Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Have you considered Salt/C? Its simple, cheap and many many folks testify to its effectiveness. I have a lot of information about it and many other regimens that folks are using for Chronic Lyme. See my website. www.lyme-resource.com You can lead a person to a fact, but you can't make them think! - > Where should I start? > > My 4.5 year old daughter is starting to show signs of chronic > Lyme, particularly some neurological/psychiatric symptoms. > Our DAN feels it is time to see a LLMD, however the physician > he recommends has a 9 month wait list to start the process of > seeing her, so it would likely be a year before we would > actually get in. > > Where should I start? We've done an IGeneX wester blot in > the past and she was IgG positive on band 31. Our DAN then > ordered an IgG 31 kDa Epitope test which was also positive. > We're now going to do a complete coinfections panel as well > as an Elispot test (not sure what that one is). > > What is the best way I can educate myself to help her? Do > you have some recommended reading? I was looking at the 2011 > ILADS Conference in Toronto in October - would this be good > to attend? Any recommendations for a good LLMD we could get > in to see within a few months? Doesn't matter where, we will travel. > > Thank you for any advice! > Sheri > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Once the chronic symptoms set it, treatments may be for a very long time, and relapses happen a lot as well, after treatments have been stopped. Yes, it will be worth the time to learn as much as possible, because it will take a strategy to defeat pleomorphic pathogens. Much of what is given to the autism population is what is seen given to those with Lyme. For example, those with Lyme often eat organic, avoid wheat, etc. A lot of the autism docs are treating for Strep, which also treats Bartonella (commonly seen with Lyme). The thing with Lyme, and Dr. K's notes say this as well, is that it lowers your immune system strength, enabling a lot of pathogens to overgrow. So, just know that Lyme is just one problem. Worms, protozoa, viruses, and yeast also seem to be a problem for those with significant and chronic symptoms. So, you can work with your doc to treat the immune system in general, which will be a good start while you are waiting for a Lyme doc. Keep in mind that herbalists, homeopaths, and Naturopaths can also be knowledgeable in this area. Love and prayers, Heidi N > > My 4.5 year old daughter is starting to show signs of chronic Lyme, particularly some neurological/psychiatric symptoms. Our DAN feels it is time to see a LLMD, however the physician he recommends has a 9 month wait list to start the process of seeing her, so it would likely be a year before we would actually get in. > > Where should I start? We've done an IGeneX wester blot in the past and she was IgG positive on band 31. Our DAN then ordered an IgG 31 kDa Epitope test which was also positive. We're now going to do a complete coinfections panel as well as an Elispot test (not sure what that one is). > > What is the best way I can educate myself to help her? Do you have some recommended reading? I was looking at the 2011 ILADS Conference in Toronto in October - would this be good to attend? Any recommendations for a good LLMD we could get in to see within a few months? Doesn't matter where, we will travel. > > Thank you for any advice! > Sheri > Quote Link to comment Share on other sites More sharing options...
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