Re: Todays Surgery

[Guest guest]

So glad you all decided to go in! I'm sorry she is in so much pain but hopefully

they will get on top of it soon. Fantastic news on the legs though!!!!  HUGS,

Subject: Todays Surgery

To: tetheredspinalcord

Date: Friday, January 28, 2011, 9:13 PM

 

Beth had her surgery today, and sure enough she was tethered AGAIN.  The fifth,

I would like to think the last, but I won't get my hopes up.  Dr Grant said she

was stuck really tight, very low on the cord, lot's of scar tissue.  The nerves

were really compromised, and he said they just sent the monitors into a tizzy. 

There apparently had been a leak at some point that had healed itself.  He said

it could possibly have been oozing a small amount of CSF seeing as she was

having the headaches, but there was nothing obvious.  She was having some

bladder leakage with occasional incontinence, and no sensation from L1 down on

the right side, minimal on the left side, and had  consistently gotten weaker

to the point of only being able to slightly wiggle the toes on both feet. 

Still don't know the future of the bladder.  She has been in excruciating pain

with the bladder since waking up.  The legs are moving, at least at this point,

and if you even

get close to the feet she goes into a fit.  So, obviously the nerves were all

tangled up.  I have not been very happy with her pain control today.  They

began at 8:15 and finished up around 12:30, she has just now gotten easy enough

to go to sleep.   I am so glad we decided to go ahead and do the surgery.  I

just hope and pray that it helps with the pain.  The surgery in 09 didn't do a

lot to help with pain, We are just praying this time is different.  Thanks for

all of the thoughts and prayers, and I will keep you posted.

Livvie

[Guest guest]

I had severe pain with my first surgery, & the surgeon that dud my following

two agreed he would keep me very comfortable. He kept his promise. They had

me under conscious sedation for the first 4 days post-op. Mom says I was in

some pain, but I don't remember. Well, i have a handful of fleeting

memories, but nothing like what i went thru after the first Can u ask the

MD about doing this? Another issue is if she takes narcotics for chronic

pain mgmt, then it can take an even higher dose than they would normally use

bc her body is used to them in her system. I always end up going thru severe

withdrawal about a week post op bc the dose they have to use to control my

post op pain is so high. When I don't need it anymore, I stop using the PCA.

But the body just can go from Mt. Ecstasy to sea level in 2 days. So, they

typically end up treating my withdrawal symptoms (severe agitation & feeling

like I need to move everywhere & run a marathon, or handcycle for hours, as

the case may be) with Valium or similar Rx for 2-3 days until the symptoms

subside.

Sent from my iPhone

Beth had her surgery today, and sure enough she was tethered AGAIN. The

fifth, I would like to think the last, but I won't get my hopes up. Dr

Grant said she was stuck really tight, very low on the cord, lot's of scar

tissue. The nerves were really compromised, and he said they just sent the

monitors into a tizzy. There apparently had been a leak at some point that

had healed itself. He said it could possibly have been oozing a small

amount of CSF seeing as she was having the headaches, but there was nothing

obvious. She was having some bladder leakage with occasional incontinence,

and no sensation from L1 down on the right side, minimal on the left side,

and had consistently gotten weaker to the point of only being able to

slightly wiggle the toes on both feet. Still don't know the future of the

bladder. She has been in excruciating pain with the bladder since waking

up. The legs are moving, at least at this point, and if you even

get close to the feet she goes into a fit. So, obviously the nerves were

all tangled up. I have not been very happy with her pain control today.

They began at 8:15 and finished up around 12:30, she has just now gotten

easy enough to go to sleep. I am so glad we decided to go ahead and do the

surgery. I just hope and pray that it helps with the pain. The surgery in

09 didn't do a lot to help with pain, We are just praying this time is

different. Thanks for all of the thoughts and prayers, and I will keep you

posted.

Livvie