Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 I remember feeling the same way and was soooo happy to have this group at the time as several people told me what to expect. It will be great to get it overwith and not worrying about it anymore. Generally, you will be lying flat most likely on your back for at least the first 24 hours, some NS have you stay down longer. I was flat for 3 days due to severe headaches and dizziness. We have figured out after two surgeries that half of my battle is my reactions to the anesthesia and drugs so this is not likely to be someone else's experience. You may have those compression pads on your legs to prevent blood clots -- after the first day my legs did get itchy and sweaty but you can usually have them off for a bit as long as you are moving your legs. Although you are pretty well flat, nurses will move a pillow from under you every so often so you don't get bedsores -- eg you will be propped up a bit to your right, then your left side. You will likely be allowed to move your legs the whole time you are lying flat. I would strongly recommend having someone (friend or relative) with you during the day for the first 1-3 days until you are mobile. I found I needed more help than the nursing staff could give me as you are completely imobile. Once you can finally get up and moving things get so much better quickly -- the pain will decrease and you will just feel so much better overall. Once you b & b are working and you can walk and navigate stairs on your own you will likely be discharged. An occupational therapist will work with you to make sure you know your limitations for home and give you alternative ways of doing things (eg like dressing, etc) and help solve any other mobility issues, etc. I had to have a raised toiled seat and grabber (this is essential -- you don't realize how often you drop things til you have back surgery). Also, make sure your house is in order, things up high and some food in the fridge/freezer for when you get home. I needed someone full-time at home with me the first week to help me with dressing, showering and to make me meals. After that I could manage while my husband was at work if I had help in the morning showering and all my meal stuff for breakfast and lunch up high where I could reach it. Bring pillows for the car ride home from the hospital. Hmmm, sure there's lots more. I also did a lot of prep with a naturopath to boost my immune system before and after surgery. If nothing else, I'd make sure your vitamin D levels are high going near a hospital -- if your not already on vit D get on 2,000 units per day between now and then (unless you are one of the lucky one's in a sunny climate down south???). Please feel free to email me if you have any specific questions that I have not addressed. Dee To: tetheredspinalcord From: redgecko97@... Date: Sun, 6 Mar 2011 16:46:36 +0000 Subject: Post surgery jitters Hi everyone, I am expecting to have surger to untether within the next month (hopefully). Can someone tell my what to expect right after surgery? How do I lie in the bed? How dificult is it to move around? The not knowing is making me nervouse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Hi Dee, You are awesome! I'm sending this on to my husband and Mom so they know what to expect. They will both be by my side during this. I live in Tallahassee FL, but my surgery will be in Gainesville (over 2 hours away). I am not getting out much, so I'm going to follow your advise and start taking vitamin D. Thank you very much for sharing your experience! Kellie Subject: RE: Post surgery jitters To: tetheredspinalcord Date: Sunday, March 6, 2011, 12:11 PM I remember feeling the same way and was soooo happy to have this group at the time as several people told me what to expect. It will be great to get it overwith and not worrying about it anymore. Generally, you will be lying flat most likely on your back for at least the first 24 hours, some NS have you stay down longer. I was flat for 3 days due to severe headaches and dizziness. We have figured out after two surgeries that half of my battle is my reactions to the anesthesia and drugs so this is not likely to be someone else's experience. You may have those compression pads on your legs to prevent blood clots -- after the first day my legs did get itchy and sweaty but you can usually have them off for a bit as long as you are moving your legs. Although you are pretty well flat, nurses will move a pillow from under you every so often so you don't get bedsores -- eg you will be propped up a bit to your right, then your left side. You will likely be allowed to move your legs the whole time you are lying flat. I would strongly recommend having someone (friend or relative) with you during the day for the first 1-3 days until you are mobile. I found I needed more help than the nursing staff could give me as you are completely imobile. Once you can finally get up and moving things get so much better quickly -- the pain will decrease and you will just feel so much better overall. Once you b & b are working and you can walk and navigate stairs on your own you will likely be discharged. An occupational therapist will work with you to make sure you know your limitations for home and give you alternative ways of doing things (eg like dressing, etc) and help solve any other mobility issues, etc. I had to have a raised toiled seat and grabber (this is essential -- you don't realize how often you drop things til you have back surgery). Also, make sure your house is in order, things up high and some food in the fridge/freezer for when you get home. I needed someone full-time at home with me the first week to help me with dressing, showering and to make me meals. After that I could manage while my husband was at work if I had help in the morning showering and all my meal stuff for breakfast and lunch up high where I could reach it. Bring pillows for the car ride home from the hospital. Hmmm, sure there's lots more. I also did a lot of prep with a naturopath to boost my immune system before and after surgery. If nothing else, I'd make sure your vitamin D levels are high going near a hospital -- if your not already on vit D get on 2,000 units per day between now and then (unless you are one of the lucky one's in a sunny climate down south???). Please feel free to email me if you have any specific questions that I have not addressed. Dee To: tetheredspinalcord From: redgecko97@... Date: Sun, 6 Mar 2011 16:46:36 +0000 Subject: Post surgery jitters Hi everyone, I am expecting to have surger to untether within the next month (hopefully). Can someone tell my what to expect right after surgery? How do I lie in the bed? How dificult is it to move around? The not knowing is making me nervouse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Dee has great info. Try to go into the surgery as strong as possible; it will make your recovery go better. Also, I was very nauseous, so a motion sickness bag for the ride home was a necessity for me. And a shower bench was also needed in addition to the items Dee mentioned. And little things, like pre-moistened facial wipes so I didn't have to bend over the sink to wash my face. Once home from surgery, I tried to walk as much as possible, starting with a short walk, and then adding an additional mailbox or so with each subsequent walk. Comfortable loose clothing that didn't cling to my waist was essential, as were shoes that I could just slip into without bending over. Best of luck, Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Thank you patty. I still have the shower stool from my hysterectamy last year. Thanks for the reminder.  I'm really thankful for your comments as well as others. This group has calmed me way down about the whole process.  Thank you again!  Kellie Subject: Re: Post surgery jitters To: tetheredspinalcord Date: Sunday, March 6, 2011, 1:03 PM  Dee has great info. Try to go into the surgery as strong as possible; it will make your recovery go better. Also, I was very nauseous, so a motion sickness bag for the ride home was a necessity for me. And a shower bench was also needed in addition to the items Dee mentioned. And little things, like pre-moistened facial wipes so I didn't have to bend over the sink to wash my face. Once home from surgery, I tried to walk as much as possible, starting with a short walk, and then adding an additional mailbox or so with each subsequent walk. Comfortable loose clothing that didn't cling to my waist was essential, as were shoes that I could just slip into without bending over. Best of luck, Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Kellie -- you will be fine getting home -- I had a 5 hour trip (2 1/2 hour driving, 1 1/2 hour ferry) -- but just make sure your doctor etc knows you have to travel -- they may keep you a day or so longer until you are stronger to do the long trip home. Also, the morning of discharge make sure you take your pain meds as required to be as comfortable as possible. And you will likely be told to get out of the car every hour or so to stretch your legs. Yes, vit D is proven to boost your immunity against colds, flus, etc. I also had my husband get me " real " nutritious food from the " outside " once I was up eating again. The hospital food was horrid, hopefully better where you will be!!! I did get a shower chair too but found it hard to use, I just stood up and my husband helped me wash! Oh, that is another thing -- a shower mat was recommended to me which was a good idea -- so you don't slip on the tub. Am glad you have the support -- I think I would have died if my husband wasn't there to help me -- glad you have two people, that will make it easier on them (I think my husband was wiped after the ordeal of taking care of me as I was pretty demanding!). Dee To: tetheredspinalcord From: redgecko97@... Date: Sun, 6 Mar 2011 10:02:06 -0800 Subject: RE: Post surgery jitters Hi Dee, You are awesome! I'm sending this on to my husband and Mom so they know what to expect. They will both be by my side during this. I live in Tallahassee FL, but my surgery will be in Gainesville (over 2 hours away). I am not getting out much, so I'm going to follow your advise and start taking vitamin D. Thank you very much for sharing your experience! Kellie Subject: RE: Post surgery jitters To: tetheredspinalcord Date: Sunday, March 6, 2011, 12:11 PM I remember feeling the same way and was soooo happy to have this group at the time as several people told me what to expect. It will be great to get it overwith and not worrying about it anymore. Generally, you will be lying flat most likely on your back for at least the first 24 hours, some NS have you stay down longer. I was flat for 3 days due to severe headaches and dizziness. We have figured out after two surgeries that half of my battle is my reactions to the anesthesia and drugs so this is not likely to be someone else's experience. You may have those compression pads on your legs to prevent blood clots -- after the first day my legs did get itchy and sweaty but you can usually have them off for a bit as long as you are moving your legs. Although you are pretty well flat, nurses will move a pillow from under you every so often so you don't get bedsores -- eg you will be propped up a bit to your right, then your left side. You will likely be allowed to move your legs the whole time you are lying flat. I would strongly recommend having someone (friend or relative) with you during the day for the first 1-3 days until you are mobile. I found I needed more help than the nursing staff could give me as you are completely imobile. Once you can finally get up and moving things get so much better quickly -- the pain will decrease and you will just feel so much better overall. Once you b & b are working and you can walk and navigate stairs on your own you will likely be discharged. An occupational therapist will work with you to make sure you know your limitations for home and give you alternative ways of doing things (eg like dressing, etc) and help solve any other mobility issues, etc. I had to have a raised toiled seat and grabber (this is essential -- you don't realize how often you drop things til you have back surgery). Also, make sure your house is in order, things up high and some food in the fridge/freezer for when you get home. I needed someone full-time at home with me the first week to help me with dressing, showering and to make me meals. After that I could manage while my husband was at work if I had help in the morning showering and all my meal stuff for breakfast and lunch up high where I could reach it. Bring pillows for the car ride home from the hospital. Hmmm, sure there's lots more. I also did a lot of prep with a naturopath to boost my immune system before and after surgery. If nothing else, I'd make sure your vitamin D levels are high going near a hospital -- if your not already on vit D get on 2,000 units per day between now and then (unless you are one of the lucky one's in a sunny climate down south???). Please feel free to email me if you have any specific questions that I have not addressed. Dee To: tetheredspinalcord From: redgecko97@... Date: Sun, 6 Mar 2011 16:46:36 +0000 Subject: Post surgery jitters Hi everyone, I am expecting to have surger to untether within the next month (hopefully). Can someone tell my what to expect right after surgery? How do I lie in the bed? How dificult is it to move around? The not knowing is making me nervouse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Hi again Dee, I don't eat meat and I know they have a Whole Foods market there. If it gets bad, I know they will make a run for me. :-) So, as far as finding a bar or something for the bathroom, what do I look for (name of tool). I thought craigs list would be a good place to look for something like that. Dr. was told about my commute, but I plan on reminding him of everything when I'm down there on the 14th. Thanks again for all the advise. Subject: RE: Post surgery jitters To: tetheredspinalcord Date: Sunday, March 6, 2011, 12:11 PM I remember feeling the same way and was soooo happy to have this group at the time as several people told me what to expect. It will be great to get it overwith and not worrying about it anymore. Generally, you will be lying flat most likely on your back for at least the first 24 hours, some NS have you stay down longer. I was flat for 3 days due to severe headaches and dizziness. We have figured out after two surgeries that half of my battle is my reactions to the anesthesia and drugs so this is not likely to be someone else's experience. You may have those compression pads on your legs to prevent blood clots -- after the first day my legs did get itchy and sweaty but you can usually have them off for a bit as long as you are moving your legs. Although you are pretty well flat, nurses will move a pillow from under you every so often so you don't get bedsores -- eg you will be propped up a bit to your right, then your left side. You will likely be allowed to move your legs the whole time you are lying flat. I would strongly recommend having someone (friend or relative) with you during the day for the first 1-3 days until you are mobile. I found I needed more help than the nursing staff could give me as you are completely imobile. Once you can finally get up and moving things get so much better quickly -- the pain will decrease and you will just feel so much better overall. Once you b & b are working and you can walk and navigate stairs on your own you will likely be discharged. An occupational therapist will work with you to make sure you know your limitations for home and give you alternative ways of doing things (eg like dressing, etc) and help solve any other mobility issues, etc. I had to have a raised toiled seat and grabber (this is essential -- you don't realize how often you drop things til you have back surgery). Also, make sure your house is in order, things up high and some food in the fridge/freezer for when you get home. I needed someone full-time at home with me the first week to help me with dressing, showering and to make me meals. After that I could manage while my husband was at work if I had help in the morning showering and all my meal stuff for breakfast and lunch up high where I could reach it. Bring pillows for the car ride home from the hospital. Hmmm, sure there's lots more. I also did a lot of prep with a naturopath to boost my immune system before and after surgery. If nothing else, I'd make sure your vitamin D levels are high going near a hospital -- if your not already on vit D get on 2,000 units per day between now and then (unless you are one of the lucky one's in a sunny climate down south???). Please feel free to email me if you have any specific questions that I have not addressed. Dee To: tetheredspinalcord From: redgecko97@... Date: Sun, 6 Mar 2011 16:46:36 +0000 Subject: Post surgery jitters Hi everyone, I am expecting to have surger to untether within the next month (hopefully). Can someone tell my what to expect right after surgery? How do I lie in the bed? How dificult is it to move around? The not knowing is making me nervouse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 yes - great additions Patty! Make sure you are doing the walking, but also make sure you don't overdo it -- do not try to be superwoman! There is a risk of a spinal leak after surgery -- I unfortunately got one on day 7, the day after I came home. And yes, it took me almost 6 months before I got out of my yoga pants! And I wore birks too the whole time -- there is no way you can tie up shoes yourself. Also, this did not happen with my detether, but after my spinal fusion my feet were VERY swollen. Anybody else have this? Luckily I could loosen up the straps on my sandals to get them on. I don't know if this could happen after a detether but seems to me it could -- actually my whole body was swollen after my spinal fusion -- I remember I couldn't fit into any of my form fitting tops. The one other thing I wish I'd had was a cane. I was given one after my spinal fusion -- I felt so much safer going out for walks with the cane, and people open doors for you, cars stop for you, etc, when you have one. I had such " jelly " legs after my detether and was always afraid to walk alone -- I think if I'd had a cane I would have felt more secure. So, if you get home and are not feeling sure on your feet out walking, don't be shy about getting one. Dee To: tetheredspinalcord From: peacamp@... Date: Sun, 6 Mar 2011 18:03:05 +0000 Subject: Re: Post surgery jitters Dee has great info. Try to go into the surgery as strong as possible; it will make your recovery go better. Also, I was very nauseous, so a motion sickness bag for the ride home was a necessity for me. And a shower bench was also needed in addition to the items Dee mentioned. And little things, like pre-moistened facial wipes so I didn't have to bend over the sink to wash my face. Once home from surgery, I tried to walk as much as possible, starting with a short walk, and then adding an additional mailbox or so with each subsequent walk. Comfortable loose clothing that didn't cling to my waist was essential, as were shoes that I could just slip into without bending over. Best of luck, Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 I didn't have a bar for the bathroom -- what worked for me was actually a raised toilet seat with bars attached. I got everything I needed from the Red Cross Equipment Loan program -- all I needed was a doctor's note -- does anyone know if you can get items like this from the American Red Cross or a similar organization? , your family doctor's office should know. The other thing I had this second surgery which would have been great for the detether was a bed rail -- it just fit under the mattress and was amazing -- made it so much easier to log roll out of bed. I got that from the Red Cross as well. My cane was covered by my extended health. It would be helpful to have a bar in the shower to hold onto but I didn't and managed just fine -- I found if I needed to I could grab onto the shower handle. But if you want to install one they would be available at any home hardware/depot type store. Ha ha -- Whole Foods was just down the street from my hospital -- I found smoothies to be a great -- a good easy way to get some protein and fruit into me. Dee To: tetheredspinalcord From: redgecko97@... Date: Sun, 6 Mar 2011 10:59:08 -0800 Subject: RE: Post surgery jitters Hi again Dee, I don't eat meat and I know they have a Whole Foods market there. If it gets bad, I know they will make a run for me. :-) So, as far as finding a bar or something for the bathroom, what do I look for (name of tool). I thought craigs list would be a good place to look for something like that. Dr. was told about my commute, but I plan on reminding him of everything when I'm down there on the 14th. Thanks again for all the advise. Subject: RE: Post surgery jitters To: tetheredspinalcord Date: Sunday, March 6, 2011, 12:11 PM I remember feeling the same way and was soooo happy to have this group at the time as several people told me what to expect. It will be great to get it overwith and not worrying about it anymore. Generally, you will be lying flat most likely on your back for at least the first 24 hours, some NS have you stay down longer. I was flat for 3 days due to severe headaches and dizziness. We have figured out after two surgeries that half of my battle is my reactions to the anesthesia and drugs so this is not likely to be someone else's experience. You may have those compression pads on your legs to prevent blood clots -- after the first day my legs did get itchy and sweaty but you can usually have them off for a bit as long as you are moving your legs. Although you are pretty well flat, nurses will move a pillow from under you every so often so you don't get bedsores -- eg you will be propped up a bit to your right, then your left side. You will likely be allowed to move your legs the whole time you are lying flat. I would strongly recommend having someone (friend or relative) with you during the day for the first 1-3 days until you are mobile. I found I needed more help than the nursing staff could give me as you are completely imobile. Once you can finally get up and moving things get so much better quickly -- the pain will decrease and you will just feel so much better overall. Once you b & b are working and you can walk and navigate stairs on your own you will likely be discharged. An occupational therapist will work with you to make sure you know your limitations for home and give you alternative ways of doing things (eg like dressing, etc) and help solve any other mobility issues, etc. I had to have a raised toiled seat and grabber (this is essential -- you don't realize how often you drop things til you have back surgery). Also, make sure your house is in order, things up high and some food in the fridge/freezer for when you get home. I needed someone full-time at home with me the first week to help me with dressing, showering and to make me meals. After that I could manage while my husband was at work if I had help in the morning showering and all my meal stuff for breakfast and lunch up high where I could reach it. Bring pillows for the car ride home from the hospital. Hmmm, sure there's lots more. I also did a lot of prep with a naturopath to boost my immune system before and after surgery. If nothing else, I'd make sure your vitamin D levels are high going near a hospital -- if your not already on vit D get on 2,000 units per day between now and then (unless you are one of the lucky one's in a sunny climate down south???). Please feel free to email me if you have any specific questions that I have not addressed. Dee To: tetheredspinalcord From: redgecko97@... Date: Sun, 6 Mar 2011 16:46:36 +0000 Subject: Post surgery jitters Hi everyone, I am expecting to have surger to untether within the next month (hopefully). Can someone tell my what to expect right after surgery? How do I lie in the bed? How dificult is it to move around? The not knowing is making me nervouse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Hi Kellie, I would add - ask for your own room if you can. That way people can sleep and help you more. My husband slept over most nights because everyone is right, the nurses will not be able to be there 24/7. Now I got some push back regarding my room. If you have a good relationship with your surgeon stress that you want your own space, call inpatient services etc. I got my own room after strongly requesting it, my insurance even ended up paying for it The pain may get a bit worse when you get home so be prepared for that and know who to call. Discuss it with your surgeon. I just had my mom and husband help me, also friends came over etc. I even worked from home a bit, so it's not unbearable. Just take it easy and focus on recovery. I had surgery November 23rd and was back at work Jan. Take care and best of luck! >Hi again Dee, > >I don't eat meat and I know they have a Whole Foods market there. If it gets bad, I know they will make a run for me. :-) > >So, as far as finding a bar or something for the bathroom, what do I look for (name of tool). I thought craigs list would be a good place to look for something like that. > >Dr. was told about my commute, but I plan on reminding him of everything when I'm down there on the 14th. > >Thanks again for all the advise. > > > > >Subject: RE: Post surgery jitters >To: tetheredspinalcord >Date: Sunday, March 6, 2011, 12:11 PM > >I remember feeling the same way and was soooo happy to have this group at the time as several people told me what to expect. It will be great to get it overwith and not worrying about it anymore. > >Generally, you will be lying flat most likely on your back for at least the first 24 hours, some NS have you stay down longer. I was flat for 3 days due to severe headaches and dizziness. We have figured out after two surgeries that half of my battle is my reactions to the anesthesia and drugs so this is not likely to be someone else's experience. You may have those compression pads on your legs to prevent blood clots -- after the first day my legs did get itchy and sweaty but you can usually have them off for a bit as long as you are moving your legs. Although you are pretty well flat, nurses will move a pillow from under you every so often so you don't get bedsores -- eg you will be propped up a bit to your right, then your left side. You will likely be allowed to move your legs the whole time you are lying flat. > >I would strongly recommend having someone (friend or relative) with you during the day for the first 1-3 days until you are mobile. I found I needed more help than the nursing staff could give me as you are completely imobile. Once you can finally get up and moving things get so much better quickly -- the pain will decrease and you will just feel so much better overall. Once you b & b are working and you can walk and navigate stairs on your own you will likely be discharged. An occupational therapist will work with you to make sure you know your limitations for home and give you alternative ways of doing things (eg like dressing, etc) and help solve any other mobility issues, etc. > >I had to have a raised toiled seat and grabber (this is essential -- you don't realize how often you drop things til you have back surgery). Also, make sure your house is in order, things up high and some food in the fridge/freezer for when you get home. I needed someone full-time at home with me the first week to help me with dressing, showering and to make me meals. After that I could manage while my husband was at work if I had help in the morning showering and all my meal stuff for breakfast and lunch up high where I could reach it. Bring pillows for the car ride home from the hospital. > >Hmmm, sure there's lots more. I also did a lot of prep with a naturopath to boost my immune system before and after surgery. If nothing else, I'd make sure your vitamin D levels are high going near a hospital -- if your not already on vit D get on 2,000 units per day between now and then (unless you are one of the lucky one's in a sunny climate down south???). > >Please feel free to email me if you have any specific questions that I have not addressed. > >Dee > >To: tetheredspinalcord >From: redgecko97@... >Date: Sun, 6 Mar 2011 16:46:36 +0000 >Subject: Post surgery jitters > > > >Hi everyone, > >I am expecting to have surger to untether within the next month (hopefully). Can someone tell my what to expect right after surgery? How do I lie in the bed? How dificult is it to move around? The not knowing is making me nervouse. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 yes, ditto that on your own room if you can. I requested that but at my hospital you only get your own room if one is available and you never know til you get onto the ward. I did get a semi private (one up from 4 to a room) though. My husband eyed an open room on day 2 and asked if we could move. I don't think that would have happened had he not seen it and asked for it. That is one thing I found very hard in the hospital -- to sleep. And also, as I was feeling so utterly awful, it was terrible having a " roomate " with a lot of visitors. The real healing starts when you get home to your own bed and food. Dee To: tetheredspinalcord From: lilacs007@... Date: Sun, 6 Mar 2011 12:56:23 -0800 Subject: RE: Post surgery jitters Hi Kellie, I would add - ask for your own room if you can. That way people can sleep and help you more. My husband slept over most nights because everyone is right, the nurses will not be able to be there 24/7. Now I got some push back regarding my room. If you have a good relationship with your surgeon stress that you want your own space, call inpatient services etc. I got my own room after strongly requesting it, my insurance even ended up paying for it The pain may get a bit worse when you get home so be prepared for that and know who to call. Discuss it with your surgeon. I just had my mom and husband help me, also friends came over etc. I even worked from home a bit, so it's not unbearable. Just take it easy and focus on recovery. I had surgery November 23rd and was back at work Jan. Take care and best of luck! >Hi again Dee, > >I don't eat meat and I know they have a Whole Foods market there. If it gets bad, I know they will make a run for me. :-) > >So, as far as finding a bar or something for the bathroom, what do I look for (name of tool). I thought craigs list would be a good place to look for something like that. > >Dr. was told about my commute, but I plan on reminding him of everything when I'm down there on the 14th. > >Thanks again for all the advise. > > > > >Subject: RE: Post surgery jitters >To: tetheredspinalcord >Date: Sunday, March 6, 2011, 12:11 PM > >I remember feeling the same way and was soooo happy to have this group at the time as several people told me what to expect. It will be great to get it overwith and not worrying about it anymore. > >Generally, you will be lying flat most likely on your back for at least the first 24 hours, some NS have you stay down longer. I was flat for 3 days due to severe headaches and dizziness. We have figured out after two surgeries that half of my battle is my reactions to the anesthesia and drugs so this is not likely to be someone else's experience. You may have those compression pads on your legs to prevent blood clots -- after the first day my legs did get itchy and sweaty but you can usually have them off for a bit as long as you are moving your legs. Although you are pretty well flat, nurses will move a pillow from under you every so often so you don't get bedsores -- eg you will be propped up a bit to your right, then your left side. You will likely be allowed to move your legs the whole time you are lying flat. > >I would strongly recommend having someone (friend or relative) with you during the day for the first 1-3 days until you are mobile. I found I needed more help than the nursing staff could give me as you are completely imobile. Once you can finally get up and moving things get so much better quickly -- the pain will decrease and you will just feel so much better overall. Once you b & b are working and you can walk and navigate stairs on your own you will likely be discharged. An occupational therapist will work with you to make sure you know your limitations for home and give you alternative ways of doing things (eg like dressing, etc) and help solve any other mobility issues, etc. > >I had to have a raised toiled seat and grabber (this is essential -- you don't realize how often you drop things til you have back surgery). Also, make sure your house is in order, things up high and some food in the fridge/freezer for when you get home. I needed someone full-time at home with me the first week to help me with dressing, showering and to make me meals. After that I could manage while my husband was at work if I had help in the morning showering and all my meal stuff for breakfast and lunch up high where I could reach it. Bring pillows for the car ride home from the hospital. > >Hmmm, sure there's lots more. I also did a lot of prep with a naturopath to boost my immune system before and after surgery. If nothing else, I'd make sure your vitamin D levels are high going near a hospital -- if your not already on vit D get on 2,000 units per day between now and then (unless you are one of the lucky one's in a sunny climate down south???). > >Please feel free to email me if you have any specific questions that I have not addressed. > >Dee > >To: tetheredspinalcord >From: redgecko97@... >Date: Sun, 6 Mar 2011 16:46:36 +0000 >Subject: Post surgery jitters > > > >Hi everyone, > >I am expecting to have surger to untether within the next month (hopefully). Can someone tell my what to expect right after surgery? How do I lie in the bed? How dificult is it to move around? The not knowing is making me nervouse. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Thanks or your response . Shands told me over the phone that they didn't have private rooms, but I'm going to be persistant when I go in Monday. Thanks for the tip. > > >Subject: RE: Post surgery jitters >To: tetheredspinalcord >Date: Sunday, March 6, 2011, 12:11 PM > >I remember feeling the same way and was soooo happy to have this group at the time as several people told me what to expect. It will be great to get it overwith and not worrying about it anymore. > >Generally, you will be lying flat most likely on your back for at least the first 24 hours, some NS have you stay down longer. I was flat for 3 days due to severe headaches and dizziness. We have figured out after two surgeries that half of my battle is my reactions to the anesthesia and drugs so this is not likely to be someone else's experience. You may have those compression pads on your legs to prevent blood clots -- after the first day my legs did get itchy and sweaty but you can usually have them off for a bit as long as you are moving your legs. Although you are pretty well flat, nurses will move a pillow from under you every so often so you don't get bedsores -- eg you will be propped up a bit to your right, then your left side. You will likely be allowed to move your legs the whole time you are lying flat. > >I would strongly recommend having someone (friend or relative) with you during the day for the first 1-3 days until you are mobile. I found I needed more help than the nursing staff could give me as you are completely imobile. Once you can finally get up and moving things get so much better quickly -- the pain will decrease and you will just feel so much better overall. Once you b & b are working and you can walk and navigate stairs on your own you will likely be discharged. An occupational therapist will work with you to make sure you know your limitations for home and give you alternative ways of doing things (eg like dressing, etc) and help solve any other mobility issues, etc. > >I had to have a raised toiled seat and grabber (this is essential -- you don't realize how often you drop things til you have back surgery). Also, make sure your house is in order, things up high and some food in the fridge/freezer for when you get home. I needed someone full-time at home with me the first week to help me with dressing, showering and to make me meals. After that I could manage while my husband was at work if I had help in the morning showering and all my meal stuff for breakfast and lunch up high where I could reach it.   Bring pillows for the car ride home from the hospital. > >Hmmm, sure there's lots more. I also did a lot of prep with a naturopath to boost my immune system before and after surgery. If nothing else, I'd make sure your vitamin D levels are high going near a hospital -- if your not already on vit D get on 2,000 units per day between now and then (unless you are one of the lucky one's in a sunny climate down south???). > >Please feel free to email me if you have any specific questions that I have not addressed. > >Dee > >To: tetheredspinalcord >From: redgecko97@... >Date: Sun, 6 Mar 2011 16:46:36 +0000 >Subject: Post surgery jitters > > > >Hi everyone, > >I am expecting to have surger to untether within the next month (hopefully). Can someone tell my what to expect right after surgery? How do I lie in the bed? How dificult is it to move around? The not knowing is making me nervouse. > >             > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Kellie, Vitamin D is fat soluble, so it is possible to get too much. > > > Hi Dee, > > You are awesome! I'm sending this on to my husband and Mom so they know > what to expect. They will both be by my side during this. I live in > Tallahassee FL, but my surgery will be in Gainesville (over 2 hours away). > I am not getting out much, so I'm going to follow your advise and start > taking vitamin D. > > Thank you very much for sharing your experience! > > Kellie > > > > > Subject: RE: Post surgery jitters > To: tetheredspinalcord > Date: Sunday, March 6, 2011, 12:11 PM > > > I remember feeling the same way and was soooo happy to have this group at > the time as several people told me what to expect. It will be great to get > it overwith and not worrying about it anymore. > > Generally, you will be lying flat most likely on your back for at least the > first 24 hours, some NS have you stay down longer. I was flat for 3 days > due to severe headaches and dizziness. We have figured out after two > surgeries that half of my battle is my reactions to the anesthesia and drugs > so this is not likely to be someone else's experience. You may have those > compression pads on your legs to prevent blood clots -- after the first day > my legs did get itchy and sweaty but you can usually have them off for a bit > as long as you are moving your legs. Although you are pretty well flat, > nurses will move a pillow from under you every so often so you don't get > bedsores -- eg you will be propped up a bit to your right, then your left > side. You will likely be allowed to move your legs the whole time you are > lying flat. > > I would strongly recommend having someone (friend or relative) with you > during the day for the first 1-3 days until you are mobile. I found I > needed more help than the nursing staff could give me as you are completely > imobile. Once you can finally get up and moving things get so much better > quickly -- the pain will decrease and you will just feel so much better > overall. Once you b & b are working and you can walk and navigate stairs on > your own you will likely be discharged. An occupational therapist will work > with you to make sure you know your limitations for home and give you > alternative ways of doing things (eg like dressing, etc) and help solve any > other mobility issues, etc. > > I had to have a raised toiled seat and grabber (this is essential -- you > don't realize how often you drop things til you have back surgery). Also, > make sure your house is in order, things up high and some food in the > fridge/freezer for when you get home. I needed someone full-time at home > with me the first week to help me with dressing, showering and to make me > meals. After that I could manage while my husband was at work if I had help > in the morning showering and all my meal stuff for breakfast and lunch up > high where I could reach it. Bring pillows for the car ride home from the > hospital. > > Hmmm, sure there's lots more. I also did a lot of prep with a naturopath > to boost my immune system before and after surgery. If nothing else, I'd > make sure your vitamin D levels are high going near a hospital -- if your > not already on vit D get on 2,000 units per day between now and then (unless > you are one of the lucky one's in a sunny climate down south???). > > Please feel free to email me if you have any specific questions that I have > not addressed. > > Dee > > To: tetheredspinalcord > From: redgecko97@... > Date: Sun, 6 Mar 2011 16:46:36 +0000 > Subject: Post surgery jitters > > > > Hi everyone, > > I am expecting to have surger to untether within the next month > (hopefully). Can someone tell my what to expect right after surgery? How do > I lie in the bed? How dificult is it to move around? The not knowing is > making me nervouse. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 I guess I was lucky that both the hospitals that I had my 3 surgeries I had a private room every time. The first hospital only has private rooms and the second hospital has only private rooms on their neuro floors. The only time I've had to share a room was when I was in IP rehab. When I got to IP rehab, I initially had a private room, but then was moved to a room that I shared with another person. Shepherd Center has recently undergone a major renovation and expansion and now all the rooms are private. Personally, I think that is kind of a bad idea. I was much happier with a roommate. The old set up had 2 bed and 4 bed rooms. The 4 person rooms were a little much and I " m glad I didn't have to share with that many people, but my roommie was the best! She has turned into a lifelong friend. When you are transferred to IP rehab and dealing with paralysis, it is nice to be able to talk with someone going through the same thing as you. When I was in a private room, that was just too much time to myself and in my head. Not healthy. But I guess I am just lucky that all my hospital rooms were private. Jenn > > yes, ditto that on your own room if you can. I requested that but at my > hospital you only get your own room if one is available and you never know > til you get onto the ward. I did get a semi private (one up from 4 to a > room) though. My husband eyed an open room on day 2 and asked if we could > move. I don't think that would have happened had he not seen it and asked > for it. That is one thing I found very hard in the hospital -- to sleep. > And also, as I was feeling so utterly awful, it was terrible having a > " roomate " with a lot of visitors. The real healing starts when you get > home to your own bed and food. > > Dee > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 I was told to walk. I was instructed to walk 3 times a day. Starting by walking to my mailbox and back. Then every 1-2 days to increase the distance by one mailbox (this all assumes you live in a typical neighborhood and you're not out in the country where your mailbox is 1/2 mile away and the closest neighbor is 1 mile away - LOL). Otherwise, just walk the distance of a typical driveway and add on the distance to a neighbor's house in a typical suburban neighborhood. As your distance gets longer, you just decrease the frequency to twice then once a day. Before I knew it, I was walking the entire neighborhood every evening. Jenn > > > Dee has great info. Try to go into the surgery as strong as possible; it > will make your recovery go better. Also, I was very nauseous, so a motion > sickness bag for the ride home was a necessity for me. And a shower bench > was also needed in addition to the items Dee mentioned. And little things, > like pre-moistened facial wipes so I didn't have to bend over the sink to > wash my face. > > Once home from surgery, I tried to walk as much as possible, starting with > a short walk, and then adding an additional mailbox or so with each > subsequent walk. Comfortable loose clothing that didn't cling to my waist > was essential, as were shoes that I could just slip into without bending > over. > > Best of luck, > Patty > > __. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 , It would make it easy if all houses were built with them installed. But, asthetically, most people don't want them. If someone is going in for surgery, they may not have the time or money to put in grab bars properly. I would hate for someone to have a contractor tell them that they can install them and they are really just installing them on the face, but never reinforcing them behind. In that case they may or may not support a person's full body weight. So, if someone cannot afford or does not want to or can't afford to have grab bars installed properly, then I'm sure the suction ones are at least a fair option - and they are 1) better than nothing and would probably work well especially if someone wants it to have something to hold on to for balance, and/or 2) want something and can't afford or don't want to have the regular ones installed correctly (meaning with the reinforcement behind the wall). If someone calls a contractor and they say, " sure. They are easy to install. We'll buy them and a couple screws and attach them to the shower wall " , they are wasting their money, as they will not be secure enough to hold a person's body weight. I mean, if that is how they are installed, a person may slip, fall, etc and get lucky that they were able to support their body weight, but that would just be luck. So, if they can't/won't get them installed with the reinforcements, then the section is probably just as good for balance - and a heck of a lot cheaper. Jenn > > > Jenn: > Re. grab bars - ALL baths/showers should have grab bars permanently > installed. It's a matter of safety for everyone, not just those who are > convalesing. The bars are not expensive (unless you want fancy brass like > we > did back when we remodeled a few years ago) and any handiman can install > them. > Yes, they have to be anchored securely. We live in a frame house but the > travertine contractor insisted on putting in a cement-like layer on the > walls > under the stone and the bars were attached with fasteners designed for > cement. > My in-laws were lucky enough to have a closet on the other side of the wall > in > their condo, so access was easy and it didn't take an artist to patch the > wall > inside the closet. There are ways ... I would not trust my body to > suction > cups. > > > Quote Link to comment Share on other sites More sharing options...
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