receiving Nitrous at the dentist's to get a tooth pulled. He had been supplemented well with MB 12 and it didn't prevent the reaction, so in the future, I will be avoiding all Nitrous. I Googled and found that some people become permanently blind just be having Nitrous at the dentist's office. Shocking, isn't it. Anyhow, here's an interesting sharing of a nurse's experience and knowledge concerning children with autism. > > > > > > Anesthesia and ASD - an RN's perspective > > > > > > http://www.autism.com/fam_AnesthesiaandtheAutisticchild.asp > > > > > > Love and prayers, > > > > > > Heidi N > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2011 Report Share Posted July 24, 2011 Dear Rita,Having this info timely given to important people is such a good idea. I am sorry to hear broke his arm, I wish him a prompt recovery. X0IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 24 Jul 2011 18:48:27 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: OT: Anesthesia and ASD - an RN's perspective I also what to thank you Heidi & Tami!!This is also timely for us as just broke his arm....knowing about the Nitrous issues the docs & I worked around this (the doc was surprised I knew about the MB12 issues with Nitrous & worked well with me as we worked through resetting his arm...broken in 2 places).What this reminded me to do was pass this link/info to my desinated guardian/family in case something ever happens to me they would need to know this as well. At the same time I passed 3 medical personel (including contact phone #'s including cc's to those people reminding them of this) that I trust to be used as advisers as they've followed much of what/why we do (one of these is the pediatrician that I am helping recover her child....we had just worked together w/this for her child).A good reminder to all is Important!RitaG> > >> > > Since there are many posts on the autism forums of parents stating their children either developed autism or had a significant increase in symptoms of autism or another disabling feature after nitrous or anesthesia, it's good to print off and keep such articles on hand in case we need it. I had one that became temporarily blind after receiving Nitrous at the dentist's to get a tooth pulled. He had been supplemented well with MB 12 and it didn't prevent the reaction, so in the future, I will be avoiding all Nitrous. I Googled and found that some people become permanently blind just be having Nitrous at the dentist's office. Shocking, isn't it. Anyhow, here's an interesting sharing of a nurse's experience and knowledge concerning children with autism.> > > > > > Anesthesia and ASD - an RN's perspective> > > > > > http://www.autism.com/fam_AnesthesiaandtheAutisticchild.asp> > > > > > Love and prayers,> > > > > > Heidi N> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2011 Report Share Posted July 24, 2011 Isa, Thank You So Much!!! I could not be prouder of how well has handled all of this! I'm of the firm belief at this point in his recovery that what we learn with these groups is invaluable & info before hand is far more helpful to our kids than trying to fix the mess after!!!!! XOXOXOX!!!! RitaG > > > > > > > > Since there are many posts on the autism forums of parents stating their children either developed autism or had a significant increase in symptoms of autism or another disabling feature after nitrous or anesthesia, it's good to print off and keep such articles on hand in case we need it. I had one that became temporarily blind after receiving Nitrous at the dentist's to get a tooth pulled. He had been supplemented well with MB 12 and it didn't prevent the reaction, so in the future, I will be avoiding all Nitrous. I Googled and found that some people become permanently blind just be having Nitrous at the dentist's office. Shocking, isn't it. Anyhow, here's an interesting sharing of a nurse's experience and knowledge concerning children with autism. > > > > > > > > Anesthesia and ASD - an RN's perspective > > > > > > > > http://www.autism.com/fam_AnesthesiaandtheAutisticchild.asp > > > > > > > > Love and prayers, > > > > > > > > Heidi N > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 Bethany, is there Salt Room (halochamber) next to where you live? We avoided ear tubes with my son by going there often for few weeks. But in his case fluid in his ears was caused by huge tonsils and adenoids pushing ang co.stricting natural fluid flow. Dina. > > > > > > Since there are many posts on the autism forums of parents stating their children either developed autism or had a significant increase in symptoms of autism or another disabling feature after nitrous or anesthesia, it's good to print off and keep such articles on hand in case we need it. I had one that became temporarily blind after receiving Nitrous at the dentist's to get a tooth pulled. He had been supplemented well with MB 12 and it didn't prevent the reaction, so in the future, I will be avoiding all Nitrous. I Googled and found that some people become permanently blind just be having Nitrous at the dentist's office. Shocking, isn't it. Anyhow, here's an interesting sharing of a nurse's experience and knowledge concerning children with autism. > > > > > > Anesthesia and ASD - an RN's perspective > > > > > > http://www.autism.com/fam_AnesthesiaandtheAutisticchild.asp > > > > > > Love and prayers, > > > > > > Heidi N > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 From time to time I share this on groups in case parents are reading and think that this fuss about anesthesia is not worth addressing (sorry if you've read it before).I have identical twin boys. We did not vaccinate them, fed them organic, no additives etc. The videos and pictures of them with their beautiful smiling faces and so alive when they are little shows that they were typically developing and identical in their development. They hit milestones within an hour of each other. One of my boys had surgery just after his second birthday, with general anesthesia and including nitrous. I noticed within a month that my son that had had surgery was not developing the same as his brother. Small differences but when everything happened within an hour in the past, it was noticeable. Within a couple months of this we began working with our incredible doctors. Now 4 1/2 years later, my son is doing really well. While not yet recovered, the untrained eye sees him as typical and I do know that we will get him fully recovered. However, it has been a long hard journey resulting from a one hour surgery.His NT twin has needed surgery for some time (obviously not on an emergency basis - the situation could get there someday) but we have put it off due to this experience. The NT twin has similar test results and is on a special diet, supplement program etc. He just hasn't had the "trigger pulled" and has remained NT.As Rita said - having the info before hand is so powerful. We carry this information with us - because we never know when our kids will have an emergency and need treatment. Great advice to pass this on to guardians and family - hadn't thought of that.Thanks to everyone for sharing your journeys. We learn so much from you.Isa,Thank You So Much!!!I could not be prouder of how well has handled all of this! I'm of the firm belief at this point in his recovery that what we learn with these groups is invaluable & info before hand is far more helpful to our kids than trying to fix the mess after!!!!!XOXOXOX!!!!RitaG> > > >> > > > Since there are many posts on the autism forums of parents stating their children either developed autism or had a significant increase in symptoms of autism or another disabling feature after nitrous or anesthesia, it's good to print off and keep such articles on hand in case we need it. I had one that became temporarily blind after receiving Nitrous at the dentist's to get a tooth pulled. He had been supplemented well with MB 12 and it didn't prevent the reaction, so in the future, I will be avoiding all Nitrous. I Googled and found that some people become permanently blind just be having Nitrous at the dentist's office. Shocking, isn't it. Anyhow, here's an interesting sharing of a nurse's experience and knowledge concerning children with autism.> > > > > > > > Anesthesia and ASD - an RN's perspective> > > > > > > > http://www.autism.com/fam_AnesthesiaandtheAutisticchild.asp> > > > > > > > Love and prayers,> > > > > > > > Heidi N> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 The salt room therapy looks amazing!! We live in Utah, though, and so far I can't find anything like that, just googling. If anyone out there knows otherwise, let me know. I did read about salt pipes...I wonder if I could get my child to do that? > > > > > > > > Since there are many posts on the autism forums of parents stating their children either developed autism or had a significant increase in symptoms of autism or another disabling feature after nitrous or anesthesia, it's good to print off and keep such articles on hand in case we need it. I had one that became temporarily blind after receiving Nitrous at the dentist's to get a tooth pulled. He had been supplemented well with MB 12 and it didn't prevent the reaction, so in the future, I will be avoiding all Nitrous. I Googled and found that some people become permanently blind just be having Nitrous at the dentist's office. Shocking, isn't it. Anyhow, here's an interesting sharing of a nurse's experience and knowledge concerning children with autism. > > > > > > > > Anesthesia and ASD - an RN's perspective > > > > > > > > http://www.autism.com/fam_AnesthesiaandtheAutisticchild.asp > > > > > > > > Love and prayers, > > > > > > > > Heidi N > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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